Hi Christine, Is the hydro dilitation that you had the same as the cortisol injection? I had a look at the patient UK site and it is mentioned in the same breath. Or is it cortisol together with other fluids?
I've had a look for more information. The BCC Publications here have a lymphodema risk booklet (look under R for risk). It seems the risk is mostly from the injection, so I'm wary now.
My physio said to use a heat pack before the excercises - now I'm a bit wary of that too. Generally you would avoid heat for inflamation.... Anyway, I think I will wait to see how it progresses with the excercises and continue as long as the physios will see me.
I tried brufen for a while, but it made no difference.
Butt, has anyone suggested meds for nerve pain - gabapentin, pregabalin, or amatryptyline? My plastic surgeon mentioned these, but I havnt looked down that road yet.
Butt, I found your post while searching for information on the risk of developing lymphodema following cortisol injection. The physiotherapist at my GP's suggested the injection for my frozen shoulder (or capsular constricture, as the physio at the reconstruction hospital termed it), but my BS says there is a very small risk of lymphodema from the injection.
I have not had swelling of my arm since cancer treatment, but even though I only needed two sentinel nodes removed, I have had cording, and ongoing pain in that arm, so I want to assess lymphodema risk before going ahead with the injection.
Apparently frozen shoulder will eventually resolve, but can take up to two years. My shoulder/upper arm was already painful before my double mastectomy/DIEP recon 4 months ago. It has become much more painful and debilitating since, and made worse by ?nerve damage? at the back of my upper arm. This started as episodes of localised sharp pain on my second day post op, and has now progressed to a numbness at and above that area.
I hope this information is helpful. Get a physiotherapist assessment if not already done.
Meanwhile, if anyone has information or experience on lymphodema risk from cortisol injection, please would you share it here, Thanks, Anne