Hi all. I had left side mastectomy four weeks ago, have been in constant pain since then. Was originally booked into hospital for one night, although was pressured in the post op recovery ward to go home same night. I was stuck in recovery until after 7pm as they couldn't find a bed for me ! I was actually discharged three days later, drain was removed about an hour before I was discharged. Given no pain meds, only had paracetamol at home. When I went home I felt as if my breast had re grown as it was so swollen, it continued to swell over the next few days u til I feared the would would open up. I went to BC clinic a week after surgery to have dressing removed - a couple of days after getting home I could see leakage into the dressing. BC nurse removed the dressing and declared the wound looked good. A couple of hours later, when I got out of my chair at home, I found the back of my shirt was soaked with a yellow fluid which was leaking from the drain wound. I packed kitchen towel and a cotton towel around it so it wouldn't leak into my bed and ruin the mattress. Next morning the leaking had stopped. Over the next week my 'boob' continued to grow, was very painful and felt it was stretching the wound. I fully expected to find it had burst open ! I called the BCN number and got a call back in a coup,e of hours. She told me to go to the clinic on the following Monday (I called on a Friday) that weekend I was in agony and it continued to swell. On the Monday the BCN drained 750ml of dark brown fluid from the area (everything I've read says Seroma fluid is either clear or yellow tinged). She couldn't stop the fluid leaking so fitted a drain bag and told me to remove it once the amount of flow decreased. The relief of pressure from the first draining was wonderful, but didn't last as it started swelling again immediately the next day. Since then it's continued to swell but I was told it couldn't be drained again for ten days. For the past five days the skin above the wound has gone very red, very sensitive to touch and feels hot. I called the BCN number again on Tuesday, she asked if I felt well in myself and had I taken my temperature. Gave me an appointment for today (Thursday) for further draining. I've been in so much pain this week, it's very swollen and the redness has spread all over the top of the wound area and this morning I noticed it's spread below the wound. I'm not sure if I should be worried about the redness ? Do I have an infection in the wound ? Feeling totally pants today, sore throat, headache and still in lots of pain. So sorry for ranting, just don't know what to do ! If you've stuck with me to the end, thanks for reading. Any advice is very welcome. X
I had breast surgery on 25 July and ALNC on 19 August. The feeling of sunburn you speak of is what I cannot cope with - My thoughts have been to find a tight-fitting sleeve just for the sensitive upper arm. Apart from this awful feeling I too have to cope with changing my dressing at least twice a day with the amount of fluid leaking from my wound. What a tiresome, frustrating experience .... all the best
Thank you Runningfree!! I feel that an open wound is bound to get infected too!! I am going to our local Wound Care Center and Hopefully they will have a better option!! Having to PULL 2 inches of Packing out daily and cutting it off (when there is 2 feet of Packing in there) just seem very sterile!!
Dear Seroma Maiden
what you are going through is awful and for far too long, what does your breast care nurse say about it?
could you see someone else for a second opinion? A hole could encourage infection if left open.
Hi Everyone!!! I have a Double Mastectomy on Feb. 17 and have nothing but problems EVERY Since!! Actully the Main Surgery was a Breeze- but a week after the Surgeon took the Drain out the Seroma's began and havent stopped YET!!! I Also Had TWO Port-a-Caths comin loose!!! Two Weeks after my original surgery my port dropped and I got a HUGE Hematoma on the Right side!!! Two emergency surgeries in the same day and they sent me home!!! I did Three out of the Four Recomended Chemo's- because My Port Dropped again!!! I wanted it OUT!!!! Every week I have to go in to have the Sugeon Syringe the Seromo!!! He doesn't have ANY Clue what to do next!!! I had my Drain taken out on Monday the 29th and the next morning it ALREADY started to fill back up!! So His last trick was to open me up in his office (with a little novacain) and packed it with dry packing!!! Barbaric!!! We (MY HUSBAND) had to pull out two inches of the packing daily and cut it off!!!
Any suggestions????? This has been going on since February!!! I AM DO DONE WITH ALL OF THIS!!
Welcome to the BCC discussion forums, I am sure your fellow forum users will be along soon to offer their support.
In the meantime I have put for you below the link to BCC's publication 'Exercises after breast surgery' and hope you find it helpful.
Hi Anita, so sorry to hear your seroma has been so big and keeps on and on. I had a mx 5 weeks ago and have had it drained each week since, and I'm hoping that will be it for me - the bc nurses were saying it might be finished this week as the amount has trailed off quite a bit, although some of the ladies at the seroma clinic had been going much longer than me. I've been mainly having a bc nurse who's learning how to drain seromas and this week she was solo and just has to get another in as she was unsure about it. As I say, my drainings have been much smaller than for you, but as I only have a tiny breast on the other side (4 lumpectomies a few years ago, and I was small-busted before that) it looked as big as the other side.
I've been surprised how painfree the draining has been, even though the needle went into the wound - almost the worst bit for me was trying to get the ultra-thin and invisible plaster off later - even my husband couldn't do it! The worst was the sloshing about of the fluid - I described it to friends as like a hot water bottle - you touch it in one place and it gluggs off to the other side! If anyone reads this who is concerned about seromas and what happens, it's pain-free to be drained for everyone I've spoken to.
Actually, it occurs to me that the amounts you're having drained are similar to many of the benign cysts I had drained over the length of 34 years - some of the staff and I used to laugh about me going round in circles after being drained - you have to laugh or start crying sometimes, don't you.
So, I'm no help to you but I do appreciate what you're going through - maybe you need to see somebody other than the bc nurses - maybe you could try ringing the helpline here at BCC, as they are hugely knowledgeable and helpful. Hope it all improves for you before too long.
To Helm, and anyone else having problems with their shoulders/arms moving normally and not being able to stretch arms, I found 5 years ago after having ordinary physio twice following lumpectomies that did absoutely nothing to help, that there was an NHS cancer physio at a more specialised hospital locally, which did wonders. The movements the physio made were just gentle strokes from the wound up to the shoulder over and over and other gentle movements - she said she was helping to train the nerves to function again properly. This time around with bc one of the bc nurses supervising the one draining my seroma asked how far I could move my arm, said it wasn't good (although it moves far better than with my previous bc!) and put me down for cancer physio, which starts next week. Maybe there are these specialist cancer physios at other hospitals, it seems they aren't generally known about.
Gentle hugs, Jo x
I am tearing my hair out in desperation, I had a double mastectomy on 29th April 2014, and thankfully post op have discovered that I am technically cancer free, as it was stage one and everything was removed. I need some radiotherapy now, I had all the lympth Nodes removed left side and the sentinel node removed from the right....All these weeks on, I am still suffering from enourmous Seromas, mI have had 6 aspirations at the hospital, the last aspiration took 1860 mlls of fluid off me...The one Previous 1250, mll ALL of my aspirations have been large. I have what amounts to a new left breast and thats in just one week. I would love to hear from anyone who has had this experience and what was done about it. Thanks x