Hi Jay and Humblepeace - I'd totally agree with Jay about joining the monthly chemo group Humblepeace.
Jay - I too had that cord under my arm after surgery. I did my exercises and also had some physio and one day it just wasn't there anymore. Hope yours goes quickly too.
Hi Humblepeace and Jay68
So pleased to hear that you are both doing well and sounding so positive. I'm especially relieved to hear Humblepeace that chemo hasn't been too bad - how many and what type are you having? I'm sure your friend's visit helped you loads - in terms of having fun and keeping positive.
Jay - hope your first drive went well. I found it very strange getting back behind the wheel after a break of 4 weeks.
I had the worst cold last week - so unfotunately missed the first session I had booked with a new gym, so I need to refix that. Lovely day here today so going to take advantage and go for a walk soon.
Hugs to you both.
It sounds as though you've had a good time with your friend visiting. It does help to have your mind distracted.
I'm feeling well, enjoying being able to go out for lovely walks now and doing little jobs around the home. I'm going to attempt a small drive on Wednesday - 3 weeks tomorrow was my op. I'm pleased to hear your drains have been removed - it is much easier to get around and do things without them. I'm fortunate in that i have had no fluid build up at all and my wounds are healing very quickly. I'm exercising 3 times a day and it does make it easier. I get very stiff if I sit or lay in a position for too long! Good execuse to keep moving!
Hope you continue to do well
Humblepeace - I'm so pleased to hear your news, that there is nothing to be concerned about. Am I right that chemo re-starts for you tomorrow? If so I wish you all the very best. Happy to answer any questions if I can.
Jay68 - perseverance is definitely the thing with the arm exercises. Do ask for some physio if you don't feel you are making enough progress. I had some and it really helped. I still have to make sure I do the exercises/stretching a few times a day. Very best wishes to you for your radiotherapy. Again, I'm happy to discuss anything if it helps.
I have just signed up with a new gym, start next week with a one to one session. I feel very unfit so will be taking it very gently.
Hi ladies - just a quick update from me!
Exercises going well - did find them a bit tricky a couple of days ago, all seemed to be suddenly so tight - but perserverance has paid off and today they were better!
Received a phone call from breast nurse yesterday afternoon, it now seems they are considering rads for me to the collar bone and neck area? - waiting for the appointment to see rads/onc hopefully very soon - I have lots of questions....
Hope you're both doing well x
Hi Humblepeace - I think you are right that the surgeon would have got everything with the mastectomy, but we are on a heightened state of alert now and aware of every lump and bump. I don't know where the lump is but could it be scar tissue from one of your ops? Your surgeon/nurse/oncologist will always be happy to check and reassure you.
I remember the area under my armpit and the inner arm being numb after the op, and part of it is still numb but I am more used to it now so it doesn't really feel numb if that makes sense. With the surgery I believe they cut various nerves - some of which I think grow back (I'm not medical and a bit squeamish so don't ask too much about the surgery!)
All the very best to you for restarting chemo.
Thanks for asking about me. I'm doing ok today.
Jay68 - hope you are doing well today.
Early days Humblepeace - I have a few bumps in the area and mine is very numb in most areas at the mo - when I met with the surgeon on Thursday he examined me - he thought I had a small seroma but the nurse felt it was significant enough to drain. I was advised if there was any increase in size or discomfort to phone them and they would drain it - but in all honesty it's not any bigger and not causing me any problem. Under my armpit it feels there are at least 2 oranges - not to feel, in sensation! No pain though. I'm sure if the surgeon gave the news from the pathology report, there is nothing to be worrying about. Do you know if you're having rads?
Jay68 - fantastic news, I'm so thrilled for you. Hope the healing continues to go well for you.
Humblepeace - thanks for your message. Ha ha, I hadn't thought that you might be in a different country rather than an insomniac! Hope all's well with you today. Any news on the drains yet?
Delighted to say been to see the surgeon today and have been given the all clear! I no longer have cancer! I'm just so relieved and excited x
All is well with me - I have the follow up appointment with the surgeon this afternoon - I'm hoping he's as happy with his neat job as I am!
I am doing the exercises 3x daily and I do find they help with discomfort.
Hope all is good with you x
Humblepeace and Jay68 - I just wanted to share my relief at being told that my new lump is benign. Thank you so much for your support.
I hope you are both doing well today. Humblepeace - looks like you had trouble sleeping last night (judging by the time of your post)? I do hope your fluid is continuing to fall.
Hi Humblepeace - thank you so much for your prayers and thoughts, you are very kind and I appreciate your offer to listen if I need, especially when you are so recently out of surgery yourself. I also wanted to say that I hope I didn't misunderstand your question on drains - I thought you wanted to know why the amounts varied up and down, and I couldn't answer that. But I do go along with what Jay68 has said that there seems to be a magic number when they are then happy to take out the drains. Mine were removed before I left hospital so I didn't pay quite so much attention to them. I have every confidence that yours will be removed tomorrow. Keep us posted will you.
Jay68 - so glad to hear that your drains are now both out, it's such a relief when you don't have to worry about getting them caught on things (or maybe that was just me!). Take it easy for a bit longer - but all of a sudden you will realise that you are doing semi normal things again.
Hi Humblepeace - Hooray I'm delighted to say both drains are out and compression binder has gone! My movement is not quite so restrictive now! Now resting and taking it easy until Thursday's follow up with the surgeon.
The breast nurse informed me the surgeon would have used nerve blocking meds in the whole area. Hence the numb feeling - mine is gradually wearing off! Hence a little discomfort requiring 4 hourly pain relief!
Hope all goes well for you on Monday. x
Thank you Jay68 for your kind words, I really do appreciate that. I'm so pleased to read that your son is handling it well and that you have a positive attitide. That will really help you all. I had a lovely walk this morning through the fields in the sunshine with a lovely friend, which has helped hugely.
Hello Humblepeace - yes I feel fortunate to have a daily visit from a nurse. I have one child - a son who will be 14 in a couple of weeks time. He is taking everything extremely well - partly due to my positive attitude! My Husband has been off for this first week and I'm extremely grateful - he's been an absolute angel at looking after me and taking over the household duties!!
Also I can give you a little advice on drains - the nurse told me today that one of my drains was just over 50.. Apparently on your surgeon's notes there will be advice re drains - it could be they must stay in for 5 days or if under 50mls in 24 hours they can be taken out - so it will be depend on your discharge notes. I've checked my notes and mine do say if under 50mls it can be removed - so one of mine may be able to come out tomorrow - hooray! A little bit of freedom....!
Humblepeace - I'm sorry I don't know much about the fluid in the drains. Definitely a question for your surgeon on Monday, but I hope by then the fluid will have reduced in both so they can be removed. You could start a new thread and ask that specific question as someone will have had that experience. I will be thinking of you on Monday and hope that you get the reassurance you want. Does your daughter live with you? Is she coping ok with your diagnosis and treatment?
I went for what I thought would be a check up yesterday and ended up having a new lump in my other breast biopsied. It sent me right back to how I felt when I was originally diagnosed. So I'm feeling a bit anxious today as I wait for the results next week sometime.
Jay68 - I hope you are continuing to make good progress.
Jay68 - so pleased to hear that your op was a success and even more that you are home and doing well. You are so right, take things easy for a while. Happy to answer any questions if I can as I am a little further down the road.
Humblepeace - very glad to read that you too are doing well. Thank you so much for asking about me. I had surgery in May then finished 3 weeks of radiotherapy at the end of June. I'm now on Tamoxifen. Thankfully I seem to be ok on that drug as I will take it for 10 years. Energy is coming back but I need to remind myself not to overdo things. Same message to you - happy to answer any questions if I can either on this thread or you can send me a private message.
Love, Evie xx
Hello ladies - operation was successful on Tuesday! I stayed in overnight and I arrived safely home yesterday morning. So nice to be back in the luxury of my own bed in my own home I thank the Lord everyday now for the small things in life that everyone still takes for granted!
i'm fortunate in that I have very little pain - the only discomfort is due to the two drains I have. I have a nurse visiting me for next 4 days who's generally keeping an eye on me and emptying my drains - although I have also been doing it myself! Not that I like doing it...ergh!
Generally I feel well, feeling stronger everyday. But today is only 2 days on so not rushing things too much!
Hope you are well. Much love x
Jay68 - thinking of you today and hoping the operation has gone well. Obviously not yet but when you feel up to it do let us know. Sending hugs and get well wishes.
Hi Jay68 - I wanted to wish you all the very best tomorrow. I had mx, reconstruction and node removal in May. I think the first 12 hours afterwards were the toughest, but probably because of the GA and the fact that the nurses wake you so regularly to take BP etc. I seemed to be up and walking around and doing arm exercises very quickly afterwards. In fact, as everyone will tell you, do make sure you do the arm exercises exactly as they tell you. Any questions please ask.
Hi ladies - I am from the May 2017 chemo group - I'm having my right hand mx and complete node removal tomorrow afternoon. Right now I'm feeling nervous and excited - can't wait for this bit to be behind me. I'm staying in overnight tomorrow, returning home on Wednesday fingers crossed!! I'm fortunate to be having a nurse visit me every afternoon to empty the drains and change dressings.
How quick were you up and about feeling OK'ish?
I didn't have any dressings! I've often read here about people and their dressings but I missed out. I had a piece of tape securing my drain and that was removed with my drain after six days. My mastectomy scars were just glued and left open to fresh air. They healed very quickly.
Hope this helps. Ezzie. X
I was 'new' here once too! Not a club any of us really wanted to join but you will find lots of friendly folk and some great tips.
I only had one drain and I personally didn't wear gloves to empty it. I did adopt thorough hand washing hygiene techniques whilst reciting Hey diddle diddle, the cat and the fiddle etc. (or whatever!) - both before and afterwards. I emptied mine into little measuring cups that the ward gave me on discharge in order to monitor output. Mine could be removed once it had produced less than 30mls in a 24 hour period (about 6 days post-op for me). Check your paperwork for when you left hospital as it might say what is applicable for you. Not all hospitals are the same. Your BC nurse may be able to tell you if you can't find the details.
I had a cloth bag with a long shoulder strap which I could wear satchel fashion and I put my drain in there. It was more comfortable and reduced the risk of pulling it out. When showering, it went in a carrier bag which I then hung up in the shower.
Here's hoping you have a problem free recovery. Ezzie. X