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EC chemo struggling

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Re: EC chemo struggling

Thank you so much Nicky.
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Member

Re: EC chemo struggling

Hi Kavir, sorry you're feeling so rubbish. I had 3 cycles of EC and had some really low days. I found I kept going OK on the steroids for a day or two and then would suddenly feel dreadful. I know its really frustrating but all I can say is pace yourself. Remember you are already weaker than people who go straight onto EC as you've already had tax and avastin taking its toll on your system. You will feel better again soon and when you do, do some fun stuff with your family but still pace yourself ready for the next one. Oh and remember all those people who wanted to help when you got your diagnosis? Now is the time to hint at how lovely it would be to have tea magically appear on the doorstep, or for your kids to go and play at theirs. I feel your frustration but I found setting little goals like getting up to sit with my son while he had tea, having another
Iie down and then being around to read his bedtime story helped me feel better. I hope things pick up for you soon xxx
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Community Champion

Re: EC chemo struggling

Hi kavir
Sorry to hear you are struggling and that Tax and Avastin didn't work for you. I haven't any experience of EC chemo so can't help with the exact side effects and how long they are expected to last. I did however have FEC which has 2 of those components, back in 2008, and felt pretty rubbish for about 5 days after the chemo but then found I literally bounced right back again. Those five days I didn't manage to get out of the house, have much appetite as I felt so nauseous and generally didn't want to see or talk to anyone - but that could have just been my response to it. I have noticed different timings for side effects with Tax so each chemo seems to affect everyone slightly differently. If not many other ladies respond to this it's worth reading the thread on the main part of the forum about chemotherapy in the Treatments section as you can get quite a lot of info from the ladies with primary BC going through the same thing as there's more of them posting.
Good luck and hope you start to feel better.
Nicky x

Member

EC chemo struggling

Anyone out there to listen?? My tax and avastin chemo failed so they started me on EC last Thursday. I have been bedridden with no energy since sunday and feel like I am half dead. This feeling of hopelessness has really got me down and a lot of negativity creeping in. I have a young family so all of that has also turned upsidedown. When does the energy pick up again? I really need some positivity right now.

 

Thanks for hearing me out.