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Docetaxel

21 REPLIES 21
Carriegib
Member

Re: Docetaxel

Hi all. Had my fourth decs Thursday. A few days before my feet especially left foot and leg swelled up pretty bad. Last cycle both feet and ankles did. Had line care on the Wednesday and nurses got doc involved as thought I may have blood clots. I thought it was just usual as last time. Had to have ultrasound scan next day before chemo. Turned out no blood clots and bloods ok. Went ahead with chemo 4. Feet going down now but starting to get bad mouth, lack of taste. I really hate this more than anything. I can take the pain with meds and take injections for neutropenia. No neuropathy after third - just swelling - which was bad enough. Will discuss all this with onc before next treatment but if it is doing good and side effects don't get worse will probably carry on. Being triple neg not many options. Really hate the nasty mouth and not being able to taste my food. Hope everyone else coping ok after initial problems whatever drug you are now on? Best wishes to all.
blueash
Community Champion

Re: Docetaxel

Karen,

You are having the same treatment that I had. They stopped mine after 4 because my blood counts went too low and I was developing neuropathy. I had to keep a diary and I have just read it again, this is part of what I put in it:

 

"Pins and needles in hands and feet more or less constant and although I can walk it is uncomfortable. Soles of the feet are burning and pain killers (Neurofen) do not have any effect.

Fingers and toes are painful and it is hard to push pills through foil. I have tried holding a pen and writing (you asked about that last time), I can write but the letters have to be larger than I would normally write. My dexterity is not there."

 

The diary entry coupled with my low blood counts were instrumental in my Consultant deciding that 4 rounds of chemo were sufficient for me. I am still having Herceptin and had number 12 last week. I also had radiotherapy and had more than most but I don't know if that was because the chemo was cut short.

 

My worst side effect (not a worry to the Consultant but dreadful for me) was the water retention and contstantly watering eyes. I have only just been able to go back to my contact lenses.

 

I do feel for you and want to let you know that you will feel better within a few weeks of your last dose xxx

Alieck
Member

Re: Docetaxel

Hi Karen C, I also had Docetaxel and carboplatin chemo.  I was  advised that the effects were different to the ones on FEC/FEC-T whereby we only suffered some nausea but the main effect over time was fatigue.  I did suffer with breathlessness also and a few more side effects.  Unfortunately my side effects despite reducing the dose got much worse and I was struggling with peripheral neuropathy so in the end on the advice of my oncologist, I finished chemo early.  I am triple positive so he was not so worried as I would carry on with the herceptin, rads and take hormone therapy also.  I found that I struggled the two weeks off the chemo but usually picked up just in time for the next dose.  It is hard going through it but I now wonder where the last 8 months has gone since I was diagnosed.  Hope things improve. Alison xx

Carriegib
Member

Re: Docetaxel

Hi Karen C. So sorry you going through this. Although it is common to have bad side effects. Are they giving you injections to boost your white blood cells next time. Since I ended up in hospital with neutropenia sepsis after first treatment they gave me injections. You have them a few days after chemo and they are easy to do yourself but if you don't want to I was told a district nurse would do them. It's only a few days but it's helped. They should also offer help with other probs. Make sure you tell them when you go for chemo. I have different problems each week as I have said before, however, if treatment is working I will try to continue. My fourth treatment is Thursday. Tell them how you feel. If this treatment is really affecting you badly they can try others or maybe just alter dose. Please tell them. Let us know how you get on. Thinking of you. Carrie
Karen C
Member

Re: Docetaxel

Ended up being neutropenic and hospitalised.  Home for a couple of days now but still feel awful although sickness and diarrhoea mostly gone.  I really don't know how I am going to get through this and am petrified of having second cycle next week.  My mood is very low and I'm crying all the time, thought I'd cope better than I am.  How does anyone get through this?

Karen C
Member

Re: Docetaxel

Thanks Carrie, I did end up in A&E with temperature and breathlessness last night but all ok. Great start!
Carriegib
Member

Re: Docetaxel

Hi Karen. Can only comment on tax/docs as that's all I'm having at moment. I get breathless but later on in cycle. Had 3 now. Pattern seems to be tiredness and aches after steroids finished. Nasty mouth, loss of taste for a week, low white blood count - take injections to boost this. Painful feet with pins and needles and then swollen feet and breathlessness before starting again. If you breathless that quick seek medical advice. It may be your red blood cells have plummeted? That's what happens to me. Best wishes. Hope you get sorted soon. Carrie
Karen C
Member

Re: Docetaxel

I had my first docetaxel along with carboplatin yesterday and had Herceptin and something else the day before. Today I've hardly moved, feel breathless and nauseous. Is it not likely to improve then?
Carriegib
Member

Re: Docetaxel

Yes bluesash. I understand. I can't take more FEC because of hypertension and am triple negative this time. Used to have aromasin but not hormone receptive this time. Was disappointed at that. Will keep taking tax if it is improving my condition. However I too am having trouble with low blood counts. Now may need blood transfusion because of low Hb. Also having zometa although recent evidence has shown it is effective every few months not just every month so not so many treatments now. Had chemo Thursday and feeling usual tiredness and pain. See how it goes? Best wishes. X
blueash
Community Champion

Re: Docetaxel

Hello Carrie,

 

I only meant that my oncologist was happy to stop my chemo because he was still giving me Herceptin and rads. Other breast cancers get tamoxifen. I was stopped after 4 due to low blood counts I should have had 6. There is some thought that Herceptin alone will treat early HER2 positive breast cancer but they are not allowed to give you Herceptin unless you have had some chemo.

 

I had all docetaxel because I take statins and blood pressure medication so they could not give me FEC which is what many women get, well FEC-T - half the infusions are FEC and the other half the T which is Taxotere or docetaxel. The F in the FEC can cause heart problems and since I was having Herceptin which is also toxic to the heart they would not prescribe FEC.

 

Obviously all our treatment is tailored to our individual circumstances xxx

Carriegib
Member

Re: Docetaxel

I am triple neg and my onc said I can have radio and that there are alternate Chemo's. Think it depends on each individual and their individual problems.
blueash
Community Champion

Re: Docetaxel

I had all docetaxol - well I had TCH and I was not able to continue due to low blood counts. They stopped me after 4 and gave me more rads. They will not do that if you are triple neg - they will reduce or leave you longer in between because they don't have any other drugs for it. I only know that because I have become friends with a woman that has triple neg and when she asked if she could stop as I did that is what they told her. 

Carriegib
Member

Re: Docetaxel

Doxetaxol is really awful. Due for third dose tomorrow but my feet so swollen and breathless, not sure whether they will do it? Had FEC 10 yrs ago and wasn't this bad. Although I was younger then and managed to work. No way I could work now. I have injections now due to neutropenia and sepsis and admission to hospital after first treatment. Best wishes to all. See what they say tomorrow.
Eian01
Member

Re: Docetaxel

Sorry to her about you, Docetaxol is worse and it takes time to recover. Diet is important is recovery

 

Hoping things will change positively

Bunny71
Member

Re: Docetaxel

Hi all

had my 5th one about 10 days ago. Last one on 24th April.

it has knocked me for six with regards to tiredness and energy. I feel like I've been on house arrest as I've hardly been anywhere and people have kept away because of bugs.

having said that the side effects have eased over the cycles. The first three saw me into hospital a couple of times being neutropenia. They give me injections now which helps. The mouth sores and taste isn't as bad as it was the first few although the pins and needles in the hands and feet have got worst and are pretty much with me the whole cycle and yesterday I started to feel I have pins and needles in my head. I also have sore hands and feet. The chemo nurse suggested I get udder cream - I laughed to start with but I rang a farmer friend of mine who immediately brought some over and I have to say it's great stuff - I smother my feet and hands in it and put socks on and cotton gloves that you can get from home bargains and places like that. It's very soothing and a great moisterizer.  You can buy udder cream from Amazon and it's made for humans but the best stuff is the stuff made for cows. Give it a try.

 

The worst for me is the tiredness and achiness and complete chemo fog. I'm not sure where the last few months have gone or what I have done.

 

 

This is the second time round for me as I had chemo 7 yrs ago when I was first diagnosed. I have to say I coped better the first time round - maybe because I was younger (38). Also with this lot I'm having herceptin and perjeta at the same time. 

 

Good of luck every one it really is nasty posion but like I say it's quite predictable and least you know what days you are going to get what. I made a daily diary first cycle and refer back to it when side effects kick in and I baton down the hatches and ride the storm. 

 

TOP TIP: Udder Cream for sore hands and feet. 

Carriegib
Member

Re: Docetaxel

Thanks Swampy. Thought that it migjt be PM. Seeing doc tomorrow  see what they say and if there is anything they can recommend to relieve pain  

 

Best wishes  

Carrie

swampy1901
Member

Re: Docetaxel

Hi Carrie 

The sore feet could be peripheral neuropathy and something that we have to live with while on Chemo but living in the hope that when treatment is finished that everything will return to normal.  I'm now a couple of months post treatment but still have PN in Hands and feet - much better now but still there - but I had it mildly compared to other ladies both on these boards and at my monthly BC group. If you are sufffering with joint pains etc then it could all be part of the same thing sadly. I hope your GP can offer some pain relief and that you are soon feeling more comfortable.

 

Swampy

Carriegib
Member

Re: Docetaxel

Hi all. I have had two treatments of docs. First I ended up in hospital with neutropenia sepsis. Second treatment was given injections to boost white blood cells. Had a week of joint pain, tiredness and metallic mouth. Thought I was improving then got really painful feet. Seeing doc about this Friday.  Anyone else experienced sore feet? Any feedback much appreciated. 

Lindieloo
Member

Re: Docetaxel

I had my first dose of docetaxal on Monday and since Thursday I to have felt at deaths door , pain is intolerable , I am wondering if it will improve once GCfs injections stop on Monday xxxx

swampy1901
Member

Re: Docetaxel

Sorry to hear that you are feeling so poorly - it sounds like you are suffering with cumulative effects of chemo. All you can do is be gentle with yourself - it takes time to recover between treatments (not that I think we do really) and if you are able to eat then try and eat iron boosting foods to help your recovery. I did this for the last couple of treatments as I could see the counts going lower with each treatment - not sure that it made a huge amount of difference but psychologically I felt like it made a difference.

 

Swampy

claire36
Member

Re: Docetaxel

Sorry to hear you are feeling so bad. Can you ring the chemo unit and speak to some one for advice. I felt really bad too on Docetaxol and was changed to weekly paclitaxol. I am tolerating this much better only side effect is tiredness. Hoping it passes quickly x

Razzo
Member

Docetaxel

4th session on Tuesday today (Friday) I feel like I'm at deaths door. After 1st one I went in hosp for a week due to neutropenia. Now on injections to boost . Why do I feel like death is on me today. I just feel so ill. Temp 36.5. Help me😒