Well today was results day, and i'm very happy to report my nodes were clear of any cancer, all 25 of them!
I was also told my Oncotype test result is 20, meaning my risk of recurrence is intermediate, which makes the decision about whether to have chemo or not slightly more difficult. I will be seeing my oncologist within the next few weeks to discuss this, but in my mind I have already decided that I will have chemo, as I want to make sure I have given myself the best possible chance.
In the meantime I am 2 wks post clearance, and getting better each day. I did develop a small seroma 5 days after having my drain removed, which meant another trip back to the hospital to have it drained, which was a massive relief, as it was causing me a lot of discomfort, and made my excercises very painful. I also have slight cording in my armpit, meaning my arm is tighter than it should be, but that should improve. I saw a Physiotherapist whilst at the hospital, and she was very pleased with how much movement I already have in my arm, which is great!
So for now, I am going to relax and enjoy Christmas, and try to forget about the C word if possible! 😉
never in in all my scenarios was there one where the lymph nodes were clear of cancer. I am still shocked (in the best possible way).
When end was your operation? Just wondering how long after the op do you get radiotherapy. I go to the oncologist on Thursday to find out about mine. I hope yours go well? Did you have chemo? Yes, can't wait for 2017 but we are all starting it in a very positive way.
keep in touch and let me know how your radiotherapy goes.
Take care. Vicki x
Hi Lisa, sorry to hear it was rough for you. I was on morphine for the first few days too. Thank goodness too. I couldn't look at my drain - I had a little bag to carry it around it. I got my bottle changed as the suction had stopped but they didn't empty it each day. I'm glad your husband wasn't too squeamish - I couldn't have done it.
I must admit it my arm is much better now - I can't believe it is three weeks on Tuesday alread since the operation. I am no where back to 'normal' but getting there.
i have an appt with the oncologist on Thursday regarding my radiotherapy.
I hope you get good news on 20th Dec. please keep in touch and let me know.
take care Vicki x
Oh Vicki, that is absolutely fantastic news! I am so pleased for you! What a relief! 🙂
Sorry its taken me a while to reply after my surgery, I have been feeling pretty rough. All went well with the op. I had a bit of a melt down though, as i was really scared about going home with a drain in. Luckily all the hospital staff managed to calm me down, and I went home, which in the end was definitely the best decision. The first 2 to 3 days were very unpleasant, the pain was very bad, I had to have morphine a few times, but now 5 days post op I am feeling much better. The pain has settled down, and I had my drain removed yesterday, which i was so glad about, as I found it very awkward, and it made me squeamish, my Husband emptied it every day, as I couldnt even look at it. lol. Now thats gone I am sleeping much better, which is great! So now I hopefully go back on December 20th for the results, so everything is crossed that I receive good news this time!
Thank you for your reply, and for the info. I do wonder why some hospitals keep ladies in after a full clearance, yet mine will be sending me home the same day! Its a bit of a worry for me tbh, as I live an hour away from the hospital i'm being treated at, and it wont be easy just to pop back if I get any problems. It seems like I will have to go back for the drain to be removed, yet i've read posts from other ladies on here that have had a district nurse come visit them to remove it, I think I will ask if thats a possibility for me. I really hope that none of my other nodes are affected, I will be very shocked if they are, as my tumour was so small, and slow growing. I will have to wait and see, one step at a time!
I have everything crossed for your results day, let me know how you get on, I will be thinking of you! xx
Thank you ladybowler, I appreciate your kind words, I will definitely let you know, gotta feeling i'm gonna need the support! xx
I was the same, I had no idea there were so many types, its mind boggling! If you dont mind me asking, how are you getting on after your full node clearance? I am really worried about having a drain, I will be sent home with it in, and i'm so scared about catching it, and having to empty it too 😞 Is the pain much worse than after your sentinal node removal? I found the pain managable most of the time, but i have been warned that the pain is likely to be worse after full clearance. I so didnt want more surgery, and the possibility of chemo too is making me feel quite depressed 😞 x
Thank you very much Jobey68 🙂
Trust me to have a rare cancer, I like to be special obviously! lol xx
Hi Lisa, I've found some info on line and posted a link that explains about Cribriform BC, I'd not heard of it before , I had Tubular which is another rare one and when diagnosed last year I only found 1 lady here who had the same , a few more have come along since so you may come across someone with the same as you Xx
Thank you for your reply ladybowler 🙂
I'm glad to hear that so far all your treatment is progressing as planned 🙂 I should have said that my cancer is also hormone receptor positive. I should have been starting radiotherapy after my lumpectomy, but now that we know my nodes are affected that has obviously been delayed now, which is annoying but never mind. I'm just glad that I dont have to wait long for my 2nd surgery, I just want to get on with it! lol
I will have another search on the forum, thank for the advice 🙂
Hello everyone. Well today I went back for my results. Thankfully they got clear margins of 7mm, after my lumpectomy, but unfortunatly the one lymph node they removed came back positive 😞 I am quite shocked by this, as my lump was small, only 12mm upon removal. Anyway, I will now need full node clearance, which i'm having next Tuesday (6th Dec). In the meantime they are doing an Oncotype test, to see if chemo is recommended, or not. I was also told that my cancer is a rare one, apparently only 4% of BC's are this, its called a Cribriform, which is an invasive type, but mine is grade 1, where previously they thought it was grade 2. Apparently the good news is the outcome for my type of cancer is generally better than many other types of invasive BC. I was wondering if anyone on here also has Cribriform cancer? I have searched the word on the forum, and nothing comes up!
Many thanks, Lisa 🙂