I've just finished my course of FEC / FEC-T today - 3 x FEC and 3 x FEC-T. I did try the cold cap originally but it didn't seem to work for me, even after just one session, my hair went extremely thin on top, so I almost had a monk style, so I shaved it off, best decision I made, I think, bit more comfortable. I had a PICC line in, so that's been in the top of my left arm for 18 weeks and that came out today after chemo had finished.
I'm booked in August 1st for my mastectomy, then will have a course of radiotherapy at possibly 3 weeks with 3-5 sessions per week then have the reconstruction after all that's healed and settled down.
If you do feel really sick with chemo, ask for Emend, it's great, really stops you feeling as bad, I had that the 2nd lot as I was sick 3 times after my first session. But they do give you a good supply of anti-sickness to help, that's dexamethesene and kytril. Are you having the filgrastin injections too (usually start 3 days after treatment for 5 days)?
OH YES I'm prepared to have bad days . I only hope they will be few and far between.
I am ER+, PR + but Her 2 Negative. My tumor turned out to be 39mm and my margins weren't clear.
Once I have finished my Chemo, radiotherapy and mastectomy I'll be on hormone therapy oestrogen blockers tablets for 5 years .
A long road ahead for both of us.
Be gentle with yourself and stay strong.
I had 3xFEC and 3xDocetaxel end of 2013
I had my first 2 FEC through a Cannula but after that I had a Port put in
I found that my veins did get a bit painful during the first 2 FEC so it was advised to have the port put in. We were also having problems getting blood out to be tested before each chemo cycle.
One vein is still damaged even through I have finished treatment. I would see how you go but I did suffer quite a bit of pain with the Cannula and I am glad I had the port put in.
I didnt use a coldcap but my next door neighbour did, her hair thinned but she did maintain most of it. I lost all my hair but it is growing back really quickly now
Hope this helps 🙂
I think most chemo day units have a 'fridge and ice box in the waiting room. Ask the chemo nurse when you go for your induction meeting if there will be ice cubes available. If it's a large hospital there probably will be, but if not you will need a cool bag to put them in.
The steroids help prevent nausea and sickness, and you will feel quite good whilst taking them as long as you don't leave them too late. The first infusion you have will be anti sickness medicine, then Epirubicin, followed by liquid steroid to calm the veins down. then in goes the cyclophosphomide and finally the flourouracil (5FU). The whole procedure only takes about an hour unless you use the cold cap, and the nurse will sit with you throughout as she has to keep changing the drug cassette as each one finishes.
I am well over one year since my active treatment and have had my first annual breast check in January and I'm living happily in NEDLAND in a state of NED (No Evidence of Disease) I now take Anastrazole every day as my cancer was 100% Oestrogen positive and 70% Progesterone positive.
I'm only too happy to help, take care. xx
I had FEC-T starting February 5th 2013. A cannula in my hand was used every time with no problems. I didn't use the cold cap myself, but one of my group (February Valentines 2013) did. She lost a little hair, but kept enough for it to look reasonably good. Other tips, when they are infusing 5FU (the last drug to go in) suck ice cubes until it has finished, to stop your mouth getting sore. Epirubicin (the first drug to go in) makes your wee red for a while, so drink plenty of water for a couple of days afterwards. They will give you steroids to take for the first 3 days afterwards, take them as early in the day as you can, but no later than about 2pm, or you won't get any sleep. Make notes of any side effects you might experience and tell your oncologist so they can give you drugs to counteract it next time. Join one of the monthly chemotherapy threads. You will meet a group of women going through the same as you, so you can support one another and exchange advice, tips, worries and good news - yes, there will be some along the way.