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Diagnosed triple neg/apocrine cancer

6 REPLIES 6

Re: Diagnosed triple neg/apocrine cancer

Apocrine cancer too. Not a lot of info out there and study abstracts have very small numbers. I think the largest I found had 3 patients. Progressing slowly along the path now. Good luck to all you fellow apocrine patients.

Re: Diagnosed triple neg/apocrine cancer

I think my fb accounts is in my profile but not sure if you can see it... Otherwise im edited link to fb account or pm me xxx

Re: Diagnosed triple neg/apocrine cancer

Thanks Lulu, I would like to join.   What do I do?

 

Anne

Re: Diagnosed triple neg/apocrine cancer

Anne

Also appears that apocrine tnbc is often androgen receptor pisitive and they are currently trialing AR drugs in the tnbc met group but will hopefully become available to primary bc in the future.... Its a drug called abiterone and its been successful in prostate cancer.... Prob wont mean much to you really as it will prob be a few years till it would become available in the primary setting but good to know.....


I have a wee tnbc face book group your welcome to join if your on fb let me know.

Good luck with treatment

Lulu xxx

Re: Diagnosed triple neg/apocrine cancer

Hi Jill

 

As I understand it, it is a very rare sub-type of triple negative, but the prognosis and treatent are currently the same as for TN. 

 

Regards

 

Anne

Re: Diagnosed triple neg/apocrine cancer

Hi Anne

 

That's a new one on me I am triple negative but not heard of apocrine? Read the link though and sounds like it is not "bad" news as seems to be very treatable.  Another thing is that triple negative usually is a grade 3 so that's good too that yours was a grade 2 so less aggressive.

Good luck for your appointment with onc and chemo if you do have to have it.

 

Jill

Diagnosed triple neg/apocrine cancer

I had my results today.  Lumpectomy and snb was 30 August. 

 

It's stage 1, grade 2  IDC, clear nodes and no vascular invasion.  However, it i, as I expected,  triple negative and also apparently apocrine, which I have found is a rare kind of breast cancer.  I understand this won't affect my treatment though. 

 

I am seeing an oncologist on 30 September with a view to starting chemo in October.  This will be 4-6 months followed by radiation.   I have been told I will be off work for 9 months.  I teach so this makes it more difficult to maintain while undergoing chemo due to infection risks. 

 

I am posting a link about apocrine cancer in case anyone else is affcted by it and wants information.  I can't find anything on this website about it. 

 

http://www.hopkinsmedicine.org/kimmel_cancer_center/centers/breast_cancer_program/rare_tumors.html/a...

 

 

Anne