im sorry to hear you're not feeling good, do you start on T next cycle ? And are you having 4 X FEC and 4 T ? That is tough going for you. Just cross another treatment off the list. Just as you think one side effect has gone another kicks in !!! Stay in bed, take the meds that can help you and sending love and hugs. P.s I'm triple negative too,
well where has the sunshine gone??? Hope you are all coping with the side effects. Had appointment with consultant last week, surgery booked for 15th June. All good.....the cancer has shrunk no need for mascectomy, lumpectomy will remove lol the nasties. Will follow with radiotherapy in July. I have booked a week in Lyme Regis for September in a chalet overlooking the sea with hubby and Yorkshire terrier Woody.
My last chemo is, fingers crossed next Tuesday. I have been out and about catching up with people and having retail therapy. Got excited buying a new iron !!!!!!
Jan, how are you? All very quiet on here at the moment...is that good or bad ?
Sue, I hope you are feeling better.x
big hugs to you all xxxx💐☀️
Hi ladies, no doubt you are all enjoying the sunny weather. Makes a nice change from the gloomy days we have had.
Hope your not feeling to bad, as for me (I know your dieing to find out ) pmsl. Monday got heart check, Tuesday blood test and yes the bloody dread T on Thursday. I still feeling s---t. Tired sick diora so girls don't moan if your consipated it's better then having g a ring of fire. Lol. You can always use a plunger lol. Have had skin eruptions and are just healing, still out of breath but have been reading so are some other ladies.
Oh yes and still got the farts, Chernoble has nothing on me lol. My old man keeps asking where the ducks are.
Got my bald head sun burnt the other day it's like a solar panel. Note to self wear a hat. Lol
Well girlie's make the most of the sun shine before our torture begins again.
Love you all
Sue x x x
confirmed as triple negative today which is a bummer but on a positive note 4th FEC ticked off and next to start T!! Another couple of good days and then will hibernate for 3!! Just my luck it's a heatwave lol! Enjoy the sun everyone 😎🌞🌞🌞🌞🌞 Colista xxxx
Morning ladies, I actually managed to eat a bowl of ready break this morning and I could actually taste it for the first time in 2 weeks. I am living on beetroot salads. So got red wee panic thought I was peeing blood, then it dawned on me beetroot juice lol lol .
i am going out for the first time in 2 weeks if my legs let me, a nice cake and tea by the river with my daughter and granddaughter she want to feed the ducks. I am not getting that near the river the urge to jump in might be to great. (Only joking) 🙂 had a row with the old man this morning I could punch his face in moaning he is late for golf (what ever) hope he loses his balls. 🙂
thats my moan over.
love you girls.
sue X X X
I'm on weekly paclitaxel so I haven't had the problems that many of you have experienced. It is a much gentler treatment, but my onc says that it is as effective as docetaxel. Maybe if some of you are really struggling with the docetaxel you could ask your oncologist about switching to weekly?
Hi ladies, I am still feeling s---t. Breathless sick and p-----t off big time now.
My nose has been running like a tap to-day, I thought get your fat bum out in the garden and have a nice cup of tea, so I drag myself outside tea in hand bend to sit down and my bloody nose ran and fell in my cup of tea. 😡
What a day. And no I didn't drink it lol lol
02-05-2016 09:11 AM
Hi all, I will list my SE, feeling sick, mouth tastes vile was not able to eat as I could not swollow with out wanting to gag. Pains every where. Feeling down and fed up. Sore throte. Tiredness not to bad. Skin itch. Head aches. Bloating. Feeling light headed. Feeling very weak. I had to phone the unit as I had had enough of the way I was feeling. I had not eaten for a week after T the thought of food made me feel sick. And as soon as I did eat then it was a race to the toilet as I have had diorea since I had T living on poo stop pills. Sickness pills.
The only thing I can say about the pain is yes the bath helps, but I found cocodamol was the best the chemo unit told me to take 2 every 4 hours and they do work.
I feel fit for nothing and I do envey the girls who are not getting many T s/e.
My chemo nurse said the dose is to strong for me so hopefully she will talk to my doctor. I know I only have 2 left but bloody hell cant take this much longer.
sue X X X
i still take metoclopromide to help with feeling sick. I have had heartburn and indigestion...magnesium hydroxide for that and that can also be used if constipated. Also have been given lansoprazole as our tums are obviously affected by all the chemicals, hope this helps.
Have had a terrible night 7 days on from first T. Have been extremely nauseous, tingling in hands keeping me awake, hot flushes. I think I'm going to call the chemo unit. I feel my SEs are getting worse not better. Oh and sense of taste is truly disgusting. Water and tea are vomit worthy.
I thought I would be turning a corner right now. Today I can say that for myself T is worse.
Slept for nearly 7 hours last night after taking my steroids so that is a bonus.
Also - I can now straighten my arm and twist it and the ache has almost gone.
6 weeks it has been a pain in the butt.
So things are looking up today. First T this afternoon so will have to be careful where they put the cannula.
Feeling positive. ☺
Thanks to you all for posting your experiences.
Again, very helpful. I would rather know what I might be letting myself in for and then if it is not that severe, that is great. If it is, then I will know what you have all been going through recently.
I agree with you Sissy and think the steroids have a lot to answer for.
I always feel sick when I take them and have an awful taste in my mouth.
Then I wake up in the middle of the night wide awake.
At least my nurse said that I was not on too high a dose of T, so I can hope that my side effects will not be quite as bad as all you are going through.
One day at a time!
Thanks again to you all.
Jan I know what you mean, tasks are just a nightmare...I do something then have to sit and rest. I have been very tearful which is driving me insane but actually I feel better afterwards. I know what you mean about the one more to go....it really gets on your nerves. I have really struggled this time too, think as time goes on we have such a build up of chemicals inside us it's bound to impact on us. I am getting appts for surgeon then another ultra sound but at least things are moving on. Big hugs Jan xxx
hi all, the side effects are tough on T I have found it better having injection at night then taking a couple of paracetamol. Rest when you need to end the day with what you have achieved so it ends on a positive. I have suffered with heart burn and indigestion this time, driving me nuts. I also hate food, I also haven't put on any weight in fact I've lost some as my jeans are loose.
Sending love and hugs to you all. 💐Xxx
Hi Jan.Claire from The January thread here. I finished chemo today but I found cycle 5 the toughest mentally and had a major meltdown halfway through. I got really down about everything and cried loads which is not like the usual positive me! I got fed up with everyone telling me to be strong and that I only had one left nobody except those of us going through it can ever understand what it is like and the toll it takes on us.
I was talking to the nurse about it today and she said it's quite usual to struggle more towards the end as we have been through so much and then have to think about what's next in terms of more treatment and coming to terms with the future.
i feel much better now and I hope you do too.
lots of love,
Hi All, my SE after the first TH lasted about 10days. Aches and pains like severe flu and not fancying anything much to eat. I had a few temps but none above 38 so didn't have to contact the hospital. Whist battling through I really felt that I couldn't do it again but now that I am feeling so much better (even though tired with tingling finger tips and toes) I am sure I can. I took paracetamol, ibuprofen and codeine (from my GP). A hot bath helped when my temperature wasn't up.
Hang in there, it does get better! Only two more to go! Xxx
Hi all you are all starting your T. I had my first one 12 days ago. Side effects for me are: Diorea , sickness I could not eat for 6 days as I could not swollow food. Very sore throte. Bone pain. Feeling very weak due to not being able to eat.
No enagy. Feeling faint. Thrush mouth and thrush fanny. Plus chest pains. I phoned my chemo unit they told me I was one of many phoning up about all of the above side effects. They were good they phoned me for a couple of days to see how I was. The doc said she was going to talk to the doc as she felt I was on a to high does.
i have got 2 more to do and so don't want to do it.
My age goes against me it might pull me down a lot more then you younger fitter ladies.
i have not put any weight on since I have been on chemo which I am happy about.
I do do hope I have not put the wind up you girls but that's my side effects.
x x X
I have just started my steroids and have my first T tomorrow.
The steroids are bad enough, horrible taste in my mouth and wondering if I am going to sleep tonight.
When did your side effects kick in Em?
The nurse I saw yesterday said it would be Friday evening before I got the flu symptoms. So that is 2 days.
Is it OK for a couple of days, before the brick wall?
How long are the flu symptons lasting?
As Em said any extra tips would be great.
I have been told tonic water is good for the aches and cramps.
A hot bath is my cup of tea, so I will be trying that.
Thanks to you all for being there for us all.
A family is at the dinner table. The son asks the father, “Dad, how many kinds of boobs are there?” The father, surprised, answers, “Well, son, a woman goes through three phases. In her 20s, a woman’s breasts are like melons, round and firm. In her 30s and 40s, they are like pears, still nice, hanging a bit. After 50, they are like onions.” “Onions?” the son asks. “Yes. You see them and they make you cry.” This infuriated his wife and daughter. The daughter asks, “Mom, how many different kinds of willies are there?” The mother smiles and says, “Well, dear, a man goes through three phases also. In his 20s, his willy is like an oak tree, mighty and hard. In his 30s and 40s, it’s like a birch, flexible but reliable. After his 50s, it’s like a Christmas tree.” “A Christmas tree?” the daughter asks. “Yes, dead from the root up and the balls are just for decoration.”
Hope it makes you laugh X X X X after a rotten Monday X X X X
Oh dear, we all seem to be having down days at the moment! I seem to be on the verge of tears most of the time, silly really as I am definitely starting to feel a little better after my first TH. It's been a long 10days!!
I can't say that the 'why me' scenario has been on my mind, quite the opposite - I just feel guilty. I feel I should have found it earlier, should have done more exercise, lost weight, drunk less etc etc.these things just buzz round and round my brain particularly when I am feeling rubbish.
Sorry to rant on but it is nice to have an outlet that doesn't mind/ understands.
Thats it, enough moaning! The sun is now out and the blossom is coming and we all have the summer to look forward to when all this awful chemo will be over. A friend who has been through it all says that this is definitely the worse part and we are nearly out the other side!
Take care all xxxx
Ali I resented everyone! Couldn't even trust myself walking around our local supermarket as just wanted to punch everyone as they were going about their lives without a care in world while I was going through all this! Yes It's irrational as its not their fault but it's also completely normal to feel like this, it took me ages to get over the why me feelings and I felt angry for a very long time and it has left me with a lot less patience and I must admit I cannot deal with people and their trivial moans, I'm like so did you have cancer? No? Well shut up then! But I also appreciate what I have so much more, I hold my family even closer now and we don't waste a minute of our time together, in the year since my diagnosis I've seen my son get married and we are about to go off on our 4th trip abroad , I won't let cancer take anymore from me now, it took me lower than I've ever been but never again, you will get to this place too! Lots of love Xx Jo