Dear Ladies, you all rock...I have been following you all but fInding it difficult to reply. I have been such a wimp the last few weeks and I apologise for not being in touch. I suffered a few SE after chemo No 1 on 2nd February but not too bad and I have been feeling my old self this last week, apart from the fatigue.... on the other hand I have been suffering from anxiety. I am still finding it difficult accepting what is happening to me and I have almost lost all of my hair..... My scalp is sore and itchy.... thank you all for being there it has been a great help and comfort to me... I see we have been joined by several ladies in my absence. 'Welcome' to you all and sorry that you find yourselves here but we have a very supportive and special group of ladies... I am ready for round 2 tomorrow. Hey max, my chemo buddy, how are you doing? Hope your side effects were few... will drop a line on our Fab February FB page too.... love to all xxxx
Jac, how did chemo go? Was wondering if you found it easier than you had feared? Anyway, hope all went well.
Zena, just realised we have the same bc, Im sure I said( far too often) that they trIed to shrink my tumour before the op, but in my case it didnt work...tho my tumour was pretty large!
at any rate, all that took place in 2001! Such yonks ago now...cant believe it!
anyway love to all of you ladies, hang in therexx
I'm with you Jo on using walking to relax. Pre all this stuff I used to do lots of walking - nothing special, just in the local area, but I'm finding with chemo I just don't have the energy most of the time, until maybe week 3. I couldn't even manage to the local shops yesterday (15 mins away) without wanting to sit down but then I suppose it was day 5. So I've found some of the meditation music quite useful to relax me, esp during the chemo itself. I've heard that yoga can be very good for increasing oxygen levels and improving feeling of wellness, and depending on the type, is probably less strenuous than walking for miles.
EEek an infection?! - that's one of my biggest fears...did you get over it ok? That must've been scary for you. Are you getting surgery after your rounds of chemo or did you have it first?
Thanks Jojo. Yes, I've got my sister who's an absolute rock! I've also got my kids (11, 10 and 4) who I've told and the older two I think will be up for helping me! My parents stay in Edinburgh which isn't handy (I'm in West Lothian) but I'm sure they'll bus it out on days if I'm struggling.
I'll have a wee look on Facebook, what name/group should I be looking for?
I'm Jac and I'm due to start chemo on Weds 22nd Feb. Feeling a bit scared! I've read through the literature and am 'just' scared of the effect it'll have on me. Seem to hear varying accounts of people sailing through and people suffering with exhaustion and nausea. I've got TNBC and I think I'm getting FECD...anybody out there due to start that as well or something similar?
I went for a wig fitting today and have chosen one. I was going to try to save my hair but the wigs look so good I figured I'd just let my hair go...it's one thing less to worry about eh! - plus I colour my hair and need my roots done LOL so I'd look a sight by the time 4.5 months has elapsed!
Can anybody recommend anything to avoided mouth ulcers? I saw my dentist for a checkup and he wasn't particularly helpful!!
Hope you are all okay.
Had my 2nd chemo yesterday and was told that my bloods are Gold Star. Also given pre-emtive anti indigestion tabs to take every day as I bad indigestion so no rennies taken today. Nurse said that acid in the stomach is not good for us. So ask your nurse if you are having acid reflux.
Been putting off shaving off the hair as I'm wearing a nice turban all the time. When I do take it off I look a bit mad and the hair is all over the turban. So before I go to bed tonight it is coming off. Might put it out for the birds to make nests!!!
Any newbies we have a facebook page which you can find by looking for Julie Owen on the Broseley totally Locally facebook page. Send me a friends request and I will add you to the group. We are calledthe Fab February Girls but it is a closed group so you have to find it via me.
Lots of Love
Forgot to add that even on the days you do plan to work, you should be able to agree reduced hours or duties as part of a temp adjustments plan due to your disability ( bc counts as one under equality/ disability legislation). My normal hours are 36 per week, but I have a local agreement to work 5 hours a day on discrete tasks, rather than long term projects which is my normal job. I still get paid in full, and not part time wages, as this is a temp adjustment while I go through treatment. Macmillan website has loads of info about how to manage work etc, for employers and employees.
i have been working. I rang in sick today though as I wasn't feeling great this morning after chemo yesterday. I am waiting for my employer to let me know if they are happy with a blanket fit note for 3-6 months that says I may be fit to work on reduced hours for 1-2 weeks each cycle. The fit note would then cover any absences I took during the period and my boss would just register me sick accordingly. Otherwise if I am only off a week each time I can self cert. Getting notes every time from the GP is a bit of a pain so I am hoping they will accept the 3 month one with notes. Will let you know when I find out.
Glad to hear you are home OK now, and dripped up. Hope the nausea isn't as bad this time round. We were all wondering how you'd got on yesterday so pleased that you've checked in. Yes, I had a rubbish sleep last night too (Steroids!!) and am cutting right back this time instead of popping them like smarties (on advice of ONC and nurse).
Just think, 2 down, one to go (on FEC anyway).
Aaah, thank you Jojoxx
I think experience and technique are two good words to sum up how things go.....I did think that if we all went on ports then the lovely nurses( and they are all lovely where I go) would become de skilled, so that would never do!
any task takes practice and practice and prac........so I have every sympathy for them when it doesnt work...but of course its such a joy when the cannula goes in first time xxx
Jojo....thank you....yes it did go well.
i have terrible veins, but my lovely nurse managed to get one 1st go and I didnt feel a thing...tho must admit, I dont worry too much now usually about a bit of a 'sharp scratch' as everyone likes to call it
( have you ever heard the like? Well, I ask you!)
. I just pray for success xxx i have always hated needles, which was why I went into a job where I was at the other end of one!...... Am the worlds worst..,but getting a bit used to it now.
Today, Jojo.I i actually felt nothing at all tho...isnt it strange how some times it hurts and others not!
Zena...thank you. I do try,a bit, as thats how this forum works....but actually I learn a lot from you ladies too. Obviously ive been through the primary diagnosis and op, treatment rads, etc, before .....but you ladies are so very vibrant and supportive to each other....I pick up tips for myself as well as for other newbies.xxc
i will just share tho, that when the dratted bc did return.....I was feeling similar stuff to that which you all describe.......I really didnt want chemo again.......but like you I adapted and life went on.
now im going to say something radical and most unlike me....but when those of you who go on maybe hormonal stuff, or even chemo, hang in there.......,just go with the flow ( get your doses adjusted if need be and get help with any side effects) what you really want to do....is...., knock the bggr on the head, so it never, ever, comes back!
Thats the main thing. Xx