I'm now in my third week and getting anxious about my second FEC next week. I keep being told that the second really hits you which really doesn't help!!!! I am constantly taking my temperature and worrying about having to go to A& E, is anyone else feeling heightened anxiety all the time. I am really cross with myself for feeling like this.
Daisy, you will be fine, you will be given all the support you need on here and also having the chemo isn't all that bad. Just take all the meds you are given. Xx
Hi Jan, how are you doing? I expect you've been for a lovely walk today...love to see the sun out. I've been catching up,with lots of friends who I don't normally have time to meet up with.
Big it hugs to you all xx
Hello everyone my first chemo is Thursday FEC and something begging with H lol my stomach keeps churning every time I think about it. You all sound so positive, hope I will be as positive as you after Thursday.
Good luck to you all
x x x
Hi February 2016 starters
There is a very helpful thread, Top tips to help get you through chemotherapy where forum users have shared over the years what they have found particularly helpful. Please do take a look and feel free to add any new tips as well.
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Thanks, I had assumed I would have to eat, but i've been doing a bit of research relating to the 5:2 diet and the effect it has on cells.....and how that could benefit you in chemo.
Everyone I've spoken to, thats actually done chemo though advises against fasting as there are periods when you simply cant face food.........and are fasting unintentionally. They've all said I would be glad to have had something in my tummy beforehand. It's such a minefield.
I'mm very aprehensive about it all.....even though I know I will be very well looked after!
Jan, well done for your first shopping trip, I've been ordering on line. Been so scared of catching something this week and have been constantly checking temperature. I am going to venture to the shops next week.
Auntylady, I've not heard of fasting before chemo, I thought you should have food in your stomach. The nurses told me to eat something before I took the meds before the chemo.
Ali, I have a dog and I am stopping him licking me and I am always washing my hands. He sleeps at the bottom of my bed and he has been such a comfort to me whenI have felt rotten.
Mmey, well done, just make sure you drink loads to flush the horrible stuff through you. We all have different side effects and just let them know at the hospital those that have bothered you the most. Let us know how you are getting on.
I have my my gradson here for the weekend which is lovely. Feel a lot better today, just a headache when I woke, I hope you all have a good weekend.
Big Hugs XXXXX💐
I think I'll try taking some paracetamol because the headache isn't going. I didn't do so well with my dinner but I ate a little and the ginger biscuits I got in were nice.
I had my first chemo today - FEC. I have a bit of a headache and am a little queasy but not too bad. I still ate my lunch with no problems. I can see why people put on weight with steroids.
Hopefully I will cope with the side effects ok.
Just popped in from jan thread and saw you pet query. I have two dogs and two cats and was worried about pet hygiene. My onc said to be sensible and very hand hygiene aware but no need to banish pets. I have stopped kissing them and wash my hands after stroking them but the cats still sleep on the bed and the comfort they give me is invaluable. I have avoided cat litter but otherwise kept things normal! She also said the germs we have in our own bodies are more risky so for the first time in my life I have stopped biting my nails!
Hope all the Feb starters are doing ok.
Thank you for the advice, I appreciate it.
One thing which I am thinking about is how to cope with pets when on a chemo course?
One of my cats always sleeps on my bed, I always have a throw on the bed to keep things as clear of cat stuff as possible.
What sort of precautions should I follow?
Hi All, not been on for a couple of days, celebrated my 55th birthday yesterday so was a bit hectic!!! I have to say that the injections have given me a lot of muscular and bone pain in my back and pelvis!!!!! Paracetamol and tiger balm certainly helped. I am sick to death with taking my temperature. I went to the hospital to have clips put in where the tumours are so that when I have surgery at the end of treatment they can see where they are, so more prodding today.
I hope everyone on this thread is doing as well as can be expected, we will all get through this.
Big hugs to you all
Make the most of the next two weeks and rest, your are still recovering from your op. The 24th will be here before you knw it and the actual day really isn't too bad, I had my first FEC today, it was a little bit uncomfortable and really boring but it was ok. I was sent home with a load of anti-sickness drugs which are working, (although I wa wide awake at 3am so not so great) and a bag of other goodies for later - mouthwash and indigestion tablets.
I have had a 4 week wait between finding out that I was going to need both chemo and herceptin and that time has really helped me to get to grips with it all, I have never been so organised and prepared for anything and yes I have overthought it all, its inevitable but you have to stay positive - its a key ingredient in getting through this cr@ppy blip in our lives.
And, in the imortal words of Bob Marley - Don't worry about a thing, 'cause every little things gonna be alright.
Hugs, Sarah x
I recognise some of these names from the other threads I've been posting on, so HELLO!!
I am due to start on Feb 24 (just sneaking into the Feb 2016). I am not even sure what I feel at the moment. I have been swinging between elated (because I am post mx and nodes clear) to terrified (what-if syndrome) back and forth today.
Still, I managed to get booked to see the dental hygenist before treatment starts - figured it might be a good idea.
I am just fed up of over-thinking over and over and over! I'm tired and I've not even started yet!.
Just got home from my first treatment, was expecting 'T' but ended up with a last minute swap to 'FEC' - cynical me wonders if it was something to do with me questionning the regime and why the T-FEC order with me having Herceptin too but whatever the reason 'FEC' it was so, having seen your comments, at least now I have some idea of what SEs to expect over the next few days.
I think it depends on which NHS trust you are in, I got a voucher for the full cost of my wig and my friend in the next door trust got £105 towards hers.
Anyone else waiting to start - the sitting around whilst being 'infused' is definitiely the worst bit - take a friend or someone who likes to chat - I took my Mom (she can talk for England !!)
Hugs, Sarah xx
Hi Sam I'm having FEC-T and had 1st T 13 days ago and found T harsh compared to the FEC.I've had thrush in mouth and down below. For a couple of days my bones ached but managed that with paracetamol.My fingernails have felt very tender and my feet have been ever so sore. Today is the first day I've felt anything like normal. I am not looking forward to the next session at all and will be asking my onc doc to reduce the dose.I spoke to triage nurse as my feet were so bad and she said dose was probably too high.Apparently we are all given same dose to begin with whereas the FEC is given depending on weight. Hope you're side effects are not too bad. I live in Mansfield by the way but did live in Woodseats Sheffield 1988 for 4yrs. My daughter was born at NetherEdge hospital.xx
Hi girls, Well I just don't know, your life seems to plod along quite merrily and then...BAM, we all have this to deal with. Today was a better day, thank goodness. The sun was shining so that was it I wanted outside and fresh air. I went and visited my mum as I haven't seen her for a week, hate that but just haven't felt up to it. Was lovely to see her and for her to see that I am ok...ish 😬
Sarah I wish you luck for Wednesday and don't blame you for keeping busy, I did that and it did take my mind of the treatment. It won't be as bad as you think, I'm on day 7 and feel like I'm coming out of the haze.
Lellie, I also wish you good luck and take eyour questions with you. I found reading posts on here gave me so many answers.
Jan, I know you can become really sensitive to smells, I feel for you. Isn't it like being pregnant, the smell of lamb used to make me heave. I have had a horrid taste and have been using the mouth wash as mouth also been sore and painful. Have stopped pineapple as that hurt. It's funny what triggers the tears, I can be fine and then I think about something and I'm in floods.
Debbie thanks for the idea of soluble paracetamol and really appreciate any advice.
I am hoping to pop out to hobbycraft tomorrow as it shouldn't be to busy as I know my immune system will be shot this week.
Keep going everyone, Big Hugs 💐Xxxx
Hi Ladies hope you are all doing ok.
Jan, I'm glad my post gave you some positivity, have fun at your wig fitting, make sure you try lots on – I was happy with one and almost went for that until the fitter suggested I just try a couple more - glad I did now. I would definitely have a go at the auburn locks though Hope you enjoyed your walk on the beach and that it blew the smell away for a while.
Carol, hope you are moving towards a better week, sounds like your OH is doing a good job – not sure if mine would be as efficient! I have been loading books onto my kindle ready for the sleepless nights, I'm going to start with 'Goodness Grace and me' by Julie Houston, it sounds like a lot of fun.
Lynsey, hope you are still doing ok.
Hi Lellie, I have my last day at work tomorrow and my first cycle starts on Wed. I'm hoping to go back in to work during week three of each cycle but I'll see how I go. Definitely write your questions down, I find that is invaluable because as soon as the doctor tells me something that I'm not expecting my mind goes blank.
Been keeping myself very busy this weekend, gardening, general diy, re-oiling wooden floors, cleaning; in fact anything to keep my mind off Wednesday. Going to go and cook dinner now, hope everyone has a good week.
Hugs, Sarah x
Hi Debbie & Jan,
Thanks for the replies. It still doesn't seem real yet, although I am sure that will soon change! This is my last week at work which is very strange. Luckily I live in so I will still have contact with people at School and I feel that I will get a lot of support from this forum. You don't realise how many people are in the same situation as you until you read all the posts!
I think I will have to write a few questions down to ask at my appointment as I seem to have a lot buzzing round my brain! Xx
wow you were up early this morning. Bit better day today, just feel like I am recovering from flu. Mouth Is sore but have mouthwash, body aches a bit but was expecting that with injections. OH very good at administering those totally painless. I made an apple and cinnamon cake which is lovely and moist. I'm struggling with food a bit at mo, feel like it is very nursery food!! Fish fingers, waffles etc. I suffer with IBS so any slight changes affect my tum. Managed to stay awake today but not gone out, have you seen int out there....even the dog is refusing to go out. Hope you are all still intact and not getting blown away.
Enough about me, how are the rest of you all feeling today, it is strange living life day by day isn't it?
Have a good night everyone, I shall be trying out my new book torch purchased from Amazon instead of my I pad which hubby reckons keeps me awake. 🔦😀
Big Hugs girls XXXX
Hi, this is the first time I have ever been on a forum so not quite sure how it all works! I have been diagnosed with invasive Ductal cancer. It has been decided that I will benefit from chemo first to, hopefully, reduce the need for a mastectomy. I have my appointment with the oncologist on 17th February so am expecting to start treatment the following week. I think you have to have had first treatment within 31 days of diagnosis?
I work in a boarding school as a school nurse so I have been told that I must stop work as soon as I start treatment due to bugs!! I spend my whole time being cheerful for everyone so it will be nice to be able to have a bit of a moan sometimes! Sorry!!!
It's been really interesting reading everyone's tips on how to get through this. Vomiting and constipation seem to be my biggest worries at the moment. I don't seem to be too concerned about losing my hair (at the moment!) but I expect that will change when it becomes real. It all seems a bit surreal still!
Sorry to rabbit on a bit. Hope you are all keeping as well as possible. X
Hi Carolyn & Jan,
welcome Carolyn and I'm so sorry you have had to join us. I'm not sure about blood counts, like Jan I'm sure we will find this out. How are you feeling at the moment, put it all down and we can support you along the way.
How are you today Jan ? I had my first injection today, woke up with a painful throat, runny eyes...ugh. Temp ok though. Hit brick wall today, lots of tears have no energy and just want to rest, this is so out of character for me. It is 6.30 and I'm in bed !!!!!!!
Anyone else feeling the side effects today?? On the plus side I made a cake this morning much to my husbands delight. Managed a bit of cleaning too but maybe overdone it. !!!
Big hugs to you all