Good luck today jo we will be thinking by of you hunny ...💗
And Ann too Huns I hope you get all info you need and the fasting helps ..,let us know ❤️ .
And all onc types get in fast ( how annoying that must be , more Waiting and worrying ) ..
I had bad night again . Not much sleep .. i called the bat line number they give you and nurse said next meeting discuss it all .. but it's just a general feeling bad all round so no idea what they could change ..
I'm so sorry I hate to moan ., I am a complete wussy so please don't worry Ann sue and Maria and others that are coming up to the start ..
I'm sure it will get better for me .🤞🤥
Jojo il try a antihistamine today as that cramp feeling has kicked in in my body ( oh the joys of chemo )
Need to get out of my bed and wash it soon as it will get up and walk away from me soon .. last wash was last Monday and I can't bare longer than a week and my sense of smell is heightened due to nausea so I feel minging ☹️..
Gosh could I moan anymore.. forgive me ladies xx
Big hugs to all
I'm finding this forum really helpful. It's good to read your tips etc.
I made myself a spreadsheet for my temperature, water intake, each drug and injection, excercise and bowel 'activity'. I keep it in a small basket with all the tabs and theromometer and I feel in control.
I've also done a spreadsheet of all the appointments and colour coded low immunity days etc. So I'm planning a few days at my Mum's on my 'green' week - she lives by the coast in West Wales so maybe some nice sea air will do me good.
Hope you all have a reasonable Sunday and are ready for appointments this week.
Onwards and upwards!!!
Hello lovely brave ladies,
Maria 12, Thank you and good luck to you too on the 8th. Do you have a date for your surgery yet?
Julie, thank you for your lovely message. A fellow country woman, how lovely and looking forward to getting to know you. I am from Cardiff originally and after 40 years I am going home. I know St Fagans and I am planning on buying a house in Rhoose Point just by the sea with lovely country walks close by. I am moving in with my parents for the time being as they live in Whitchurch Cardiff, just a mile away from Velindre Hospital where I will have my Chemo and Radio Therapy treatment. To say I was scared would be an understatement but its got to be done I suppose. It's encouraging that you did not find the first Chemo session too bad. Did you cold cap? I am not sure whether I will do it or not. I will see. I am not very good at these forums but I will do my best to keep intouch.
Mrsorangecat, thanks for your lovely welcome I have been "watching" in the background for a few weeks. This site is amazing for the support it provides. Hope your mum's tea party goes well and you enjoy the cakes!
Jo C,Thanks for your kind words.... In my 60 years I can honestly say I have not suffered with anxiety. The past 3 years I have been so anxious for one reason and another and now this!! I will try to keep coming back on the site but I do find it hard to keep up.
Zena75, what a brave lady you are. I have read some of your posts on other threads and was pleased to see we are Chemo buddies.... I hope to be as brave as you over the course of the next few months. My first Chemo session will be next Thursday 2nd Feb . I dont know anything yet but I will on Monday when I have my Pre Chemo session. Can you take someone with you to these Pre Chemo meetings?
Apologies if I have missed anyone I will catch up soon I will be travelling to Cardiff tomorrow to start this journey none of us really want to be on...... but we can do it together... :-)).
Jules and Zena hope you both have a good day tomorrow.
Hugs for you all
Busy day so only just catching up...
My chemo starts 3rd Feb (next Friday) and it'll be FEC having already had the TC before Xmas. I'll definitely be paying attention to your SE's ladies. Dreading any sickness tbh.
I'm surprised you ladies are having steroid injections! Isn't it strange how different trusts treat the same disease differently? Surely there's only one way? I was given Dexamethasone tablets while I was on the Docetaxel/Cyclophosphamide. Made me wired & hungry. Luckily only need them for a few days and yes to prevent sickness & allergy. The only injections I was given was the g-csf injections to boost your production of white cells on day 4 for 5 days. Hated them & the aches that came with them.
Have a look at the use of antihistamines in chemotherapy. Just the bog standard over the counter types. They can help with some SE'S. I take Nytol anyway which is an antihistamine & did sleep ALOT better!
Zena what anti emetic did they give you? Was it Emend? I've been told to ask specifically for this as it's the best thing out there. Just can't cope with being sick.
Sounds like you two ladies are coping really well! Long may it continue.
I finished Chemo about 4 months ago and also queried the steroids at the time.
My clinic prescribes Dexamethosone for a number of days at the start of the cycle. My Oncologist said it was for 2 reasons
1. to reduce allergic reactions at the start of chemo
2. to reduce sickness and vomiting
I'd previously had a bad reaction to Dex but made the mistake of allowing my Oncologist to talk me into taking it. Was violently sick and totally floored by my first chemo (FEC). After 2 bad cycles I changed to another steroid that I had tolerated previously called Prednisone.
It looks like other countries are noticing the side effects from Dexamethosone and changing their protocol. This clinic in New Zealand is now using a single dose of Dex.
If you have a preference talk to your consultant. They may be happy to change the dose or the drugs used.
I'm still feeling okay - no sickness and I managed my first steroid injection which I was dreading. It was okay.
I've been out for a 40 minute walk but now I feel a bit odd - not sure how to explain it.
I wake a lot at night and sometimes read and I nap during the day a little. Managing to do some family history research and watching all the DVD's we haven't got around to watching. OH is still making healthy meals and I'm managing small portions. I hope to have lost a few pounds but I'm worried about the effect the steroids will have. Does anyone know if they cause weight gain? I hope not.
Hope you are all okay.
Hello All you lovely lot , and welcome Ann of course x
What a bad night after thinking i was gonna be ok ... its was like id been filled with lead..
headache and pains .. and a sick feeling even though I had very good anti sick ( one up from ondanztron).
Woke up every hour sweating buckets ( vile) and loads of pink wees ... probab;y good as getting it out of my system.
Anyway got up at 11 had a bath and came down to lie on the sofa... my mum made me soup and hubby took kids out .. disrict nurse came to show me how to inject the steriods Ive got into my tummy.
and now ben back with a very cheeky mac donalds cheeseburger for me..
After the amazing food Jules talked about i neary didnt admit that bit LOL xxxx
any questions please ask. I feel much better now and so I can say that terrible feeling for me has at least is getting better. but im guessing more fun and games to come from my small pharmacy ..
good luck jo for monday hunny, the chemo bit is actually fine and once cannula in pretty straight forward.
it hit me about 4 hours later so be close by your bed so you can jumo in under the duvex darl .xxxxx
huge hugs for you all and fight on xxxxx
I am also 60 years old and have just had my first chemo (yesterday) - I know it's early days but I feel fine.
I was 60 in December and our plan for 2017 was to sell our house and move to West Wales. We are both Welsh and want to live near the sea and in Wales. We also planned to buy a camper van and take a gap year once the house was sorted. So all that has been put on hold as I had the recall letter 3 days after my 60th (family party at St Fagan's!).
I suppose what I'm saying is that we have to deal with what is thrown at us. I've never been ill so have never done the whole medical thing/waiting rooms/specialists etc.
The chemo was much easier than I expected and I hope it will be for you too. My email is email@example.com if you want to keep in touch more easily. We can get through this together.
Love Julie xxxx
If I may join you as I will be starting my Chemo next week on 2nd February.
Just a little about me I am 60 years old and was diagnosed on 24th November 2016 with Grade 2 BC and one lymph node involvement. The Grade changed to a 3 after the operation on 5 December but no further lymphnode involvment and my super duper surgeon managed to get clear margins and did a fantastic job. Since my operation I have not been coping well, anxiety, depression etc.... I am sure you ladies know exactly what I am talking about.
I live in the Sussex area and selling my house and was due to move to South Wales before my diagnosis, which I still plan to do.
I had my op in Surrey/Sussex hospital but as I live alone in Sussex and all my family are in Wales I am moving down there temporarily and will be having my chemo and radio therapy in Cardiff so I can be supported and taken care of by my family, until my house sells.
I must admit I am terrified and have been encouraged by your posts..... I pick up my wig on Monday morning then I have my Chemo Education session Monday afternoon, Clinic on Tuesday and Chemo on Thursday.
I will do my best to keep in touch and keep up but I find it difficult using my phone and I get very lost with all the messages posted.... I guess it's getting old and by the sounds of it the chemo will not help my aging brain!!
Looking forward to going through this journey with you strong Ladies. 🙂
Day two and I've had a good day. Been for a walk in the fresh air, did some more family history, some household chores, a bit of telly and a cheeky nap in the afternoon.
The anti sickness drugs are obviously making a huge difference to how I feel. Opened the door this afternoon to two beautiful flower arrangements so that's five vases full over the last week. The ones this afternoon were from work along with a card with masses of messages. Great to know there are so many people rooting for us. I'm keeping up with a bit of facebook too.
Tomorrow I do my first ever injection into my flabby belly. Not looking forward to that at all.
I've been eating masses of roasted veg with either fish, chicken or haloumi cheese with tumeric and black pepper. I feel like I'm eating goodness. Also had home-made lentil and veg soup for lunch (also with tumeric). I have spicy green tea with a spoonful of manukka honey each day too. Oh and a very high fibre breakfast of all bran, apricots, raisins, linseeds and chopped walnuts. So I hope I won't be needing any Senna stuff.
Also had a phonecall from Macmillan to say I have a free 2 hour beauty/pampering session next Wednesday. Apparently I will come away with a goody bag too.
So I'm feeling positive and hope you are okay Zena and all other February starters. We are all having different treatments for different types of breast cancer but the NHS and Macmillan are looking after us amazingly.
Love to you all. Jules