Ec chemo and cold cap any advice please

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hi I am due to start 4 rounds of ec chemo next Thursday . Would love to here from people who have had ec and what side effects they had . And would also like to here from people who have used the cold cap and if it has worked or did you still loose your hair . Any tips appreciated in regards to chemo treatment . Michelle 

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Hi Michelle 1976

 

you might find this thread of help - and perhaps you can contact some of the ladies?

forum.breastcancercare.org.uk/t5/Chemotherapy/Cold-Cap-did-it-help-keep-your-hair/m-p/720335#U720335

Hugs Sue xxx

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In 2011 I had 4 rounds of ec followed by 4 tax.  I tried the cold cap once - not sure the nurse fitted it correctly and the head pain from the cold was horrendous, plus you had to stay an extra hour and a half!  Anyway - within 2 weeks of the first ec my hair started coming out, by the time I had the second ec I was wearing a head scarf and decided not to do the cold cap again.  I know people who used it where is was reasonably sucessful - but it wasn’t for me.  5 years on and my hair is long and thick as it was prior to chemo.

 

Deb

 

p.s.  I quite liked my wig - saved a fortune in shampoo and I was good to go in half the time!

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Hi Michelle

Just seen your post and that you’re ahead of me with treatment.  I started my first of 3 rounds of ec chemo on 9 August then will have 3 rounds of docetaxel.  Side effects so far from first round of ec:  first 2 days after treatment have felt as normal, then started to feel tired and head felt foggy.  This lasted around 9 days the felt fully fit for the 3rd week up to the second session.  I am using the paxman cold cap but I feel to have a lot of hair loss (started 16 days after first treatment)  Of course I could be losing less than it would be without the cap.  I am finding it is so uncomfortable and if the loss continues and it starts to look obviously thinner I may give up on the cap.  The hair loss was a big thing for me and I really don’t want to wear scarves.  I do have a wig and have worn twice to test it out.  It looks good (fooled my youngest when he came home from uni for a few days, he noticed it was different but thought I had been to the hairdressers) but think it could get itchy after a while. How are your doing and what side effects have you had?  Would appreciate any info. Thanks.  Su

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Hi Su
I start 6 sessions of EC on 8th Sept and will give the cold cap a go. Is it worth me buying a wig beforehand do you think or would you advise waiting to see how much falls out first?
Thanks
Sarah xx

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Hi Claire

Thanks so much for posting the pic. It’s really helpful to see others experiences. I will def give the cold cap a go and see how I get on.
Thanks again
Sarah x

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Thanks Blueash x