Hi Everyone
Had my first FEC-T chemo today. The nurse was wonderful and it was easier than expected. I have no sickness as I have tablets for that. Actually I seem to have tablets for everything (mostly sickness and bowel related!) and I have to inject myself from day 3 to 10. Never done that before so should be interesting!!!
I'm having 3 FEC-T and then a CT scan and then 3 more sessions (unless the scan shows something they didn't expect). Then I have surgery to remove the area.
I got the recall letter 3 days after my 60th birthday and have a few nice treats I was bought to look forward to. Really hoping I'll be well enough to do them all.
Our NHS in Shropshire provides a wig and has an arrangement with a posh salon. The woman there was fab and she has a whole top floor dedicated to the wig service. I tried on 4 but couldn't decide between two of them so she ordered both in my colour. I chose one (called Dixie) yesterday. She said they are about £250 but it was free for me so I'm hoping to look okay.
I also need to lose about 2 (oh okay more like 3) stone to be a healthy weight and I'm hoping the steroids don't make me gain. I eat healthy meals but I'm bad at eating extra at family events or in the evenings!!!
So I'm feeling okay on Day 1 and my OH is doing everything! I commented today that I don't know how all you women that have children or elderly parents to care for are coping. I hope you all have good OH's and friends/family too. It's enough to be looking after ourselves! On the other hand I dont suppose you have much time to overthink stuff!
Thank you all for being out there. I know each treatment regime is different but it helps to read your tips and thoughts. This is all so alien to me as I've been fit and healthy and not had kids so very little doctor/hospital action in my 60 years!!!
Best wishes to you all. Jules
Mrs Cat ,
just a quick pic of the dairy free cakes ( scooby snacks) i got .. the chocolate logs are very good ( i got 2 packs) and the bakewell slices and the coffee slices ,, haha all good xx
Hi all
Yes, I too have been reading about the China project and Jane Plant's books regarding the link between breast cancer and meat and dairy due to the animal oestrogens. Frankly, I'll give anything a go to try and prevent any recurrence...and as my cancer was highly oestrogen fueled, I thought it made sense to try and reduce the amount of oestrogen in my body if i can.I know that a lot of it is out of our control though, ie environmental.
I did talk to my breast care nurse about diet and she did make a point of saying to me that they havent suggested that I follow a vegan diet, however, she thought my plans were healthy and she made sure I was eating enough protein etc so I healed well after surgery and was getting all my vitamins and minerals from all the food groups.
I initially looked at doing a veggie diet but then found it quite easy to go without milk and cheese when I found oat and coconut milk and Sainsburys do some nice vegan cheese so plumped for a plant based diet with a bit of fish now and again otherwise I'll never be able to enjoy meals out again and I dont want life to become a total bore as I've given up alcohol too 🙂 There's not many restaurants or pubs near where I live that have a vegan menu. Just one I think. I've been making interesting wraps with red kidney beans and hummus this week and loving salads with vegetable samosas and spring rolls and homemade veggie soups. Eating tonnes of fruit as well and getting protein from mixed nuts. I feel well.
I bet Maria you are losing weight as you have been terrified and have had such a shock. I did too in November, lost about 10 lb in a matter of days. Put it all back on again now following my mastectomy and recovery! doh! I need to work on weight loss. I need to lose a good 3 stone to be in normal weight range. I disguise it well though as it's all over and I dont carry it i one particular place, though I do feel a bit lobsided now one of my huge bazookas has gone though. I'll be glad when I get my proper prosthesis which is weighted. I think my breast care nurse will contact me to go in soon as it's nearly been 6 weeks since my op.
Now I really am waffling and can't remember what everyone else has said. so will have to go back again later for another read and answer each one invidually I think, forgive me! Is anyone else having trouble retaining information and this is before any chemo!
Oh yes, the stress link.....my husband suffers with a long term health condition called Cystinuria which causes kidney stones and has made him quite depressed of late being in and out of hospital. He had a breakdown in February last year and struggles now he's back at work. His dad was also diagnosed in May last year with metastatic brain cancer (but is fortunately on immunotherapy "wonder" infusions and is doing really well) and his stepdad has been diagnosed with vascular dementia so with driving up and down the country and seeing them every weekend and trying to be supportive to them and his mum and stepmum, I think I have completely ran out of oomph and this has contributed to me getting ill.
I also work for the Trust where I am getting treated - a different hospital though. I'm a medical secretary in Orthopaedics. I also do complementary therapies, reflexology, aromatherapy, indian head massage, hot stones etc etc as my hobby (I used to do it part time as a business alongside my NHS work, but life just got too busy) so I'm very interested in complementary therapies alongside modern medicine.
I'm off now to watch the channel 5 film at 3 pm with a packet of salt and vinegar crisps - oooh I know how to live!!! lol!!
Much love to you all.
H xxx
Hello Mrs C,
I have started to eat more healthily as I have read about the link with meat and dairy. I don't drink milk because I just don't like it so I substitute for oat or almond milk. I haven't completely given up meat as I tend to cook it for the family but I have reduced it. To be honest, it's not great loss for me. I try to buy organic if I can but not always.
Like Zena, I'm making drinks with turmeric, ginger and also fruit water. Citrus fruits are supposed to be good and green tea. I've also tried hemp tea. I'm using lots of herbs and spice and a variety of fruit and veg and making lots of soups. I've read that there seems to be a lower incidence of breast cancer in China and Japan, but not sure whether that's anectodatal or evidence-based. Could be as a result of diet though, which is lower in meat and dairy.
My chemo starts on Monday so I'm still a bit in the dark. I've heard different things from different people so I'm keeping an open mind. I was thinking back to nausea during pregnancy. I was never sick but felt dreadfully nauseous and tired for about 5-6 weeks. I've ordered some sea sickness bands. Thought it was worth a go. I remember using them whilst I was pregnant. Not sure they worked but the irritated the hell out of me so were a good distraction!
Anyway, I'm waffling too...
Jo xx
Ooo welcome Mrs Cat!
Like you I am also pr+ ER+ so interested to hear about a veggie diet. Is that because of the hormones in meat? I must admit I've been toying with the idea for a while as my daughter is vegan, so it wouldn't be a huge deal for me. I'd miss my spag bol though...(quorn mince does NOT cut it for me)
I'm on a clinical trial so I've already had neo-adjuvant chemo back in September. Had the last one in November then surgery (WLE & full node clearance) nearly 3weeks ago. I am due to start my FEC on 3rd Feb as a continuing part of the trial. Not looking forward to it but I have a fair idea of the routine now. I had the TC (Docetaxel & Cyclophosphamide) for my first lot so happy to give advice about SE's etc if you have that.
Just had a missed call from the other hospital in the trust, which will be doing my rads. Presumably about an appointment to set it all up post chemo! Blimey, what a ride eh?
I absolutely believe that stress causes disease in our bodies. I was very stressed at my old job a couple of years ago, never had a day off sick, worked unpaid overtime because the boss was such a cow & ended up with a broken Thyroid. 100% stress related as are most auto- immune diseases. I can't say my BC is down to stress as I was on HRT & my surgeon said I HATE HRT!!! But stress absolutely affects us. And how stressful is this whole experience?! I'm lucky that I feel completely mollycoddled by my hospital (I work there btw!) & am happy to put my full trust in them, never feel rushed or too much bother.
Soooo I've waffled again....
Peace out my loves
JoJo xx
I'm having my first chemo session tomorrow (thurs 26th) so I've joined this thread. I've tried to read stuff and all my family have been great so I feel as prepared as I can be. Collected my wig today too.
I've not really been ill throughout mt life (60 years!) and haven't had children so all this hospital stuff has been completely new to me. I'm hoping I won't be too much of a wuss tomorrow. My OH is being fantastic and we almost feel like we are preparing for a siege.
The Lingden Davies Centre in Shrewsbury is almost brand new and all the staff have been great so far (apart from one oncologist who was so abrupt) so I'm feeling positive.