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HORRIBLE TASTE IN MOUTH FOLLOWING EPi

26 REPLIES 26
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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hello Everybody

I haven't been on for a while due to be unwell with chemo. I find pear drops, kola cubes, celery and as the other girls have said fresh fruit and salad and very good for easing the taste inyour mouth.

Lots of Love
Emma
xxx

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi,
This is odd. The steroids induced diabetes in me and I have just noticed that a side effect of the medication I take for this is a metallic taste. Fortunately I don't have it now although I did through chemo.
I wonder what the connection is.
Margaret

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Lemon squash, ginger cordial and lemonade, peppermint tea, lemon and ginger tea, pineapple, nectarines.

stocked up on ginger everything but only using the cordial and a morning biscuit, before getting out of bed - just and excuse really!

I don't like anything that tastes too much - preferebly white food for 10 days.

gill

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Now on #3 of 4 Tax and the mouth thing is particularly awful (not least 'cause my tongue goes blue about 6 days after chemo!). Can't taste anything much, which is a bit of a pain for someone who enjoys cooking...can't inflict grub on friends and family that I can't taste myself.

And have already had a bit of a disaster with trying to jazz up a boring salad with Tabasco. You still can't taste anything, but steam comes out your ears...

Mouth feels like a gobful of wet velvet. Ugh. Still, have enjoyed watermelon, peaches, grapes, strawberries and pineapple recently, so maybe there's hope. Home-made tomato soup is ok, too.

L x

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi there

I had my 1st Epi 10 days ago and haven't had any side effects apart from in my mouth. A terrible sore throat (like swallowing razor blades), my sense of smell being heightened, but the worst is taste. Everything (and I mean everything) tasting dreadful. It's not just the taste it's the consistency too. Bread, pastry and meat feels like cardboard and even things like mashed potato just taste and feel awful. The only foods I can taste and enjoy are Frosties and pineapple.

I'm hoping that I can lose some weight! But I'm having to force myself to eat. Not good when I've always enjoyed my food.

Mal

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi Cath

Oh wow, so I was some help! I so feel for you. Remember it well. But it does pass and if you are lucky like me you lose the weight and don't put it on again. Ask your oncologist if you worry about not eating. Mine didn't think a stone and a half was anything to worry about. And do drink the Ensure stuff (they will prescribe it). Then you are ok and slim! Here I am still the same weight after finishing chemo last October. The disgusting taste was just too much for me. But I am here to tell the tale.

Good luck my love, and let me know how you get on.

Dilys
xxxx

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hello. I'm a new reader!
Had my first FEC chemo about 10 days ago. I feel a bit of a fraud as everyone expects you to be poorly and I have felt remarkably well. (Or maybe I have just been able to forget the not so good times)
However my main side effect has been this disgusting taste ALL the time. I love my food and usually drink gallons of tea. However I am now refusing tea because I know won't enjoy it and meals are a bit of a chore. I am encouraged by the tip from DilysP to give up food and lose a stone and a half! There must be some perks to all this.
Chewing gum is Ok but I'm getting jaw ache!!
Cath

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

I couldn't stand the smell of normal tea - was a HUGE teapot pre-chemo - but have found that decaf tea is fine - and I used to HATE that!

weird or what ???????
FizBix xxxxxx

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi all,
forgot the frozen bananas they are really nice I just did not like normal ones, and grapes frozen very soothing for a sore mouth..
Lynn I def would of been well fed up if I had gone off Bailleys and Tia maria my fav. Luckily I did not !!!
I think the curry helped me because I got a quite constipated cos of steroidsand some anti sickness tabs. My chemo form said no take aways etc in case of food poisoning as your immune system is down and you might not be able to fight off bugs.My local indian is well nice so was ok
Take care all and good luck with all treatments!
Dawn X

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

During my FEC I always drink loads of water, suck sweets and eat an ice lolly not all at once I hasten to add but I found this helped with the taste like others pineapple, kiwi, grapes, stawberry and kiwi squash loads of bitter lemon and Louise yes tonic too I found cool things really helped and soft foods like soup and rice puddings nothing spicey though or too hot, however I found that each cycle I liked different foods or drinks . Drink plenty of water 3 litres a day I was told!!
I also went off black coffee but have now started buying those sachets with milk or cappacino they are quite refreshing and not too strong. ice cream and jelly too, and natural yoghurt.

Hope this helps

Good Luck
Sarah

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

yes, i love my bananas too, so hope i don't go off them! Read somewhere that you can peel them,wrap them in cling film and pop in freezer,ready to eat cold. Supposed to be soothing if your mouth is sore.

Think I'll buy some lemony things today. Start chemo tomorrow! Can't wait to get first one over with.I'll take my chewing gum and a nice cold drink to sip!

best wishes to you all,
Ann x

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Oh... I usually have two bananas a day and can't imagine 'going off' them! Love reading these tips from people who know.

My onc told me not to eat curries during chemo, I didn't ask him to elaborate but assumed they'd worsen any tummy upsets... I suppose the thing is just to have whatever you fancy, and hope it a) stays down and b) goes through without trouble. Will stock up on fresh pineapple, and juice, and have sherbet lemons ready... I'd forgotten how much I used to love them! Hope I don't go off Baileys, that really would be a shame, I'd have to let my daughter finish the bottle!

Lyn xx

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi
I found that lime juice and fresh lemon juice was good any cold fruit except bananas they were horrible.Also I really found it good to eat chilli and indian spicy food they were great because I could still taste them, Glad you are nearly done with the chemo, its brilliant when everything tastes normal again.

Good luck with any further treatments

Dawn

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi
Really good big naval oranges are splendid too. Cheese is horrible full stop and tea, well I cant bear to drink it now and that is something as I loved my tea.

2 weeks and I will be done with Epi. I am so looking forward to the last one, ticking the days off.

Good luck with the tastebuds!!

Even better luck with your treatments.

Sarah

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi,
Oh the horrible taste thing is the worst side effect for me being a real foodie person! I find food with a high salt or sugar content taste vile! Feta cheese is the worst.I've been eating strawberries and apples because they are so refreshing.
Alli.

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi

The horrible taste has continued through the Epi and I have just had my third on friday. Just one more to go.
I found that fruit from the fridge is good, melon and pineapple. Also ice lollies. Clean teeth really well and use a mouthwash.
Soe things just taste horrible where others are OK.
Good luck with your treatment I( hope the side effects are good to you.

Sarah

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi Sarah, have you had your second Epi yet? How are you feeling, did the taste go away, or what did you find most helpful to make it better?

Start my Epi on 11 April so I hope you don't mind being asked for tips and experiences.

All the best to you for the rest of your treatment. Lyn x

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Lime cordial worked for me.

The awful taste in my mouth after chemo left me with a distaste for red wine, that was sad as I enjoyed a glass after work, oh and the weekend and then when visiting friends, another just to be socialable. So I guess the chemo did help me in another way too.

C

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Lucozade worked for me. I got through tonnes of the stuff! Just a sip every time I got the funny taste.

Good luck!

Nicola

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Yes a disappointment to me too about the wine tasting funny. Tonic water is doing it for me at the moment (just had second EC)

Louise x

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Chewing sugar free gum!

K

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Jez
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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hiya Sarah

Oh, I remember it well, awful isn't it. Nothing tastes the same, not even water! The only thing I found ok was ice cold Schweppes Lemonade (or anything lemony really). I constantly chewed sugar free gum and drank water at the same time, it was the only way I could get water down. My biggest disappointment was that my wine tasted revolting, so reverted to lager shandies when the need arose (quite often as I remember lol). Grit your teeth girl, you'll get there and well done for getting through the first one, time will fly now, you'll see.

Julie x

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Chilled San Pellegrino mineral water was great,so was diluted Roses Lime juice with ice.

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

HI Sarah

Try Lemon Sherbets when receiving your chemo.

Good luck

Sharon

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi Sarah

Everyone says pineapple but nothing worked for me. In the end I gave up and joyously lost a stone and a half through not eating. Depends if you can afford the weight loss of course, but for me it was a delightful side effect. Those Enlive drinks kept me going healthwise.

Good luck my dear and remember it will pass!

Love

Dilys
xx

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Re: HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi There

I always had some sliced fresh pineapple in the fridge to suck after the chemo. It seemed to work for me!!

Hope all goes wqell for you.

best wishes

Bill

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HORRIBLE TASTE IN MOUTH FOLLOWING EPi

Hi

I wondered if anyone had any tips for the horrible taste in the mouth.
I had first Epi on friday and have had almost constant indigestion, heartburn and 'the taste' since.

Any tips to relieve the symptoms would be gratefully accepted.

Thanks

Sarah