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February 2010 mastectomy ladies

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Re: February 2010 mastectomy ladies

Back home & catching up with cleaning up after builders, mountains of washing etc etc. getting ready for school run on Monday. Had a great time though and now I have to seriously attack my diet again, too many cream teas I think! Hope the blood tests find the cause of your symptoms, Lynn. Glad to hear your trip to Cyprus went well! All that hot sunshine... Pam, heating back on, hurray! Hope the op won't be too far into May, so you can be fit again for the next new arrival! Have a nice week in Cornwall, Wendy, hope the showers stay away! Cat, bet you will be busy with SATs coming soon. How is your breathing? Beverly, my flushes are worst at night, can't remember when I last slept through without duvet on/off/on/off going on!
Big hugs to all!

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Re: February 2010 mastectomy ladies

Hello everyone,
Good to read everyone's news. Glad holiday in the sunshine was fabulous for you Lynn and the Dorset coast is always a delight, glad you and your family had a good break-away Tina....
I'm off to Cornwall next week for a whole week so consequently my first Easter week was looking pretty empty and an ideal opportunity to get clearing and sorting done ready for painting work in my house whilst I am away.....
Well I soon got very bored with that, so whenever the sun really shone brightly I was walking along the sea front here and actually it did me the world of good as the 'to-do-list' didn't seem so hideous when you've done something pleasant already....
Needless to say I didn't get all jobs done because after losing virtually three months to deep depression this year I certainly had a lot to do!!!
This week has been more sociable so I'm meeting up with friends and definitely needing scarves and gloves whilst strolling. Where has the sun gone? Cornwall is destined for showers next week so I'll not be happy if I get soaked! I'm doing an art course in the middle of the week but as it's such a trek down to Cornwall I thought I'd combine it with a bit of a sightseeing holiday too. So I've been doing some extra teaching over the holiday to try and not disappoint my 'little darlings' who will miss a few lessons.... (I'm sure they wouldn't mind but their parents are ultra keen!!!)
Tomorrow I'm back on the Farmer's Market so been busy in the manufacture of cards this week hoping to make a fortune tomorrow so I've got spending money for my hols!!??!!
Some dream eh?

Glad you got your mammo result eventually Beverley. Far too long though... You must be relieved but pi**ed off too!
Pam, sorry to hear about the c.heating issues continuing.... Brrrrrr!
Am sure your date in May is something to plan towards now.
Hope Cat, Annette, Maggie enjoyed the Easter break in some way.
I'm waving to everyone from another chilly day here on the coast.
(Still snuggled up in my jumper and scarf and trying hard not to put the heating on. I should probably do some very energetic housework to warm up but I'm not keen!)

Lol Wx

Petal5
Member

Re: February 2010 mastectomy ladies

Hi everyone.

That was a very long wait Beverley but glad it had the right news in the end. We have been having heavy showers too. One minute it is blue skies and sunshine and the next pouring down.

Your get away sounds good Lynn, also you seem to have had. Good Easter break down on the coast Tina.
I am still in the process of trying to get a working central heating system as those of you on fb will have seen. I hate all the chaos workmen make!

Talked to the plastic surgeon's secretary and she says my op won't be in April but hopefully early May.
Pam x

barneyb
Member

Re: February 2010 mastectomy ladies

Hi Lynn

Good to see you back and so pleased you had a lovely time - sunbathing sounds wonderful. Just got caught in a hail storm returning from Leo's walk!!

Our holiday is booked for July so a little while to go yet.

Thankfully finally had a letter confirming "all ok" with mammo. It came last Thursday almost 5 weeks after the mammo!!

Beverley xx

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Re: February 2010 mastectomy ladies

Hi again- Cat, how are you feeling these days. still any niggly sore bits? Wendy - so pleased your scan was clear, big relief i'm sure, how hopeful are you something can be done re the spine problem? Tina - hope all good with you, you managing to see any more of OH recently? Pam - how's babies galore doing? Bev - remind me again how long till your holiday, can't remember if it was before summer or not? - hope you've got the mammo results in writing by now. Annette - haven't heard from you in a wee while, hope things are getting better?

This is my last day off work - taking the kids out for lunch. Had routine bloods done at the GP this morning, not really because i'm feeling any worse than before the holiday just because of the way the conversation was left with the GP before going. Still not done anything about a chest x ray - odd but i need to pluck up more courage for that one!

Thinking of you all.

Lynn
x

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Re: February 2010 mastectomy ladies

Hi everyone - had a lovely time, didn't do very much but lovely to feel some heat in these bones. I should have been born somewhere hot. Felt quite odd leaving one at home for the first time. Strange thoughts sunbathing in that dreamy kind of state, where i couldn't help but wonder what i thought about in the days before BC when i was sunbathing. I suppose i still can't quite accept that 2 yrs on, my happiness is still tainted a bit and i'll never be as happy as before - even although i can't actually remember the specifics of being very happy before. (if you get my drift - sounds a bit daft, i know what i mean)

Good to read everyone's news. I'll post again later, my daughter is being very impatient for a lift.
x

barneyb
Member

Re: February 2010 mastectomy ladies

Hello everyone

Hope you all had a great Easter break - well better than the weather was for a start! Typical Bank Holiday weather here - rain!!

How was the holiday in Dorset Tina? Hope it was good and that when you get home all the building work is complete. Lynn - trusting you got better weather than we did here! Hope you had a fabulous time.

Wendy - how are you and have you heard if you have an appointment yet with the specialist?

Have had a bad day today with the dreaded hot flushes!! Thought they were calming down but today has been a nightmare. Have been feeling quite stressed though, not sure why, so maybe that's the reason for the increase.

Pam, Cat, Annette and Maggy - hoping you are all well and sending hugs to you all.

Beverley xx

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Re: February 2010 mastectomy ladies

Hi all & greetings from Dorset! Had a lovely walk around Dorchester this morning, we took the dogs and it's like going out with a couple of celebrities, we get stopped, they get cuddles & even had their picture taken by an American lady for her friend in Seattle who has a Sheltie. As we are having the Easter holidays here, the builders have started back home on the upstairs. Expect lots of cleaning when we get back, the dust gets everywhere! Beverley, I think this wait is not acceptable really, have they any idea how we feel waiting??? Wendy, hope you get your bones sorted, it's worrying, have you got an appointment to see a specialist? Lynn, enjoy the warmth, it's freezing here! Maggy, hope you & your family are doing ok and all is on track for the new arrival. Pam, enjoy Easter with the grandchildren, the babies look so lovely! Cat, are you at home or away for Easter, is your loft extension finished? Annette, hope your mum is on the road to recovery and you are feeling a bit better. Love to all! xx

barneyb
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Re: February 2010 mastectomy ladies

Thanks Wendy for your kind thoughts. At last this morning a letter saying all ok!! Have felt in a bit of a "fog" these last few weeks, not sure why, whether it has been the waiting etc.

Lovely bright sunny day here today, at least with the English weather we can always find something to chat about!!

Hoping everyone has a lovely peaceful Easter.

Beverley xx

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Re: February 2010 mastectomy ladies

That is far too long a wait, Beverley.
You just need to see it in print before you can absorb the news.
I sometimes wonder whether they can even understand our anxiety to wait.... I spoke to my Consultant about my mammo results that never ever did arrive last year....
He said it's all down to communication problems but we know that all too well, don't we?

Do hope you receive the letter before the Easter weekend.
Five weeks seems cruel.
So glad you know they will be results without a follow-up.
My results arrived this morning but post doesn't arrive until after 1.00pm! It has seemed a very long wait every day!

Glad I didn't have to pop outside before bedtime as Leo has... and in the snow too!
Obviously there are some advantages to being human?!!?

Goodnight Beverley, sleep tight....
And everyone else.

Wx

barneyb
Member

Re: February 2010 mastectomy ladies

Wendy - so pleased to hear that your scan results were clear, although I know you now have to face up to other problems, at least it's not BC related.

Freezing cold here tonight, a biting wind blowing when I let Leo out into the garden at 11!! We had the snow this morning but thankfully it didn't stay around too long.

Would you believe I am still awaiting my mammo results?! I have phoned my surgeon's secretary and she assures me that the results are ok and a letter is in the post to me, but until I get that letter I just can't relax. It will be 5 weeks on Friday since the mammo!!

Hope Lynn is having a really good time in lovely warm temperatures.

Love to all
Beverley xx

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Re: February 2010 mastectomy ladies

Sorry to hear about your heating issues when the weather has turned so much colder, Pam. Hope you're managing to keep warm.
Lynn has certainly chosen the best week to get away to warmer climates, hasn't she?

I've heard today that my scan was clear of any stray cancer cells but my upper spine is showing signs of deterioration. The bones look fine on an X-ray but obviously these scans can see so much more....
Not sure if that's because of natural aging or further complications with the osteoporosis?????
Either way you can't win can you? However, good news on the BC front.
Now have to see Dr about future treatment if there is any???
As I'm only just 5ft tall I can't afford to shrink any smaller!!!
I'm just hoping they can do something to help with the comfort....

Hoping everyone is coping with the chill.
Gardening has had to be curtailed but rain did arrive here yesterday, after I had watered the tubs of course!!!
I'm back to thicker jumpers and my jeans again....
Although typing here I quite fancy a pair of gloves!
It seems a bit excessive to put the heating on yet as I'm doing chores..... or maybe a teabreak is on the horizon?(and a hotX bun?)

Love to all, enjoy your Easter chocs.
I finished mine last night!!!

Wx

Petal5
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Re: February 2010 mastectomy ladies

Hi everyone.

Gosh the weather has changed! Freezing here today. Hope that those in the north haven't got too much snow. Have you already departed for warmer climates Lynn ? Have central heating problems here and won't get repaired until next week so only have central heating upstairs. Luckily have a fire downstairs.

How long do you have to wait for results Wendy? Thinking of you and keeping fingers crossed.

Love to all.
Pam x

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Re: February 2010 mastectomy ladies

Another lovely day here after a very cold one yesterday.
Back in my long-johns at this rate!!!
Had a fairly quiet weekend as I was preparing for a scary event today and it went really well. Delighted and glad it's under my belt and in the past tense....
Still keeping busy as I await test result which I'm now beginning to feel will be a negative. Strange feeling but nothing like the angst of waiting for surgery results in 2010 and 2011..... So I'm feeling more optimistic!

Hope everyone is ok and coping with their trials of waiting....
Holiday people might have left by now. Hope you all have a cracking time wherever you descend....
I'm working tomorrow and then I've got to work in another way to replace my stock for F.M. stall on 14th. I'm hoping it will be a pleasant diversion and a great excuse to ignore the housework!!!
The Easter week is very busy with visitors so that will be a mixed blessing....

Tight hugs to you all for this Easter break whether you're at home or away. Take good care.

Wx

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Re: February 2010 mastectomy ladies

Really enjoying the lovely weather, although bet once the boys are off school it will start raining again! Have a fab break Lynn, hope it may bring an improvement to your symptoms! Pam, hope you don't have to wait too long for the next op, especially with the new arrival due in the summer! Wendy, fingers crossed for your scan results although with your previous history, it's probably not that straightforward! Bev, any news from your mammo? Hope all is well with everyone else. Cat, have you started on Aspirin after seeing the doctor? Annette, hope your mum is recovering, & the councelling is helping still. Maggy, looking forward to your new grandchild? Happy Easter Break to all! xx

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Re: February 2010 mastectomy ladies

Hi Ladies,

Enjoying this wonderful weather - so rare for us up here to be sharing the same weather as south. I have it on good authority it'll be well cool here just in time for us heading off to Cyprus.

Wendy good to hear from you - i so get where you're coming from re your need to stay away for a time, no offence taken (well not by me anyway) i hope all is well for you.

Haven't felt just as bad in the last few days but the symptoms are still kind of there. My guess is i'll be back in the waiting room after the holiday - head in the sand for a bit longer!

Nice to see everyone's news as usual, albeit not as frequent as before.

Lynn
x

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Re: February 2010 mastectomy ladies

I'm afraid I became very preoccupied with the dreaded test as you can all imagine so I went into overdrive to keep myself busy beforehand!!!!
I did some lovely things like going to the Hockney exhibition, staying with my niece in London and spending loads at the Country Living Fair! But it didn't quite obliterate the reality!
Friday came and I was very very calm but paddling like crazy under the surface!!??!! Coped very well with the dreaded injection because the staff were so lovely to me and everything was fine although I hadn't realised how claustrophobic I would feel....
It was all fine except that every health professional I met during the day kept going over my cancer history in minute detail that in the end it felt they were telling me to be ready.....
Obviously they were just checking details but I feel I'm back in the cancer waiting room again....

Since, I have felt overwhelmed with fatigue which I'm sure is the emotional angst rather than anything else....
Could just sit in the sunshine and do absolutely nothing!
So with just one more week to work before Easter hols I am desperate to finish but need some distraction during this waiting game...

Heigh ho!
Sorrry to have neglected you all but have become very inward looking recently and avoided the forum completely....
Nothing personal just a need to leave cancer talk way way behind....

Glad to read you are enjoying the sunshine and your gardens.
Lovely walks in Dorset sound superb....
I must try and get out soon to walk along my coast whilst this sunshine is present....

Love to everyone,
Wx

Hope mammo results have come through Beverley.
Also sorry to read you're feeling the strain Lynn.
Hope others hear good news very soon....

Petal5
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Re: February 2010 mastectomy ladies

Hi everyone.

Hope you are all well. Wendy you have been very quiet. I hope you are ok.

I have been enjoying the wonderful weather we are having at present and making the most of it out in the garden as much as possible. So nice to be out in the sunshine.

Still no news on an op date but not really expecting to hear for another month.

Pam x

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Re: February 2010 mastectomy ladies

Hoping all is well with the February Girls! Yes, Wendy, as Bev said, have you had any news from your scan? Had a lovely weekend in Dorset and now hoping the sun stays out for the school holidays! Enjoying a long walk with the dogs today and generally the nice blue sky is a great motivator! Hugs to all! xx

barneyb
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Re: February 2010 mastectomy ladies

Hello everyone

Very quiet on here, hope you are all well and enjoying the beautiful sunshine, fingers crossed that it lasts out until the Easter hols.

Wendy - how are you? Any news on the scan?

Beverley xx

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Re: February 2010 mastectomy ladies

Lynn, great news about the biopsy results, not so good about the breathing problems, but hopefully, with the help of your very supporting GP you'll get to find out what's causing these difficulties. It makes so much difference to have the understanding of your GP. Beverley, I am starting to think about what to do about my 50th and our 30th Wedding anniversary in two years time. I fancy New York, want to do something really special and would have to book early on. Hope you get your results soon, why do they take so long?.. Cat, there is strong evidence for Aspirin and Metformin, from what I have read, there are many patients in the US doing this already and one of the local ladies is doing it also. Hope you'll feel better soon, we have next week and then two weeks off, hurray! Let's hope for sunny weather in Dorset!
http://scienceblog.cancerresearchuk.org/2012/03/21/aspirin-and-cancer-the-picture-becomes-clearer/

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Re: February 2010 mastectomy ladies

Hi all,
Lynn sorry you're not feeling good. I think your gp is right too. I'm always adding if I'm still here when I talk about the future. Good news about your skin biopsy. I'm doing ok, suffering from a cold. Felt shocking last night, how is it possible to be hot and cold at the same time!! Felt a lot better this morning so hopefully won't develop into full blown flu. Still have my burning prickly type pain in my left shoulder. Did ring my BCN but she was reassuring. She didn't feel it was cancer related. She reckoned that burning pain was normally muscular and could be related to the ld flap op or my capulated implant. So I will se my gp next to see what he says.
Wendy hope your scan went ok, thinking of you.
What do people think about today's news about aspirin and how it also seemed effective in stopping cancer spreading. I know the research shows it seems especially beneficial for throat and bowel cancers but it might be worth considering. When I see my gp I am going to ask.
Hope everyone is well. I'm on my countdown to the Easter holiday, 1 more day this week then just 3 next week as London NUT teachers are sticking over pensions next Wednesday and I'm taking the class on a trip on Monday to see the LSO at the Barbican so only 2 days really!!
Lots of love
Cat

barneyb
Member

Re: February 2010 mastectomy ladies

Hi everyone

Lynn - well your GP sounds to be very good, she has hit the nail on the head with the comment of "facing your own mortality constantly". What an apt way of expressing how we feel. Well I for one feel like that, not a day goes by when I don't think that way. Yesterday at work we were having a little celebration at lunchtime for one of the tutors who is 50 today. We were saying how great she looked for her age, someone else commented that they would be 60 next year, and another said she would be the year after - my turn to say I would be 60 the year after that, however as I'm saying the words I'm thinking to myself "as long as this disease doesn't get me before then". I'm sure as your GP said the others weren't thinking like that or about any illness. Something we have to live with but not easy. Sorry to hear that you're not feeling too good but it sounds like you've got the GP on your side and she will run tests.
Great news about the long lost skin biopsy.

I'm still waiting for my mammo results, it will be 3 weeks on Friday, I'm hoping no news is good news but still worried everytime the post comes.

Hope everyone else is doing ok, it's very quiet on our thread, hope this means that we are all coping and doing well.

Love to all
Beverley xx

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Re: February 2010 mastectomy ladies

Hi ladies

Went to see the GP yesterday to tell her i haven't been feeling myself We've agreed if i'm still feeling the same in a couple of weeks, after my week away then she'll run more bloods and i'll have a chest x ray. I've gone from thinking i had bone mets because of the rib pain now to lung mets because of a kind of shallowness in my breathing and a non productive cough.

She was fantastic with me - i only wish every health professional we come into contact with through this crappy BC could be as sensitive as she was. The thing she said that had a huge impact upon me was " it must be an absolute nightmare for you, questioning and facing your own mortality constantly, while the rest of us never think about it - i can't possibly imagine what that feels like but i really feel for you"

I felt so much better just on hearing her say that. She also spent a long time talking me through the bloods that had been done in January, all of which were really good apparently so at least that was something. The long lost skin biopsy results have turned up, some kind of skin thickening thing - non malignant, no further action required - just as well given how long its been!

That's all my news, hope all good with everyone else.

lynn
x

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Re: February 2010 mastectomy ladies

Hi everyone - A lovely sunny Saturday afternoon here. Wendy, hope all goes well with hospital this week. Tina - really struggle to lose weight now, wow - to your pal, hard to believe. Thinking of everyone, hope all good for you all. Off to do some housework, having been out for lunch and a wee walk.

Lynn
x

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Re: February 2010 mastectomy ladies

Wendy, fingers crossed for the upcoming scan, hope you don't have to wait too long for results, be interesting to see how it shows your existing bone problems and if it shows the healing after your breaks. Went to see a bc friend today who lost 36 lbs now since November on WW points, she is really skinny and on tamoxifen. Bang goes my excuse! Another week tied up with school issues, no.3 son is having a tough time. Being bright can be a burden as other children seem to think its ok to make him the focus of unwanted attention! Happy Mothers Day to all Mums & Grans, I am on my own, OH seems to be continuously working, however we will have a break at Easter. Hugs to all! xx

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Re: February 2010 mastectomy ladies

Hi Julie,
So glad your scan was clear. Such a relief! Any nearer to the cause of your discomfort? Hope you get some answers soon....
Hi Beverley,
My scan is next week so I'm trying to keep ever so busy!
Making plans to distract myself but obviously they cause their own hilarity as I get confused as to when I'm seeing whom????
Saying yes to everything!!!
Do hope your results come back ok. The waiting never improves does it? I saw my specialist last week and he just examined my front which is fine he says.... So that was good to know.
Talking about the bone scan with him made it more real but of course it is a means to eliminate too.
Glad your Peak District weekend went so well with such lovely weather.
Hi Pam,
Good to hear from you again. Sounds like you're keeping very busy too. Sorry to hear about your nagging feelings that you shouldn't be too happy and confident. You and Beverley have explained it so well.
Hello to Tina who is setting a very good example of lawn mowing to slim those thighs and make us all jealous!!! I'm afraid I've virtually hit the chocolate a day diet now and am trying to get back in step with more vegetables again. Pity a Malteser bunny tastes so much better than a head of broccoli!!!!
Hi Lynn,
Do hope you're doing ok too.
Love to Maggie and Annette and everyone else who reads here...

From an untired Wx
Who needs bed when I feel so awake???
Tomorrow may be another story!

barneyb
Member

Re: February 2010 mastectomy ladies

Hello everyone. Glad to hear your scan results were good Julie.

Wendy - thinking of you and the scan coming up, is it this week? Fingers and everything else crossed that your results are good too.

Been away this weekend to the Peak District. Had a lovely time today, the weather was glorious, did quite a bit of walking as we took the dog with us. Back to work tomorrow. Still waiting for the results of my mammo!! Good news though that routine smear test result was ok.

Really tired now so only a short post!

Beverley xx

Petal5
Member

Re: February 2010 mastectomy ladies

Hi all. Good to hear that scan results are coming back with good results.
Wendy when are you due to have yours now? Is it this week or next? I will have fingers crossed for you anyway.
Sun is trying to come out here. Hope so because I would like to get out in the garden. Lovely to see the spring bulbs up. I love this time of year. We will soon be able to sit outside. Get you mowing the lawn Tina! Mine is still too wet to get the lawnmower out, mainly because it didn't get a final cut last year because of my op so it is quite long. My son did come over to cut it in early October but it could have done with another before winter set in.
Hope you avoided any snow Lynn. I hate driving in ice and snow. The TT I had used to be quite good for grip because it was four wheel drive but not sure how the new car would fare. Glad I didn't have to test it this year. One of the joys of being retired - get groceries delivered and stay indoors when the weather is bad!
Still no news on date for next op. Hope to fit it in before next grandchild due in June. Good news about your grandchild later this year Maggie.
I haven't had another bone density scan since my initial one back in October 2010. I will ask my onc when I see him in June. At the moment I don't take any additional calcium as levels were good back then. It is a worry isn't it but I would be really worried about not taking the arimidex. I look to that as my safety belt at the moment and I'm already worrying about not taking it in another three years time! I know just what you mean about nagging feelings that you shouldn't be feeling too happy and confident Beverley. I too suffer from those. Most of the time I do feel very well etc but then I did before I was dx so I don't feel able to trust myself anymore.
Well the sun is definitely out now and the sky is blue so I'm going to make the most of it.
Love to all.
Pam x

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Re: February 2010 mastectomy ladies

Really good news&very relieved at your good result, Juile! I hope you can find the cause of your rib problem. Wendy, good luck with your scan. Thinking of you all, lovely sunny weather here, first time this season mowing the lawn today! Can't wait for the clocks to change & lighter evenings! Enjoy your weekend! xxx

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Re: February 2010 mastectomy ladies

Hi - Just thought I'd let you know that my Bone Scan was clear, which feels good..! Am hoping my good news might reassure you Wendy. I still have no clue why my ribs are tender, but am hoping my Surgeon will have some ideas when I see her in a couple of weeks time. Wendy, hope you get your scan soon. xj

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Re: February 2010 mastectomy ladies

Hi Ladies - thinking of you all. Yes snow forecast.... so can't be a***d with snow - keep saying i'll invest in snow tyres and never do and my car is absolutely hopeless in the snow. Hope all goes well with everyone.

Lynn
x

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Re: February 2010 mastectomy ladies

I couldn't tolerate those calcichews!!!
They really really upset my digestive system. Couldn't cope with all the range of symptoms! They totally interfered with living as they made me feel nauseous, couldn't lie down without reflux and as for other symptoms...... I really can't mention them here!!!

Wx

akfilm
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Re: February 2010 mastectomy ladies

Thanks, Wendy. Sorry you are feeling so down. There's so much conflicting advice about what to do about bones, isn't there? It's yet another worry now, just when I thought I could take a bit of a break from it all. Don't want to take the calcichews prescribed as they also contain aspartame so going to ask my nutritionist for advice but that means paying out more. Would love to chuck the femara in the bin right now but...

Beverley - my ongoing counselling is really helping me cope with everything going on in my life - in fact I don't really know how I'd cope without it. Stuff with my mum and sisters is still horrendous and so hard to explain even to close friends. I am unable to focus on my own life at the moment.

Maggy - glad to hear your good news for this coming year!

Love to all,
Annette XXX

barneyb
Member

Re: February 2010 mastectomy ladies

Wendy - soggy here too now - well driving rain actually!! After a beautiful Spring day, lots of sunshine. Sorry to hear that you are going through lots of medical things this week, good luck for tomorrow and hope you get to see the surgeon (it was a registrar for me the other week!).

Sorry to hear how you're feeling after today. I felt really well today but then started having these awful nagging feelings that I shouldn't be feeling too happy and confident. It's hard to put into words but at the back of my mind something won't let me relax just in case everything is not ok. It's like mental torment, maybe I should have more counselling, as this is how I felt a year ago before my one to one sessions.

Just heard that they're forecasting snow for Scotland - hope you don't get too much snow Lynn.

Love to all reading on this wet and windy night.

Beverley xx

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Re: February 2010 mastectomy ladies

Hi Julie,
Heard yesterday that my appointment has been cancelled this week....
what with other health apps of mine and their schedule we can't meet for another fortnight! Not sure if I'm disappointed or not????
I can't be that urgent so that's good news isn't it?
I've been to see my GP about the hot spot quite a few times so it's coming from her... However, the medics know about my BC so not sure what to make of it all really.
As I said before, I'm putting my head in the sand!??!
Tomorrow I see my surgeon for the annual 'once over' (please may it not be a registrar. Really do want to speak to my surgeon) so I've got to mention it then but with my osteoporosis I'm presuming I'll get more info about my bone health in general.
Today I had another medical day. I suffer with deep depression so today I feel I've cried for hours talking about it all,and now feel totally wrecked!
Should have prepared a proper meal but it's been a 'cheese roll' sort of night.....
Hopefully after a good night's sleep I'll be facing forward for my second medical day of the week.... Can't help but feel a bit anxious because of remedial pains.

Let me know how you get on.....

Wx

Annette, thanks for your good wishes and sorry to hear about your dx of osteopaenia. I had it for many many years before my fractures but stupidly I was eating a very low calcium diet because I was cutting out cheese and dairy for weight loss.
You can't win really can you?
My next dexa scan is next year so maybe this bone scan will help give me more precise info.

Wx

Thanks to Beverley and Maggie for your best wishes. Congratulations Maggy on your very positive family news. It will be such a busy time for you....
Do hope you don't have to wait too long for your results Beverley. I'm afraid I didn't even get a reply and had to phone up in the end... Such a hopeless system! Will be asking for a more prompt response tomorrow

Saying hello to everyone else.
Hope you're keeping drier than Kent! Horrid soggy jeans for the past few days!!!

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Re: February 2010 mastectomy ladies

Hi Wendy - I have slightly tender ribs on the BC side. No sign of any lumps or bumps and the pain's not there all the time either, so in many ways I'm probably worrying for nothing. My Surgeon thinks it's most likely either Rads damage or nerve pain from mastectomy, but ordered the scan as I'm two years post diagnosis and she says she quite likes to do one then anyway.

When did they find the hot spot on your spine? Was that through a CT? Hope your scan goes really well. Will be thinking of you. Julie

akfilm
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Re: February 2010 mastectomy ladies

Wendy - I hope your bone scan goes okay and that you get the results quickly. I had that one done at the end of January, too - it is only a small injection and then you can go off and do other things for three hours - it's okay to eat and drink as normal. Then the scan only lasted about 30 minutes which was okay. Hoping all is well for you.

Beverley - I hope you don't have long to wait for your mammo results. I had to chase mine up, though, in January.

We had a lovely spa break for our anniversary - very pampering.

I was upset to get home to a letter from the hospital with the results of my last bone dexa scan in February telling me I have osteopenia. I'd thought the delay in results must mean it was okay. Ah well. Going to try and seek out some supplements which might help.

Love to everyone else, too.
Annette X

barneyb
Member

Re: February 2010 mastectomy ladies

Wendy can I just echo what everyone has said and wishing you all the luck in the world for the bone scan. You know we'll all be thinking of you.

Bitterly cold here tonight too and dog walking in the rain earlier today!!

Had my mammogram on Friday, now the wait for the results!! Have been feeling a bit shaky just lately.

Off to bed now, love to all.

Beverley xx

meggy
Member

Re: February 2010 mastectomy ladies

Just caught up with everyone's news. Glad the anniversary time is passing by. Hope the scan goes OK Wendy. I seem to be having a busy summer coming up - third grandchild in June and middle daughter just announced engagement and wedding on Sept 1st. So much to organise......but its all good. It's suddenly got colder here too at the moment. Thought spring was well on way.
all the best to everyone
maggyxx

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Re: February 2010 mastectomy ladies

I saw white fluffy snow symbols on the weather map and couldn't believe it???
Kent is due some of the white stuff later tonight!
Weather is so weird at the moment, isn't it?

Respect for your dog walking Tina!
A long haired creature needs quite a dry/blow dry afterwards too.
He/she does look quite beautiful.
So sleek and elegant.

You certainly chose a good day out for weather. It has been glorious... Hope it refreshed some of your batteries.

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Re: February 2010 mastectomy ladies

Wendy, we had snow today here in Wiltshire, dogs need walking every day, no bad weather excuses. Tough though, especially since Friday was a mild day, took the rare opportunity for a day out with my OH with a trip to Salisbury after dropping boys at school. Very nice indeed. Spent today catching up with domestic chores and kids homework ahead of another week "single" parenting whilst OH is working in the big smoke. He has not booked his accommodation yet for July-August and I have warned him he will end up sleeping on someone's sofa during the Olympics if he doesn't get organised! xx

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Re: February 2010 mastectomy ladies

Ah,thanks Tina. That was so helpful.
Thank you so much for digging that all out for me.
Really appreciated.
Made it so much clearere than my handout!
You're a star!

Cheers on this very very wet Sunday here in the S.E.
Again, I always think of the dog walkers amongst you - Pam,Beverley and Tina although there may well be others????

Thanks again chaps!
Everyone here is such a help.

Wx

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Re: February 2010 mastectomy ladies

Wendy, good luck with your bone scan, if you are really worried, you could ask to have some emla (numbing) cream applied before the jab, they should have supplied you with a leaflet about the scan, here is a good online one
http://www.heft-radiology.co.uk/Images2/patient%20information/information%20for%20patients%20having%... and http://www.rcr.ac.uk/docs/patients/worddocs/CRPLG_bone.doc
Fingers crossed, it is a very nervy time, hope you don't have to wait too long for results.
Hope all is ok with the February ladies out there. Cat, Hope you can get some explanations for your symptoms, & surgery between SATs and Olympics is going to need fine timing!
Hugs to all! X

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Re: February 2010 mastectomy ladies

Thank you so much to Cat, Truddles and Julie for offering your input.
It is so helpful to get first hand advice.
I'm not even thinking of the implications of this bone scan!!!
Head in the sand and all that!??!
Just being a wimp over the injection.....

Julie I've had a red-hot area in my upper spine area which I'm having investigated because it has persisted so long...
What about yourself?
Do hope we're both safe.

Thanks again to all of you for your considerste help.

Wx

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Re: February 2010 mastectomy ladies

Hi Welsh Girl,

I've got a bone scan v.soon too - think it will be next week, but am still waiting for the date. When I had one at diagnosis I had a small needle in my hand. Am freaking out a bit - not about the scan, but just in terms of what they might find. Will feel incredible if it finds nothing. Fingers crossed for us both..!

Julie

trudy2010
Member

Re: February 2010 mastectomy ladies

Hi Welsh girl
I had a bone scan last November, and I was also really scared of the needle, but it was so quick in the bend of my arm, a lot less than a blood test, even. I hardly felt it, to be honest.

The scan was fine, I lay there and drifted off into a doze, it was done in no time. 🙂

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Re: February 2010 mastectomy ladies

Hi Wendy,
I had a bone scan when I was first diagnosed. It was a normal needle I seem to remember, just in the arm. I then had to go away for about 3 hours and then had the scan. The scan takes about half an hour. The machine moves very slowly over your body and the only time you feel enclosed is when it passes over your head, but once it done that its just laying there as still as possible.
As scans go it was fine but they tell you not to hug small children for 24 hours!
Hope this helps.
Tina my ct scan was for chest abdo and pelvis, never been offered a pet scan. Feel ok about the shoulder pain as I do feel it is triggered by stress/tension and stooping over computers and low kids tables at work. Obviously not entirely convinced as it has gone on for a while now but pleased that mentally I haven't attributed the pain to secondary cancer straight away and I think this is real progress for me in terms of managing my anxiety! Not keen on another scan at the moment but will mention next time I speak to BCN.
Have also decided to go ahead and arrange the surgery I postponed last year as I couldn't face it. So hopefully replacement implant and nipples for me. I want this done in June so I can get my class through their Sats but before the Olympics start!
Beverley you inspired me this week, didn't jog but got back on my bike and cycled to work TWICE this week. Feeling very virtuous and think I need a treat this weekend... Fish and chips anyone?
Love to all Cat xxxx

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Re: February 2010 mastectomy ladies

Hi everyone,
Had a so-so week but today had to stay in and await arrival of new TV for the digital age!!!
Obviously it arrived in the last hour of waiting at gone eight o'clock! Have spent my time since screwing stands on (and off!) and negotiating the initial process to achieve really WIDE TV viewing....
Really quite delighted how smoothly it all went and now I have loads of channels instead of the four I owned before!!!!
Obviously as a very late bird I usually go to bed when the TV viewing becomes worthless.....so now, I may well be staying up all night as I work my way through all those channels....
I've always been nocturnal but this might be my destiny from now on. I will have to develop very good willpower...
I have none as my diet is demonstrating!!!
But, when I'm feeling down it would be good to find something pleasant to view, however, I'll probably discover there's even more rubbish!!!

Anyway, delighted that I successfully managed the new set-up without asking for help. Made me feel more grown up!
It's surprising the things that cheer me....

Hope everyone had a good week especially Annette on 29th.
Have a pleasant weekend. I'm lunching, singing and doing lots of Internet work for my voluntary position.

Next week I have my examination with BC consultant and my bone scan!
Has anyone else had the radioactive injection?
I'm very needle phobic so not looking forward to that at all....
Is it just an ordinary needle?
Please do share if you've had one. I'm afraid I can't remember who might have had this. Shocking memory!!

Tight hugs to you all,
Wx

On a positive note my big sister has just arrived home after her cataract op. She sounded fine but tired. So pleased to hear her voice. I offered to go and look after her but she says she doesn't need any tlc! She's obviously the strong sister and I'm the weakling!

barneyb
Member

Re: February 2010 mastectomy ladies

Hope you have a lovely day tomorrow Annette - many congratulations!

Sorry you're still having pain and worries Cat - don't think we'll ever stop worrying when we have these niggles! I've had some pain behind my knee when I bend it for the last few days, hoping I've just strained something, it is feeling a little easier today.

Wendy - liking the idea of elasticated waistbands - definitely what I need! Like Tina diet has stagnated, although on the bright side I have maintained the same weight for the last couple of weeks.

Love to all reading.
Beverley xx