It is great to see that you are already getting support from our users.
I have now enabled private messages for you and you should be able to see an envelope in the top right hand screen. We usually wait for new users to post a couple of posts before enabling private messages - this is to avoid spam messages.
I hope this helps Shelly212 🙂
If anyone has any questions or would like to enable their private message they can email us at email@example.com .
Hi, I am post menopausal and had a mastectomy prior to chemo. one of the younger girls is having chemo first and her tumour has shrunk quite a lot even thugh she's only halfway through treatment. Will have a look for TNBC thread but don't know how to PM via this site. thanks for replying to my post.xxxxx
im triple negative as well and if u look in the threads section there's also a thread for TNBC as well! I've had 4 FEC and 2 T so far and either 1 or 2 more T to go. My oncologist said with TNBC it responds well to chemo. Have u had a scan to see if yours has shrunk. I had one after 2 FEC and it had and am due another scan this week to see if it has again. I'm due my op beginning of September.
In regards to hair I think 4/5 weeks after finishing chemo ur eyelashes n eyebrows should start to grow back. Not sure about pigment it may be that your colouring may come back white on your head, I know I have a few greys creeping through!!!
if your interested there's also a closed FB group that I can add you to if your on FB, send me a PM and I'll let u have the details. The more support the better xx regards Colista xxx
First time on - wish I'd discovered this in Februaruy! 2 weeks ago had my last chemo, 3 lots of EC followed by 9 Taxol. Hair mostly growing back white, not sure how long it is until pigment starts to come back? Eyes still sore and wondering when eylashes and eyebrows will start to come back?
Not on hormone tabs or injections as triple negative nad got reconstruction and 2nd mastectomy to look forward to.
lovely to hear from you and I really thought you'd be enjoying your grandchild by now 😄
Thank you for telling me about radiotherapy....I just have to plough through it. I am busy planning a house move at the moment. I live in a flat and it wasn't till I had chemo that I realised how much I missed a garden, so that is it, decision made to ove to a 2 bed house with a little garden round the corner from our grandson. He is so excited and planning his new bedroom.
My husband has struggled recently, almost as if he was really strong all through chemo and the op and then suddenly everything has hit him. He hates being away from me and gets anxious...the breast cancer nurses have been good and chatted to him he is also being referred for counselling at the unit.
hope you all have a good week.
Big hugs Carol xxx
well done Emma for raising all that money and good luck with the op. It's the fear of the unknown but if you can get through chemo you can get through anything. I am waiting for radiotherapy, had chemo and op......just seems to go on and on.....just want to get on with my life now. Big hugs to you all on the forum xxx
I am sorry you are feeling so down at the moment. I had my last lot of chemo 4 & 1/2 weeks ago and I am really starting to feel more positive. I can remember having several days after the last one when I felt really down and weepy for no apparent reason! We are all human and have been through a major thing in our lives. You are allowed to feel scared and miserable. I am sure some counselling will help and maybe getting back to work too. Try to be gentle with yourself and not do too much too fast!
I've been trying to slowly get back to some normality over the last 3 weeks since ending chemo. It has been really hard emotionally. I have been really down at times still finding it hard to digest my diagnosis and what it means to me, the future etc. I have put myself down for some counselling too and it helps but you still have to 'walk the walk' yourself, managing your fears etc. I am scared about it coming back as they say all they say that BC is never really cured which really freaks me out. I don't mean to drag anyone down so please forgive me saying this stuff. I want to be able to just get on but my emotions just seem to be getting the better of me. I am hoping to get back to work in August which I am sure will help with the 're-adjustment' to everything.
I know some of you are still suffering physical effects from your additional treatments so sending you the best of everything.
Hi Cag61 good to hear you had a lovly relaxing time. I am having my op on the 21st July they said I had 3 nodes showing cells. So I am going to have them removed. There going to do a lumpectomy. The pain in my knees and back are bad. I find myself crying sometimes because of the pain like you I to have arthritis I found when having chemo the pain went. It's in my shoulder as well. Why do you worry about the future? We have not put our bodies through this for nothing we will be rid of it after the op and radium treatment. I hate the herceptin injections it is still effecting my eating, but some how I have managed to put weight on I not pleased with that.
You take care
sue X X X
i have been to Jersey for a lovely break with my husband. .....so needed it. It is 7 weeks since my last chemo and 2 weeks since surgery. Sue, I was lucky as my lymph nodes were clear, they sampled 4 I think....seeing consultant tomorrow. I have had dreadful pain in my left knee and aching in my right. I do have arthritis anyway but it seems to have got worse since the chemo. I am waiting to here when radiotherapy is starting. I have days when I get very tearful and worry about the future, my husband has been the same so I have suggested to him that he speaks to the bc nurse tomorrow on his own. I suppose we do forget how it affects our loved ones. What op are you having Sue, and are you eating again???
Jan, I hope all is well with you, and sending my love and positive thoughts to all of you on here.
Hi a Sue, it has gone a bit quiet on here hasn't it? I was warned that I might have SE after the Herceptin on its own but so far they have been minimal. I felt a bit wobbly on Sunday and Monday but improving today. Went to have my post surgery bra fitted today and actually drove myself which was great. Since I stared chemo I haven't driven as have been feeling vaguely drunk! Hubby is ex police so you can imagine what he said to my suggestion that I drive !!
I have pre op assessment on Monday and then op on 15th July. Just looking to buy some front buttoning pyjamas for easy access. I have been told that Cyberjammies do some nice ones.
Fingers and toes still a bit tingly and still feeling tired. Was told by the breast care nurse this morning to be kind to myself and listen to my body. I think that is good advice for all of us!
Hope you are all coming to the end of the nightmare called chemo? I am told that anything else that we have to go through is a breeze in comparison!
Take care Sue and all you ladies. Xxx
Well ladies how are we all doing, I was waiting for a reply to my last question. I know we are all either off chemo or nearly off but I still like to know how you are all doing.
I am finding the herceptin giving me SE but don't know if it's from the chemo or the herceptin. Had to have another ct scan last Monday as they found I had a swelling on my adrenal gland, had a phone call yesterday from my breast cancer naurse she told me it was nothing to worry about. 👍🏻 now I am just waiting to go and see the clinic for my pre op check on the 14th July then hopefully my op on the 21st July. Be glad when all this is well and truly over.
Please let me know how you all are getting on.
sue X X X X
Hi ladies I am on herceptin injections this is my third one, I am finding my knees and lower back is painful, is this due to the injection?
love to you all
sue X X X
What hormone tablets and which injections? It might be worth calling the BCN/oncologists about the swollen knuckles.
i had my op....lumpectomy last Wednesday, nodes were clear. I have so far had no pain and compared to the chemo it was a lot easier !!!! I'm sorry you're having a tough time, this bloody 'C' takes a toll on us both mentally and physically. I was very tearful when chemo ended, relief but then knowing I still had the op and radiotherapy to get through. Do you have triple negative breast cancer ?????? The side effects of chemo will slowly go, I am back eating normally again and can actually taste food. I don't think I will ever be able to eat fish fingers, ginger nuts or choc ices ever again !!!!!!!
sending you a hug and hope life improves for you......be strong xxxx
Hi ladies, I have good news at last. My operation is planned for the 21st July after a lot of messing around with my appointments. Lumpectomy and node removed. Then radio therapy. Not sure how many radio therapies you have I for got to ask. Does anyone know? And how often you have it. The list of things we have to go through seems to go on and on. Still got a bitter taste in my mouth eyes still streaming. And tired. I must have had a down day on Sunday as I told my old man to pack his bags and go, he has been talking to me like a pig and have had enough. I was crying he never apologised. You try and eat coco pops while crying lol lol it don't work.
I HATE MEN.
love to you all
sue X X X
Don't worry the depressed feeling will go. I couldn't understand why I was feeling so weepy when my last chemo was over. I think you feel that you should be swinging from the rafters but you just feel rubbish instead! I am now now two weeks past last chemo and things are really starting to pick up. Hang in there, you will get through it and be out the other side before you know it.
We have all been through such a lot and all deserve gold medals!!
Hugs to all xxx
I a couple of days post last chemo and feeling incredibly depressed. I can't believe just how down I feel and it's so hard to see anything uplifting. I am very very bitter and angry and feel my life has been so impacted that I don't know how I'm going to get through this other side. I am supposed to be relieved, happy it's over but I don't know what to think.
I feel so so lost 😞
Hi em32, I have found my last one the worst. I am 2 weeks past my last one and have felt bad all the time, like you its my back and hip and legs. The only pain killers that seemed to work for me were co codamals. I have not eaten a full meal now for 3 months my taste buds are gone I get fed up with not eating I am living on complain food replacement meals. Keep going your young and fit you will be ok soon. I know we get a bit fed up with hearing this but your win through in the end.
Sending you hugs
sue x x x
Morning All, GOOD NEWS!! I had a check scan and mammogram yesterday and the tumour has gone!
Can't quite believe it! At least it shows that all those traumatic weeks of Chemo were worth it.
Saw the surgeon and my op will be on 15th July with rads once all is healed so still a little way to go but I feel that the worst us behind me.
Just waiting for my energy levels and taste buds to come back to normal. Swear they gave me extra Docetaxol in the last dose!! Spent most of last week in bed, but that is over now and things can only improve.
Hope you are all well and coming to the final doses.
Hugs to all xx
Last chemo yesterday and PICC line out, glad and relived to be on this side of this journey. Taste buds starting to dull and it's all a bit 'loose' in the No.2 area 🙂
No rads for me so just tamox now, but I must admit to feeling a sense of 'loss' I must be bonkers!!