I - not on purpose -was given a different brand of Anastrozole by the pharmacy. Contacted GP and he said give them a try - great - hot flushes are a lot less severe, the awful pains and long bone ache I was getting has stopped. Yes my ankles and wrists ache but it is all far more tolerable.
Why not try a different brand to see.
I have arhtrtis so am already on gabapentin, have been for about 3 years so I know anything else I suffered was the Anasrtozole
Spoke to my BCN about the difference today, she said make sure I note down and ask for the brand that was OK for me - people do respond differently to them. the aching wrists and ankles is a common effect of it not what was happening before.
hope the fingers in ears work, so sorry to hear about your greedy ex, i like the idea you will be free of him,lol my husband will retire in July this year,married 35 years, could be divorce or murder if he doesn't get a part time job, been used to him being away since we met, only joking love him really.
my gp put me on a drug called gabapentin for hot flushes, then i went to the arthritis doctor and he increased the dose for my hip pain, my gp has increased it again for the joint pain, i'm not coping at night at all waking up lots. I think the gabapentin is a similar drug hope it works for you.
I am trying not to start tramadol if I can help it.
everything will come right in the end for you. They say everything happens for a reason. Hope you feel better soon.
speak to you soon
Had to laugh. I'm defo trying the fingers in ears startegy! Love it.
Went to GP and he referred me for a liver function blood test. Said it would take a week for results but it takes a week to get the test done so it will be 2 weeks. Hate the waiting.... I think this is one of the worst bits of treatments. He prescribed amitryptiline as he said the pain may be nueropathy in my abdomen from the chemo.Thus, instead of waking up at 4, 5 or 6qam with mind doing overtime at least I am sleeping to about 7am.
Went to a solicitor yesterday and was told husband will get half of everything. I took early retirement due to being ill and he will get about a third of my income. Hoping my liver test is OK because I think I need to get a job. Will need to maintain my sense of humour. At least I will be free of him.
Thanks for cheering me up!
thanks for the reply, so sorry to hear your ex is being a pain, get on to your solicitor or the police, you really don't need anymore stress, so sorry for my rant, just had bother with my eldest daughter but I had decided nothing would get me stressed so I let it go over my head. Life is to short to let the buggers get you down. I was thinking of a tv programme the other day where the girl puts her fingers in her ears and sings la la la la to blank out the noise, i now do this in my head it works a treat.
about the the letrozole, had a few tummy pains but i don't know if it is the letrozole. Joints still agony but trying to go on gentle walks.
i am not sleeping very how about you, hence the time I'm writing this.
Hope you feel better soon
good night gentle hugs
Sorry for delay in replying. Thank you so much for your kind thoughts.
The only way to find out if Letrozole is causing the side effects is to come off it but I will try to persevere. It is hr abdominal pain which also gets me down because I don't know what it is and if it anything cancer related. Seeing GP on Fri to discuss...
On top of this my ex is being a pain (verbal abuse) - I am limiting contact as much as possible as I know stress is not good. I am going on a mindfulness day soon so looking forward to that as it always helps.
Hope you are OK
so sorry your having such an awful time, thinking of you. please feel free to message me at any time.
i hope things get better soon . gentle hugs hun
thanks for letting me know about the cheaper cream I`ll see if I can find any.Pleased it is helping it seems to work for me.My mouth still sore but I have different anti sickness tabs and they are working.hopeing to get away next weekend to see our son and baby grandaughter as it should be my good time before 2nd chemo on 4th feb.hugs Sandra
Moan away - please don't apologise. Share it amongst friends! I am in pain most days and keep it bottled in mostly. It is good to have somewhere to let it out.
Currently I am having a bout of diverticular pain - never had it until 5th chemo. Had scans etc - my main worry though that the cancer had spread to liver/bones etc so relieved to be told it wasn't this. It is the worry which affects me most. I have started tai chi and have acupuncture (on NHS thank goodness) to help with hip pain but still worry re any aches and pains. When it was mentioned that I might need Letrozole for 10 yrs it made my heart sink but I am taking it year by year - 2 down 3 to go. I am going through a divorce currently which is alos making me feel vulnerable because I don't know if I have to seel the house, how much of my pension I can keep etc.
OK - moan over - thanks for reading! Hope your bones are healing well and visit to fracture clinic is helpful.
Take care X
sorry for all the moaning, i feel a bit better, i can't put any weight on my wrists yet but i go back to the fracture clinic early February,
I am going to persevere with the side effects of the letrozole until September when i have my annual mammogram. The lymphedema nurse is putting a request on my file to see my consultant rather than a registrar or junior doctor to discuss my options.
I think the diagnosis of osteoarthritis on top of everything else was the last straw.
How are you hope you are keeping well.
thanks for the reply, while i was waiting for gel to come i went to my local co op pharmacy, the gel should have been £9.78 but it was on offer for £4.87, i'm not sure if this is all co op pharmacies just thought i would let you know. I have tried the gel and i have had some relief so onward and upwards i hope. Can i just say thank you again. Hope you are getting on alright how is your treatment going well i hope.
Hugs janet xxx
Thanks for the update. Sorry you are in pain - my mother broke both her wrists and it was painful band made life so difficult for months.Hope you can get your hip sorted before too long.
I find a hot bath some mornings helps but not sure if this would suit everyone. Some ladies believe that the brand of letrozole makes a difference to the severity of side effects - trouble is it varies from person to person so you would need to monitor it over many months.I have heard that Femara is better in terms of SE. Not sure I have noticed re brands and haven't had femara myself - it is more expensive so less commonly prescribed.
janet I take the pain killers I`m prescribed use the cream and I`ve found that walking around our village with a stick daily helps.If your still in bad pain go back to your gp and see what he can give you to help there are many different pain killers to try a different one may make your life better.Once I`ve got my bc sorted then my orthopedic consultant will do my first hip replacement.hope that helps hugs Sandra
thank you for taking the time to reply.
how do you cope at all with the osteoarthritis, i am constantly in pain and trying not to moan, but sometimes its doable other times its excruciating.
i am going on amazon to look for the gel you suggested.
hope you are ok
hugs janet xxx
jcon I`ve got the same as you in both hips was going to have new lt hip when bc was found on mammergram so I`ve put it on hold until bc treatment has finished.walking stick has helped and I take ibrufen and co codamol for pain also found a cream on amazon that I use called pernaton gel hope that helps hugs Sandra
Got the results of my Mri scan apparently i now have osteoarthritis, on top of everything else . Apparently its is not bad enough to operate as yet,
he advised that i take painkillers ie codeine and paracetamol, and if the hip gives way as it did in November and i broke both my wrists, i could maybe start using a walking stick.
well that's the conclusion just put up with the pain. I asked could it be to do with the letrozole but he just said to speak to the bcn or consultant. So not really of any help. Sorry its not very helpful.
on Friday i see the lymphoadema nurse i will ask her about the constant joint pain and let you know what advice she gives me.
hope you feel better soon
Hugs janet xxx
Janet - would you mind sharing the MRI results with us? I know these can take weeks to come through - I do hope they are OK.
I can realy identify with many of your experiences and feelings. I have done such a good job of re-assuring family that they think it is all done and dusted. My ex thinks I am cured. I wish we could say this.
I have hip pain and use acupuncture to control it. Lucklily I have this via the NHS. I was diagnosed with diverticular disease after chemo. I had mainly right side pain so had ultra sound and CT scans about a year ago (they checked my liver etc) - had no symtoms prior to chemo though I know it is a condition present for years with no symptoms. Cancer made me think hooray - diverticular disease - better than spread. I have been in pain for over 3 weeks this time - on right side. My GP prescribed anti-spasmodics and said to return in a month if still in pain. Like some of you say I am obviously worried. It is the fear of spread that I find the worst. This is casts a dark shadow over me. I do a good job of beng as positive as possible but I find I am waking up every morning at about 5 and am exhausted. I am also on Letrozole so it is hard to know what are side effects and what needs more investigation. The physical and emotional are so closely related but it is the emotional side which really gets to me.
All the best all x
Well said just bee
same thing here for me with the letrozole, i am so confused, i am in agony with my hip and as you have said we don't know whether it is the letrozole, secondaries or arthritis, which i have just had a mri scan for. Oh well just try and keep calm you have got this far, thinking of you. Hope you feel better, if that's the word.lol.
hugs janet x
Hi jules, i know exactly how your feeling. My friend is a godsend, she listens and gives me an hug when i need it.
in 2013 i was diagnosed with a small grade 3 invasive cancer, i had a lumpectomy and thought great, get on with radiotherapy done and dusted. No not that easy, had to have re excision for dcis on the edge of the clear margin i had from the invasive cancer, i went from being really positive to a gibbering wreck.
my husband and daughter were over the moòn that the cancer was gone? Tried to explain to them how low i felt but to no avail.
Now at 4 in the morning, when i am still awake with pain in my joints and worrying if the pain is the side effects of letrozole or secondaries in my bones, juggling with should i go to my gp or ring breast care nurse. My point is that the ladies on this site have been so helpful, do not know what i would have done without them, just try and stay positive it does get a little easier with time.
Hi jules,I can sympathize with you I too had a lumpectomy in july then radiotherapy in October.won't go into every detail but I have had an horrendous time the past 4months.infection after infection,never been away from the doctors.your right peaple think because you have finished your chemo and radiotherapy life goes on like it did before.every individual is different,I have been at rock bottom at times then I pinch myself and say come on get a grip your alive,I know I have come a long way I have good days and bad days,who doesn't.I started my hormone letrozole 4weeks ago,I know there are side affects but each morning I take this little tablet I just think of the advantages of taking it.never feel alone jules we are all in the same boat.wishing you all the best for the future x
Wow what a year you have had and no wonder you are feeling like you are, as everyone else is saying. Also, you still have another hurdle to face in the radiotherapy. Both the book and article mentioned helped me alot when I thought I was being stupid or pathetic after my treatment...I realised I was just behaving normally for what I had been through.
My family found it hard to understand and still do.
So, in answer to your question-there is nothing wrong with you...feeling sad and low is as normal as everything else...we are all so different and as has been said we can only help each other on our different journeys.
Love and hugs
Welcome to the BCC discussion forums, you've found the right place for some good, honest support from the many informed users of this site.
It's quite natural to feel as you do, but this time of year I am sure makes things worse. I am sure your fellow forum users will be along soon to support you, they're a great bunch of ladies. Unfortunately today our helpline is closed but re opens again tomorrow morning at 9am if you need to talk to someone in confidence and away from family and friends. Do give them a call they're here to help. 0808 800 6000
Jules - I feel just the same, just spent the last 15mins crying my eyes out and i have no idea why. Ive only had a lumpectomy but I think its the tamoxifen with me as now going through the menopause again but its worse than the first time im sure. I feel sick, every bone in my body aches, i have no energy. I feel worse now than the first week after surgery. I go back to the hospital on Monday and will have to speak to someone cause i cant function like this. I start radiotherapy in a few weeks time. I should be so lucky i was caught early and that it is gone but I dont at the moment
Hi jules, I just read an article on this today, accidently down loaded it..really good.
Its by peter harvey, , called after the treatment on www.cancercounselling.org.uk
Im not as far along as, but understand a little of how you feel. Its your experience that counts, they havent gone through it, they're your support crew. Some days are so tough for no obvious reason. I dont think anything is wrong with you. Youve been through the wringer no wonder you've run out of steam
Xxx much love, be kind to yourself you've earned it.
Hi Jules, I think those who haven't had this illness think it's a purely physical thing so once you've been treated you 'get better'. But for me that hasn't been how it works, and the psychological effects stay around, getting easier over time as you regain confidence. And then something happens (in my case my first post-op mammogram is due in 2 weeks) and off we go on the rollercoaster again!
I found the book 'Emotional Support though Breast Cancer' by Cordelia Galgut very useful to read, and gave it to my partner who was also struggling with why I wasn't 'getting back to normal' once my treatment ended. He found it gave him a better understanding and we've since passed it on to a member of his family going through the same thing. So your daughter and husband might gain from reading it too. I think those closest too us have been so scared by what's happened that they want 'normality' to return but my view is you end up at a new normal but not at the place you were before you are diagnosed.
So I think what you're feeing is totally understandable and things will settle down over time but it's early days and you shouldn't feel ashamed for having all these feelings, it's just what happens. Gx
You are not alone and you have the right to feel depressed, you have gone through so much and still a bit more to go.
Hugs to you on the start of a new year.