Good Afternoon All,
I hope you are managing to enjoy the weekend? Now day 15 (?) since first FEC and feeling well. Went out today wearing scarf/turban as hair getting very thin (and wasn't brave enough to try my wig!). I know I looked like a 'cancer patient' but felt perhaps I should wear that badge with pride!!
Scalp feeling really tender at the moment so in some ways will be pleased when all my hair has all gone!
Second FEC this Friday and so it all starts again! Must admit I am more apprehensive this time but I have a few outings to look forward to with friends so that will be good.
Catch up again, hugs to all. Xx
It's about day 11 after first EC and I am pretty much back to normal. I also have suffered indigestion but keeping topped up with ranitidine (over the counter until I can get some omeprazole from docs) has made a massive difference. My gums have also calmed down considerably. I sometimes have a bout of tiredness but it doesnt last long. I do find getting out for some exercise makes a big improvement to the fuzzy head thing. Even a brisk 20-30 minute walk around the block works wonders. Just wrap up warm as it's still cold out there.
hope you are all dealing with the side effects as best you can. I have been trying to get used to my wig as my hair is really thin. I sent my brother a photo and he phoned to say he loved my new hair style. To realising that it was a wig!!!!! I keep telling myself that everyday that goes by is a step nearer to completing the treatment, so keep going.
Anyone got snow, I'm in Hampshire and we haven't got anything, very rarely do.
I have finished the injections which is a relief, my hubby is very good at doing these but I don't like needles 😟
I have found that on the 6&7th day of the injections my pelvis and lower back ache but apparently this is normal, paracetamol seems to,ease this.
I hope you all have a good weekend, Big hugs XXXX 💐
Anyone 'blessed' with sh177y indigestion? If so what works for you? I am half tempted to get a prescription of omaprazole but not sure if it helps?
Just as the sickness is sorted eating is still a frigging trial!!!
Well the staying up didn't work! I'm now watching a movie and eating biscuits - these steroids are bad for the sleep and the diet
I used to love world book day when my kids were little - I'm sure they deliberately used to challenge me to make the most bizarre costumes - my daughter once wanted Little Bo Peep complete with bonnet and crop and when my son was reading one of the Harry Potter books he asked me to make a deatheater costume !!
The vein thing was ok to be honest, I only knew when the nurse told me she'd have to have another go. I'm pretty sure I'm only supposed to use the one arm due to surgery on the other but the nurse said I have plenty to choose from so that's ok.
Hope you had a better night, Sarah x
Hi Leonie. OK thanks, the first vein they tried (the one they used last time) 'popped' with the test so had to be canulated twice but, after that it went fine. I'm now on 2.5L but and slowing down 'cause I'm feeling a bit queasy (but not nauseous so thats ok). I did the pixie cut at the start of chemo - it did help me get used to not have lots of hair but once I couldn't hide the bald patch (and it started falling into my dinner) the zero setting on the clippers was revealed. Now getting a bit fed up of my head feeling like it belongs to an aged and balding 'Eagle Eye Action Man so thinking about shaving it but worried I might cut myself !!
Hope your's went ok today and you've had good rest - I'm trying to stay awake to combat the steroids tonight - we can only hope. Next time we'll be half way through 🙂
Hi all not been on much as I don't think I can really be of help to any one. I know it sounds corny but you girls know a lot more then me.
hope you chemo goes well.
sue X X
I *think* today might be the first day when I feel the most normal since my first treatment. I have good apetite and tea even tastes ok. The tiredness is never too far but not feeling sick is the most amazing thing. Maybe I can do this!?
I found the eating and drinking little and often helped. And I mean often, sometimes a spoon or two of plain mashed potato every hour or two with a few swigs/sips of water was enough to keep it all settled despite still feeling sick (but thankfully not being sick). I later moved onto adding some mashed carrot and later broccoli. English muffins also were something plain and light to break it up a bit. I stuck to this pretty much until i felt less sick. Hot drinks were a total no no, but plain ice lollies/ice pops helped with taking in some liquid with a little sweetness to feel less bleurgh (not ice cream).
Also do the pineapple thing but alternate the corsydol mouthwash with 'zero alcohol' Listerine. Yes it does stain more, the corsydol, but the hygenist can sort this for you so dont worry about it.
God you have to totally surrender your entire being to something so horrible as chemo, I think the emotional side is just as bad as the possible side effects if not worse. I do get very tearful at times but the nurses just tell me to go with the tears, need to just let it out.
wow, I'm on day 8 and this one has really knocked me out, been very tearful and feeling that I will never feel normal again!!!!! Jan, think this one is definitely tougher, but one more FEC to go. My hair has really thinned and have a largish parting which I cover with headbands.
I went to my doctor and she has given me a repeat prescription for Aveeno which is free. DON'T pay for it. Lovely on the skin.
Now my problem is constipation, I have taken Movicol but nothing yet !!!!! It is becoming a bit of a running joke with the family...no sympathy here. I hate the taste of the stuff, I had to have a colonoscopy many years ago and had to drink litres of the stuff before it and I can't bear the taste to this day, it makes me shudder. !!!! I'm thinking of you all and hoping that your day goes well. I'm just going to have a shower and get going. Want to visit my mum today as haven't seen her for a week.
Big Hugs to you all 💐Xxx
Yes, cycle 2, had a really easy time of it last time so hoping it will be kind this time too. Chugging down the water already - had 3 Litres today - peeing for England lol.
I had 3 bald patches about the size of 50p pieces and my (recently cut) very short hair was that shaggy I looked like Tufty the Clown !! Realised I needed to 'brave the shave' while I was picking hairs out of my dinner ewwwww. So I had my GI Jane moment and did it - first bit I did was front and centre so there could be no going back then I took a deep breath, wiped my eyes and got on with it. You are brave enough to do it/get it done, it won't hurt/itch afterwards and it does feel good to take control xx
Good luck, Sarah x
I love a nice bath, if i'm ok tomorrow I'll pop into boots for some thanks xx
I have always had dry legs but whilst having chemo I have been using Sanex Dermo Oil bath foam. It is really good, my legs are so soft. OfTen on offer too. Hope it helps x
Jan, I'm slathering on aveeno oily cream. It's lovely. And usually on special offer in boots.
I'm day 5 cycle 1 and I'm sorry I can't keep up with everyone's names! God I'm 42 I used to be so good at forums!
Wiped out with fatigue today and did my first filgrastim jab today. I was soooooooooooo brave!
Going to chase the wig lady tomorrow!
Big love everyone
I'm using E45 dry scalp shampoo, my hairdresser (who is also a trained Barber so used to balding heads) said that I should continue to use a mild shampoo on my head as shampoos are specifically designed for the scalp. Its expensive (£5.00ish for a small bottle) but I only need a tiny bit as there is no hair to lather so I think it should last a while.
I've also been using a small amount of E45 cream which is doing the trick but she said Almond oil was good too. Thing she stressed the most was that, at the slightest sign of sun to make sure that I use a good SPF factor sunscreen (even under the wig or bandanna).
Oncologist and bloods tomorrow and then FEC 2 on Wednesday - living the dream !
Hope everyone is as well as they can be - hugs to all .
Hi peggtcat thank you so much for replying to me. X X X I have got 6 FEC-T then op then aprantly more chemo. 😩😩😩😩😩😩
Hi Daisy, I'm popping in from the October 2015 group. I finished chemo 4 weeks ago and not feeling too bad now. The dry mouth is definitely a side effect and persists for me still. I eat a lot of fresh pineapple or eat Opal Fruits (I'm too old to call them Starburst - they are always Opal Fruits to me ) which seems to help. Had a very mild sore throat during one cycle of FEC but know people who have had it harder than me in that respect. Pretty sure what you are experiencing is due to the chemo but it will pass. Good luck with it all. It will be over before you know it.
Afternoon all, can you tell me if a sore mouth, throte and a very dry mouth plus I keep running to the loo 😝😝😝 is due to the chemo? I have not been feeling to bad for the past few days but to-day feel so tired💤💤💤. Is it chemo or is it old age. 👵🏻
hugs all round.
x X X
Ha ha, you are so right, us women are so strong. I've just had a laug at the thought of your eyebrows flying off !!!!!! I've still got eyebrows &eyelashes. No underarm hair, and I had to shave my legs as I thought they would fall out and they didn't !!!! Nearly had to plait them 😄 Have a good day xxx
I'm on day 6 and this has been an emotional roller coaster. I changed anti sickness and they have knocked me out, also the hair thinning has made me lose confidence! I tried my wig on and hated it !!!!!!! Isn't it funny the things that we fancy to eat, I'm amazed I can still drink tea, water is ugh and Ribena. I hope that we all have a better day. Roll on next month with the lighter evenings, hope you all have a better day, Big Hugs to you all 💐Xxx