Sib I am sure your ;new hair' looks fab .... I hope i dont offend anyone as i know i have a warped sense of humour but me and my sister have laughed loads today. firstly she offered to shave her hair off so when we go out people wont know which one of us is ill. I said no her reply was we will see. Now i know i havent even started chemo or indeed had my second op but i started talking wigs, I said i want rainbow unicorn wig down to my bum and her reply was as long as you dont put a d!ldo on your head for a horm I will walk down the street with you. I have also got tickets for a reggae night in December to see Shaggy and Maxi Priest so I said I would get a dreadlock wig but she said no it would look silly if I had no eyebrows. I love my crazy little sister and Rachy yes as you can see from this I have had a good day. xx
Sib I am sure your ;new hair' looks fab .... I hope i dont offend anyone as i know i have a warped sense of humour but me and my sister have laughed loads today. firstly she offered to shave her hair off so when we go out people wont know which one of us is ill. I said no her reply was we will see. Now i know i havent even started chemo or indeed had my second op but i started talking wigs, I said i want rainbow unicorn wig down to my bum and her reply was as long as you dont put a dildo on your head for a horm I will walk down the street with you. I have also got tickets for a reggae night in December to see Shaggy and Maxi Priest so I said I would get a dreadlock wig but she said no it would look silly if I had no eyebrows. I love my crazy little sister and Rachy yes as you can see from this I have had a good day. xx
Dont you dare not come on here xxx You are still very much part of us you have given a lot of support to ladies on here and your story is important for those ladies coming on here who are scared as it shows it does not always have to be a cancer diagnosis.
Oh I absoluttely love that your poor hubby thank goodness it was not the case, but you could still be the bad ass superhero though and kick the cancers ass 🙂 🙂
I am so glad to read that you have had a lovely time today with your family and are feeling calmer.
I feel like an intruder, bcos my journey is not as tough as yours ( still waiting for op and biopsy, but mammo shows benign condition) ....however, you have all been so kind to me , that I can't help but check in to see how you are all doing. SueW, sorry to hear of the recent update. Hope all goes well for you and for all the other lovely ladies here. I hope you don't mind me popping in now and then and keeping in touch .
Love and best wishes xxxx
Think I must be! x
Michele, just thought, no wonder someone said I looked so well when I saw them yesterday, I must be still glowing from the scans! xx
And then I had someone ask for an update, as they were worried about me. It does make some people uncomfrotable, and my father-in-law keeps on at my husband, telling him he should stop me posting in public. haha My husband is wiser than that.
Oh Sue, that's so lovely x People have been really kind to me too and messages from some people I hardly know. xx
Morning Sib, thinking of you today re hair. It won't be easy for you I know and something I'm dreading if I have chemo. You did get a wig didn't you?
Glad to hear that you weren't sick this time, although it's horrible feeling it. Have you felt ill or 'just' sick? (Sorry, I hope that doesn't sound flippant because being sick is bad enough) xxx
Love your idea of a journey Michele! I don't like flying though, especially on our plane!
Really pleased to hear your CT scan was clear, what a relief for you, especially as I know you were so worried about it. Is MRI looking for the same as the bone scan? I must be really glowing, had bone scan last Friday and CT on Sunday! xxx
So glad to see you are feeling more positive Sue. It really is a tough journey and the route does seem to change often, lots of detours. Sticking with the journey metaphor, this site is a bit like the inflight information, support and entertainment package, here to help you on the journey ........ tea, coffee or virtual hug madam?? Loved your story about your Mums friend, love that ladies spirit, fantastic.
Jencat, got my CT results yesterday pm ...... CT looks ok. Also got my appointment for my MRI, which is on the 31st. Asked the BCN why they were doing MRI as opposed to a bone scan which is what most people seem to have on here. Apparently they have a consultant radioloigist who is trying to pioneer the use of full body MRI instead of bone scans + to be fair I've had so many contrasts now I must be glowing so I'm glad not to be having any more radioactive dyes shot into me at the moment, lmao.
Sib, glad to hear the 2nd chemo didn't knock you as sideways as the first. Hope it gets easier with each one.
Love to all my fellow flight crew. Please fly with Breastcancercare.org.uk again and have a safe and pleasant onward journey
Michele (Mygel2) Is it tomorrow that you're getting the results of your CT scan? xx
Apologies for only getting to the forum now. The last two days have been very busy.
Sue, there's nothing I can add to what all you other wonderful ladies here have said, but I just wanted to post here to send you love.
Yes Sue, thank goodness for this forum. I'm not sure how I would have coped without it! Thank you everybody! xxx
Glad you're feeling more upbeat today Sue xx
Yes it definately is Sib! How are you after your 2nd dose of chemo? Hope you're feeling ok xx
Oh Sue, I am so sorry. I've been so caught up in my own problems that I forgot you were having your results this week. What a kick in the gut. I've just had a good cry on your behalf. Hugs.
I am one of the ones whose diagnosis did not change following my op and I know there are many others on here who have experienced the same as me :)xxxx
Ha ha and me I am hardly ever on the main part of my fb but I am part of a group of ladies who have had bc and we decided to set up our own little group. I love that one but to be honest this forum is what does it for me 🙂 🙂 I cant imagine ever not being on here xx
Hi Sue - I really feel for you and the game changing plan you now face but it's clear you are going to attack it head on.
I'm yet to have my surgery (20th September) and my consultant has said 'she will eat her hat if I end up needing chemotherapy'. Whilst that is, of course, some comfort and has certainly satisfied my OH, I have read too many threads here to assume this will be definitely be the case - so many ladies report changes in their treatment plan after their initial surgery.
So, my plan is to take it one step at a time as the lovely CCs keep reminding us all, be positive about the outcome but realistic to the facts that there is a slim possibility things may change after my initial surgery. That's keeping me relatively sane at the moment (along with ice cold, Sauvignon Blanc in copious quantities of course!!).
None of us like the uncertainly or the unpredictability of this monster that lurks within us - the rug seems to be constantly sliding from under our feet - it can slide all it likes but mine's a magic carpet and I'm sticking to it for the ride!!!
PS - for those of you that think I have already been hitting the SB, I haven't - I'm busying myself on day 2 of my First Aid at Work course - what a fantastic distraction I have to say!!
Onwards and upwards my seriously strong friends. Catch you all later - Anita x
Oh that is great that you are feeling better, we like good tears they are wonderful, we will always be beside you and will help and support you through this mate.
I have just got home from work and the first thing I do whenever I get home is log on to here before I do anything else, unless I have to go out and bowl, even this far down the line I still get comfort from the wonderful ladies on here who are further on their journey.
Sending you a hug
I agree, we told immediate family and one close friend after the initial appointment and then when we had confirmation a couple of weeks later my OH sent a text to a couple of his colleagues who are also my bosses at work and I put the post on Facebook and asked my close work friend to tell the few people at work who don't have Facebook. It is weird who knows what to say and who doesn't. My friend is a very down to earth non sentimental person and she kept me sane during the first two weeks because we have the same black humour and just cariried on as normal and she was happy to talk about it when I needed to but happy to be as rude to me as normal when I didn't. I have told people that I am happy to talk about it and not to avoid me for fear of knowing the right thing to say. Some people find it much harder than others, the person in the office who I thought would be the most open has been the least and probably other people have surprised me the other way too.
I think a lot of us feel that way, it is a good way to move forward and keep the positivity going. I put a very kick ass post on Facebook after my diagnosis and used it as a way of spreading the word on the importance of self checking.
We are here for you whenever you need to rant and rave, you can get through this 💪
So sorry Sue W I hope that you got some rest last night. (((Hugs)))
This is my fear too, I was told the same as you but I know that my tumour is 3cm. I get my results next Wednesday.
The battles have changed but this is still a fight that you can win.
So sorry to hear this and sending a virtual hug. This is bound to knock you for six! I do hope you find the resilience you will need to cope with the further treatment necessary to get shot of it and that in the future you can look back on this time and say "I got through it all, despite everything" x
Hi Sue, I can only echo what everyone has said, it's utter crap but you will regroup once you've gotten over the shock and face it head on! I do wish they wouldn't go on about nodes being clear prior to actually testing them as it just sets us up for a fall when we've been told one thing then find out it's the other!
So many lovely ladies here who have been in the same situation as you and are testiment to how quickly we get out our heads around a change in news and dig deep enough to deal with it!! Xx Xx
Sue, I'm so sorry to hear you not great news. But remember, you've been through all of this so far with strength, bravery and a great sense of humour and you will get through this next lot of treatment the same way. You've got this!
Massive love and hugs xxxx
Good morning sue,
Just wanted to give you a morning hug, hope you managed some sleep last night and feel a little better after that bloody train, i had abit of a rough night myself last night, im all good, but im now worrying about my hubby after some not good results.
I half expected to find you as an early bird having coffee and bananas with me ha ha.