Thank you so much for the encouragement Jo. The hospice day sounds lovely. I can't imagine what this must be like when you have little ones to look after, I am in awe of all of you, I really am.
Sarah hun! Hellloooooo! I'm Alex Birket over on the FB Group. We also have another chemo buddy starting on the same day as us 🙂
Hope you are all okay. It's been nice seeing so many of you on the facebook group. 11 of us on there now so lots of photos being shared.
Good luck to anyone having chemo tomorrow or Thursday.
Hi girls. Thanks for the welcome and see i have loads to catch up on already.
I have just been chilling and catching up with some friends and generally getting house in order before i start next week. Still in a wee bubble which will no doubt burst on tuesday!
Sorry to hear all these side effects - sorry not got a handle non everyones names yet as too many posts! I think i will be a daily reader next week!
School holidays here next week so planning that has been distracting me!
I have sent you a FB friend request Jules - i'm Rachel Liddell. Be nice to see some pics of people and our "other lives".
Thanks all and speak soon - i will have lots of questions i know!
Sending positive vibes x
WElcome our little club, our Facebook page is coming along very nicely and is great for getting to know each other and put faces to names.
I was a bundle of nerves before my first chemo on 26th Jan, and I can feel myself getting a bit nervous before FEC 2 next week, but I suppose all this is par for the course in having to manage something we are just not used to, and never thought we would have to go through.
Feel free to ask any questions, as quite a few of us have had our first chemo and we all probably have different experiences.
My nose was dripping on Saturday but that was because my lack of first aid couldn't stop my nose bleed 😞 but a quick call to the ooo nurse sorted me out.
Yes, I've heard we will probably have runny nose and streaming eyes - not sure if I'll get double the dose as I reckon it will all coincide with the start of hay fever season.....oh the joys
I think the reason they say paint your nails dark is for two things - hides the discoloration from the chemo, and protects the nails from UV. I've heard that moisturising them from now onwards (i.e. before the nail problems start) can help, but I don't know what the best nail oil is - there are loads available, and being free of chemicals doesn't always mean it's the best. Any ideas ladies?
Welcome to Sarah (if welcome is the right word!!!). None of us want to be on here. We have been planning for about 10 years to put our house in Shropshire on the market in 2017 (when I got to 60) and move to West Wales (to the sea). With some money from the sale we were buying a campervan and having a gap year all around the UK. All that totally put on hold.
I haven't noticed any hair loss yet. I use a non SLS soap to wash my hair (have done since May - not connected to BC at all) and I've stopped using a blow drier. I have a nice wig ready although I haven't taken it out of the box since I brought it home! I must try it again and get used to the feel of it.
Hop on to facebook and join our group if you do FB - find me Julie Owen via Broseley Totally Locally.
Love Jules 1
I'll be surprised if any of us who aren't using the cold cap end up keeping our hair 😞 I'm not brave enough to get it buzzed off yet, but am preparing for it some time in the next week or so.
Sarah, I don't think any of us want chemo, but If we stick together we can help each other manage it as best we can. I wish I could have avoided it, but can't. I have a little chart counting the days off, as every day I get through is a day closer to finishing chemo. I have everything else after that too, surgery etc.
Julie, Zena, you had first chemo same time as me. Have you noticed any hair loss yet? I seemed to lose a few fine eyelashes yesterday, and my head hair is definitely weakening, as I am losing more hair than normal when brushing. Strangely I have had a headache and slighly runny eyes the last couple of days and wonder if it's related.
How are you all?
The facebook page has eight of us on there and it's lovely to see photos of you all with your families, dogs and cats. It won't replace this page but will be useful to add stuff and be able to private message if anyone is feeling really low.
I have a bit more energy today so feeling happy.
I'm reading a book by Sian Williams (Breakfast TV etc) about her double masectomy and dealing with all sorts of stressful situations. Some of it has been hard going and I was wondering why I was reading it but now I'm finding it good. I've been bought about 4 colouring books and pencils and there were times when I thought I should be doing that instead LOL.
Keep strong girls - we are the Fab February Girls!
Anyone new please find our facebook page by looking for Broseley Totally Locally where you will find me - Julie Owen
this is really useful, thanks. I had to look up Emend, it's the one called aprepipant. I suppose this list helps explain what they each do, and I am not convinced I need them all, but frightened not to take at least some for fear of suffering nausea.