Havent seen you posting recently and thought I would contact you through this thread. You had a MRI scan last time and were waiting for results and a treament plan.
Hi Glo. Just joined this site, and seen your reply to Blondie. Your diagnosis and treatment is very similar to me, so thought I'd send you a quick message, and thought maybe we could keep in touch? I'm struggling to find anyone to talk to in my area, and feeling slightly isolated. Hope you are keeping well since your post, x
Blondie you are an inspiration! When my oncologist told me in January I had not only primary but secondary diagnosis with spread to my lungs and told me that people have lived many years I did think she was being overly enthusiastic. I keep coming on here and reading your story and have been waiting for the eleven years update! I hope that my oncologist is right and I have as much success as you have had. You give us all hope, especially people as newly diagnosed as me xxx Here's to ANOTHER 11 years!
Congratulations Tara! You certainly are living with Cancer!! It bucks me up to hear such good news from people. Can I ask what chemo you were on? I am between treatments at the moment and they are going to decide next week what to give me. I may mention yours if it is comptatible with mine cancer SS
Hi everyone, I have found this forum very helpful and supportive, thank you. I just wanted to post some good news to give others hope. I finished my chemo in March 2015 having received the news in October 2014 that my breast cancer had returned after 6 years clear and that I now had secondaries in my lungs, liver and bones ( all this news 5 weeks after getting married). Well last week I had my first CT scan since finishing chemo and today my oncologist told me that I have an NED in my liver, and a good improvement in my bones and a significant improvement in my lungs! I was praying for a "stable" and didn't expect such great news. My new saying to everyone is " I'm living with cancer NOT dying from it.
Hi Chick, sorry you have had to join us but I want to welcome you, we are a friendly bunch and are always on hand to help you through this horrible scary disease.
I'm 47, primary 2007 and dx last March mets to hips, ribs and spine, it's a very scary place when first dx please give yourself time to take it all in try not to think too far ahead. I'm sure you will feel more in control once you see your oncologist and start a treatment plan.
Please feel free to ask us any questions there is always someone on hand to help.
Hugs Janette xxxx
just forgot to say these excitng trials are as well as all the current treatment available to you - there are loads - that will hopefully keep you stable for many many years
it is so scary when you are told. Don't I know it! However I was diagonosed 4 years ago |(almost to the day) with secondaries to my liver and 4 years on i am still fine, working full time and a good quality of life. I would keep on to your oncolgy team though to see you asap - just for your peace of mind as once you start on a treatment you will be feeling a lot more in control. By the way, you sound very young - do you have the BRACA gene do you know? as if you do there are loads of new treatments avialable to you. I am on currently a trial for BRACA carriers. I have been on it for 4 months now - very few SE's a bit of hair loss (not much) very slight fatigue - nothing that affects my quality of life and it is working well - reducing my tumours. Also if you are estrogen positive I have heard of a new drug on a stage 3 (i think)trial that seems to work very well as well. It is called the Paloma trial and I think everyone is very excited by it. Try googling it
anyway what I am trying to say is this is not the end of the road for you. Take care Chick and let us know how you are doing SS
Welcome to the forums, this must be very difficult time for you. I’m sure other users will be along to support you soon.
In the meantime, maybe you would like to talk things through with a member of our helpline staff who are there to offer practical information as well as emotional support. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
Hello all. I was diagnosed on Friday with Secondary Breast Cancer in the Lymph Nodes, base of my spine and liver. Feeling slightly abandoned now but after three biopsies and a liver ultrasound I will get to meet my Oncologist on 22nd. Having been diagnosed with Breast Cancer in September 2011, treatment finished July 2012, my ongoing fundraising continues which has raised over £52,000 and I am the writer of a blog, I suddenly feel like i'm out at sea with no oars. To be honest I am terrified and scared. The only information I can find is on websites, I dont know my life expectancy, but at 45 and a single mum to a 20 year old boy, but with a new loving partner of only a year, I am slightly panicking. Reading the comments on this forum gave me some inspiration yesterday and returned my strength. If anyone has any advice or support it would be greatly appreciated.
Thank you x
Hi Sarn123, I have just read your story and your an inspiration. Thank you. I had a lumpectomy in 2008 when I was 37 years old (operation and chemo, herceptin) all successful but secondaries came back in liver, lungs and bones in Nov 2014 (5 weeks after I got married) but so far so good, had radiotherapy, chemo and now on long term herceptin. Gone completely from liver, bones have calcium 'halos' around damaged area at neck and lungs have improved. I am normally a very positive person but think alot of the fears have hit me now I have finished the main treatment and wont be attending hosp as much. Only found this forum yesterday and finding it very helpful and inspiring. Thank you soooo much for your positive words.
Hi. my mum has recently been diognosed with secondary breast cancer, she is doing very well but there is days where we both feel sad and worried about what is next.. reading this story made me feel very positive and i have faith in the treatment my mum is having. When you have bad days how do you cope? what is the best thing to do hope to hear back from you april x
So wonderful to hear you update. Here's to another 11. I say, I wish herceptin can work as well for everyone. There are so many inspirational women on this site. It is hard to imagine 174 or 180 doses of herceptin although I would like to. I have only had 12 herceptin and perjeta but would like to think it is possible.
I would also like to thank Dawn and Belinda for your posts! Again they are so inspiring!
Best wishes to all. Here's to the spring!
Just to let you know that I met a lady at my local hospital who is probably up to the same number as you with Herceptin. It was her first sub cutaneous one and they were keeping her in for a few hours observation for this first one, although they did release her early once she had been 'observed' for a bit.
Great to hear your update, very inspiring for all old and new secondary HER+ ladies.
I thought I would join in and say hi to Blondie 🙂 It is lovely to hear from you and to know you are still keeping well and going strong. I still remember the day (how long ago was it?) when you were at my place with a group of others - sitting round the pond and enjoying the the company and chat. I was dx with 2ndaries a year or so before you, but started on Herceptin a month after you. I can't remember what number I am up to but the nurses at the Day Unit always remind me what number it is - I think they said 174 last time. I must say I find the regime of herceptin & zometa so easy and side effect free compared with the 13 years with primaries and chemotherapies including MMM, ECF, Taxotere, Capecitabine, Navelbine before they discovered I was her2+++. We never know what is just around the corner. Hope to find you posting again this time next year LOL.