Ah both my cancers occult too - was given the all clear in 2013 and 2014 and after pushing for a further look it turned out I had a 15cm lobular. How the hell that stayed hidden I don't know, but I agree that is part of the issue for me because the breast I have left was clear on mammo and ultrasound, only spotted by accident on a breast mri for the other side. Would rather get rid of it than keep looking at it and wondering.
Thank you ladies, I think my mind is made up - onto the next decision...ovaries...
Thank you all so much - glad to hear that this seems to have been a positive decision for you - I felt very positive about my plan (I am also asking for an oophrectomy), but the counsellor seemed genuinely concerned that I might be faced with this 'regret' at some point so I thought the best way was to check with the BCC gurus that I now rely on so heavily!
Will check out the FB group too and think of all the new sports I can take up without my D cups getting in the way!
I am one of many "Flat n Fabulous" women out here, who are very happy to be so.
I had cancer on one side (2 previous benign lumps on that side), but absolutely kew that I could not face another lump (i.e. no WLE), couldn't do reconstruction (felt like creating something false, which was not equivalent), and couldn't do prosthesis.. The thought of being lopsided was equally unthinkable for me, so I opted for bilateral mastectomy immediately, and was fortunate that my surgeon (though taking some persuading) listened and understood I just wanted to be flat, and did a great job,
There is a UK closed Facebook page which "This group is for ladies who have had a single or double mastectomy and are living life flat, or with foobs" and which has 79 members, and also a similar international page with 1400 members.
I get most of my cancer support from these amazing and uplifting groups.
Hope this helps
I was diagnosed with bilateral breast cancer in July/Aug 14 and ended up having a mastectomy with no reconstruction on one side (after a temporary implant had to be removed), and WLE on the other side. I am nearing the end of chemo and waiting for a rads plan, but I am keen to have my other breast removed as well. I am awaiting genetic BRCA tes results but these are going ot take 8 weeks and I am feeling sure that I want the other breast removed regardless. I spoke to the counsellor at the hosptial today and she asked me to think about whether I might regret choosing an elective mastectomy in the future. I wondered if there were any ladies out there who had made a similar decision and then found themsleves regretting the decision (or if it had been a positive decision for you it would also be good to hear).
I am nearly 50 and feel as though one boob is not much use. Due to extensive scar tissue on my stomach I have limited options for reconstruction and would probably choose to stay flat rather than spend any more time on surgery. I feel quite positive about the decision, but today's conversation with the counsellor has made me realise this is about to get real.