Feeling emotional

[bonariensis]

Threads are the subjects that come up in a list when you click on 'Living with secondary breast cancer'. At the moment the bone mets thread is 2 below 'Feeling emotional' on the list but the order changes all the time depending on which threads have had the most recent posts. This is the web address for 'Bone mets'
https://forum.breastcancercare.org.uk/t5/Living-with-secondary-breast/Bone-mets-please-join-in/m-p/4...

Bon x

[LORDBYRON57]

Hi Bon.
Thank you for advice. Please tell me what is a ‘thread’.

[Juma]

Hi LordBryron, sorry you had a dismissive GP, as Bon said it is unfortunately quite common, I too have had experience of this. I think feeling isolated and depressed at times is normal, how can it not be? To deal with them I think coming onto this forum helped me as nobody else can really grasp how desolating this experience can be - I've found even other BC patients who are not secondary recoil in horror. Playing with my kids also makes me feel better - and worse at the same time - I spent yesterday afternoon glueing glitter to pine cones and just about everything else in my kitchen! J x

[Kate21]

Hi Lord Byron, 

I have little to add to what Bon has already said, other than I too can appreciate your frustration of continually saying you know something is wrong and being told nothing is, only to find years down the line there definitely was! I have been on my treatment now for just over two years and things have settled down, hopefully they will for you very soon. 

Take care Kxx

[bonariensis]

Hallo LordByron

I'm glad you have found this forum, it's a good place to be when you are where we have all found ourselves.

Sadly it appears to be a not uncommon experience among members of this forum that doctors dismiss symptoms for long periods of time as not possibly being anything to do with BC reccurence.

What treatments are you on? The thread 'Bone mets - please join in' is a good one to look at. A lot of us seem to have got them, but there are other threads covering just about every kind of treatment and problem. Members' experiences can often yield more and better advice and a different approach from that which you get at hospital.

Hope your pain is not too bad right now.

Hugs Bon xx

[LORDBYRON57]

I was dx in 2010. Later found out i carried the BRCA gene. Had a 2nd mastectomy and ovaries removed and double reconstruction in 2013. Although I had lymph nodes affected following chemo and radiotherapy you are just discharged which I still can’t get my head around. Anyway I started a new job in August 2015. I started getting serious back pain. I thought it was down to sitting at a computer for long hours. The pain got much worse. I went to my GP on numerous occasions who insisted it was not the C and kept sending me for physio. I endured 5 months of worsening pain and was only sent for a scan after I lost my temper with the 4th physio. Within 3days I was called to see the GP. The scan revealed BMs in the vertebrae in my neck the middle of my back my lumber spine and a couple of lymph nodes. This year I had to have a hip replacement, where they managed to fracture my femur.
Was I mad. To be honest I was in too much shock but my kids were furious.
I’m glad I’ve found this forum because it doesn’t matter who you speak to, GPs oncologists nurses until you endure this you cannot possibly understand the emotional toll this illness takes on you and your family.
I see my oncologist every 4 months and am told everything is stable. I’m having some radiotherapy next week to my pelvis. I do have quite a lot of pain for which I take cocodamol and sometimes oramorpth. When I’m not in pain I think positive when I am I feel isolated and depressed. I would love to know how you all deal with these times. Thanks