I am not sure if Personal Care Plans are applicable to Wales. I have only recently been contacted about one so I think they must be a new thing. They seem to be related to the Unplanned Admission Avoidance Plan.
It is a bit shocking to see in black and white 'Has a DNR been agreed?'. I am going to say categorically NO at this stage if it comes up.
I hope your treatments are all going well.
Thank you so much for your reply! I think it must be an admin error. I have a letter from the Royal Marsden which was my second opinion that states I should carry on with tamoxifen, pertusumab and herceptin once taxotere is stopped. My GP is really very nice but the PCP did have some mistakes. One made me laugh as it said I qoute, 'You have recently received a letter from the surgery naming me as your unaccountable GP'. Just what you want!!!
I have read your posts with interest. I was just saying to my husband how amazing that you can now receive herceptin and taxotere after all you have been through.
Have a lovely weekend.
Does anyone know if this applies in Wales my GP surgery don't seem to know anything about personal care plans.
Give the helpline here a ring, they're open until 2pm today, the staff are there to support you through this. Calls are free 0808 800 6000.
I have not posted much recently but read all the threads everyday! I think about you all!
I just wonder if anyone can help me because I have received something in the post today which has really unsettled me and is going to have me worrying all weekend. I have stage 4 BC with multiple bone Mets diagnosed with a pathological fracture of my left femur. I am ER and her2 positive. I had taxotere for 6 cycles from June 2013 and from October 2013 I have been maintaining (hopefully) on herceptin and pertusumab. Anyway I had a brief chat with my GP on Thursday about my personalised care plan. She sent details of this through and it says on it that my maintenance chemotherapy, is herceptin and pertusumab is due to end late December 2014. This has totally thrown me into a panic!!!!! I suppose foolishly thought and had been led to believe it would continue indefinitely!!!! The thought of it ending freaks me out as I can just see myself progressing! Sorry to be a such a nervous Nerys. It is typical that a letter like that should come on Saturday.
Any advice gratefully received!
Wishing you all success in your treatments!!!