69.2K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Hair loss

26 REPLIES 26
Lilamj
Member

Re: Hair loss

Look at here! Click this website: www.ewigs.co.uk. you will find a new wigs world. 

There are some coupons for you. Just input and apply the coupon code: MJEWIGS, when you make the order. Then 5 pounds will be reduced and this code is always valid for you. By the way, the shipping is free. 

If any other questions, please tell us without hesitate. We will try our best. 

proudprestonian
Member

Re: Hair loss

My middle daughter came with me to my first chemo where I tried the cold cap. We share the same sense of humour and spent most of the time giggling. When we are together we are like kids. It certainly passed the time. The cooling cap is not for me as I left the hospital with the beginnings of a migraine. It took a couple of days to get rid of the migraine and have been deeling really well since.
Lucy58
Member

Re: Hair loss

Hi everyone

 

I had chemo 2 years ago. Having heard how unpleasant the cold cap could be, I decided not to bother going down that route.

Two weeks after my first chemo dose, my hair started coming out. I clippered my hair short, then shaved off the rest. I had been fitted for a wig, but never wore it. I chose to go bald everywhere and only wore a cap when the weather started turning colder. 

I did get odd looks from some people, but I usually said to them "have you never seen anyone with a bald head before? I am not an alien!" . 

Hair soon starts to grow back..........like baby hair and I used baby shampoo. x

SIN CITY WIGS
Member

Re: Hair loss (WWW.SINCITYWIGS.COM)

Please take the time to check out SIN CITY WIGS.  We are a LV based wig company that has provided wigs to all sorts of customers, from alopecia patients, cancer patients, and people who just want to update their look.  We provide designer wigs for discount prices.  SCW carries the latest styles from top brands such as: Raquel Welch, Noriko, Rene of Paris, Jon Renau, Christie Brinkley, Envy, Estetica, Tony of Beverly, Henry Margu, and Louis Ferre. We would also like to give you 20% off your order, no minimum purchase required.  Please enter discount code: FALL20 at checkout. 

WWW.SINCITYWIGS.COM

Check us out on Facebook and Twitter, too! 
https://www.facebook.com/pages/Sin-City-Wigs/614999555306950
http://www.twitter.com/sincitywigs

marli
Member

Re: Hair loss

Well done sazza. Hope you keep it up. Be prepared to lose some hair , it seems a lot but really compared to how much is on our heads it is not. Don't was it too much , I did it every 10 days or so. If the hair lose worries you try wearing a broad hairband, especially when in the kitchen.

Agree with riversidedawn re painkillers and chin strap.

One lady told me I looked like Mother Theresa ! Good luck. Marli x

riversidedawn
Member

Re: Hair loss

Well done sazza - I forgot to say I always took tramadol half an hour before capping, made it much more bearable. And a bit of soft gauze under the chin strap - put the strap in the boney bit not underneath.

My friend thought I looked like a skydiver in mine!!
sazza38
Member

Re: Hair loss

Had my first session today, the cold cap was horrible! I hated the squashed face feeling and thought I was gonna ask to have it removed but no I stuck it out- I just regularly put my fingers under the chin strap to make it more bareable - hoping it works. It helped taht my first session I had a nice lady who was also on her first session and we had a bit of healthy encouragement to keep going - got told we looked like jockeys- if only we got paid as much as frankie detoury to wear it - will keep you post how it goes xxx
riversidedawn
Member

Re: Hair loss

Great thread ladies. I would definitely recommend cold capping
The fit is very important so take time doing that. I had a total of 3 x 3/4 weekly fec followed by ,11 weeks of weekly taxol. 14 cold csps of around 3 hours each. If I can so it, you can too! I probably lost around 50% thickness but all over
I coveted thinning scalp with comb over. Clumps did come out after first chemo but the no more. Eyebrow and lsshed departed about weeks
June_BCC
Member

Re: Hair loss

Hello  Katya

 

Welcome to the forums. 
Just to let you know we have a helpline should you want any support or practical information, the free phone number is 0808 800 6000 and lines are open 9-5 Monday to Friday and 10-2 Saturday.

 

Best wishes

June, moderator

Katya
Member

Re: Hair loss

Hi, the whole hair loss thing is very personal but the patients decision should be respected regardless. My choice was to see what happened as a friend had the cold cap which extended her treatment time, caused pain and she lost it all anyway and had a wig. I chose to shave my head on the day of FEC number 2 as it was patchy and looked ridiculous and I have got by with using normal scarves and tieing them around my head rather than buying chemo scarves and hats which makes it look more obvious. I am now on Docetaxil with two more to go and my hair is starting to grow albeit fluffy stuff! Go with whatever you're comfortable with, the way YOU feel is what matters.
1981mum
Member

Re: Hair loss

Good luck to those using the cold cap
I personally couldn't face it and chose to cut it all very short before it eventually fell out
My wig is lovely, very comfortable and I'm 90% happy with it
I must confess I just go bald at home, and don't bother with hospital visits but I'm getting more and more comfortable
I should also add I'm generally quite a vain person, I've had long thick hair all my adult life and I sobbed when it fell out but you kind of get used to it.
I've just had found 4 and it's starting to grow back ever so slightly but fine baby hair is definitely growing x
Don't be scared of being bald, it's only temporary and not as bad as you might fear x
June_BCC
Member

Re: Hair loss

Hello Smurff77

 

Welcome to the forums.

As well as the forums we also have a support helpline where the staff can offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.

 

Best wishes,

June moderator

Smurf77
Member

Re: Hair loss

My advice is go for it, it doesn't work for everyone (it didn't me) but anything is worth a try and your hair is such a personal thing and a big part of the persona you present to the world regardless if you have breast cancer or just a spotty face. 

 

I don't understand why some onclogists try and deter you from trying it, mine was brilliant and offered it up before I could ask (I was prepared to go in and beg rather than face losing my hair), she did point all the negatives, that it may not work and that I would definatley lose my hair around the 4 week mark, in the end about 75% fel out in one hit at about 3 1/2 weeks despite two goes with the cold cap so I ended taking the decision to just shave the rest off as I hated waiting fo the rest to fall out with every stroke of the hairbrush.

 

Having the cold cap itself wasn't a bad experience either, although very (very) cold, I oddly found it amusing, don't get me wrong the brain freeze can be uncomfortable but the expressions on the face of the person accompanying you tying to decipher what you (the most drunken/sober person they've ever probably clapped eyes on) are trying to communicate raises a chuckle in what is usually a very draining afternoon, especially for the chemo nurses!

 

Good luck xx

Julie286
Member

Re: Hair loss

Ps. A tip.... If you are using the cap, don't use your favourite conditioner ..... You'll never be able to stand the smell of it again once you're finished!!!! Xxxxxx
Julie286
Member

Re: Hair loss

Hi there! I'm a year (yesterday actually!) since I started my chemo (finished 1/10/14) and I used the cold cap throughout my treatment. I almost gave up 10 minutes into the first session as it was more painful than I anticipated, but the lovely nurses encouraged me to keep it on and assured me that the pain would dull - and it did. It was uncomfortable there's no doubt about that - but manageable. In the leaflet it shows a lady finishing her treatment with a full head of lovely hair.... That's not happening! I couldn't believe how much hair I lost - yet still had a reasonable covering on my head. It seems to go mostly over the top, so a wide stretch headband was my friend for a number of months! For me it was about being able to walk in a room of strangers and not have their first thought about me be 'cancer patient'. Their first thought instead may well have been 'weird choice of headwear'... But that's fine!!! Once treatment was coming to an end and my hair started growing back (about session 5) I was in danger of getting a full on mullet so I went and had all my longer pieces cut off into a 'pixie' style cut. Not my first choice of hairstyle but it was amazing how many people commented on my hair and just thought I'd gone for a dramatic change - they hadn't even realised I was going through chemo. It's very much personal choice and I really do admire people who cope well with the hair loss - but for me using the cold cap meant one less emotional trauma to deal with. Good luck on your journeys - you'll get through it and you'll be stronger and braver than you ever imagined..... If a little cooler round the head area!!! Xxx
Elaine56
Member

Re: Hair loss

I had the cold cap the first time but lost a lot of hair off the top of my head. On the second chemo, after discussion with the lovely nurses we decided that I was perhaps just delaying the inevitable. My hair loss troubles me. I had my hair cut very short, not clipped because my scalp was rather tender, because I just couldn't cope with hair falling in everything, particularly preparing food, although I do cover it with a hat. I have one more chemo session. Can anyone tell me roughly and I know we will all be different, how long it is before hair starts to grow back after the final session. Love and best wishes to you all. Take very good care of yourselves, rest lots, eat well. Elaine xx
sazza38
Member

Re: Hair loss

Thanks guys I've got the pdf form the cancer hair care site, and have been on paxmans site too as that's the cap they have.
Had my hair cut to shoulder length and a few layers so hoping that will help- my hair was getting too long anyway- seems a shame I keep,going on a grey hair hunt- seems so trivial!
Bought a fabric headband takes back to my school days, with a bad perm!
Got my first session on Wednesday next week- going for bloods etc Tuesday. Nurse asked if I want the cold cap, and with ever nurse I speak to they all seem to be set against it, and was annoyed no one had sorted my wig voucher out! - hoping can cram that in this week! Fingers crossed I won't need it!
marli
Member

Re: Hair loss

Yes Deehart I agree absolutely with your advice. If you have good nursing staff it does make a difference but if you have some knowledge from others you can ask  to have some done. Don't be afraid to say if you think something is not right. A lady the other day was told she only needed the conditioner and did not need it wetting - we had a little discussion and she asked for it to be wetted. It's our hair so it is only fair that we can say what we think.

I too kept my hand on my head for some of the time.

If you can't feel the cold on the top of your head ask for a bigger cap. My nurse used a medium cap and a small cover and I liked it fastened tight. Never thought to tie a bandage round.

There is lots of information on the official Paxman site too.   Marli

Deehar1
Member

Re: Hair loss

Hi

 

Ive had my third of four chemo treatments and have worn the cold cap from the first. A few tips that I wish I had read or that someone had given to me at the outset ...I have about 50% of my hair to date so it has thinned a lot but I think that I may have lost less if I had from the outset:

 

1. Read the cooling system manufacture advice about fitting of the cap and spent more time determining the right fit for me - I used the Paxman system and their advice was pretty good but I tried a bigger cap in the second chemo round and lost a lot of hair as a result of it not being a really tight fit.  

 

2. I was told after the second round (when I lost quite a lot on top) that many woman add a bandage on top of the cold cap standard gear or press down on the top of their head when having the treatment to help the cap contact with the head - I tried this in my third round and so far have lost a lot less hair than in round 1 and 2

 

3. Double checked the time I needed to wear the cap based on the drugs I was on. Because it's a combination of 2, the recommended timings are different and in my first 2 treatments, I wore the cap for the minimal time - during treatment 3, I kept it on for the maximum for the second drug and as per above, have so far lost a lot less hair - this might be co-incidental but I am happy to try anyhting to get the best possible result!

 

I think I had high expectations that the heathcare professionals in the hospital would be experts in the system but I didnt find this to be the case - so reading good advice, looking at the manufacturers guidance and spending a bit of time ensuring the fit of the cap is time very well spent!

Mysticalmoo
Member

Re: Hair loss

Hi I am a year on (finished chemo 3Jul14) and used the Paxman cold cap. I lost a lot - kept a good fringe and a covering all over but you could see my scalp on top. I used a wig for posh occasions but mainly used scarves with my own fringe showing. No one would have known...

My hair started growing after the 5th treatment and was fully covering my scalp so that I could get away without my scarves by beginning of September. I cropped my hair short to blend the new with the old. 11 months on, I now have a short bob and have been having the sides and back cut to allow the top to grow out.

The hairloss was the worst part for me (I know that sounds self indulgent and trivial) but I found people's looks and sympathy (with the head on one side and odd hugs from acquaintances!!!!) so hard to deal with. I wanted to feel like I was still me... And my hair was part of me.

I thoroughly recommend that cold cap. It hurts and adds time to each session but i am certain that it helped me keep a covering of hair and I am certain it helped it grow back so quickly and so thickly.
Good luck with whatever you decide, but my experience was good. Take care
Rebecca x
marli
Member

Re: Hair loss

Hi Sazza. Finished chemo 9 weeks ago and used the cold cap because I lost my hair 6 years ago and wanted to keep it this time.  It is not the most comfortable of experiences but if you persevere it will hopefully be worth it. I have kept most of my hair although it is thinner and a finer texture but IT IS MINE !

I did not find it too bad and even asked the nurse if it was working because I was so surprised that I could stand it even after all the horror stories. It was working at -4 degrees and I had snow on my head when it was removed.

Some tips to help :-

Use a head band around your forehead and ears.

Wear warm clothing that you can layer, including socks.

A woolly scarf or towel around your neck under the pipe helps keep the cold at bay.

Plenty of hot drinks through out.

Take 2 paracetamol about an hour before to help with headache.

Don't get down hearted and shave it off because you do lose hair  throughout especially at the beginning but it does slow down and it is amazing how much hair you have on your head.

 

The website www.cancerhaircare.co.uk has loads of information on scalp cooling and you can send for a booklet to download which gives very useful information regarding all stages of use.

To us ladies our hair is very important so it is worth a try.

Good luck. xxx

sazza38
Member

Re: Hair loss

I'm definitely hoping to try the cold cap, I'm having my hair cut shorter as its passed my shoulders now and my friend is colouring this week - hoping that the fact I have thick hair any hair loss won't be too noticeable - I was planning on clip,in hair extensions if needed. Having said this ive got a wig and a large head band on order just incase - I'm one of those that hates a cold head in winter so not sure how I'm gonna cope! X
Janice
Member

Re: Hair loss

I have used the cold cap for 4 cycles now,I have still lost a lot of hair, waring a hat no one would know still have fringe and hair at sides,have some top and back but that's where its thinned badly. I think it has helped not losing it completely as when I look from front its OK.  The cold cap is very uncomfortable especially the first 15 minutes, after that not too bad but it does make the treatment time much longer, 30 minutes before and 2 hours after.

 

My oncologist actually suggested I used it,I wasn't going to bother. I have lost so much hair I have at times wondered whether to carry on with it but I've gone this far may as well see it to the end.

 

Good luck.

 

Jan

Smash73
Member

Re: Hair loss

Hi Sazza. I am day 21 of first fec-t cycle and used cold cap. So far I have had a little hair loss from the ends, but otherwise still there. I was discouraged by oncologist also about using cold cap but when I went for the chemo information session the nurse was very encouraging. I have bought a wig and some scarves just in case but so far so good...though I know I have a way to go!! I too have had surgery already. My main motivation for trying it was my eldest-(8 year old), who seemed a bit freaked out about me losing my hair. If I do, so be it, but at least I gave it a go. Am hoping I have stubborn hair follicles. I will let u know how I get on but I say go for it if u want to, good luck.
Herewego
Member

Re: Hair loss

Hi Sazza, by all means try the cold cap and see how you get on. Different people react differently to it.
I tried it for first 2 chemos but couldn't get comfortable with it (especially the big pipe at my neck) and my hair was coming out anyway.
Having said that I've known many women who have persevered with it and ended up with hair that looks ok - albeit thin and patchy but they have managed to cover it up and look normal.
Hope the cold cap works for you x
Patricia11
Member

Re: Hair loss

Sazza 

 

I am so very glad  to read your post because like you i want to try and keep my hair yet unfortunately for me i am having treatment at a hospital that does not offer cold cap.  Yet it is routinely offered at 3 other local hospitals without problem.  So just because i am attending this hospital i have to accept the fact that in will be left bald and traumatised very badly by this.   Once my hair is gone it will never return the same as i have long hair so i have decided to hire cold caps and bring them to the hospital myself yet i have had the BC nurse and others warning me about the dangers and that i risk scalp a given and brain metts

 

This is bloody ridiculous as they are routinely using it now in so many hospitals as long as the drugs being are compatible.

 

Loosing your hair iand being left totally bald is a massive loss and its worth fighting to keep it you can and that is what i intend to do.

 

Tricia

sazza38
Member

Hair loss

So yesterday. I met w its my oncologist who nicely informed me that I will experience hair loss with the chemo I'm having, I kindly told her I'm going for the cold cap - at which point she pointed out all the negatives!
I look at my diagnosis that now I've had my lump removed and nodes 1 clear out of 2 that the cancer is gone- the chemo, herceptin and hormones are just to kill off and prevent anything nasty lurking and I'm grateful at that.
But is is so wrong for me to want to keep my hair? My dad and my other half keep telling me I'm making a big deal ( coming from two practcially full baldys!) but it is too me!
All I get is its only hair and will grow back!
It's been bad enough going to appoints in other departments of the hospital and having your arm rubbed and the Aww poor thing comments cause they've read why I'm their! - I chosen the people I want to know about my situation and if I wanted every man and his dog to look at me feeling sorry for me I'd wear a neon sign to announce it or even better put it on my status on facebook! - am I being over dramatic? X