Sarah you sound so much more up beat this afternoon - beauty session and freebies sounds wonderful
Well done you.
I now have to see one of the BCN who will go though in detail about the op and sort out consents. No date but should be roundabout 2 weeks time
Did I see you have a date Sarah?
incidentally Matty was an ex cat's name, my name is Beryl
What an excellent result for you. No wonder you are smiling. It makes a change to hear some good news.xxx
That's FANTASTIC news Matty, delighted for you!
First time I have left hospital smiling
Cancer has not spread to lymph nodes, means I will not need chemo, probably not need radiotherapy as both patches have been grade 2.
Radiotherapy depends on tissue samples after op
Also consultant says I am suitable for implant at same time as mastectomy. He said it will give me a pert breast -
Can't believe I'm smiling but still have cancer
That was useful, Sandie. \i have been wondering what drains are and what to do.. Thanks
Hi, , drains are the wee tubes they leave in you so your body doesnt swell up or spring a leak I guess.
My friend who had a lumpectomy didnt have drains, her doctor bandaged her up.
As I had a masectomy they stitch you up. Then for me they put a couple of tubes in the lowest part of where my breast was. They stitch them in (bizarre) and wrap them with water proof tape so you are sealed. I had a double drain with a Y junction. This tube then goes to a flat round plastic container, about saucer size. Its got a spring so they compress it, this creates a vacumm and put in the tube ... the container holds any fluid from the wound. The container fills up it keeps the fluid moving with its small vacum effect.
The fluid can be blood and that goldie plasma that helps your body heal. They left mine in until it got down to 30ml a day . It started at 120ml.
I had a district nurse come and empty mine and check on me, but I know some ladies are taught to empty the drains and measure the fluid themselves. It isnt hard and other than accidently looping the tube over the door knobs on our bathroom vanity everytime I washed my hands, , was no trouble.
I had mine for about 9 days, average is about 14.
Getting them removed was a horrible thought but completely pain less. I had a nice fancy sticky plaster on it for a couple of days.
Honestly, no trouble at all. I was given a wee shoulder bag to carry mine around in, they are quite discreet, but my container had a wee clip for hanging it off my jammies if I needed. I was allowed to shower with it too. As I wasnt up to rolling around much in bed, I just clipped mine to the bottom of my fitted sheet..you just need to remember you're attached if you suddenly need a wee at 2am.
Hope thats helpful and not disturbing.
Hi Matty, just wanted to wish you well for tomorrow, will be thinking of you
Hi Marty.Just wanted to wish you luck for tomorrow . Once you have your plan you will feel much better. I am having 6 chemo first to shrink it then a mastectomy but need to decide if I want expander at the same time or should I just leave it and get a prosthesis. Can t decide yet. Also this thinking of requesting a double mastectomy as terrified it will come back. Any way Will be thinking of you.x
Thanks Seabreeze I have been using the cold cap. Had 2 sessions of chemo and have lost quite a bit off the top but not noticeable to anyone else yet so wig can stay in box for a bit longer _ hopefully forever but it's there if I need it.x
Well tomorrow I find out full treatment plan.
Results of Lymph Node biopsy and whether it's radiotherapy, just a mastectomy or the whole lot.
But as I've said before sometimes it is hard when the step keeps being made higher.
Am I the only one of our 'group' that finds it hard to know which thread to post on so end up saying same thing several times??
I was diagnosed with ILBC in October 2009, had lumpectomy but luckily no spread so rads and tamixofen for me. I am now about to come off tamoxifen so for what it's worth it does get easier. You do have days when you don't think about it and with time they get more and more.
Not helpful to the post subject but hope its good to know it does get easier 🙂
Keep smiling. You are not alone and many people know what you're going through. This time next year Rodders.......
Another suggestion - pile all pressies(unwrapped) up in room and tell them to sort it who's i who. Sress no arguments or swapping
I know that would have created a great deal of hilarity with my lot, for that matter still would!!!
Big hugs and positive thoughts coming your way.
I have no idea about an MRI biopsy but can only assume it's because it's the only way to see what they want to investigate.
Here at Matty house we are keeping Christmas very low key as well - Just keep looking forward to spring when hopefully treatments will either be over or nearly finished.
I am sure that your family will make it a cheerful day - as for wrapping stuff etc - stick one of those ribbons on everything
Positive my girl - did think at one time if it was double mastectomy it would be a level playing field - so to speak.
Non probs with getting a bra to look even either
All the best, keep smiling, remember it's been found, they are being careful, you will get through it
I have been planning my stages - get through Christmas, see new baby, get bone density etc
Every step is a step closer to being clear of the Beast
Just had phone call - next appointment where i'll get results of Lymph nodes and treatment plan is on January 2nd.
Have to decide - if Lymph nodes are clear - if I want an implant or not by then. Been humming and haing about it for a couple of weeks.
Strange isn't it seems like forever but in fact is a very short space of time,
I am had biopsy first as hoping for an implant whch is best if no radiotherapy.
No date but will see surgeon in New Year - as he explained I hit the staff holidays (sigh)Should be soon afterwards
I am already on the hormones though- Anastrozole
Am Ok about it - so far all my choice - except havig the Beast Cancer of course!
I have said before each thing is another step forward
Have just had Lymph nodes (sentinel) removed (Tuesday) prior to mastectomy. Caz29 like you I have a couple of small patches so it's boob off.
Feel a bit rough today. My throat is very sore and painful, has been since the anaesthetic.
Phoned doctors (Little voice) they said phone hospital. phoned hospital, they said phone doctor, phoned doctor (receptionist) who said is it urgent. Obviously the fact I have had an operation and feel unwell does not count as urgent. Eventually have an appointment late afternoon with the emergency doctor grrrrrrr!!!!!!
Sorry needed to rant.
Hospital thought it was the tube they put down throat maybe caused infection
Thaks Katherine 62 for your suggestions in your post
Oh and I became a granny yeserday - 6 weeks early but He is doing very well
All happening here this week!!!!!!
Hope you eventually got some sleep and no bad side effects. I feel so lucky not to have had any at all and have kept working up to now. Fingers crossed same happens on New Year s Eve when i have my second dose of chemo. Are you on three weekly cycles too ? I am having 3 FEC then another MRI to check it is shrinking and then another 3 cycles,then mastectomy,radiotherapy and hormone treatment for 5 years- God willing.
We will travel this road together following the many who have travelled it before us. Love and hugs to all.
Alison- hope you are still doing well after your op xx
Exactly, we're women and we Run our lives and those around us. Its horrid to not be in control and to have do much unknown.
Exhausting to be under this stress even if you're rational about it.
Xxx be kind to yourself, its a big load.
Hey sarah, you're not a downer. Its terrifying, the whole thing.
I have family at home, but man doesnt eat much so making do during the dsy. I think if you have food thats simple to heat, dont be wonder woman, you'll be ok. Its so much better and easier than I thought it would be.
Lots of napping and started my stretches when they said. The stretches help lots.
Pain is totally manageable, I have voltaren and panadol.
I was terrified before the op, but now its done...shrug. 😉
Xxxx you will be amazed at how much stress drops away just moving forward
Hugs to you all
Just to reassure anyone worried about a similar op... i had WLE and ANC middle of Novemeber, I stayed in hospital for three days (because they let me, and I didn't fancy going home with the drain) but when they finally kicked me out I went home and was fine.
my tips for ANC and WLE post op
EMU oil, for twice daily massage all over hand and arm, avoiding anywhere near scars
do the excercises as soon a you can, but very VERY gently to start. Little and Often is best.
do NOT stretch your arm out straight above your head for a week. Keep everything slow and gentle, you want to gently stretch but never over-stretch.
when you're lying down,supported by pillows (try and get a big V support cushion, really comfy) try and have your hand, with bent arm, just above your head, to help the flow of lymph for ten or fifteen minutes at a time throughout the day, closing and opening your fist.
drink loads and loads and loads of water. I also took lots of aloe vera juice (yeuch but you can mix it with fruit juice) as it really helps that internal healing.
after drain out and you can move on, just keep stretching and flexing as often as you can. I now sit watching telly with my arm up straight up in the air clasping and unclasping my hand and flexing from side to side. It might look a bit odd but it works....... you want to feel a gentle stretch but it should never hurt, think slow soft and flexible.
don't lift anything very heavy with that arm. Ever. Not once. Or pull heavy things. Never never.
That's all really.
I have complete movement back now, a bit of stiffness that goes with excercise. Numb armpit still, which doesn't worry me a bit, pins and needles sensations as the nerves grow back.
Honestly it's fine. All op. sites healed really well, so it's my arm movement and lymphedema prevention I'm all about at the moment, at least until the chemo starts in January, oh joy