I am on exactly the same chemo etc as you but behind you, had 1st FEC 2 days ago and still feel the same as when 1 went in. Do tell me how it has been for you...
Dear Mrs Moomin
Thank you for your helpful response to the problem I am experiencing with my son. When I look closely at the situation I can see why he may be having difficulty with dealing with my breast cancer. He is 31 and has been married for nearly 3 years. Last July he and his wife had their first baby, my first grandchild. To cut a long story short he was diagnosed with a rare genetic disorder which will effect his development. The diagnoses has been a shock to us all but especially to my son and his wife. I feel guilty now but more understanding and empathy for him and his wife. I have been in contact with him and feel much more possitive. Thank you again. SML
I had my 2nd FEC on the 8th May and felt much better than I did for the 1st one. It took a few days to feel myself but fine now. I feel I am very very lucky regarding side effects and my sympathy goes out to those of you who are suffering. I did decide not to have the cold cap this time as my hair was falling out anyway and now its almost gone. Definitely will not be going out without my wig.
I was wondering if anyone is having problems with their children? My daughter who is 29 is being fantastic a but my son seems to be having difficulty. He only lives 2 miles away and I saw him for the first time on Saturday since Easter. He came in but could not look at me and said little directly to me. He managed to stay for 1 hour and 45 mins and left without letting me give him a kiss. He doesn't phone or text me even though I have tried to text him a few tmes but I am at a loss to know what to do. Anyone have any suggestions?
If you keep taking the nausea tablets you will probably not be sick at all, I never was. Also take your steroids early as they do keep you awake at night. Good luck
Hi, I just had my first Fec today....1.30pm, and now, at 6.30 I wish it was dark so I could go to bed!(I know I can if I want to....it's just that I may not sleep all night!)
Dreading nausea......I have a real horror of it, due to childhood sickness.....so, fingers crossed!
I am unsure how to get onto this May page .....please can someone tell me if I have done this correctly? Sorry Forties to use your post to try to get on-board!
I like your idea of porridge with honey - I use Manuka honey daily, so that would be good! I'm sort of planning on "little and often" as a way of staving off the nausea........
Best wishes to you and everyone on this site.......I;m very grateful for it as I live alone, and despite a loving daughter and one or two good friends, I don;t always want to feel a "burden" to them.....
My teatments are the same - 3 FEC followed by 3 Doxetaxel and I've had 2 FEC so far. Having no taste is a big problem for me as I can't find food I fancy eating. I've started using condiments to make it appetising so loads of ketchup, salad cream, pickled beetroot etc Also I like curry and spicy soups so that gives another option too. I'm enjoying porridge for breakfast with honey as I can taste sweet food but all other cereals are just bland. I'll have to watch portion sizes though with all this extra sauces and I find the steroids make me really hungry too! I'll try to be active in my good weeks. Luckily I've not had mouth ulcers but my mouth does feel a bit furry! I'm going to try an alcohol free mouth wash. Hope you stay well.
H i Fairy
I sympathise with the bad taste.......... I use the obvious corsodyl etc......and my dentist said to constantly keep my mouth moist with chewing gum...sugar free
I find that eating lots of vegetables and fruits helps in countering bad taste problems to a large extent....pineapple, ice cold drinks,
- I brush my tonge at least x 6 daily and clean teeth
- i eat alot of pineapple
- rinse my mouth out frequently
- Gargle your mouth with salt water twice a day to prevent this problem. Prepare the solution by mixing 8 ounces of water with 1 teaspoon of salt or ¼ teaspoon of baking soda
- Drinking less water can also dry the mouth resulting in a smelly mouth. Hence, drink plenty of water to keep your mouth moist - I aim for 1.5+ litres daily
- Lemonade, citrus juices and foods marinated in vinegar assist in producing saliva that helps in washing away the bad taste in mouth, leaving you with a mouth smelling fresh
I know you have probably tried them all.....but I just keep doing them all....oh and eat eat lots of bland foods like weetabix, porridge and bread....temporary relief
Hope some might work xxx Donna
Hello. My GP wrote me a sick note for 2 months so have to renew it in a few weeks but she did not write me a letter to explain about the risk of infection. The school have been very good however and the staff very supportive.
I already have my wig and looks like I may soon need to use it as my hair has started to fall out in the last few days. I did use the cold cap when I had my 1st chemo but not sure if I will use it for my 2nd on Thursday if it is falling out anyway.
I only have 3 cycles of FEC followed by 3 cycles of Docetaxel, then surgery followed by radiotherapy. I saw my oncologist Thursday evening and after only 1 cycle it looks as if my tumour has started to shrink which I am very pleased about.
I am also having the white cell booster injections and have managed to stay infection free so far so I think it is worth having. I did read that you need to be extra careful when gardening as any sort of cut or graze could be an infection risk so do take care. Best wishes.
Not been around for a while, hope everyone is well? I have just had my 4th Fec but in the process had a Picc line fitted as my 3rd Fec was so painfull and resorted in my knuckle being used as my veins are that bad. The Picc line its self has made things a lot easier and I would reccomend if you are having problems with viens being found ask about one being fitted. Feeling like I am going down with cold today, temp fine so fingers crossed. Still suffering with the most horendous taste is my mouth has anyone found anything that works for this yet? Tried various mouth washes but nothing seems to be working. xx
I'm a teacher too, but secondary age, and my GP wrote me a very long dated sick note the minute my diagnosis of bc was given! The GP just said the risk of infection mixing with children whilst on chemotherapy was not worth the risk and the GP also said they had never known a teacher to keep on working with the stress of the job and diagnosis! Unfortunately I still managed to pick up an infection from my own children in the Easter holidays but I'm now on the white cell booster injections to counteract this! I've got a summer and autumn away from work and I'm going to sort out my garden and house in the weeks when I'm feeling more energetic. I'm not feeling so good about hair loss though - I've used the scalp cooler with my first 2 cycles on FEC and coped with the freezing temperatures but my thick hair is now thinning rapidly. I'm getting ready to buy scarves and a wig........ Hope your 2nd treatment goes well this week.
Hi. I had my first FEC chemo nearly three weeks ago and due to have my second lot on Thursday. I have found it interesting to read your comments about reactions to the treatment. As I have had only a few side effects after my first lot I feel prepared now that the second treatment might not go so easily. Also interested to read that some are still working as I was advised to stop straight a way but I think it was because I teach in a primary school with reception and year one pupils. I would be interested to know if anyone else is in my situation regarding work.
I've had my 2nd FEC this week and the fatigue and fuzzy headed chemo brain are much worse this time around. I've slept the whole time my children are at school and just about manage the morning drops off and pick ups. Luckily I can walk to school as my head is not clear enough to drive. My first cycle went ok until I visited family over the Easter weekend, Unfortunately I came down with a fever and ended up in hospital along way from home for 4 days with neutropaenia (no neutrophils/ white blood cells). The NHS staff were all superb and I was very well looked after. I'm all sorted now and will get bone marrow boosting injections each chemo cycle to stimulate white cell production. The great news is that I'm on neoadjuvant chemo (ie. before surgery) and my most recent ultrasound shows a big decrease in size of my tumour so all these horible side-effects feel worth it! Its important to find something good in every cycle along the way!
Reading through some of these threads as I am about to have my second chemo one thing which has struck me is the variation in what hospitals routinely provide. My oncology centre, for instance, sent me home with mouthwash to prevent ulcers, and stuff to deal with constipation, and, if I hadn't already been on lanzoprozole for a hiatus hernia, would have prescribed this automatically. It is clear from some of the posts, however, that people have had to seek help for these problems. I'd be interested to know what other people have been sent home with (apart, obviously, from injections to boost white cell counts and anti-sickness pills, which I assume are standard.
Hi Mrs moonmin,
I did experience awful aches in my lower body, hip area, in my knees and shins and feet.(not my chest) This was from treatment 4-6 when i was on Docetaxel (taxotere), i had nutropenic scepsis my nuetrophils were 0.0 after my last treatment, so i spent a week in hospital and they told me the tax does that and the filgrastim injections make it worse. They gave me codeine for pain. It felt like ... how people describe gout, deep pain that doesnt go away.
The wobbles i found eased when i changed my eating habits, id be really wobbly in the morning either when i needed the loo or if i hadnt eaten over night. I found taking a big drink of water or squash to bed with a couple of biscuits to eat in the night helped. Im six weeks post chemo and im still getting hot head sweats and a few wobbles if i dont eat !!! I find i have to eat something, even if its little every 2-3 hours.
My best meal is breakfast i can manage most then, lunch is ok, but i ease off dinner time, still if i eat too much at dinner i feel sick or have a bad stomach ! so i went with small and regular most of the way through and it definately helped me with the wobbles. I think the body needs constant nutrients because its trying to heal and feed you at the same time !!!
Hope this helps
I do tend to get quite wobbly through out and this tends to ease towards the end of the 3 weeks. I have had central chest pain which is more like spasms that go round into my back, which I found out was reflux am now on medication for that and so far so good. I you will get good day and bad, and it is important to make the most of your good days and dont beat yourself up when you have a not so good day. I am glad your BC team are checking you out best to be on the safe side. Always good to share that way we dont feel as isolated, before I found the forum, I would fine myself thinking I was being stupid and imagining the side effects etc Hope you have a better day tomorrow. I am due my third FEC cycle on Friday and on previous sessions have found around day 10 I really start to pick up
I have just finished fec-t a couple of weeks ago and also suffered constipation and heartburn as side effects.
Please dont let constipation last long as I did and suffered quite badly with it, despite trying everything including senokot. I eventually got Lactulose prescribed by GP and it worked wonders I also got omeprazole for heatburn so dont suffer and get meds from GP.
Good luck with rest of your treatment.
Hugs Wyn x
Mrs_Moomin around day 12 I really start to pick up by the end of week 3 I felt the best i had done in ages.
I really hope you manage to sort the drinking out and if i can help in any way just ask. Good luck with you treatment 🙂 xx
Hi mrs moonmin,
Ice lollies are great, worked well for me 🙂
You can buy an ice lolly maker from Lakeland, they start at around £20 i think, we bought one, you keep it in the freezer and it will freeze a lolly in 8 minutes, it can do 3 consecutively. We stuck all sorts of juices in it, whatever i fancied. Also husband made me fresh smoothies every day so some smoothy went in there too 🙂
Manuka Honey, a tea spoon on the tongue really helps when youre on the Tax, doesnt really help the thrush but it does help all the splitting that occurs ! The nurses can prescribe various things for your mouth, i had, nystatin (solution for the furry tongue),difflam (pain relief spray for sore throat) and fluconazole (pills for the thrush).
My taste buds went completely, not for long though thankfully.
good luck with the rest of your treatment
I to struggle to drink for the first 10 or 14 days after a chemo session I had my last one 2 weeks ago. I do a couple of thinks firstly Lime juice with cold water or even ice cubes in this helps a little but the big success for me is Ice lollies, I find these really helpful especially when your taste buds are are playing up either with the metal taste (1st session) or my second session I found my mouth felt really greasy. Something that someone said to me was "Just remember that any reaction from the chemo is jus a sign that your kicking cancers butt"
Hi there. You are not alone. I have only had one cycle of chemo but I am finding I have good days and bad. Shouting at the kids for no reason. Not knowing what to do with myself. I was pretty weepy by day 3. I have my 2nd chemo on April 11th. If I know I am going to have 5-7 bad days but then 2 good weeks, it's something to focus on. My mouth has already started to play up. I have ulcers and furry feeling gums.
Hi Lisa C,
I had 3 x EC and 3x Docetaxel.
Yes ive been nutty too 🙂 ive had a couple of days where i was a complete cow, moody and horrible and i didnt know why and by the end of the day i was crying.
The crying thing hasnt gone away yet, i am not a cryer normally but through from id say session two ive been a blithering mess from time to time, ill just sit there and cry for no reason, Hubby asks why and whats wrong and i really dont know !!!
I finished chemo four weeks ago and im still emotional, im sure it'll settle eventually 🙂
Oh and anything i forget i blame chemo brain, its been like mash potato for six months now 🙂
Good luck ladies, health and happiness for the future
FEC definitely messes with the brain!
On my first cycle I was seriously disturbed, weepy, whiny, for 3 days during week 2, and on day 4, the minute I woke up, I knew things were better. I just assumed the chemicals had affected the brain and then dropped to a level where they were no longer having that effect.
It didn't happen this time (I'm only on cycle 2) but I can start crying at the slightest thing - usually someone saying something just slightly moving on the TV - and that's really not me! I've just become resigned to not being me for the foreseeable future...
Does anyone else have side effects of turning into a crazy woman for a few days? Stands to reason that chemo must poison part of the brain....well that's my story and I'm sticking to it. Seriously, I get to the point where I go a bit nutty, not thinking straight and being bad tempered. If this sounds familiar please share then I will know it's not a different issue; if husband stays he should get a medal x
Hi all. I am new to this forum. I got diagnosed with bc in jan this year. I had a mastectomy on 14th Feb. All went well and was out of hospital the day after the op. Mine was a grade 3 aggressive 8.5cm. I will be starting FEC tomorrow (weds). I have been speaking to a lady near me about how she got through FEC. I am starting to worry about it now but I know it's somehting that has to be done. I know this forum will be a god send to me
11 days in and taste buds, not tasting so much of metal but still unable to drink tea not had a cup of tea for nearly 2 weeks gosh I miss it. I think no tea for the next few months is small price to pay but utter torture. I still want tea but it is not tasting right infact iwould just love a warm drink but at the monment its only cold drinks that taste anywhere near normal
Thanks. Nearing the end of chemo now. I have my fifth session this Wednesday, and the last on 2nd April. So it won't be long before I can enjoy a nice cuppa again.
I just had to post you some that a dear friend of mine who lost his lovely wife to BC said to me this morning as my hair as started to fall 11 days after my first Fec chemo and like you I am worried and scared about if or when it will grow back "your hair doesn't make you the strong brave lady you are just think of it as a new free hair style" Put a smile on my face xx