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FEC-T 100 side effects when will they end?

5 REPLIES 5
Maryland
Member

Re: FEC-T 100 side effects when will they end?

Thanks Franci....you are very welcome. I feel, for me, the best thing about this forum is to share experiences if that can help anyone in any way, I have certainly had some helpful ideas along the way.

My very best wishes for RT and surgery and sincere hope for a successful outcome and your swift recovery. Please do feel free to pm me if I can help in the future, although I had WLE with clear nodes, so probably can't help at all with surgery. Take care and enjoy the weekend......still can't believe the lovely weather 🙂 Mary x

Franci
Member

Re: FEC-T 100 side effects when will they end?

Hi Maryland

Thanks again for taking the time to answer my questions so fully and honestly it's so helpful.

Hope your  next bone density scan results show you still have strong healthy bones.

Best wishes

Francesca x

 

Maryland
Member

Re: FEC-T 100 side effects when will they end?

Hi Franci...you're welcome. I have only had one routine blood test since chemo and although they struggled a little to take bloods my vein eventually plumped up enough! To be honest I didn't have great veins to start with and taking blood was always an issue! The chemo nurses wanted me to have a PICC line from the start, but I couldn't be faffed to have it cleaned weekly as I was working. Looking at my right arm now, I can see one vein that protrudes more than it used to on my hand, and it looks a bit sunken in forearm and elbow crease, but nothing that bothers me.

I have been taking Anastrozole (TEVA brand) since August 2012. The main side effects have been aching hands/fingers first thing in the morning, hot flushes, hair not growing back as thickly as it could, a bit of a dry mouth from time to time and varous minor achey joints, although don't know if this is a long-lasting side effect of chemo! I had a DEXA bone density scan in October 2012 and was told I had the bones of a 40 year old (shame about the body!!). This test is being repeated later this month to monitor impact of Anastrozole. My Onc said that I should try to walk a minimum of 1 mile per day, which I have kept up, as weight bearing exercise is good for bones, try to get as much low fat calcium as I could from my diet and to supplement this with a low dose supplement 5 days a week.

I take Glucosamine and Chondroitin 5 days a week to help with joint aches.....and in the past 2 years have really only resorted to taking Ibuprofen no more than 5 times when the discomfort was getting me down!

As far as I know unless the side effects become really troublesome and impact on daily life, I suspect the potential benefit of taking Anastrozole outweighs the side effects. I would suggest trial and error with brands as the ACCORD brand the pharmacist gave me once, made me have the most horrendous all day and night hot flushes, so I now insist on TEVA only.

Again this is only my personal experience; I am sure others will have different stories, and appreciate that not everyone shares my mindset!

Hope some of this helps....as with all this blooming bc treatment, I have found that the reality is not usually as bad as the anticipation and I have too much going on to let it stop (although it does slow me down hehe) me.....you take care x

Franci
Member

Re: FEC-T 100 side effects when will they end?

Hi Maryland

 

Thanks for shareing your story. If you don't mind may I ask for some more info?

 

Re affected veins. Are you able to have blood tests easily from that arm now?

 

Also re Anastrozole. 

Last week my oncolgist arranged for hormone profile bloods and a bone density test .

He thinks I may be borderline menopausal and that I'll be taking Anastrozole eventually.

I'm rather worried about its side effects. What checks/tests have you had once you were taking it.

 

Cheers 

Franci 

 

 

 

 

Maryland
Member

Re: FEC-T 100 side effects when will they end?

Hi Franci......pleased for you that chemo has finished, and hope that your planned surgery is successful. As you say we are all different; happy to share my experience if that helps.

Finished FEC-T in July 2012.....lost a few fingernails over the next 6 weeks, however they were all long and strong by December and I painted them a vibrant shade of red over the festive season- just because I could 🙂

My veins took around 4 months to recover as I had all my treatment via a cannula (refused any more invasion of my body e.g. PICC line). Used a combination of massage with sunflower oil and stretching. A couple of veins are not quite back to how they were, but I live with that and they don't give me any trouble!

Can't help with burning sensation, sorry, as that didn't happen to me. Hope someone else will be able to advise.

Hot flushes......I was post-menopausal having gone through that with few symptoms, so was a little unprepared for the hot flushes Anastrozole brought! However, they have settled down to 2-3 a day and I stick to the same brand which helps. You could try vitamin E which might help over a couple of months, a chillow for night and to be honest, I just work through it, knowing it will be over shortly.....take off my cardigan, drink water and put my face in front of a fan lol.

Again, don't really have trouble sleeping, although sleep less hours than before.....I make sure I am really, really tired before bed, drink a glass of milk (dash of brandy in it helps) and bought some blackout curtains which are really good. I worked full time as a school business manager all through chemo (except low white blood cell days) and rads (my choice) and I was sooooo slow and tired by the end....however it kept me mentally alert, and helped me not to dwell on the treatment......School was really supportive, and still is when they see I am flagging!! Even now though by about 2pm I am ready for a nap. I usually pop out for a bit of fresh air for 5 mins which keeps me awake!!

I fast walked the Race for Life a year after treatment, and to be honest, apart from lurking on this forum trying to give a bit of enouragement to people, it does now all feel like it happened to someone else! OK....my hair is still horribly thin, I have barely any eyebrows and general aches/pains from Anastrozole, but my life is great with lots to look forward to 🙂

So......all the very best for your return to work, pace yourself, try and live in the moment, as 'we are where we are' and nothing can change that.....be at peace with and, most importantly, be kind to yourself x

Franci
Member

FEC-T 100 side effects when will they end?

Hi I'm Franci 50 years .

Had WLI and full auxillary clearance in April.. 4 out of 26 nodes affected. Also as margins

 not clear will have  mastectomy with free flap reconstuction after radiotherapy.

 

Just had my 6th and last Chemo a week ago. ( 3x FEC 3x Tax)

I am so glad it's over but still feel very scared about how long the after effects will contnue.

I know many feel they can work through Chemo after cycle two I felt too vunerable to do so.

I'm going back to work in 2 weeks and need to hear some positive feedback.

 

I know each one of us will be different , 

but,  I'd like to be prepared for what's to come.

If there are any women who have had any of the following please tell me how it was for you.

 

-Finger nails. 

How likely am I to loose my nails and when?

-Thrombophlebits 

How long did it take for your arm veins to heal?

-Burning underarms and shoulders.

Will this subside or will it continue long term.

-Hot flushes

-Poor Sleep

 

I know these topics may have been covered before but I'd really like some encouragement.

 

Many thanks

Best wishes to all out there

 

Franci  xx