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February 2016 starters

Kim555pink
Member

Re: February 2016 starters

Hi Sue - my eyes have been streaming for weeks!! I'm nearly 4 weeks since last and final T, and there's possibly a slight improvement?! Apparently it's because our eyes are dry and so they make extra tears (bizzare I know!) I have been using a couple of different eye drops from the chemist - the best is the thickest ointment type but it does leave your eyes blurry for quite a few minutes. It's trial an error plus time and patience I think!!
I'm guessing you all are coming up for your final doses now - well done, it's been a long haul but you're finally there! I have found the tiredness and niggling side effects last longer than you expect, but it is such a relief when you get to day 22 and know you don't have to make that trip again!!
Good luck with which ever treatment follows
Kim xxx
Daisy63
Member

Re: February 2016 starters

Afternoon all , has anyone's eyes been affected   this chemo crap my eyes go blurry and run with water. What with my nose. Get big gew drops I look like and old down and out. If it keeps up I am going to put a bloody tap on my head sick of the dew drops going in my tea. Pmsl.

 

It's taken nearly 3 weeks for my diora to stop, still don't fancy food, but weight going on at the rate of knots. Denis rusos and me will become friends. (Yes I know his dead) lol lol .

 

Next Thursday is my last T day I so don't want it. I  cry think g about the side effects. So had enough now. If I was 30 younger maybe I could handle it a bit better, I read what you girls can do and I am so proud of you all. 

How you manage with children as well I take my wig off to you. X

 

Off to see the surgeon Tuesday see what he or she has in store for me. Got told I can't have a breast reduction because I smoke. So me thinks there's going to be a row. 

 

Have a good day.

Sue x x x 

em32
Member

Re: February 2016 starters

Anybody else read lisa lynch the c word book or her blog alright tit? I saw the TV film last year with Sheridan Smith when all this was non existent. But never read the blog I remembered about it the other day and searched for the blog and now I can't stop reading it's everything I'm feeling down to a t apart from the fact she loved her wig can't bloody stand mine! So if you don't hear from me I've got my head stuck in her blog. Highly recommended.
Happy bank holiday weekend fingers crossed going to treat myself to a cheeky beer or two this afternoon family bbq!
Hopefully you've all found the other side of the side effects and can enjoy the sunshine if you have any xx
em32
Member

Re: February 2016 starters

I did manage to sleep although I woke up every hour. Feel so much better today still a bit of a sore throat but nothing like yesterday! Amazing what a night in your own bed can do!
Sal
Member

Re: February 2016 starters

Hope you manage to sleep! I'm sure I'll be awake if you don't!! Xxx
em32
Member

Re: February 2016 starters

Just one! 10th June. Feeling a bit Crappy tonight nothing a good night sleep in my own bed won't sort!
Sal
Member

Re: February 2016 starters

Gosh Emma your getting it all. Glad you home safe. How many left? Xxx
em32
Member

Re: February 2016 starters

Well I've had another nights stays at my local boutique hotel called hospital. Another roaring temp and sore throat felt fine all day yesterday then bam at tea time another delightful trip to a&e oh the joys. Home now though so better than last times full weekend stay!
Em x
Sal
Member

Re: February 2016 starters

Ohhh is that what a white tongue means! Gross burger! I've got ten days of antibiotics and anti fungal tablets I get each cycle so hopefully it will go. Yes one day we will say Yeah all good.... Good god can't wait for that day!
Tongue thrush it's just so attractive! I'm thinking of entering a beauty pageant.... I want world peace, that all kids are happy and a 141b burger that tastes like battery acid.... I'm sure to be a winner in a crop top, thrush aching joints and bald bonce! Yummmmmmy.
We will all be good again with everything crossed. Oh Yessssssss! Xxxxx
Daisy63
Member

Re: February 2016 starters

Sounds like you got thrush sal, everything I eat tastes vile, sometimes can't be bothered. I have gone onto cheese and grapes the only thing that's tastes real lol lol. One day we will get on here and say yes everything is back to normal. X X X X
Sal
Member

Re: February 2016 starters

Hi sue
I've been rather naff this time sue and my last one seemed extra juicy! Slept lots and I have the similar sofa dip. Not got a dog but I sure my mother and a few of my friends have disappeared down it. Yep I have put on weight and in my head after this weekend eventually when taste returns properly I will be eating normal again including brown bread and veg!! . Even my mother who goes home tomorrow is joining in and we ate vile hot dogs with onions and that yummy dirty mustard and ketchup! ( lots of them!) Devine.....I have no shame Haha!! So there we are. I have my radio therapy planning on 13th June then Start on the 20th. I'm not going to get tomaxathan ( spelt wrong!) they changed it to monthly injections ( and implant called gosl.... Can't remember )and something sounding like extol.... Can't remember names I'm still in bed! I'll check it out when I go down stairs. Not sure why changed their minds. Got a meeting with work on the 16 of June to discuss phased return in August.
Partner coming at the weekend and hoping to find a lotto ticked from Wednesday that I think my mama has either stashed because I shut her in the freezer or it's been eatn by next doors cat..... Xxxx loved to everyone. Xxxxxxx kept going. Ps my tongue has gone white!!!!
Daisy63
Member

Re: February 2016 starters

 

Well ladies what's happening it's been quite on here for a few days hope you are all ok. I am still very tired, been trying to sort the garden not much luck there I do about 5 mins then have to sit down for half an hour, oh to be 21 again. 

Have any of you put any weight on? I can't believe I have put on half a stone, most of my food goes down the bog. I was so p------st yesterday. Then I read that chemo can't put on up to 20lbs. 

If that happens I will need to get myself some big bloomers. I am defo not looking forward to my last T. Keep thinking about them rotten side effects I get, I feel worn out now. Got no enthusiasm for anything at the moment. My settee has become my second bed got a dip now where I sit down even the poor dog rolls in it when I get up lol lol. 

 

Let eat me know how you all are girls.

 

 

sue X X X X 

 

Emmajane
Member

Re: February 2016 starters

I had the sore mouth and oral thrush... After first T hoping I won't get it again after the next one... Xxx
Angela2016
Member

Re: February 2016 starters

Hi Jan

I'll be joining you for June rads. Had CT scan, planning and mark up yesterday ready for start 9th June. Had last FEC today hooray! Want to jump with joy but literally can't lift a finger, didn't quite get over 5th session so lots of sleep coming my way.

Wishing all the ladies on here a speedy recovery.

Angela x

em32
Member

Re: February 2016 starters

Carol they're tramadol work wonders for the aches and pains just very strange dreams!
Cag61
Member

Re: February 2016 starters

Hi Jan, 

good luck tomorrow. I have lumpectomy booked for June 15th, followed by rads a month later. I too have found this last lot awful. Cumulative of 6 sessions, and I think in my mind last week I thought it's the last one and forgot there would still be side effects !!!!!!! I have been very tearful too as you look back at the magnitude of what we have been through. I think also it's still difficult to plan too much due to hospital appts etc. I hope you manage to stay upright Jan.....how strange, perhaps take water with it 😄

Em....I want some of your happy pills ! 

Big hugs to all Carol xxx

em32
Member

Re: February 2016 starters

Hi Jan. Got my planning appt through today for 23rd June hoping to start rads July if all dates go to plan my treatment will finish day before my 34th birthday!
Can't believe I've slept even more but having a few strange dreams because of the pain killers rather funny actually. Just dreamt I turned my husband into the grandma from Roald Dahls Georges marvellous medicine woke up laughing lol x
Kayak Jan
Member

Re: February 2016 starters

Evening ladies.
Well it's moving on to next challenge for me . I have my pre radiotherapy appointment , marking up session tomorrow morning. First session due 15th June. Honestly not bothered yet, perhaps I will be but I can't envisage anything worse than chemo!
Carol how are you doing. What is next for you? This last one has been horrendous. For some unknown reason I have fallen over 3 times today. No apparent reason I just seem to over balance, not sure what that is about but really don't like it. I keep telling myself it's finished but my body doesn't seem to realise. So tired but no other SEs at the moment. Strangely still suffering with insomnia 😩 .
Well ladies coming to the end for everyone now. How are you all doing and what's happening next for you? Anyone else joining me in June rads?
Sending hugs and wishes for minimal SEs.
Jan x
Cag61
Member

Re: February 2016 starters

Hi Sue, 

thank you xxx I didn't think about build up drinks, I will go and get some...... I've managed yoghurts today and a cheese sandwich !!!! I've gone down a clothes size which I am determined to keep to. 

Take care xxx

Daisy63
Member

Re: February 2016 starters

Hi carol I can absolutely know where you are coming from, my oh cooked me meals and I took one look at them and could have thrown up. There's not much I can say to help you out here as I am 13 days from my 2nd T and I can't just about face food. My next one is next Thursday. I can't tell you what I lived on to be honest. 

I am very tired I get hungry but just don't fancy food. It will get a bit easier. You might have to get some build up drinks as not eating has left me quite weak. I am getting some for next time. You need to try and suck ice lollies. 

Keep your chin up girl.

 

x X X X Sue.

Cag61
Member

Re: February 2016 starters

Hi all, 

Sue, I hate beetroot soooooo much !!!! How funny....lucky you woke,!!!! 

Well in tears today as my mouth is so sore, really fed up not being able to eat, and yes soooooo tired. I know I don't have to have any more. My doctor described the 't' like having liquid domestos burn your mouth. I have wasted so much food....think I fancy it but can't eat. Hope you're all ok and soldier through all this. 

Big hugs Carol xxxx

Sal
Member

Re: February 2016 starters

Same Emma
Been asleep for more or less four days! Xxxx
em32
Member

Re: February 2016 starters

So the side effects for this round of t seem to be constant sleep. I've a few muscle aches but I just can't keep my eyes open. I've literally slept all day whilst the kids are at school and the hubster at work. Woke up for lunch straight back to sleep awake now but eyes shutting whilst typing this hope I sleep tonight!
How's everyone else coping?
Em x
Daisy63
Member

Re: February 2016 starters

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Lellie
Member

Re: February 2016 starters

Hi All,

Excellent news Sue, it makes it all feel worthwhile going through all this!

Sorry I haven't been posting recently, T knocked me for 6 again! At least there is only one more. To cap it all I then developed a wee infection and had to have antibiotics. I now have a stinker of a cold!! I am becoming paranoid about my temp as we are supposed to be going away for a few days on Saturday and I am worried that I will end up in hospital instead!?

Can't wait to get to the end of all this. At least with surgery it doesn't make you feel so ill.

Hope you are all coping well? Xxx

Sal
Member

Re: February 2016 starters

You make me laugh even on a green day! I'll never look at beetroot a same again! Xxxxxx I'll send you some spare loo rolls xxxxx
Daisy63
Member

Re: February 2016 starters

A big thank you ladies, sorry I have not put your names lol lol T! Is **bleep** I would sooner have 6 FEC. I don't feel better until 2 days before my next T!. Today was the first day I managed to eat a chicken salad for my tea. That's 11 days after having T!. I can look at food now with out wanting to throw up. As for the diorea well I still got it. It will be my bestest friend until the end, it's costing me a fortune in bog rolls so if you got any spare ones throw them my way. Lol lol lol 

 

Now for a laugh, I cook my own beet roots love the stuff, put them on to boil sat down and promptly fell asleep so did the old man. I woke and said to him who the feck  is having a bonfire, 

i have never seen my old man move so fast, I now have 4 rock hard burnt beet roots and a saucepan with no bottom. Pmsl. My whole house stinks. 

He had another trip to sainsburys.

 

 

love you all. 

Sue x X X 

 

Cag61
Member

Re: February 2016 starters

Hi Sue, 

Brilliant news...yay. When you know it's the last one it does make it easier. I am really struggling with the sore tongue and mouth and really not managing to eat hardly anything, not even rubbish☹️ Trouble is its making me feel weak and listless.....I know that by the weekend the worse will be over but it's just getting through each day. 

Big. Hugs to you all Xxx

em32
Member

Re: February 2016 starters

Great news sue xx
Warcol
Member

Re: February 2016 starters

Fabulous news Sue it'll all be worth it xx
Sal
Member

Re: February 2016 starters

Good news sue really good news. Last t will be worth it. Keep going your very loved xxxx
Tulily
Member

Re: February 2016 starters

Sue that is good news that it has shrunk, well done! Good news that nodes are clear too! Onwards and upwards!
Daisy63
Member

Re: February 2016 starters

Right I am back, my Tumor has shrunk from 2inch to half and inch and lyth nodes clear. Got to have the last T much to my disgust but hay ho it's the last one.

 

x X X X 

sue.

 

Daisy63
Member

Re: February 2016 starters

Thank you ladies feeling very apprehensive 🙄 I am so hoping I don't have to have my last T! Just popped out to the local shop not been well enough for the past two weeks. Was only out for 10min and I feel like I have walked a marathon. 

You all take care will post laters.

 

sue X X X 

Sal
Member

Re: February 2016 starters

Good luck today sue. I'm on day three very green but here! Hope everyone else is ok big hugs to everyone that's about all I can muster! Xxx
em32
Member

Re: February 2016 starters

Hi ladies. Well t 2 went ahead on Fri and here come the dreaded Se set up for another week in bed if the last lot is anything to go by. I to have managed to put on weight only because when I can taste I only want to eat rubbish and can't stop myself!

Best of luck today sue!
Hope everyone else has a good week soon all be over
Xx
Cag61
Member

Re: February 2016 starters

Hi

Good luck girls tomorrow. Xx

i have showered, visited my mum, done some knitting and taken the dog for a walk. Feel better for doing something......this last one has knocked me for six, boy what a long haul that has been. I have an ultrasound on Thursday although I know I have responded well at Easter, halfway point. Going to do some armchair exercises to build my muscles up in my legs. Amazingly I have lost weight so need to keep that off and just get fitter. 

Keep me posted how you're doing girls. Xxx

Daisy63
Member

Re: February 2016 starters

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Daisy63
Member

Re: February 2016 starters

Just finished some house work why does it feel like I have just cleaned Downton Abby lol now sitting down fecked for the day. Lol lol

Had a shower this morning and thought shall I shan't I, I am not a one to keep feeling me lodger but it got the better of me, to tell you the truth I can't find it 🤔 Now I not getting my hopes up but you never know.. Fingers crossed. As soon as I am back from hospital tomorrow I will post my results I am so bricking it girls. 🤓 Half a year nearly gone but it don't seem that long to me. 

 

 

T T F N

 

SUE X X X X 

Warcol
Member

Re: February 2016 starters

Good luck Sur for tomorrow, praying you've kicked that crap to kingdom come and all those SE have been worth it! Chin up we're all with u every step of the way Colista x
Daisy63
Member

Re: February 2016 starters

Morning, well is Sunday I think lol the old man is off to a golf day. With a bit of luck his balls will get lost lol I hate golf. It's the day before I find out if this toxic waste that they are putting through us is working or has worked, feeling quite apprehensive got the hospital tomorrow, so it's tit squash day. And boy are mine big, if I laid on the floor I would look like a camel pmsl. That machine hurts. 

I give up with the side effects, don't matter what I do or what I take there still there poxy things. Oh yes and girls don't fart and walk had a messy one lol lol think I will buy some nappies. Lol lol 

 

 

at the moment I am living on yogurts, corn flakes, and new potatoes and gravy. 😝😝😝😝

i miss my food. 

 

 

Love you all

 

sue x x x 

 

Warcol
Member

Re: February 2016 starters

Piddling down in Tamworth and I'm on my way into Birmingham! Think my wig is going to get tested this evening! What's the betting I'll be bald by the end of the night lol x
Cag61
Member

Re: February 2016 starters

Ha ha, brilliant.....I love the humour. My diet today has been half a bowl of porridge.....yuk, a yoghurt, and 4 small potatoe waffles, what is that about. Very tearful day, think that is the steroid come down, hate that. I have managed to get showered but that is about it, been pouring with rain in Hampshire all day. When is summer going to come? Hope you all have a good nights sleep. Hugs Xxx Carol

Daisy63
Member

Re: February 2016 starters

As you can see I am bored lol lol 

 

x X X 

sue

Daisy63
Member

Re: February 2016 starters

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Warcol
Member

Re: February 2016 starters

What is it with chemo and farts!! I have more
Flatulence than 10 pigs put together!!! And weight, well the scales just laugh at me when I step on! I've had extra FEC so only starting T next week!
My dog is coming out in sympathy as she has a temp and on antibiotics for an infection!
Off to see wizard of oz at the theatre today with the kiddiewinks so god help if I need to let one go in there, we maybe the only ones left by the time it finishes 😂😂 hope everyone has a good weekend and Sue your sausage sandwich stays within you xxx
Daisy63
Member

Re: February 2016 starters

Your welcome, I just managed to push down a sausage sandwich 😖😖😖 I don't know what's happening with me and food. As for the farts yes I have them big time, even my dog pees off when I let one go. Lol lol lol
Cag61
Member

Re: February 2016 starters

Hi Sue, 

I feel so sorry for you, what a nightmare, haven't they given you anything for the runs???? I find my problem is terminal flatulance which my grandson finds amusing 😄. I take it you now have one more to go? ...this treatment does take its toll on us physically and emotionally. So many people have said how positive and upbeat I've been throughout but there have been many days when I would rather have just hid myself away from the world. I am busying myself knitting scarves for Xmas presents which keeps my mind and hands occupied. 

You made me laugh Sue when you said you have put on weight........typical isn't it!! I joined slimming world a few years ago and I was the only one who put on weight every week !!!!!! I have just had my last 'T' which has knocked me for six.....the steroids are horrible and then the come down makes you feel sooooo low. My legs are like lead and my mouth is ugh. I love that we all support each other on here and we all understand what it's like to go through this. I hope you have a better few days and manage to stay away from the toilet, 

Big hugs to you Sue and thank you for cheering me up this morning. Xxx

Daisy63
Member

Re: February 2016 starters

Hi girlies, as some of you have read my bits I put on here the last 2 T's have been horrendous, it's slowly grinding me down. Yesterday was the first time in a 9 days the bog had not seen my face. Saved some money as well didn't use a whole bog roll. I now  what it's like to be force feed lol food seems to be a thing of the past. If I ever get my appetite back God help the Kentucky lol lol. I don't know what they put in this T it sure an't cannibis lol which now I am considering taking (joke by the way) just to forget the side effects. 

 

One good thing yesterday, I had a letter saying I have got a CT scan booked on the 20th June, now panic me thinks hello now what, so phoned around trying to get some information as to why I have to have another CT scan. In the end I managed to speak to a breast cancer nurse she said it was for the consultant just making sure everything is ok before any surgery.  At least I got my appointment to see the surgeon brought forward. So let's see how it goes. 

 

Now now has anyone has this happen lol after nearly 4 months of diorea, how have I managed to put on 4 fecking pound. I must have lost that down my poor old bog. I will leave you now with that nice thought for a Saturday morning. Have a nice one.

 

lol lol lol 

 

sue x X X X 

Tulily
Member

Re: February 2016 starters

Ha ha Sue, hope ur ok