Good luck for tomorrow I have my third one as will be with you along the way!!
It wont be as bad as you are thinking it will be I am sure
Jill x x x x
Have a good nights sleep. Will be thinking of you tomorrow am sure it won't be as bad as you're imagining, try to relax and drink plenty of water best wishes.
Thank you all so much, going to get an early night as I feel sure I will wake up early.
Minimix pls don't worry your be fine I know it easy to say been there done that and gtg back just think after tomorrow one done 5 left it will soon go drink plenty of water before during after flush it out system tc spk soon laura xx
Tracy, good luck, don't forget to breathe. You may well find that it is all very much easier than you fear - anticipation is often so much worse than reality.
I can also assure you that the time will go so much faster than you think - I started my chemo just before Christmas, and finished three weeks ago - and although it was hard, exhausting and certainly not fun, it was all do-able, and the blocks of three weeks seemed to fly by. From where you're standing, it seems like an eternity, I know, but it really does pass, and you can do it.
xxxx Sophie xxxx
thinking of you hun let us know how you get when you are up to it I am scared and feel anxious too and i dont even know when ill start mine it will just be phone off i go knowning my luck
sending big hugs your way tc
Just to say tomorrow is D-Day and first chemo is looming.
I am scared and feel so anxious but hopefully it will all be unnecessary and I will be fine.
Hope you all enjoyed the fantastic weekend and are looking forward to the big Wedding on Friday!!!!
I will update you all on how things go sometime tomorrow if I can.
Lots and lots of love to all
hiya all,happy easter!!! not sure if im posting on right thread 4 general catch up but its the 1st one i came 2 that u all read and im pants with pc,s.how u all doin? tracey,hope u have suitably chilled out this sunny wkend? ur post about ur talk with ur dad was beautiful.shame on u 4 makin me sob! jokin,where would we b without family?full steam ahead tues my girl.kick butt!! maz,hope u have relaxed this wkend and are ur usual cheerful self.ease off a bit else pending grandson will have a frazzled nan.when does ur treatment start? j,glad ur se,s r bein kind 2 u so far?good 4 u.u made me laugh y.day bout the horrid henry story.glad im not the only one with kids majorly obsessed wit stuff.although ur lil lad has asd,they all have these funny stages.glad 2 read u have been chilling out.another bank hol 2 mo! yay! had a very nice wkend so far.sis up from bristol wit my niece,so lots of chatting,lazy bbq,s and a bit of wine.ok quite a bit of wine! enjoy the rest of the day all.hugs and stuff alex xxxxxxxxxxxxxxx
epi is the E fec... i found the epi quite different to the CMF but i think i tolerated them both pretty well but maybe im looking through my rose tinted spectacles LOL.
Maz that sounds more like the routine.... mine was slightly different in that at my unit cmf is all given in one dose 3 weekly but the majority of units give it over 2 weeks 4 weekly... some times this can be as tablets or injection of cyclophosphamide... i didnt like the cyclophosphamide 😞 but generally speak managed the whole chemo thing pretty well.
Morning Maz & Jill as you know I am on the FEC/TAX 3 of each, I did do 6xCMF and tllerated it quite well not sure of the epi ....is that the E in the FEC??? anyway when I had FEC 1 monday the chemo nurse said that it may bode well that I tolerated the CMF well that I may not have to much horriffic on the FEC, not sure but it suits me to believe it!!!! hope you all have a great day,...I'm OK just beat so it's a shady spot outside and a Verry lazy day for me OH gone out then going to Asda...bless..xxx!!
I think there's also an E-CMF thread knocking around, you might find it useful. Jill, you on that one too? Perhaps you could bump it up for Maz if you are?
you may well regrat that jill lol but thanks i know where to come if i need to know anything lol
good to know yr se arnt too bad im hoping ill be the same but we will have to see
tc maz x
Hi Maz et al
I am on Epi CMF as well am having same as you 4 x epiver 3 weeks o then 4 x cmf over 4 weeks. I have 3rd epi on Tues so nearly half way through!!! Feel free to message me any time if you want any info on how mine went. SE's not too bad for me so far!!!!
Hope all are well and continue to be so through all of this
Love Jill x x x
lu you could be right about E lol i havent got it wrote down he did a diagram lol
E X4 EVERY 3 WEEKS
DAY 1 C.M.F
DAY 8 C.M.F
REST 3 WEEKS
infact you make more sence lol i did say im getting in a right muddle with it (im just going with the flow ) i do know C.M.F is for 2 weeks day 1 and day 8 C.M.F is clase as 1 just given over 2 weeks
so this is going to be a very long streach
4 lots of E with 3 weeks inbetween
then C.M.F for 2 weeks then 3 weeks inbetween them thank god i ask for a line to be put in on a good note im told it only take 30 mins each time so not a long day, just pray that my grandson is born before all this as they dont want me going into hosptial unless its for chemo and daughter wants me there with her (midwife dont think he will hold on till 13th may )but if it happens well ill get myself a face mask dont want to miss the birth and my daughter could do with the support
thanks for making me look again im sure you are right
i had e-cmf too.... your sounds very unusual having it together... mine was epi every 3 weeks x4, then cmf every 3 weeks x4
i know some have the cmf differently but usually still have epi on its own.... good thing about doing it your way is will be over so much quicker.
glad you got it sorted about the dcis but sorry you have invasive BC but does kinda make the chemo justifiable..... hope it all goes well
Tracy your dad sounds lovely... nearly made me cry too so no wonder you bawled your eyes out... sorry the wigification didnt go too well... i got a nice wig but only wore it a couple of times am much more of a hat or scarf kinda gal.
J hope your feeling perkier but it is normal to have crappy days though so dont beat yourself up
alex hope the rads planning an tattoos goes ok on tues.
best of luck you ladies xxxxx
hi ladys been a seen onc today and chemo will start in about 2/3 weeks time then rads (will know more about rads nearer the time but looking at 6 weeks of them ) now you will have to bear with me on this chemo stuff cos im getting in a right muddle
i will be having E (epirubicin ) and C.M.F (cyclophosphamide,methotrexate and fluorourail)
E + C.M.F 1 WEEK
C.M.F 2 WEEK
then 3 weeks off
E + C.M.F 1 WEEK
C.M.F 2 WEEK ect .. 4 times in all so you could hope you understand that lol (EDIT LOOK AT MY NEXT POST THANKS LU X)
also ask for picc line and thats wot im having too but might not be in time for 1st chemo
also been to dentist today and thank god no work needed
got to make an appointment as soon as i can for wig but with hoildays carnt ring till next week
i ask why chemo if i only had dcis and was told cos i didnt just have dcis tn i had invasive breast cancer too grade 3 (why they didnt say that in first place i dont know ) so thats wot happing in this part of the woods oh forgot to say im having a part boob (prothesis ) yes i lost 4 inc from left breast so having a little added to bring it up maybe now ill be able to find a bra to fit 4inc dont seem much but when it comes to a bra its a right pain seeing right fit nice and left being way to big .
hope you are all doing ok ,j best thing i ever got was a laptop but seeing as you having one to use in bed please get a tray, one of them with a pillow under it save laptop over heating and belive me they do my kids were bad for it should get them all a desk top lol
alex hope you had a good time with yr sis im the baby so my sis been with me everystep of the way but it nice to have her around .
tracy hope it went well with wig lady goto sort mine out after hoils oh wot colour to have? been most so far but blond funny as i got 2 blond kids but i bet ill go dark did say somethink like bright pink and black but dont think OH would be happy about that lol
anyway im off for a shower got a stitch hanging under arm so need to help it fall out if that dont work ill cut it off that why arm hadnt been healing it was pulling all the time
night all tc hugs
Alex & J
Thanks for the messages. I had a bit of a bad morning yesterday as I met with my Counsellor and it was a little hard work and took its toll but then met a member from the forum for a coffee in Blandford and had an absolutely fabulous time, we got on so well and had a great laugh. She put my mind at rest concerning hairloss as she is on FEC3 now and she looked so well it was amazing to see. I realised that a headscarf looks good and nobody really takes any notice so I took comfort from that.
Today seemed to be going fine until I met the wig lady. I hated them all.............it was just not me at all (I know its not me really its a WIG but I just did not like them!). Not sure what I am gonna do now really, OH told me to wait until my hair is gone and see how I feel as I am really more of a scarf lady anyway. Going to order a couple of nice dressy type scarfs with the long ties for when I go out of the house and make a decision a bit later on when, if I am honest, perhaps it will feel more real.
I am going to enjoy the weekend got plans, bbq's and other stuff so think I might really let my hair down on Saturday night, whilst I still have some that is, and have a good drink and forget myself and my problems for a few hours. It is at brother and sister in laws house so they know me and have seen me drunk!!!
J - glad to hear you are not doing too badly with side effects and hope that the bad and sad days you have been having are just a little blip as you have been so positive for so long. But that said I do know it just comes across you and you just have to go with it and let it all out. I have them frequently and I feel sure another one is going to come over me on Tuesday on the way to the hospital. I had one last night actually when I spoke to my dad who said to me "you will always be my little girl and if I could have this for you then I would you have been through enough already".......I had to end the conversation quick as I just cried my eyes out. When he said about me having been through enough he was referring to my spine condition and the paralysis that I had down my right side at two years old due to the spine and the very big operation that my parents had to agree to knowing it could go either way......paralysis from neck down or walking. Luckily it went well and after 18 weeks in hospital I was allowed home to learn to walk again. Bless him, always a Dad I guess.
Anyway, enough already I am crying again just thinking about it. Doom and gloom is not allowed as I will get through this one way or another so will you all.
Have a good sleep girlies and speak soon.
Maz, if you come on where have you been I have been worried. Hope to catch up with you soon.
Lots of love & hugs to you all
I will!!! I'm going to bed goodnight!!! XXXXX J
rest up hun,stay in bed!kids will come 2 u if they want.big hugs xxxxxxxxx
thanks Alex, I am ok , there have been some bad & sad days lately on this whirlwind journey and NO DOUBT there will be more but apart from absolutely shattered i'm doing ok today , My big bro just text me " you can't keep a good man down" ( or woman,) what acouple of nice brothers ..... won't mention the 3rd one black sheep come to mind??? No bless he's ok too XXXXXXXX J
hi all,not neglecting u,my baby sis(ok she just turned 40 and im only 20 months older)and my beautiful niece up 4 a few days from bristol.had nice cuple of days.kids went off 2 twinlakes theme park 2 day with sis and dad,i had nice afto with workmates,pub lunch and general garden slob.workin on my tan cos the factor 50 comes out we rads start!love the sun.got planning rad app tues and tattoo jobby.ooeeer!so al systems go mid may me hopes!j and tracy,hope u chose some well hot wigs!!u sound quite upbeat j.may it continue love.tracy,relax this easter wkend,enjoj b4 ur 1st treatment tues,maz,glad u slowed down a bit, i need a lie down after readin what u get up 2.u certainly have been mucked about. hope u get a plan of action sorted so u no where u r.hope both ur special lads r ok and still making u laugh.my eldest just asked if he could have a COUPLE of friends round 2morro to chill in garden and go in hot tub,the fool didnt log off my laptop properly and left his fb account up.think the last count was 17 teens!erm....no way!! that will teach him,no his secrets now.ha ha!bad mum!love alex xxxxxxxxxxxx
Well meet with wig lady went ok discussed styles and colours and she bring a few to choose from next time, I'm meeting her again in 2 weeks, she did offer next thurs( she only comes into the unit on a thursday) OH felt that my WBC be low as that be day 11 and so wasn't worth the risk of a hospital waiting room, so it's the week after a bit of a safer timescale, (my GP said hospital & doctors waiting rooms worst place for picking up germs!!!)how did it go with you Tracy, and I hope you had 'a grand day out' Alex, certainly was a beautiful one!!!! Maz I hope you took it easier today ????? love to all I'm pooped and off to bed, got the telly and a book??? My little bro is buying me a laptop he says he cant't do anything for me but can make it easier, so I don't have to venture downstairs if it all get's too much, he said I can use the net , keep in touch watch tv, DVD's in bed if I have a laptop ...Bless....mind you I feel too tired to sit a desk I'll keep an eye on you all with my mobile, certainly not the best, alittle slow, but keeps me up to date with you all!!!
lots of love Jeanette xxxxxxxxx
Glad you are all well this fine day.
I am just off for blood test before Tuesday and then to meet with the wig lady so will catch up with you all later.
hi girlies/will catch up with u this eve,just leavin to lunch with the ladies! ha!got rid of my lil darlins 4 the day so makin most of it! have lovely afto,sees ya later alex xxxxxxxxxxxxxxx
morning all. glad the bone scan was better than you feared Maz, I got an appt through for mine 4th May, you have made me feel a bit better abot it... just the waiting for results...a pain!! at least kids be back at school by then .. to be fair mine are being great, but they are just kids and shouldn't have this BC hanging over their summer! we are fortunate to live in the countryside and they have spent the last however many nice days outside from morn til night , playing bikes , trampoline etc, they have had all meals outside (their choice) and so the dog and the birds have been cleaning up their mess!! Result!!!!! they stripped off at back door and straight in the shower, down time and bed!! Long may it continue ...I'm hoping for a nice summer so this could be a feature and if it's really nice and the 'pool' comes out well....living the dream! Alex what you up to, how's it going don't want you to quieten down or will be looking for a 'sorry miss, alex couldn't cyber play because......' Ant way feeling wiped out gonna go and have a rest up before my appt with the 'Wig Lady' this aft!???? love to all Jeanette xxxxxx
ok aunty lol
been and had bone scan today wasnt as bad as i thought it would be and beforhand they took my blood for testing (genetics)which was nice of them to do as it would be next week before i could go and have it done so 2 down (result back next wens but they rang tonight ?), while there i had to have a chest xray and 1 of my shoulder (sure hope nothing showed up which made they do that ) tomorrow i see the onc and i have 2 question why chemo and plz can i have some line put in dont care which just i dont think i can keep having needles stuck in my arm every month i really hate needles , i ask again to day why chemo and even the staff couldnt answer it they all said the same dcis is normaly rads and not grade 3 so going to ask tomorrow for a reason why and if there was somthing more to dcis than i have been told we will find out lol . not done anything today but tbh im about to drop i been up since 3 am ( not sleeping to good ) and all my get up and go has got up and went time for bed i think and it aint even 8 oclock.
j i hope you start to feel better soon my little monster has been a darling only today he is finding it hard cos im not to give him cuddles for long and have to keep away from him infact all the kids .
tracy good to hear you had a good night out i sure have forgot wot 1 of them was it been that long you would think i was 90 lol as for my arm its better to day hurts but not crap comming from it already had 1 infaction dont want another so i bath it 2 times a day seems to be working
alex dont get me started on wigs i got 2 to show my son beforehand and they look better on my son in law lol was a laugh when he put it on and we all need a good laugh
well talk tomorrow girls im off to bed
night night xxxxx tc
Hi J and gang
So glad to hear you are ok and coping not too bad with the side effects, you are doing so well girl its a relief to know you are ok.
Going to meet with wig lady tomorrow, looking forward to a good laugh!!! Will let you all know how it goes xxxxxxxxxxx
hey ladies I'm doing ok this morn feelin a little yukky but bearable!!! OH done all household chores, my injection and has now gone to work, good job he's self employed!! so just got to supervise kids, thats a BIG job with the wee man!!! I had those problems with my underarm after last surgery ( the years ago one) it did slowly improve and is now fine, apart from a bit tricky to shave!!!)phew gonna av to go and sort out my monkeys?! XXXXX speak later, got date for bone scan, wed 4th may and the heart echo thing fri 9th may ....so I'm with Maz back in the awaiting results room!!!!!XXXX lets hope they clear for us all coz boy I feel it's about time some results go my way?????? XXXXXXXXXX
Edited to tell Maz to slow down and take it easier!!!! You are going to need all your strength in the coming weeks so make sure You DONT OVERDOO IT, not sure at 48 who is older me or you but I take the mummy role because I know because Ive done it before!!! so listen to your aunty JeanetteXXX
Had a good laugh last night so good to be out and not think about the big "C" just for a couple of hours. That said was tired when I got home but did not sleep very well so yawning like a gooden this morning!!!
Alex, glad to hear your visit to hospital went well and I am soooo pleased grade and size was so much better than first thought, congratulations girl you deserve good news. So glad I did not hear on the news of "old dudes" having heart failure at hospital as woman parades her lumpectomy scar for the world to see!!!! Oh but how funny would that of been!
Maz, good luck for Thursday I will most certainly be thinking of you. Write down anything you think of beforehand as it helps. For some reason your mind goes blank when you get in the room with the doc's, must be something about them I guess!!!! Fingers crossed for you. So sorry your not healing so well, please be careful you don't get an infection, get it looked at sooner rather than later. Do you ever slow down lady or are you going for the record of how much you can do whilst having cancer!!!! You really MUST try to step back a little, you will need your strength for the chemo, its not selfish so don't think that, this is your time and you need to get some rest!
I have got so much pain in my arm and wrinkling of the skin so asked BCN yesterday at the hospital and she said I have got "cording". God it hurts but I have to try to massage the arm and get as deep into the arm as possible in hot water and eventually it should subside. It goes from under the arm right down to the elbow and it feels really odd. Like an elastic band under the skin that gets pulled tight when you use your arm, constantly stretching and stretching causing immense pain.
J - I do hope you are feeling ok darlin, do let us know how you are and if you are coping ok.
Lots of love
gosh just lost last post!j,well done u my love! may all ur se,s be teeny tiny!my dark cloud is well and truely in wheelie bin.hope urr holding up hun? tracy, enjoy ur nite out. hsve one 4 me! boring day at hosp, fab news from onc(well her registrar,grade 2 15mm tumour,much smaller than i was led 2 believe)anyway she said oh my !what a lovely scar! well i was was all 4 parading round the waitin room but mite have given the old dudes a heart attack.i think its fab as well!maz?hope ur ok? look 4 ward 2 the wig stories t and j, CM.great news bout the job.good on u.must stop postin like a teen,but its easy to not have 2 correct my grammar! love 2 all alex xxxxxxx
good for you tracy i dont go till thursday to see my onc and i havent got a clue wot to ask (thank god big sis comming with me )so well done for asking question. tomorrow iam going to have a bone scan which aint going to be fun lying down for an hour isnt going to be nice i carnt even Lie down for 10 mins with out being in pain so god knows how im going to get through an hour . my arm is doing me head in wot i thought was healing fab isnt (nodoubt it cos im doing to much )got 1 spot that keeps weeping migth just have to go to docs about it but keep putting it off this hot weather isnt helping at all and putting wall paper up in daughters house is only adding to it but its got to get done she moves in end of month but we getting there babys room is comming on well and frontroom should be done tomorrow and i have started the bedroom tonight , it nice to have a shell of a house with nothing in it means we get more done faster oh and the grass has been cut lol im off for a bath now cos im about to drop been on my feet since 6 am only stopping for a cuppa , tomorrow is a day off from the house spending it with my sis having dye put in at 1045 then scan 3 hours later why is everything about having needles i hate the dam things one thing im am going to ask about when i see my onc im a big baby lol
take care all
your right Tracey weve had to be far too serious for far too long ..... no option though eh? XXXXX
Well just a quick update before I pop out for an hour or two with some friends this evening.
Saw Oncolgoist today, 6 x FEC and then 4 weeks rads (originally it was 5 chemo and 3 weeks rads) but due to aggressive nature it has changed slightly. Because of Triple Negative I did speak to them about having 3 FEC and 3 TAX as others on the TN thread had spoken about and whilst they did say it is unusual with no node involvement they would look into it due to my fears of secondaries in the first 2-3 years (as many others have had). So will start the chemo next Tuesday at 9.30am, got blood test tomorrow and then just waiting until after the bank holiday for the fun to begin.
Am arranging for the wigmaker to come and visit me later this week (she does home visits free of charge) so choosing a wig will be in the comfort of my own home and that sounds great to me (plus OH can sit and have a good laugh at my expense whilst I try on my individual looks for the season!!!!).
So thats about the strength of it, will try to pop back on later when I get home but otherwise will speak to you all tomorrow.
Oh and J yes it is about time we got back on the cancer what cancer thread............a bit of banter is long overdue!
Lots of love
Hi Alex and Tracey we will be waiting to see how you get on....fellow ranters and stinkers, and I think in a few days, when we've all got treatment plans and our heads round stuff we'll be ready to bump the FUN thread??? wadda you rekkon xxxxxxxxxxx
J i didnt realise you were beside your onc on wed when the prof was calling him... we were sooo close.... what is they say about six degrees of seperation... we were just 2 degrees lol
hoping the chemo has gone ok and your not feeling too poop
hope you other girlies are getting on ok.
On top of the world is a good place to be on a day like today. Enjoy it, and acknowledge that you deserve it. There may be lots of assorted crap some time in the future, but if today's a good day, then TODAY'S A GOOD DAY!!!
Sorry, got to dash, barbecue threatening to cremate all the food.
Thats both us then J we have high expectations of you!!!!!
Yes Alex get in that kitchen its very theraputic baking, I find it really relaxing and I think it has done me the world of good just being me and doing things I would normally do.
you had better!wouldnt expect anything less of u j.mite even bake somathin myself!
yes, both of you post tue and as long as I'm ok I'll jump on the bus and see how you're doing!!! XXXXXXX
thats good 2 hear tracy!long may it continue.for sure 2morro! excuse me 4 a while,tears and tantrums coming from my garden, no not OH 4 a change!(kiddiwinks!)love and stuff.alex.xxxxxxxxx
For some reason and I am not sure what it is I am on top of the world today..........I feel like Tracy today and not the person with BC.
I am not knocking it you understand it is absolutely great to feel like this but I am always a little nervous as a good day is usually followed by a bad one but hey if the sun continues to shine maybe tomorrow will be just as good.
By the way don't wait until Wednesday to exchange onc stories darlin' get on here Tuesday night so I know what has happened and that you are ok.
J, Glad to hear that you can finally start your treatment to morrow. My se with my first fec werent too bad, no sickness, just wind!!! good job I live on my own witth my dog, dont know who smelt the worse. Where are you having this treatment?. Take all the help you can & listen to your boy, rest when you can, as you will recover quicker. Lots of luck Lesley xx
hi tracy,glad 2 hear from u,hope ur bein positive hun,lets exchange onc stories wed! hope u enjoy the rest of ur wkend much love,alex xxxx
Hi J & Alex and all
J so glad to hear that your determination has paid off and that you are getting started on your chemo tomorrow. Of course it goes without sayin that I wish you all the very very best and fingers crossed not too many side effects for you sweetheart. Glad the holiday dream is still alive but do remember to bear in mind the possibility that you may not be up to it with side effects etc but I really really do hope you make it. You are strong and healthy so face it head on and don't give in if you can. I will be thinking of you tomorrow so let us know how you get on.
Alex, thats you and me to the Onc on Tuesday then. I am at Dorset Cancer Care at 2pm on Tuesday afternoon and if all goes to plan I am due to start straight after Easter according to the BCN but who knows it may be before due to the aggressive nature of the disease.
Hope everyone else is having a lovely day............the weather here in sunny Dorset is very warm again feels like summer........thats good but hope its not peaked too early!!!!
Lots of love to all
I will I have read some horrendous tales of side effects, holding on to the fact I am generally a robust healthy specimen...(slightly overweight but I blame previous treatment... 2 babies...age... and nothiong to do with liking chocolate!!!)I don't smoke have no underlying heath probs....I hope I'll get through it successfully!!! my middle brother said he's gonna buy me a laptop so as I can use it upstairs in case I don't have any energy to go downstairs ...bless...
blimey,u,ve really had it tough.so glad u got it sorted.know what u mean,prob was a doc ego thing.im ok,got haematoma under arm but not getting any bigger,seein onc tues to discuss pathology results and rads plan,started the tam,alls well.(well apart from my lil un tredin dog muck all over the kitchen floor and dicovering a bucket of frogs he collected this morn and decided to keep them in garage,cud hav been worse,mite hav put em in bedroom!!)kids eh? chin up 4 2mo hun and keep posting.lots of love/alex xxxxxxxx
thanks Alex, boy has it been a drama of a week!!!! after the phone call from the prof on tue night, I realised time was definitely against me?!! I had asked prof about hols and he said (he had already said because I have had 2 ops in 1 month, he would not do mx, until after chemo if it was needed as futher ops could be delayed healing which in turn delays drug therapy and that's whats needed ) I would need chemo and if they got their bums moving there was no reason why it shouldn't be finished in time?????????????? now as you know this local hosp hasn't dazzled me with it's speed!!! OH and me went into the hosp and told them sp, to be fair they were helpful as I didn't have appt, and we waited, Prof said he was on standby to fax needed info...... long story short he did...they included me in their lunchtime team meeting.... onc agreed to see mre that aft...saw him....that was when it started to unravel... he disagreed with prof ...he hadn't managed to get hold of him(HE said) I phoned prof .... think they surprised I had his mobile number????? he imm rang the onc who was with me, they thrashed out the neoajuvent chemo thing and when surgery/radiotherapy should be done..... so onc here he would do things profs way (clearly not happy to 'back down' a bit) said would do 4fec & 4tax, I said I thought it be 3+3 he said NO 4+4 "I'll decide" OH thought poss ego???? so agreed to call nxt day for date to start + wether 3 or 4 of each.... nxt day first avail date 4th may .....NO GOOD!!!! even 3 of each take me past my date <<< I did some pleading... begging ...crying (lots)....and praying... that lunch time I had phone call from him to see if I could see him again that aftrenoon to sign consent forms...I rearranged everything and went to another hosp where he was about 35 miles away.....In the end he said not sure if wether 3lots of each or 4 makes a difference so he agreed 3+3 ( 6 cycles), I have since found out that recent research has shown 4 cylcles is ok ???? anyway when I explained to him the delay I had at the beginning of dx was not acceptable & told him that I should have been facing this 2 months ago he listened, and I think he felt my pain.....he then pulled a few strings to get me started tomorrow...I have to travel to the other hospital but it's just for the first one and the others will be done locally.....I don't think that without the weight from the prof that I would have accomplished this much...anyway it's a start and my holiday dream still alive, I know there is still a long way to go but I'm gonna try my hardest....I feel exhausted beyond belief ....but it's gonna be some form of treatment/surgery for the rest of this year so I'm hanging on to that 2 week opportunity for me, OH and our babies,.....there I told you i'd tell you the saga, I can tell you it's most disconcerting to have 2 health care proffesionalls argfuing what's best for you whilst you're piggy in the middle.... the prof has been seeing me for 14 years and I'm still here and I trust him ...you should google him it's impressive!!!!...anyway nuff about me..... hope you are doing ok, let me know what's next with you I've been in a fog and missed things!!!!! Lots of love Jeanette xxxxxxxxxx
j,just 2 wish u well 2mo hun.x will be thinking of u.pls let us know how u get on.big hugs.alex xxxxxxxxxxxxxx
thanks lesley , i'll try and find out about the workshop at the c of chester, not looking forward to tomorrow!!!:(
J Yes I am being treated at Wrexham, then will have rads at Glan Clwyd, which will be a pain with all the driving.I am having my 3rd fec on wednesday, hopefully, if my count is ok. Im under Dr Soe, who will you be under for chemo?. If you live in the wrexham area, get yourself booked on the Look Good Feel Better workshop at the Countess of Chester, they have just started it there. I went on tuesday & it was reeally good, the free goodie bag is amazing. They only run 1 a month, so it will get booked up quick.Have a good weekend everryone, the sun is shining 🙂