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Good news on capcetibine

15 REPLIES 15
Zippy
Member

Re: Good news on capcetibine

hi belinda

thank you i will give it a try 🙂

xx

belinda
Member

Re: Good news on capcetibine

Hi Zippy, I managed to save my nails by soaking then a couple of times a day in warm water and diluted Savlon. I know others who have had both big nails affected..x.x.x

Zippy
Member

Re: Good news on capcetibine

HI ive been on cap since june and my last scan in sept showed up to 50% shrinkage in all my lung, liver tumours, there was talk of me coming off this 8th cycle but we have a change in oncologists and the temporary one wants me now to have another ct ready to see the new permanent onc in dec for his decision on where i go now, the originl thought was to try letrozole - see scottish lass is now pursuing that treatment.....so wait and see what happens ... in a lot of pain at mo as my big toe nails have decided to come loose 😞 side effect of cap ....my soles of my feet are fine just my fl*pping big toe nails 😞 x

belinda
Member

Re: Good news on capcetibine

..thank you Marilyn.. 🙂 xx

Marilf
Member

Re: Good news on capcetibine

Oh Belinda, you make me blush (or am I having a hot flush?). I have to say you always look absolutely wonderful too, and you're on a much higher dose than I'm on -- another fab Xeloda Queen!
M x

belinda
Member

Re: Good news on capcetibine

Hello all, I hope Marilyn, the Xeloda Queen doesn't mind my mentioning this!.. but I have met Marilyn many times and she always looks FAB..and I have always found her 6 years with Capecitabine hugely inspiring!
x

Marilf
Member

Re: Good news on capcetibine

Yes, it's so good to hear that so many of us are doing well on capecitabine -- hoping for many more good reports.

Marilyn x (the Xeloda Queen -- six years on it & stable!)

BoneyL
Member

Re: Good news on capcetibine

Congratulations, Muddy, I'm starting on Capcetibine soon so it's good to hear of it working well. Long may it continue.

Linda
X

belinda
Member

Re: Good news on capcetibine

Hi Alison, great to hear your news!...xx

alisonm
Member

Re: Good news on capcetibine

Hi all

I think my news is pretty good at the moment as well, so thought I'd share that. I had bone mets dx in june 2008 (primary dx in 2003). I'm not on capacitabine but am on herceptin and pamidronate and had taxotere after secs dx. I haven't had any spread since scans in april so my regime seems to be working at present, long may it last!

when I had the secs dx I thought my world was about to end. Watching the fireworks display in Nov 08 all I could think about was 'am I still going to be around to see this next year?' Well, I was, and this time I feel confident that I'll be around to see the fireworks for a few more years yet. Looking forward to having sparklers in the garden with my little girl when she's a bit older.

Alison x

nicky08
Community Champion

Re: Good news on capcetibine

Thanks for sharing your good news with us Muddy - it cheers me up no end when I hear of good results. Long may it continue.
Nicky x

Kay123
Member

Re: Good news on capcetibine

Really pleased for you, Muddy.

scottishlass
Member

Re: Good news on capcetibine

Hi Ladies, Well done Muddy. I too am taking Capacitabine and finish this Thursday after having beeen on it since April. I also had it 3 years ago and it has kept me going. I am 10 years on since my diagnosis of bone mets. I am about to start Bondronate ( Biphosphonate) which I have been on before, and changing from Aromasin to Letrozole as soon as my chemo finishes. I am so pleased to be here still and have had this b***dy disease for a total of 20 years now. But I still enjoy life and am so glad that I am still here. Congratualions on getting through all this and good luck to anyone just about to start. Love Val X

111lisam
Member

Re: Good news on capcetibine

Thankyou so much for sharing this.
I was diagnosed with secondaries to my lungs & liver last week & am due to start on Capecitabine very soon so your post has given me hope, thanks again Lisa x

belinda
Member

Re: Good news on capcetibine

Hi there! I hope you have MUCH more time with capecitabine..I've been on the tablets since Spring 2008..I have no active cancer at the moment. I also have bone mets..Take Care Muddy..Belinda. x.x.x

muddy2
Member

Good news on capcetibine

I just wanted to share my good news and maybe offer a bit of hope for you other ladies on the same regime as me.
Summary - diagnosed with secondary to spine in Feb 09.(age 39)
I had a scan a couple of weeks ago and they said everything is stable.
I was almost sick with worry. I know this is not a cure but the capcetibine combined with 3 weekly herceptin and Bondronat seems to be working at present.
Thank God - and I mean that.
Hope all you folks out there doing ok

Muddy