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Fatigue

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Re: Fatigue

Good luck Naz. Hope you find something that helps. I  am finding 'The Reality Slap' by Russ Harris quite useful too. It focuses on dealing with life when you end up not quite where you wanted to be. Haven't read it all yet - fatigue limits me to about 3 pages at a time! But it does make alot of sense. Ruth.xx

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Re: Fatigue

Thanks Ruth, I may do that . Have been in touch Macmillan and there are various options available . Like you, I don't think it will be weekly all the time, as I do have some very good days, but when the bad days arrive, they aren't great, but I can manage to swing things from bad to good through exercise ( sometimes) xxx It would be great to get bizarre feelings into perspective though! Xx

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Re: Fatigue

Hi Naz

Been seeing her for about 8 months now. Appts range from every week to every 3 weeks depending on how I'm doing. 

I would recommend it if you can access something similar. Having that hour to offload, organise how you're feeling and get things into perspective is really helpful.

Take care

Ruthxx

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Re: Fatigue

Hi Ruthu

I can well  imagine that your job takes it out of you. I used to be a secondary school teacher in a former life and it was tough enough then, so I do have a good idea of how you might be feeling now.

 

I do think that once we have finished treatment or have been discharged from oncology, there is this feeling of being abandoned from an emotional perspecive, so I am pleased that you find the sessions helpful  Hopefuly you will make progress wih the fatigue, but I can appreciate that the knock on effect mentally, can take its toll.

 

How long have you seen seeing the psychologist (if you don't mind me asking?)

 

Naz xx

 

 

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Re: Fatigue

Thanks Lucy. I haven't tried the helpline for this so I'll give it a go.

Naz  and Seabreexe- i have found the psychology sessions really helpful. Still work in progress but would be in a much worse place without them. We mainly focus on how the fatigue makes me feel and how I deal with it but also on everything else relating to bc. The fatigue is physical but the mental effect it is having on me makes it worse - vicious circle. When I was off work I was going to the gym and getting out for regular walks but since returning to work last September firts the gym and now even the walks have stopped. I work as a primary teacher and the job just drains me - leaving no energy for family or just life. I'm working on this aspect of it with Occ Health so am hoping that we may be able to do something to address this. Tbh trying to get referred to a Specialist was me clutching at straws. I have felt quite abandoned with the fatigue. Been discharged from my Onc. GPs not too useful. My referral to my psychologist only happened once I'd written to my Onc detailing how I was feeling. Not sure where we're supposed to turn.

 

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Re: Fatigue

Hi, I struggle with fatique. I would say its physical with some mental fogginess. Unfortunately, my consultant and gp havent been much help. The general advice has been to keep getting some exercise - I'm sure this is good advice but difficult to implement some days. I do try and eat a healthy diet.

 

I have experienced fatique to some degree ever since my initial diagnosis. I think it took me time to recover from rads and I was on tamoxifen for 5 years. Then I had a few years off it and felt nearly normal but am now back on it.

 

The main things that I find helps a little bit are pacing myself and regular meditation.

 

 

 

 

 

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Re: Fatigue

Hi Seebreeze and Ruthu

 

Ruthu, I would echo the walking and exercise that SB has mentioned, it really can make you feel loads better at times. I swim, started a year ago, I am not fast, but it does wonder for my mind and really calms me when stressed. Is the fatigue phyisal or mental? Mine is mental, I worry too much, churn stuff over and don't sleep terribly well some of the time. But no matter how tired I am, i try to go for a walk or swim and I do feel better for it afterwards.

 

Seebreeze, It sounds as though your sessions with the CP, were helpful and I am just debating whether to take the plunge and see someone myself. I struggle with my post surgery body, which has a knock on effect on how i view myself and my perfomance at work. Whilst my family were supportive throughout treatment, I now stuggle with the reality of having gone through that experience. It still seems to be very much at the front of my mind (on and off) and I don't know why. My body has lots to do with it, but don't seem to be able to accept or come to terms as i would like..it is the 'thorn in my side' not good!

Then there is this business of grieving for my old body that seems to surface when I am stressed! Basicaly just when I think i am sorted and moving foward, something happens and stops me and I don't get it?

 

 

 

 

 

 

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Re: Fatigue

Hi Ruthu and Naz,
I've not heard of specialists in fatigue, tricky since it covers a wide range of areas. I'm hoping to get to go to an event arranged by a hospital (in London) in a week or 2s time and will let you know if I find out if there is a specialist. I wonder whether a really good nutritionist could help layered on top of getting out for a regular walk, trying yoga etc?
Naz - I saw a clinical psychologist around the time I had radio. I did find it helpful...first sessions were chat then focused on things which came out of that, for me that was stuff to do with not having kids v risk if I didn't take Tamoxifen, my incredibly tiny family being so disappointing unengaged through my diagnosis and treatment, background stuff to do with why I don't have kids, why I struggle to accept offers of help from pretty much anyone, and how I see my future. I think either the bcn or gp can refer you. Hope that helps...I need to respond to you on another string!
Seabreeze
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Re: Fatigue

Hi Ruthu

I have no experience of a fatigue specialist, but noticed in your post that you are seeing a clinical psychologist at your local cancer centre. I just wondered if you found it helpful and what kind of things you might bring to the session? I only ask because I am 4 years on from treatment and 1 year from last surgery and still struggle with the whole BC experience often than I would like to!

 

Feel free to PM me if you would prefer (or not at all, I don't mind).

 

I hope you manage to find something which works for you xx

 

 

 

 

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Re: Fatigue

Hi ruthu
Here's the fatigue information on the BCC site and please feel free to call our helpliners as they may have further ideas for you regarding a fatigue specialist:

https://www.breastcancercare.org.uk/breast-cancer-information/impact-breast-cancer/fatigue

Helpline 0808 800 6000 weekdays 9-5 Saturdays 10-2

Take care
Lucy BCC

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Fatigue

Hi all,

Has anyone been referred by their GP to a fatigue specialist? My private health insurance have said that they are happy to cover a referral but they don't know who to refer me to! I am already seeing a clinical psychologist at my local cancer centre following a referral by my oncologist but I really need to see someone who can advise me on every aspect of fatigue. We don't have a fatigue clinic locally ( I live in South Wales) so I'm looking for an alternative.Any thoughts? I'm 2 years on from active treatment.

Thanks