Hope everyone feeling OK today. I had a busy week last week with children off school.
Crystal, how are you doing still after second session. Is it different to your first? I go for my second session this Friday.
Knitnut - I had WLE and SNB beg of September. I had to go in hospital the day before the operation and then 1 more night, so 2 nights altogether. I did not have a drain so think that made it easier to be discharged as well. Actually on the day of discharge I was home by lunchtime! I had to go in the day before so I could have injection and scan so you may have to be the same. You might have heard this by now.
My nodes were clear but I still have to have chemo, mainly as a precautionary measure. I was a bit shocked by this as I had been told surgery and then just radiotherapy, nobody mentioned chemo. Used to the idea now and going for second chemo on Friday.
Good luck with your op. Hope all goes well.
Hi Ann, Topsymo and Crystal,
Thank you for your replies. it puts my mind at rest a bit more. at least this time next week it will all be over. The pre-op bloods clotted so I had to go back today and have more taken! Annoying.
topsymo - My hospital tests part of the sentinel node during surgery. If it appears clear, they do not remove any more nodes - if it is not clear, they would do a full axillary clearance at the same time, rather than having to go back for more surgery at a later date.
The remaining part of the sentinel node is tested in the lab, as you say, and I did have to wait for two weeks for all the other results. In my case, fortunately, the remainder of the sentinel node was clear. I don't think all hospitals do this procedure.
knitnut - Good luck with your op.
I had WLE and SNB and had to stay in overnight with a drain in each incision. I was allowed out the following day as my drains were clear. I didn't get the results for two weeks and luckily there was no spread into the lymph nodes. Unfortunately though, I am herceptin positive which means I have to have chemo, radio and herceptin. Just had my second course of chemo and now feeling a little washed out.
Can't wait for this all to be over and done with!!
Hugs to all
I was similar to Ann: WLE & SNB and did stay overnight but could have come out if I'd pushed it.
I too went down early but had the wire fitting on the evening before the op. I had never had surgery before but found the preparation was no big deal- just mildly uncomfortable - no more than that and the op itself ditto - straightforward, little painand no drain.
I am not sure how Ann 's surgeon knew that the sentinel node was clear- I thought that wasn't known for sure until all the tissue had been analysed etc- it took 2 weeks in my case and unfortunately although my tumour was small, it turned out to be not-so good and I had to return for full axillary clearance, chemo etc.
I do hope you will be luckier !.
I had a WLE and SNB on 23rd Sept and came home the same day, at my request. I could have stayed overnight. My sentinel node was clear and so they didn't need to take any more. Therefore, I had no drain. I had to be at the hospital at 7am (no food after midnight and no drink after 6.30am). First, there is a lot of form filling by the nurse, then the registrar, and the anaesthetist. I was given a long-lasting painkiller at about 9am, which lasts after surgery, apparently, and made to put on surgical stockings, which I had to wear for two weeks. I was sent for the radioisotope injection and then there was a lot of hanging around. I was called at about 2pm for surgery and I left the hospital at about 8pm, when my son came to pick me up. No after effects from the anaesthetic, fortunately.
Good luck with your op.
Love Ann x
Hope those of you having chemo are feeling a bit better today?
I am having WLE and SNB a week on Friday,6th Nov. I have some questions,
how long were those of you that have had the same inhospital?
did you have a drain?
Now My BCn told me that I'd go to neuclear meds first for the injection into my boob before theatre, then I was going to ultrasound for a wire fitting as the tumour is small and needs to be pointed out to the surgeon. She said that that would take all day and my surgery would be in the afternoon. But I'm on the list for 9 a.m so I'm a bit mistified/
I wear a morphine patch for pain from Fibromyalgia so I dont think they will give me any extra pain releif. we shall see. The tumour is only 8mm so they presume the nodes are clear and I'll just need radio. I hant been given any hormone status for the tumour yet except they made me have my lovely Myreena coil removed coz it contains progesterone. I hadnt had a period for 2 years and now I'm back to the horrid heavy stuff I had before the coil was fitted. Ah well, if it means that it doesnt aggravate the cancer then so be it!
I just wish the surgey would hurry up and arrive. the waiting is awful.
I had my second chemo session yesterday and I'm feeling a bit washed out today. No sickness though so fingers crossed. Hair still falling in out bucket loads. Hope you are all feeling well.
Thanks Debbie its been a funny few days up and down a bit but am coping with it that's the main thing.
Crystal - sorry your hair has started to come out. Will you still wear it tomorrow for second session? My hair is fine so far but it has only been 10 days since first chemo. I have decided to get a wig next week so I have one ready just in case I need it, particularly as I am attending a family wedding in 4 weeks.
Deb and Carole - hope you still feeling Ok after your first chemo sessions. I was OK apart from some tiredness but after resting for 5 or 6 days felt really bored and fed up so did some retail therapy on Friday which was lovely!! Hope it continues good for all of us but I know the reality is that everyone is different and just because felt OK after first session may not be the same after second.
Is anyone working through their treatment? If so, how is that going? I am waiting for my workplace to come back to me this week to discuss how I can work at least some of the time.
Hope everyone is still smiling and positive.
Not a good day yesterday but today woke up feeling quite ok, lets hope it stays that way. Its a shame after having to go through the pain of wearing the cold cap your hair has come out so early just shows you doesn't work for every one I opted not to as it seems par for the course its not permanent, and although I have long hair (or should I say did, got it cut) and I know it will take ages to grow back it will just be another stage of my life. Funnily enough a few people have actually said how much younger I look with short hair perhaps I might keep it once it grows back.
Anyway good luck for Tuesday and take care Carole x
Glad your first chemo went well - I found the last two weeks of the cycle quite easy as I've felt 'normal' again. One not so good thing though is that I've started to loose my hair and I wore the ice cap!!
Oh well was to be expected I suppose but it's still unsettling!! I've got my second session on Tuesday so fingers crossed that it goes the same way as the first.
Hugs to all
chemo went ok last wed,I'm having 6xFEC had the usual red wee but either than that felt ok so far (touch wood). Lets hope the next 2 weeks will be manageable as well, as were all different aren't we.
Hugs all take care Carole x
Glad your first chemo session went well. I felt tired for the first few days and then was ok. My only lasting side effect is that I have a sore on my tongue which is blummin annoying but I can't really complain if this is all I'm gonna get. Get plenty of rest and relaxation and you'll start feeling more yourself in a week or so.
I phoned the BCN today about the flu injections and she said they don't normally give them during chemo but I'm to check with the Oncologist next week when I go.
Right off for a long relaxing bath and then bed I think.
First chemo ok, lots of tablets to take at home today, and an injection to have this afternoon to boost bone marrow to work harder. Feel a bit achy today, but theyve said the tiredness builds up over a few days. Been up and done a bit of housework today though, which was more than I was expecting to do!
One down 5 to go!! Then radiotherapy.
Hope you're having a good day.
How did your first chemo go and how are you feeling now - not too bad I hope?? I'm having E/C but am unsure what other variations there are and how they differ. I've not been told to have any flu injections so I may just ring up tomorrow and enquire after what you've just said thank you.
Only five more to go!!!!
First chemo today, im having TAC...what are you having? My consultant has told me to have the swine flu vaccine as soon as it is available. Ive already had the regular flu vaccine and the pneumococcal vaccine too. Glad your chemo is going well.
I hope all your first sessions of chemo go well this week. I go for my second bout of chemo next week and so far I've been feeling fine. No sickness or nausea at all. I definitely think the wait is worse than the actual procedure. I'm now more worried about picking up infections - does anyone know if we are eligible for the swine flu vaccine??
This thread has certainly been worth reading all the comments have helped me, starting chemo on Wednesday, quite positive about it just want to get started now, no more hanging around waiting for a date to start. Hopefully side effects will be manageable.
Hope everyone is ok hugs to all.Carole x
Deb - Do not worry about chemo. It was fine for me, I was worried about the unknown but it was quite painless. My first session was last Friday. Was at hospital from 10am to 3pm. Had to have blood taken, see doctor and wait for blood results which took up quite a bit of time. Will know to go bit earlier next time to allow for this. Then for chemo injections and 'cold cap'. Injections fine, cold cap really cold at first but soon got used to it. Very bearable, although I did feel chilly all evening especially in my head. Over the weekend been OK, slight nausea and feeling tired but not the washout of a weekend I thought it may be. I know everyone is different and every time is different but so far so good. The nurse said that may not be too bad for first couple of days as taking anti-sickness tabs for 2 days but next few days may feel lower. OK so far this morning so just hope it continues like this.
Deb - you will be fine. Just remember to take a book or magazine in case you are hanging around and if you are having cold cap, wear warm clothing.
Take care, hope all goes well.
Hope you are well, how did your first chemo go? My first one is tomorrow, dreading it , but got to get on with it I suppose. Hope you arent feeling too horrid.
Hi to all
Not been posting for a while as getting my head around starting chemo this Friday.
Sheila - good to hear your story. I have been nervous about what to expect as it is the unknown of the process and how I will be affected that bothers me. I too am thinking of working in some capacity while going through chemo. Met with my manager yesterday to discuss.
I have been getting the house ship shape thinking I do not know how I will feel but hopefully not be as wiped out as I anticipate. A bit worried about hair loss, particularly as I have a wedding to go to in 5 weeks.
Deb - have you started your chemo yet? How are you doing?
Hope everyone doing OK.
Hi English Rose,
I cant take codeine as it makes me feels sick, so maybe it affects you in a similar way too? Also ibuprofen is known to be a gastric irritant. I just managed with paracetamol after my surgery, and there were times when it was slightly uncomforatble, but generally paracetamol was sufficient. Hope you feel better soon. If you do want to take ibuprofen, be sure to eat something before you take it. That should help.
English Rose - sorry to hear you feel so poorly. Spoke to breast care nurse yesterday re. my painkillers and mentioned headache . She tol dme the codiene can cause a headache ( I only took it out of desperation as it does not really suit me). Perhaps they can give you something else, I was given diclofenac and paracetamol as well and I stick to them. Used 4Head stick to help with headache. Good luck. Marlix
Here I am 5 weeks post op still swollen and sore but living with it, my scar is 12cm long, lump was 43mm big, it has healed lovely, I have been putting bio oil on but I do tend to heal quickly anyway, but I think the bio oil has helped as the skin is very soft. Under my arm isn't so sore as it was but then I have religiously done my exercises, its still numb in places, but its not painful any more. It all just takes time,we will all have to be patient patients lol. Take care Carole x
if it's any comfort,I had a look at my snb and wle scars this morning (5 months post op) and they are nicely faded and seem a lot smaller -remember there's swelling still and everything will feel puffed up for a bit-plus if they used glue to stick the wound it looks pretty bad as it's dirty old scabby looking stuff after a bit ! My surgeon is an oncoplastic one and I think he'd do his best to make it look neat and tidy !
Thanks for your responce about the length of scars, like you Ann, I wont mind how big the scar is if they get it all out! I was just concerned that it seemed very long.
Any way, my other worry at the moment is feeling sick. I have been feeling sick since the opp on Wednesday,(3 days ago) when I came around with a blinding headache and sick feeling. I was given some tabs to take, these might have been routine, then a bit later after complaining I was given an injection in my bottom to help with the sickness.
It's not bad all of the time, but comes on in waves. Is it the aenaesthetic or could it be the pain relief I am taking?
Taking: Codeine Phosphate, Paracetamol and Ibuprofen
Just reading comments and see that some of you, like me, were just expecting rads and poss tamoxifen after a WLE and SNB. Although, thankfully, I had clear margins, nodes and vessels, my tumour was a grade 3. I was shocked to the core when chemo was mentioned. I met the next week with the onc and decided it was a good option for me to have the chemo. I will let them thow everything they have at me to stop this recurring.
I had terrible anxiety before the chemo started, panic attacks; a brown paper bag became my constant companion. However, that was the worst part. Once I started chemo it all stopped. I felt I was in good hands and was having treatment to keep me well. The actual treatment is painless. I have had no sickness. I have suffered a little with sore veins and just tired, tired, tired.
i have finished my 4xEpi and started CMF yesterday. I have 4 cycles to do and should finish in January. I have been going to work when I can, which keeps me feeling normal.
I know what a shock it is to have chemo mentioned when you think, like I did, that you are home and dry but it is doable and you will feel better for knowing you are doing what you can. If I had decided not have chemo I know that my first thought each day and my last thought each night would be "Should I ?" And soon it will be over.
Good luck to you all.
Regarding the length of the scars, I asked one of the surgeons yesterday why my scar is about 9cms, when the lump was only 1.9cms. She said that as well as making sure they get a clear margin, it is easier to remove the lump with a larger incision. However, she did say that being female, she tends to make smaller scars, although it makes the job harder. I had a male surgeon but as he managed to get clear margins, I really don't mind about the length of the scar now!
English Rose, good luck with your results and let us know how you get on.
Thanks ladies for your comments and reasurance.
It is great to hear that some of you have had good news lately I hope the trend keeps up, and wish you good luck with the rest of your treatment.
Good news about your nodes and glad you are feeling more positive. I hope all goes well at your appointment next week.
Your diagnosis is virtually the same as mine ! have sent you a PM
I agree it is great to hear other people's good news stories.
Elaine - Got my results, too. Like you, clear nodes, but grade 2. It is so lovely to hear good news stories.
Love Ann x
Got my results today. Was told that they got all the cancer out in the op and just in time as it was a grade 3. and it hasnt spreaded to my lymph nodes. tk god.
Go bk next week to see what treatment i will recieve. Feel as if my luck it starting to change. And about time too.
Just wish everyone on this site could have some gd news.
With my WLE, I had a Sentinel Node Biopsy (SNB). They removed just the sentinel node and tested it during surgery to see if it was cancerous. It wasn't and so they did not remove any more, but after surgery they tested the rest of it in the lab and, thankfully, that was clear too. I think if they had found it was affected during surgery, they would have removed more nodes there and then. Not all hospitals do this procedure, apparently.
Prior to surgery, I had a radioisotope injected and then blue dye during the op, so that they could locate the sentinel node. Clever stuff, but it leaves you with blue wee, and blue parts of the body!
My SNB scar is about 1.5cms , but my WLE scar is about 9cms.
Good luck with your results. The waiting is scary.
I didn't know whether my nodes were affected until I got my results from their removal but some people do seem to get told prior to that.
Both my scars are 3 to 4 " long even though my lump was only .7mm
Hope your results are good ones. LooLoo x
I had wire guided WLE and some nodes removed yesterday. I am very shocked at the size of the scars, the one on my breast is about 4 inches long, so too is the one under my arm, they almost meet at right angles. I was just wondering if anyone had any thoughts on this, I must admit that I was expecting 2 inches max. I get the results next Friday, but after reading some other comments posted, it seems that some of you know weather your nodes are affected before the report.
I agree with you Marli yes it is reassuring to hear positive comments re Chemo, I'm seeing Onc next Wednesday on results of my echo, ecg and blood tests to find out which chemo I will be having which will then start a week later so I am a little apprehensive but, I am going to go in with a positive attitude now which will definitely help with my blood pressure. Take care Carole xx
Crystal2 - How reassuring to hear POSITIVE comments re. chemo. I have been told that I will almost certainly need it and should start 1st week in Nov. Have spoken to BCN about the cold cap and was quite apprehensive but your comments are reassuring and I will certainly give it a try.Hope you are feeling relatively OK. Keep smiling. Marli.xx
I hope all goes well for you next Friday and I would definitely go for the cold cap as after 10 mins you don't even feel it!!
Nice to hear chemo not as bad as you thought. I am thinking of going for cold cap too. My first session is next Friday, 16 October.
Hope you feel OK next couple of days.
Just had my first chemo session and the thought of it is definitely worse than the actual procedure. I also opted to have the cold cap and again this was ok and not at all like I'd heard ie painful. Just got to wait and see now re the side effects etc.
Good luck to all of you who are awaiting your results.
sorry to hear about your in laws. As others have said, they probably don't know what to say or how to cope. Hope things settle down between you all as time goes by and they get more used to your diagnosis.
I have a son similar age to yours ( will be 13 in Dec). Someone told me about the riprap site but I had a look at it myself first and thought it was probably best if he didn't go on it as there are lots of very sad, true stories on there from kids whose parents have died from cancer. My lad would get really upset reading these and I don't think it would help him at this stage. So just saying best to have a look at it yourself first and see if you think it is ok for your particular child and circumstances ...which it may well be.
I am 6 weeks post op and just started rads. Still get tired if I over-do it and expect that might worsen as I go on with rads.
Good luck with your results on thurs Elaine and Ann.
Deb and Annie sorry to hear you will need chemo when you were hoping/expecting not to. You both sound really strong and positive and I am sure you'll get lots of support here on the relevant threads. wishing you both lots of luck.
Thanks for the tips re the ice-pops and ginger biscuits. I'll let you know tomorrow evening how it went. Off to bed now but probably won't sleep much as I feel sick with nerves!!!
tks for the advice about the in laws.
my 13 yr old asked me today to see my scars from op. he thinks im cool now as i have scars. think i will give him the link to chat to other kids who's parents are going throught this. he has only told a couple of his mates about me.
does anyone else here get very tired easily, not that im doing much to get tired. my mum wont even let me make a cup of tea lol
So sorry so many of you are having to have chemo, when no doubt you desperately hoped you would avoid it. Like Elaine, I am getting post-op results on Thursday, so don't know yet.
Elaine, it just amazes me how some people can be so offhand. I am sure it is that they are frightened, for you and themselves, and it is easier to avoid a situation, but even so, not much empathy there, is there?
Good luck to everyone! Ann xxx
It comes as a shock doesnt it. Ive been to my first chemo clinic this morning, just for pre assessment and to meet the oncologist, who is lovely. Im under Dr Counsell at Cheltenham Genral Hospital. I also saw a lady today about getting a wig, a scary thought initially, but actually they look really lovely and Ive decided to get one. My chemo will apparently take about 6 months too, and then radiotherapy, although they have advised me not to work, as I work in the prison service and its not the healthiest of environments!
Good luck with your chemo tomorrow, please let us know how you get on. I will do scared to, but read the posts on this site...everyone says that although its not nice, it is do-able. Apparently icepops and ginger biscuits are a must??!
A few of my friends have been a bit elusive with me too, I sometimes think that people dont know how to react, and worry about what to say. Maybe you should give your inlaws a call and invite them round for a drink, or whatever you would normally do with them? Just to let them know that you are ok, and that they dont need to tread on egg shells around you? I think its harder for others , us girls who are going through this seem to just accept each step as it happens( with a few tears thrown in now and then). Mick must be finding it really hard too. Dont be too hard on him.
Something that was really useful that was given to me at the oncology unit this morning was a card for each of my teenage children, they are 18 and 16. It gives information of a website where teenagers whose parent has cancer can chat to other children in a similar situation. I really hope my kids make use of it. The site is http://www.riprap.org.uk just thought id share that with you all.
Ive also booked a' look good feel great 'makeup session for the end of October, aparrantly teaches makeup techniques of how to apply makeup when you have little or no eyebrows/ eyelashes, so should be beneficial.
Hope you all have a good week.
this is only my second time on. have had a partial mastectomy and lymph nodes removed last mon. go on thurs for my results trying to be postive for all the family.
still very sore. walk around holding on to my breast.
im getting really pissed of with my partner's family at the moment. they seem to be avoiding me like i have the plague. they will drop him of at the door and not come in. its not like im looking them to feel sorry. but it is causing arguments between mick and me. his mum hasnt even phoned me since i came out of hospital. am i making a big deal out of this.
sorry for blowing of some steam but i just needed to get this of my chest.
Hi - I had a WLE and SLN Biopsy three weeks ago. Like you, I was told last week that I needed Chemo and Radiotherapy and it was like a blow to the stomach! I'm due to have my first chemo session tomorrow and I'm absolutely terrified!!! But we can get through this and need to keep positive about how it is going to help us in the long run. Hugs x
Deb - I have been to hospital this morning to see oncologist and had same news as yourself i.e. I need chemo. What has surprised me is that I did not know it would be over such a long period. I am on a 28 week timetable, due to have first chemo injection next Friday and then every 3 weeks or so, which means I will not be finished till about the end of April next year. Wow!!!
Then radiotherapy after that.
I am now thinking of going back to work in the next week or so. I work part time and oncologist said it would be good to have life as normal as possible, although just to be aware that some days/weeks may not feel as good. Just trying to get my head around everything now but know it will all be for my good long term.
Hope everyone else doing OK.
Havent been on here for a few days. I found out on Tuesday that I have to have chemotherapy, followed by radiotherapy, was very upset as I really thought Id 'get away ' with just having radiotherapy. Ann.....radiotherapy has very few side effects, mainly sore skin and tiredness. Chemotherapy is what causes hair loss, etc. I think Ive got used to the idea now, and once Ive seen the oncologists then I will go and get my hair cut short, something Im not looking forward to doing, but hey ho...it has to be done.
My wound is healing really well considering it was opened up twice and Im feeling loads better physically, which is also good. Just want to get this all over and done with and get back to ' normal'
Annie...thats really good news that you dont need any further surgery.
Hope you all have a good weekend.