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Feeling low - acid reflux & now got to have tests

26 REPLIES 26
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Re: Feeling low - acid reflux & now got to have tests

Hi Elinda it might be like Stella says and you have gall stones. I have gall stones, they told me about them when I went for a test for something else, cant remember what test though. This was before I was diagnosed with BC, I went to see a consultant but he didn't want to take my gall bladder out unless I had a lot of pain. Then I was diagnosed with BC and everything else took a back seat. I hope they sort things out for you on Tuesday, I keep saying I am going to have to go back to the docs again with this acid.It is awful and it does burn so much, when it comes on I am sucking mints drinking water, anything to get rid of the taste of the acid at the back of my throat.
Anyway hope you have a better day tomorrow, will soon be Tuesday 🙂
Take care
Heather xx

Re: Feeling low - acid reflux & now got to have tests

Hi Ladies,
Stella, l was interested in what you have written, as l started having acid reflux, probably about last Novemember, l was just buying over the counter remedies at first, but it got no better, so the doctor gave me Omeprazole 20mg, and said if it didn't work he would send me for some tests. Then in January, l was called back after having a mammogram, and was diagnosed with bc in February!
I am still taking Omeprazole, l don't feel sick anymore, but l have a burning taste in my mouth, she said l can go for more tests when things settle down with bc, having a mx next week!
She was sure it wasn't related! but l have never had acid reflux before.
Does the 40mg a day help with the soreness and acid taste in the mouth? never goes away?
Sandra xxx

Re: Feeling low - acid reflux & now got to have tests

Thanks Heather and Stella

Had a horrendous day yesterday and ended up being sick but feeling a bit better today. My surgeon says to stay on the omeprazole and domperidone prior to the gastroscopy on Tues. I'm a bit worried about it though as I know lots of depts say to stop as it can heal any ulcers. He seems fairly certain its a hiatus hernia, not sure why. He did seem that my being 46 was getting to the age when these things happen and he didn't say anything but i am also 2 stone overweight.

The acid has caused two spots of decay on the side of my teeth within the space of 3 weeks. Luckily I spotted both straight away and my dentist has filled. Seems odd but makes logical sense I suppose.

Elinda x

Re: Feeling low - acid reflux & now got to have tests

Hi Elinda, sorry to hear about your acid reflux, what a nightmare on top of everything else!!! My guess is that you have gall stones. I learnt that gall bladder stones and problems are associated with breast cancer, apparently they tend to go hand in hand, if only i'd known this 18 months ago. I had some gall-stones removed via key hole surgery in Feb 09, discovered my breast cancer end of June 09. My advice to any woman who has heart burn, acid reflux etc.. is to go and have a mamogram or US just to rule out breast cancer.
Hope all pans out well for you.
Big hugs
Stella

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Re: Feeling low - acid reflux & now got to have tests

Hi Elinda, I cant remember if I had to stop the lanzoprazle, why don't you ring the hospital department were your going and ask them. I cant miss one of my lanzoprazles or I am awful, I had a bout were I kept forgetting to take them in a morning, and my friend from Weston Super Mare use to text me every morning to remind me lol
Well I had another night up on Monday night, spent all night propped up on the couch, but last night I slept till 4 30am, that is good for me though I always wake early. So I have my fingers crossed I get to bed tonight, hope you are feeling better elinda.
Well I hope all of you are feeling ok, and not to much acid.
Take care,
Heather

Re: Feeling low - acid reflux & now got to have tests

I was dx in June 2008, I had 6 rounds of taxotere, then a mx, followed by 5 weeks of radiotherapy and finished a year of herceptin in July 2009.

I developed a nasty cough around Mar/April 09 which they thought was related to the herceptin. But, the cough continued and got worse and was especially worse at night. Eventually in Oct last year I was sent for a CT scan of my lungs, thank goodness nothing was found except some slight damage caused by rads.

I was given treatment for reflux, 2 different types of tablets each day and after a couple of weeks the cough had almost gone. I've been on them since until about a week ago when I thought I would give it a try to stop them.

The reflux has come back though, although I'm not coughing like before I get the awful acid saliva and a sore throat from it so I've put myself back on the tablets - its a small price to pay to feel more comfortable.

Good luck with it everyone, it is horrible.

Re: Feeling low - acid reflux & now got to have tests

Question about gastroscopy - those who have had one, did you have stop your omeprazole or lanzoprazole beforehand?
I've read that some hospitals ask you to stop for one to two weeks before.
My GP suggested I stopped and just try domperidone but have tried today and been unwell all day, and have been sick.
Elinda x

Re: Feeling low - acid reflux & now got to have tests

Probably one of those things where we'll never know what's caused it. I know that I do have to lose more weight, about 2 stone in fact. I've read that can makes things worse.

The domperidone at the weekend made me feel so much better. Speaking to my GP today to see if she thinks its okay to continue until I have the endoscopy.

Val, I love grapefruits but haven't had one for about a year now. Don't think I'll try. Love pineapple too and have been holding off but perhaps might give that a try.

Heather - hope you're feeling better today.

Elinda

Re: Feeling low - acid reflux & now got to have tests

I have a non treatment related hiatus hernia and am on 20mg omeprazole a day.I have been on this for about 5 years now and eat healthily but havent cut anythıng out at all.I have found that I cannot eat grapefruit or drink the juice but pineapple is fine.I sometimes find that wıne aggravates it too.If I do have a bit of breakthrough acid I usually find that a couple of Rennies settles it but ıf I forget the omeprazole it ıs dreadful.I had domperıdone for chemo induced nausea and ıt was great.
Good Luck
Valx

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Re: Feeling low - acid reflux & now got to have tests

Hi elinda I am on arimidex and Herceptin, I did have reflux before, but it has been worse since I had the chemo. I had a night on the couch last night, was a bad night. But it was my own fault, I went to my daughters for Sunday lunch and had to much to eat. We had lunch around 2 0 clock and I was still having reflux at bedtime. I have to stay on the couch because I have to be propped up, and if I go to bed I slide down lol I think the chemo must do something to our insides because look how sick it makes us. And also what it does our taste, I hated that, it was like I was pregnant, I could only taste food I craved for lol and being pregnant would be a miracle.

Hope your reflux is being good this weekend, and everyone else's.

Heather

Re: Feeling low - acid reflux & now got to have tests

Thanks Heather. The domperidone is definitely making me feel better so I'll just let my doctor know that's what I'm doing. Do you take tamoxifen as well?

My Consultant didn't think there was a link between this and the chemo. It is strange though because I'd never even had indigestion before and then this all started one week after chemo. I see that others have experienced the same. I wonder why then?

Hope everyone is having an acid-free weekend!!
Elinda x

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Re: Feeling low - acid reflux & now got to have tests

Hi elinda, I have to take 8 domperidone a day, if I don't I feel sick all day. What did happen was I found I couldn't have a drink of tea or coffee in the afternoon or I felt really sick. So I started to have a cup of coffee with coffee mate and that was much better. But then I started having bad dreams, they were waking me up at all hours and I couldn't get back to sleep. So I changed to decaf coffee and I have been fine since, I think it is all just trial and error, and the error makes you feel awful.Hope you are feeling better today, it is so miserable when you feel sick all the time.

Take Care
Heather

Re: Feeling low - acid reflux & now got to have tests

Thanks for the advice everyone. Interesting about the decaf tea and coffee - I was wondering if it was the caffeine. I also drink green tea and white tea although not much and was wondering if that was okay.

I haven't heard of using slippery elm tablets and once I've had the endoscopy I'll look in that.
In the meantime I think I may phone my GP to see if I can increase my dose of omeprazole.

Yesterday feeling desperate I took some domperidone and it worked a treat. First time in 5 weeks that I've felt a bit normal for a few hours. NOt sure if it's okay to mix. Trouble is I've tried ringing the pharmacy before and as soon as they hear the word tamoxifen they say my history is complicated and won't give advice.

Elinda x

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Re: Feeling low - acid reflux & now got to have tests

Hi Lizcat, Thanks I am going to get some and give them a try, I will try anything to get rid of it. I am at my daughters today for dinner, she will be giving me a big dinner and desert (I love desert lol ) I don't mind having a night up if I deserve it lol Hope everyone is managing to keep the acid at bay 🙂

Heather

Re: Feeling low - acid reflux & now got to have tests

Heather,

The slippery elm tablets are supposed to line the gullet (I think that's the idea anyway...) and calm acid. You are supposed to have them every day but I just chew one or two when I need them - usually at night and I sometimes have to prop myself up too.

I think the tablets taste like cardboard or sawdust - or at least how I imagine them to taste!! I get Potters brand and they're about £8 for 90.

Hope they work!

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Re: Feeling low - acid reflux & now got to have tests

Hi everyone,
I am also suffering with reflux so I know how awful it is. I spent last night propped up on the couch, because when I have it and I lie down all my food comes up, and the acid burns the back of my throat and I end up choking. I did have mine though before I had cancer, and I had an endoscopy and was diagnosed with Hiatus Hernia, I also have got gall stones. It doesn't seem to make any difference what I eat. I can have a curry and be fine, last night I had jacket potato and veg with a piece of poached fish and I was up all-night.I am on 40mg of Lanzoprazole a day, but I think I am going to see my GP next week and see if there is anything else to try. I have not tried cutting out starch, that maybe a thought. I have tried to cut out fried food,I do have it occasionally, sometimes it gives me reflux, sometimes I'm ok, its just hit and miss. I will go and look for those slippery elm tablets and give them go. I have tried peppermint tea, all the remedy's you can buy over the counter but nothing stops it, I just have to spend the night sitting up. Oh I am a poor old thing lol sometimes I get so fed up with myself I could scream lol but I am so grateful I am still here to have a good moan.
Anyway good luck, hope you all have a acid free night 🙂

Heather

Re: Feeling low - acid reflux & now got to have tests

Hi,

Firstly, hope the tests go smoothly.

Secondly, I get reflux and heartburn and take slippery elm tablets from the high st herbalist and just have one when I need it. Certain foods set me off mildly and some really badly that I end up nearly choking and being sick. All sorts from fatty food to 'healthy' stuff like grapefruit and pineapple (absolute murder), salad things - bit hit and miss. Never had it before I had chemo and the bisphosphonate I'm having for my bones - another added joy of this disease !

The chemo may have aggravated something in you that makes you more susceptible to reflux and I was always told the chemo takes months and months to actually get out of your system even once you've finished active treatment - 6 months to a year - so it could still be causing the symptoms.

Good luck, Liz

Re: Feeling low - acid reflux & now got to have tests

P.s have you tried buying decaf tea and coffee. I have and it's fine. You have to cut out all caffine which is in so much stuff these days.....soft drinks ect.

Fiona xxx

Re: Feeling low - acid reflux & now got to have tests

Hi Elinda,

I was on 20mg to start with...to see if that helped, the onc said he didn't feel it was radiotherapy related, he told me to go to the GP if it didn't settle down. Meanwhile I was due at breast surgeon for annual check and he asked me about the symptoms I had reported. He told me to go up to 40mg and he would order up an endoscope. It was the endoscope dept that told me about the diet restrictions. Now that 3 weeks have passed I am going to phone breast surgeon or visit GP to confirm whether I am to stay on the 40mg. I think I probably will have to if it's keeping things under control.

Fiona xxx

Re: Feeling low - acid reflux & now got to have tests

Thanks so much Fiona for your post. I've cut out coffee, chocolate and fried food for the last 2 weeks and only have one or two cups of tea at very most. You're on a higher dose of omeprazole than me as I'm only on 20mg. Can I ask did your GP put you on that or was it your consultant? I might see if I can get mine increased.
Elinda x

Re: Feeling low - acid reflux & now got to have tests

Hi Elinda,

I had chemo, rads and some herceptin finishing in Nov 09. I started with pain in my gullet which felt like I had something stuck. I also had pain between my shoulder blades. I was sent for an endoscope 3 weeks ago and was diagnosed with a hiatus hernia.I am on 40mg of omeprazole and I have been told to cut out tea, coffee, cholcolate and fried food from my diet. 3 weeks on and I'm starting to feel much better, symptoms have nearly all gone. I was worried that it might have been something else but whilst the endoscope isn't very pleasant it is all over in a few minutes and they were able to tell me there and then what was wrong with me so it put my mind at rest. I hope all goes well with yours.

Best Wishes
Fiona xxx

Re: Feeling low - acid reflux & now got to have tests

thanks Debs, I'm going to give that a go. I was thinking I didn't eat much wheat as we usually have rice in the evening but then I realised I do during the day with breakfast cereal or toast. I love my carbs so this won't be easy...
Elinda x

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Re: Feeling low - acid reflux & now got to have tests

Hi Elinda,

If you feel eliminating all starch is too much, try just removing wheat from your diet. I realise that is quite a major change, but you can still have rice, potatoes as well as other starchy fruits and vegetables. Obviously, as with any dietary change, it takes a little time to become effective, but I find it completely effective. If I over-indulge, it comes back, so I try to keep it to just an occasional treat when I'm out.

Debs x

Re: Feeling low - acid reflux & now got to have tests

Thanks Finty and Msmolly

Logically I think it is most likely a hiatus hernia and it's trying to keep that part of my mind that keeps thinking 'oh no it could be cancer' at bay. I know it's not a big procedure and my lovely consultant has even said he'll do it himself to reassure me.

I think the issue is I feel so flawed as a human being. I had a hysterectomy and bowel resection in 2007 for endometriosis, I've had problems all the way through my BC treatment and also having physio for a neck and back problem.

There is possibly an element of self pity in this although it's mainly a loss of trust in my own body and feeling a burden on the NHS, and on my husband (although he is 100% supportive). I think the doctors must think - crikey not her again! If you saw me though you'd think I looked really well.

Cutting out starch sounds radical. I've already eliminated so much from my diet. I know losing more weight could help. I may look into the starch thing though.

I've heard little excerpts of Alan Bennet's autobiography which sound interesting and very pertinent and I think I might buy it.
Elinda x

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Re: Feeling low - acid reflux & now got to have tests

I think sometimes we are inclined to think that everything is linked to the cancer. But we are just as likely to get other things wrong with us that are entirely unconnected to cancer.

I remember reading Alan Bennet's autobiography - after he had endured treatment for bowel cancer he was suddenly taken very ill and rushed in for emegency surgery on his colon. It had nothing whatsoever to do with his cancer - it was just another health hiccup.

I hope they can sort out your probs - reflux is nasty. I had endoscopies for stomach probs after I finished treatment because I was at high risk of bowel cancer - the tests were all ok and it turned out to be mild IBS.
Good luck.

Re: Feeling low - acid reflux & now got to have tests

Elinda it does sound like a hiatus hernia, so try not to worry too much. If it is, it is worth investigating controlling symptoms with diet. A good friend of mine has been able to eliminate all symptoms by cutting out starch from her diet - it took quite a bit of getting used to, but is now second nature. Good luck x

Feeling low - acid reflux & now got to have tests

I finished my treatment in December and was really starting to pick up until I had another severe bout of acid reflux. I've had these a few times since my last chemo but each quickly resolved with lanzoprazole and antacids.
This time I've been on lansoprazole for a month and now changed to omeprazole this week. Saw my Consultant yesterday and he doesn't think this is linked to the chemo.
He thinks most likely is a hiatus hernia but he says we must know the case. I've got to have a gastroscopy (I think also called endoscopy).

I can't help feeling anxious. It's always that fearful moment of what will they find. If it is a hiatus hernie then it still needs to be controlled in some way.

We were about to book a holiday, our first since my diagnosis Feb 2009 and now it's all on hold yet again.

Not sure what I'm asking, just feeling worried and low about it.
Elinda x