Thanks to everyone who has written and given me support it has been such a great help. To know others have been through this and got to the other side really spurs me on. After my diagnosis, I had a mastectomy with node clearance and am now going to have chemo starting this week so the journey has started! Thanks again x
Thanks Ann for your reply. It has been a difficult journey so far but I now start chemo on Wednesday for 6 courses and then radio-theraphy afterwards. I will try and keep up with my fitness (I will try to still run but may have to settle with just walking the dog).
Wow, you have inspired me to keep up with the exercise, thanks. My oncologist said I was fine to keep running but it would be unlikely that I would be able to keep it up. We will see. I find it helps my mind and is a way for me to take control of things somehow.
So glad to hear that your treatment is now over and you can get back to normal life.
Thanks again you have given me hope that I can do it too! 🙂
Welcome to the BCC discussion forums where I am sure you will get lots of good, honest support from the many informed users of this site.
To help you along I have put for you below the link to one of BCC's publications you might find helpful, also our helpline team are just a free phone call away if you need to talk to someone in confidence. The helpline staff are there to offer both practical and emotional support so please don't hesitate to give them a call. 0808 800 6000
Hi, I too am new to this, having gone to the breast clinic on 30/7. I had a mammogram and ultrasound and was told it looked "suspicious" and had immediate biopsy of lump and lymph node. Found out 4/8 that it was definitely cancer but nothing in lymph nodes.
I have just turned 46 and too feel too young and healthy to have this (I also run regularly and go to the gym). I delayed seeing cons until after my week's holiday so didn't see him until 4/9. I have grade 2 mucinous cancer - a "special" type I am told! It is also ER+ and HER2+ which means I will likely have chemo and Herceptin after lumpectomy and sentinel node biopsy. The surgery is arranged for 10/9 but I need an ultrasound and probably insertion of a wire to help the doc find the lump the afternoon before. Also they need to treat me as if I have MRSA as not enough time to get swab results before op (cream up the nose and some horrible bodywash to use - lovely!).
I also keep feeling as if I am in a dream, that it must be someone else they are talking about but the more people I tell the more real it becomes. I have had a lot of time to come to terms with it (as best I can) and now I am just anxious to get something done and get on the treatment path, whatever that entails. The story seems to unravel bit by bit as you go along. They can't tell me anymore until after the surgery, whether further surgery or mastectomy is required (I hadn't even entertained that idea!) and exactly what treatment will be needed. I am lucky to have caught it early and the lump is relatively small. I have a very supportive family and friends and am trying to stay positive. I have 2 more days at work next week and then .... it begins!
Hope all is going well with you, at least here you know you are not alone.
Thank you for your words of kind support everyone. It really helps to know you understand. Not a lot of sleep last night but I guess that's to be expected.
I am going to try and start being positive today and pack for my holiday. I must pull myself together but every little ache I feel I fear it. I spent the night worrying and wish I could switch off my brain with a button on the side.
Thanks again for your support and I hope you all have a good positive day today as well.
You've had this awful shock of diagnosis out of the blue! Have you see my post lower down on this post? - I've just seen it and amazed I'd written so much, but I immediately felt so close to MysteryMouse and wanted to reach out to her; I'm hoping she's had some rest during the night, and I hope you did too. Anyway, I would have written something on the same lines to you, as it applies to you too.
You also have 2 grown up sons, like me, and yes, telling them won't be easy as you're still in shock. I know I found myself alone with my two, on a boat with 7 of us on board, but I took a big breath and stayed calm. You don't need to tell anyone else other than your partner until you are ready to. Many of us on here will be thinking of you as you start along this awful journey, you're not alone.
Take great care of yourself, and i'm sure your partner will be helping you to do just that.
gentle hugs, Jo x
Hi there,I was like you with forums.but it has been an eye opener.but a source of comfort.I had my surgery last week.wlc and snb,awaiting my result.I was diagnosed on the 4th June,had already booked a holiday before for 2weeks.I decided to go ahead with the holiday,went with my hubby and daughter who wasn't aware of my bc.she was so excited for the holiday,so we decided to tell her toward the end of the holiday.it wasn't easy but it had to be done.and now 2weeks on she is so supportive of me.and your family will.be has well.I was gutted like you,no family history reasonably fit.but I think it's just one of those things,but h.as long as we beat this horrible disease.you go and enjoy your holiday with your family you deserve it.by the way I had a fab time,a real tonic.let me know how you get on hugs xx
Hello, and welcome to the club that nobody wants to join. I imagine most of the women who come on here haven't written to forums before either, but sometimes we need to let out a cry to people who will really understand. You'll be feeling really battered at the moment, and the diagnosis will be racing around in your head, many of us find the wee small hours the worst, as we can try to keep busy in the daytime. Like many others, I have very tidy drawers and cupboards, and the charity shops were nearly filled to overflowing with all the bags of 'stuff' I took down there. It all helps to keep those awful thoughts at bay!
You'll probably find that some people on here will have had a similar diagnosis to you, and we've all had that awful time of having tests, waiting for results - which seems endless sometimes, and then been told the crushing news we couldn't quite believe could be true, but suddenly was. The bad film you mention sums it up well.
I haven't had exactly the same as you, but had cancer in my right breast and 3 lumpectomies 5 years ago, and a totally different cancer in my left breast this year and had a mastectomy following lobular cancer on 12th June.
I was given the diagnosis on the Tuesday following our weekend away for my husband's 70th birthday, and 3 days before a family long weekend celebration on a hired boat on a canal; I really didn't feel like having a cosy family time as I was so upset but didn't want to spoil it for everyone. But by the time the Friday morningwhen we were to set off came I was calmer, and all seemed to go well; I happened to be alone with my 2 sons at one stage, as we drifted lazily along the canal, and took the opportunity to tell them my news calmly and saying I didn't want any fuss made about it, I just needed to get on with it. They both gave me a hug and it wasn't mentioned again all weekend, but I felt content I'd told them.
That might not have been right for everybody, but it was for us; maybe you'll be able to tell your family on holiday or maybe you'll leave it till the end - whatever seems right at the time for you will be the right thing.
I'm a bit like you, healthy diet, don't smoke, keep reasonably fit (don't do the running like you though!), but it can happen to anyone - a lottery with a horrible prize! You're absolutely right, nothing matters except good health. But remember that we're really lucky to be living when we do, with all the treatments on offer, and in a part of the world where we can have these treatments. Results are far better than they were even a few years ago, and the chances of being healthy after its all over are so good.
Try to stay off the internet apart from this forum and BCC website; so much on the internet is out of date and can be very frightening. It's also a good idea to stay on this section of the forums for now as it's best to take small steps and not imagine treatments and effects on you until the time comes. Come on the forum for information, useful tips and to shout or moan as much as you need to - everybody can understand what you're going through - there's marvellous support here. If you need to talk to someone, the helpline people are fantastic; when I needed to talk to somebody other than my lovely husband, who has been marvellous, I phoned up, and the knowledgeable, friendly lady listened and spoke calmly and as though we had all the time in the world, and it helped me a great deal. Have a look at the leaflets available on the BCC website and send for those you would like - they are all free of charge, and very clearly written.
Take care, gentle hugs, Jo x
I don't normally write on forums. But I am going out of my mind with worry at the moment. My GP sent me for a mammogram and scans which I had last week and I ended up having biopsies from my right breast and also lymph glands in armpit too. The radiologist told me then that it was in her opionion cancer. I been today to get the results and I was hoping against hope that it would be clear or a mistake but I have stage/grade? 2 invasive duct cancer on my right side which has spread to my lymph glands. I am gutted. Even though I knew it was probable I am finding it hard to take in. It is like it is happening to someone else. A bad film.
Apparently I have to have MRI, bone scans and some other scan which I can't remember what (wait time of 3 weeks approx) and then fingers and toes crossed it hasn't spread. They will give then give me courses of chemo and then it will be a mastactomy on right side with more chemo and then radiotheraphy.
I am just dumbstruck. I am 47, no history in family, never smoked, rarely drink. I really thought I would never have to worry. I keep fit and run every day (only 3 miles) but it always helps with lifting my mood and I wonder if anyone else has carried on running through treatment and how was for you?
I am due to go on my hols with my family in 2 days and so am not going to tell them until after the holiday as don't wan't to spoil it all for them as my son and his girlfriend have looked forward to it for so long. (My husband knows and has been great).
I just want to survive and see grandchildren and be old. The things I did worry about I realise no longer matter.
Sorry to whine on but I suppose I am scared.
Thanks in advance to anyone who writes.