Hi Sarah, thank you so so much for getting back to me so quickly. I think it is the fear of the unknown that is the worst part for me. I am still waiting for the hospital to call to tell me if there is staff available to both put the picc line in and also to administer my first dose of FEC on Saturday - everything seems so last minute and I am such a meticulously organised person!! I too am not too bothered about the swimming, golf and tennis - I think that can wait until I'm better but the heads up re. getting it flushed every week etc is brilliant, thank you again. Good luck with the rest of your treatment xx
Hi, I am due to start my FEC-T & H on Saturday and have been told that I need a PICC line put in - is this normal? Has anyone else had this and if so what do I need to know? Thanks x
I'm 3/4 through the EC bit and have found it very easy so far. I used the cold cap for the first two and kept hair until after the second lot, at which point it thinned so much that I started to wear a wig to work. Now I have a massive bald patch and have given up on the cold cap as I am having to cover my head to go out anyway. Not all of it has gone yet though. I did not find the cold cap at all uncomfortable so don't regret using it to start with (it was worth a try), although it was nice not bothering last time!
Can I ask if anyone has had EC? I'm due to see my ONC on Thurs for the first time but my BCN has mentioned me being given EC not FEC. I intended to try the cold cap if I can bear it, but I have read on the Macmillan Forum, someone has posted saying don't bother with cold cap if having EC as 100% hair loss guaranteed.
Any advice welcome xx
I had my first TC last Thursday, the first night I could not sleep thanks to the steroids. Other than that I feel jet lagged - not quite right but not dreadful. I had the cold cap and it was not too bad. I aslo did my first injection into my belly today.
Hi all just joined this group,I've had 4 fec now last one today hurray!I haven't had an easy time on fec ,nausea being my worst enemy.I would say follow diet tips and sleep a lot.Beware of sickness tablets in my experience I have had 3 types and they gave me worse side effects than the nausea which wasn't reduced at all,but that's unusual I think,just be aware of side effects and tell your nurses and doctors even if you think it's trivial they might be able to help.Not sure what the "t" part will bring yet but I'm hoping it will be easier than fec,also on a positive note my hair started to grow back on 3rd round of fec,and my (quite large) lump has gone after 2nd-Amazing!Good luck with your treatment, stay strong.
I've had the same FEC-T& Herceptin. Finished my last T&H 6 weeks ago. I had relatively few side effects with FEC - just a hangover feeling for a few days and taste issues so I too was dreading Mr 'T' and it wasn't too bad.
The first one I had a really nasty rash over my face and when I (finally) contacted my emergency number they told me to take antihistamine which sorted it out. I say finally because I felt so stupid phoning them up because my face was blotchy and sore - don't feel daft about anything - call them, I caused myself 5 days of disomfort which was unnecessary. After that I took antihistamin as a precautionary measure.
I had aches and pains in my lower back and legs from day 4 - 7, these coincided with the filgrastim (G-csf) injections but after that I was ok and for me they were very manageable with a combination of paracetamol, ibuprofen and microwaveable heat pads.
Taste went for longer every cycle and after 6 it is now almost back to 100% - I can now enjoy a glass of wine again When my taste was at its worst I found that pineapple and citrus fruits 'cut through' and hot blackcurrant squash was much more palatable than tea or coffee.
I've now had 1 Herceptin on its own - number 4 and I've got my 5th tomorrow (pending results from today's echo cardiogram. It was fine last time, bit of a headache on the evening and generally feeling slightly 'under the weather' the following day but nothing that an early night and some paracetamol didn't sort out.
There was a definite postiive with the 'T' though, whereas with each cycle of FEC my hair tried to sprout but came out again, after T2 it started to grow and hold on
My advice? Drink lots and lots of water, rest when you need to, exercise if you can, pay really good attention to oral health (I never got a single mouth ulcer) and stock up on catch up TV so that you have soemthing to watch when the 'T' dose of steriods kick in.
Good luck with the rest of your treatment - you will get through it and it won't be as bad as you fear.
I shall keep an eye on this thread because I think I will be on this regime. I have HER2 and had surgery(lumpectomy) and sentinel lymph node biopsy last week. I am going to get my report next week. Many people say you should drink lots of water and that eases it. I wish you well.