Couldn't agree more about recovering is now your job.
As with anything you get high days and low days. getting a treatment plan and working though it - talking to BCN etc if you need, all helps
Had a bit of a low week and i am post-op as i have healing issues, didn't know whether it was a GP or a hospital thing. One phone call to my BCN and it was sorted, saw consultant, back tomorrow to see if there is an improvement which I think there is
So talk to people do not struggle on your own, there are lots of people out there to help as well as family
AND there is us lot on here, all at different stages and now with a wealth of knowledge
Hi Lindyloulou, penfold and everyone,
Agree it's all a bit of a roller coaster. One day I'm fine and then I can be a snivelling wreck in the middle of the night when I start imagining the worst! But as most people here seem to say it really does get more manageable once you start getting treatment and you feel like you are moving on. I am trying to see the next few months as a sort of challenge - like it's now my job to get better! There are bound to be bad times and I am sure I won't always be so calm - BUT there is a lot of support here from lots of lovely people and we are all in this club we never wanted to join - but given that we are in it I am so glad it exists.
Love to all xxx
Hi lovelies, it does seem to get better as the treatments and appointments start happening.
I was diagnosed the end of October, surgery before christmas, chemo started last week.
Its s very wierd, surreal experience, and I still just sit some days and wonder what the heck happened.
You can do it, we're here with you. Youre not alone.
P.s. Chemo was not so bad, just another thing for me. they have drugs for everything, sleeping tablets are not a cop out if you're struggling. You heal better well rested.
Firstly, welcome to the forums, I am sure you will find it a great source of information and support.
I'm sorry to read of your diagnosis, the first few days and weeks are always difficult when coming to terms with things and getting to grips with your treatment plans, etc.
As well as the support you receive on the forums you might find it helpful to order the BCC resources pack. It has been specifically designed for those newly diagnosed and contains information to help you better understand your diagnosis, test results and the various treatments available. If you would like to order a copy just follow the link bellow:-
Also, do give the helpline a ring if you need any further support or information. They're on 0808 800 6000. Open 9-5 Monday to Friday and 10-2 Saturday.
Best wishes Sam, BCC Facilitator
i am sorry to say last week I too have joined this horrid club. Diagnosed with IDC ( I think, I;m still confused). Suffer health anxiety anyway and now feel like I am dying! Can't eat, sleep or function. At the moment my order of treatment is chemo, mastectomy, radiotherapy. What a long road all this is. Sorry for the depressing post I just feel so overwhelmed by it all, and I was such a happy person with a great family.
I don't want to sound to callous but I am afraid it is something we all just have to put up with.
Think about going on one step at a time and not the whole staircase in one go.
Sooo next appointment is the next step, a little more information will be gathered as well, that's another step.
The ultimate is, of course, to be free of the Beast that's the end of the steps but don't look too far ahead
and don't google - stick to this and Macmillan sites - I was terrified when I just googled
Good luck and be positive - you will get through it
I was diagnosed when my daughter was 11 months when I was 33. Like you I had been breastfeeding and assumed it was related so got a bit of a shock when it wasn't. I had 8 rounds of chemo, (4 xxEC followed by 4 x T) a double mastectomy (as I am 3rd generation to have it, 2nd to be pre-40) then 15 sessions of radiotherapy and am now on tamoxifen.
I will message you something that I think will help!!!!
Its SO much easier when you have your treatment plan in place and you can feel like you can take control of it. The waiting is a lot harder.
All the best
So sorry you've had to join our horrible club but the members are wonderfully wise and supportive.
I'll just echo what everyone else has said, the initial diagnosis stages are the worst as it feels like you've entered into some sort of weird fantasy land where people speak a foreign language so it's hard to take it all in.
I think of surgery and any chemo needed ahead of surgery to shrink the cancer as the 'cure' and the stuff that comes afterwards (possibly chemo, radiotherapy, hormones etc) as being preventative and stopping us from developing cancer again. As you are young I guess they will want you to have as much preventative treatment as is possible but won't really know what will be best for you until the cancer has been removed and they have tested it to see which treatments you'll respond to best.
Along the way we'll all try to help you as much as possible and this forum is the very best source of advice and support I've found. These wonderful ladies can answer any question, no matter how big or small, and it's so reassuring to talk to people who've actually experienced it for themselves and can tell us what it is really like, usually with a great big dose of dark humour too!
Good luck with your journey
I was diagnosed 10 days ago with papillary invasive cancer. I am having a lumpectomy and nodes removed in another 10 days but won't know what the treatment will be until a week or two after that. I'm finding the waiting and uncertainty the worst thing.
But I agree with the others here. Take someone with you, write down your questions as you think of them, and don't worry about any of the questions being stupid! Also don't worry about asking the same question more than once - this alreasy feels to me like learning a foreign language, so I'm sure it will take a while!
Welcome to the group, and as all the other ladies have said before you are not alone and everyone is so supportive on here. I too have (now removed) invasive ductal. I have had my surgery and was hoping to have just radiotherapy and hormone tablets. Unfortunately hormone tabs wont work for me so I am going to have chemo, waiting for the date. This whole awful process is about waiting....waiting....waiting and that is what you will find hard. Like others have said, any appointments try and get someone to go with you, along with a book and pen. I was so lucky to have my amazing daughter with me and honestly she is my lifeline. I pick up on all the negatives and nothing more, she reminds me of the positives which I just dont take in. Having my book where questions and the answers have been written down helps when I have those down moments (unfortunately too many at the minute!). Its an emotional journey but your not alone, use this amazing site and lovely ladies to offer you support
Take care Lynda xx
You are so NOT alone. I had ductal invasive too in June, they caught it early, no node involvement, lumpectomy, 5 or so weeks to heal and 4 weeks radiotherapy. That's it! Ok, at the time I wasn't so blase, but it is not always the hideous journey we imagine. Take one step at a time and do each phase they ask you to.
I found my lump on 4th June, 11th June it was diagnosed, 18th June they gave me exact details, 30th June it was removed, 10th July they gave me post op results. Started hormone treatment immediately, 20th August started radiotherpy, 18th September finished radiotherapy, 5th November discharged from oncology.
You may have other steps in there that I didn't, but you WILL get to the end and you will be there before you know it. This is serious pamper time, make the most of it, and never think that no-one understands how you feel or that you are the only one going through it.
Lots of hugs to you. Keep us all informed - we all care!
3 bits of advice to you
one is to make sure you always have someone with you the entire time, they may listen more carefully as you will be an emotional wreck.#Secondly write down any question you have between now and your appointment - you will find they will be expecting them and thirdly try not to Google unless it is an approved site like this one -
And (oh fourthly) come on here as often as you need to, lots of advice, humour and tlc from others who undrstand only too well what you are going through on this roller coaster we are all on