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Follow up appt with Breast unit!

6 REPLIES 6
Jenny065
Member

Re: Follow up appt with Breast unit!

Hello  Michelel,  I guess the answer is yes, ask your GP,  Also you might find a bit more info at your leisure centre, I've read a little bit online -under the Leisure centre info and what it offers etc. I come under Olympiad. Chippenham.    Like you i wouldn't know which DVD to pick there are so many. If I remember I will ask my yoga teacher on Thurs.  We all joke about being the one that snores, most of us behave, just little noises,  I'm the same, very tired some days, could sleep for hours, and sometimes have just had to have a few hours. A friend of mine had lung cancer she lived in Wootten Bassett  and came under Swindon. and we took her up to Oxford a few times.  I'm about 18 months along this bumpy road, Mx in Nov 12,with temp implant which was replaced in Nov 13. then reduction to other side in March14 , so now have a matched pair again, They look ok when i am dressed,and I feel ok about them, but hit a low in March and it has taken me a while to sort myself out, had/having  some help from a counsellor so hopefuuly nearly sorted. See my consultant in August.

I love this site, as you say it is great for finding out things, and knowing that you are not on your own. 

Hope you are doing OK 

Huggles   Jenny xx

 

Seashell60
Member

Re: Follow up appt with Breast unit!

Hi Jenny, thanks so much for your helpful suggestion. If I wanted to try any of these classes do I just go and ask my GP? Ironically my doctor surgery is right next door to our local leisure centre!!! I did think about looking at DVD's, but not too sure which to go for? Your group sounds very good, I can just imagine being totally relaxed and nodding off! Knowing my luck I would probably end up snoring!! I don't sleep as well as I would like at night ~ I always feel as though I could sleep for England during the day!

Whereabouts are you exactly, I was told I could have chosen RUH for my Rads, but the consultant I was with deals with Oxford so I went there instead. It was more or less the same distance anyway and when I had my Rads most of us lived local to Swindon and surrounding areas anyway so each journey there and back usually took 45-60 minutes and we were home just after lunch.

How are you doing yourself now and how has your journey been so far? I love listening and reading about other's experiences and I have learned so much about things that under any other circumstance I would never have known! It's a strange world we live in!

Have a lovely weekend and take care,

Cheers, Michele x

 

 

Jenny065
Member

Re: Follow up appt with Breast unit!

Hello  Seashell   so pleased, your appt went ok and you are feeling better today.  You said about going to Yoga/Pilates,  but the cost. My Gp has offered me a 12 week referral to the local leasuire centre. Maybe yours could do something similar, I think you don't have to pay the full cost. could be something to try, or maybe a DVD and try it at home. I am lucky and go to a lovely lady, she has groups at various levels, and our group is renewal, designed for people with injuries etc, so good yesterday that I think I nodded off during the relaxation at the end. 

Hope the appt with cardiologist goes ok.

Take Care,

Jenny xx

PS I'm not far from you, but going to RUH

Seashell60
Member

Re: Follow up appt with Breast unit!

Thank you ladies for your kind words of wisdom! I came away from my appointment yesterday feeling more positive and my hubby said he was pleased with what was discussed - i know he isn't comfortable in certain situations so i was glad he was there to hear everything! He had been with me all the way through (as have my parents and sister!) and has had to put up with a lot from me from being sick and moody to working from home (his workplace have been great) for days on end just so i wasn't at home on my own sometimes and running me to hospital!!

I told the consultant what was in my head and she was happy that my mammo was okay in Feb (she had my surgeon pop in and check me over as well) and he will see me in 6 months. My skin rash on the same side as surgeries,etc was mostly topical and the creams i was given by gp (they tried 3 different ones)is not going to help and to use a pumice or one of those big squishy sponges you can get in a gift set (!!!) and gently rub it until it is smooth.

The swelling i had at the top of my spine and to the left where you head bends forward is going to be looked at by ultrasound to rule out anything suspect - it aches a lot and i get vague headaches and dizziness - but she said it might be something to do with a muscle inflammation. I  have to take ibuprofen for 2 weeks and see if it improves. She did say that because the NHS is not rich (??!!)  they wouldn't offer MRI's to everyone, so i would have no chance of one of those 3D MRI's!!

I have also been recommended to try Yoga or Pilates which we cannot really afford, so I am on the waiting list for some Physio (at one point the waiting list here was 18 months!). So i guess on the whole it went okay, but there is always a small part of me that isn't 100% about it all!!!

Thank you both again and I now look forward to what the Cardiologist has to say next month regarding my treatment related Irregular Heartbeat, which is driving me insane, it's been particularly bad this week and i am just about comuing to the end of my rope with it!

Have a lovely weekend both of you ~ the sun is shining here in Swindon and it looks like it will for the next few days at least!

Cheers, Michele x

saffronseed
Member

Re: Follow up appt with Breast unit!

it is so normal to feel the way you do but you should mention it to your team - We all worry about spread/reoccurance and we do know our own bodies.  I stuck to my guns and was offered a ultra sound scan at one of my regular check ups and the ultra scan did show a lump which was biopsied but came back as normal (cyst) which was good -  there are three dimensional mammograms available in some hospitals too which are said to be more accurate and you could ask about getting referred to one of them.   They don't generally do CT/MRI scans as I was told it can show up so much that you end up being overtreated and of course the emotional/anxiety/waiting  involved is not good for your health either.  There is a balance here in that you need to be vigilant, you need a team that listens to you and you need to trust your team that they have examined both you and your scans properly and they are sure there is nothing to worry about.

Mindy63
Member

Re: Follow up appt with Breast unit!

You've 2 choices: say nothing/play down what you're experiencing because you don't want to be a pest or feel silly OR go through all your ailments with the specialist.
I was firmly in the former camp. Didn't want to seem weak, out of control, annoying. But I need to get over that. We all pay into the NHS. We have had cancer and need to be vigilant. We deserve to be listened to and taken seriously. So my advice would be to report everything explaining that you are worried and want to make sure you are bring vigilant.
At the very least you will be glad you got it all off your chest.

Seashell60
Member

Follow up appt with Breast unit!

Hi all,

I have a 6month review tomorrow with my Breast Surgeon in the local hospital and i dont know why, but i feel myself getting rather nervous and edgy.

I had a yearly mammogram in February with NED shown, but with all sorts of side effects from all treatment and feeling generally blah all the time, the Specialist Breast nurse i saw last month told me to mention it all tomorrow.

I always feel like i am fussing over nothing and panicking, but they always tell you that you know your own body and if anything doesnt feel right you must say so - but i always get the same reaction as if i am being silly and it must be this or that. Also i have been advised to ask in what circumstances would i be offered any further tests or even an MRI scan? I am sure that i can feel things that werent there before and when i read some peoples stories about recurrence, etc I feel the hairs on the back of my neck standing up in fear! I never used to worry about every little thing, i feel like a worrywart who is always on the lookout for something else to ponder on.!!

Here's to a good meeting tomorrow!

Cheers, Michele x