Hazmat suit, I'm afraid, Cherrybakewell, and for the rest of your life if you have LN removed! Not so much the dirt but the chemo does funny things to your skin, so I was advised to wear gloves for cleaning and washing up. Nasty chemicals in our household stuff so be careful. I bought packs of disposable gloves from my local supermarket. Nice and thin so easier to wear,mi thought. I had a full lymph node exision so have to wear them forever, now as my immune system is compromised. Also, remember if you are gardening you will need to wear gloves as cuts etc will be very slow to heal and get infected easier. Same washing up and knives. Probably not what you want to hear! I always carried sanitiser and antibacterial wipes when I went to the supermarket and out to restaurants. I got some funny looks as I wiped down the trolley handles ! You are so prone to infections after your gsf injections finish I never thought it was worth the risk. X
Hi Ck, sorry to read about your daughter's meltdown, but it probably wasn't really aimed at you personally. My YD hasn't felt well recently and had to go to the doctor's and having blood tests, but she said it's improved since we were told my scans were clear, so maybe your daughter's anxieties have come out in her sudden outburst. Not nice for you though and I can understand why you feel so hurt.
Funny about our ex's-didn't think I'd be staying in his caravan and his wife would sort out my wig! But as you say, I don't care now! I did draw the line with him coming with me to my oncologist's appointment tomorrow though! Both my daughter's suggested that he could take me! xx
Hmmmm, don't think I've got a coat with a hood actually. May have to invest in one. I'm thinking something long and furry like those that Boney M wear in the Mary's Boy Child video. Will go perfectly with my Danny la Rue wig and surely won't stand out in sleepy Clatterbridge. I fear I may have already morphed into the third member of your chums' drag act... 👯💃
And I am a sicky person so shall definitely try to wheedle Emend out of the chemo nurse xxx
I still haven't figured out what hat I'm going to wear on the way home from hospital. I looked at bobble hats with the big fur poms poms but whereas some people look really cute and loveable in them, I'm working more of a Benny off Crossroads vibe. My hair will also be full of ice and conditioner from my the cold cap treatment so whatever I wear with get all cruddy. I've seen a sort of 1920s cloche hat which was passable but not sure Lady Mary from Downtown Abbey would pair it with the soft fleecy top I'll be wearing. Ha.
Given I'm still concerning myself with such trivia possibly indicates I haven't fully grasped the enormity of what's about to hit me. Denial is marvellous thing... xx
By the way, CK, I asked my oncologist about Emend as I said I'd heard it was very good. She said it was not a first line anti-nausea drug. That I translated as "it's expensive and you'll only get it if you're sick as a dog". She mumbled something about it brings with it its own problems - but I think those are mostly budgetary!!
She also told me that the cold cap would give me an ice cream headache for 7 hours!!! I've researched my fingers to the bone and absolutely nowhere have I read anything even approaching that. I'm guessing the cold cap adds both cost and increased hassle for the nurses, so that'll be a black mark on my file!! Bet they've got me down as Princess CherryB already. Wait till I pitch up with my Earl Grey tea bags... 😜👍🏼
Anyway, night night everyone. Hope you all have a pleasant Dream Cream/Valerian/lavender-induced night's sleep. Thanks so much for everyone's advice and support - think you're in danger of putting the Breast Care nurses out of a job, who needs to ring them when we can just hop on here with a question!!! Brilliant xxx
Annie, thank you so much for popping back over here with your helpful advice and CK, I knew I could count on you!! Just finishing my mass Autumn clean of everywhere. Will I still be able to do housework with my newly enfeebled immune system or will I have to wear a hazmat suit every time I clean the loo or empty the bin?!
Hi Cherrybakewell, popping in from May chemo. I wore comfy clothes - not at all my usual style. Layers in case I was hot so could add or remove as needed. Short sleeves to get at arms for cannula in case hands didn't cope. I ended up with a selection of cotton tunics with front fastenings. Cotton because my skin sensitised, and also it is absorbent. Front fastening as I ended up with a Hickman line in my chest so needed to allow the nurses access. My chemo lasted over an hour, so I made sure my trousers had some stretch so I could recline nicely in my chair! Always had the earrings, and as the hair disappeared my earrings got bigger! Always had my nails manicured with a dark varnish just before chemo. Used Aveeno moisturiser from day 1, and the hospital replaced it as needed. Check make up has no parabans or other nasties that will irritate your skin. Got to keep up the appearance! Good luck X
Yep, this Wednesday, CK. Starting to feel slightly trepidatious. Quick question - what did you wear for chemo. I'm assuming something comfortable? May have to wear a slight heel. Can't let my standards drop just cos I've got cancer... 👠💋😂 xxx
Evening CK, evening Rosie!!
Feels like ages since I was last on here. Allowed myself one last weekend of freedom/denial before chemo starts on Wednesday.
CK, as ever you're taking things magnificently in your stride. I think I've been pretty stoic since my diagnosis but I know for certain that I'd be feeling extremely sorry for myself if my hair was falling out in clumps. I'm sure it will happen despite me giving the cold cap a go. In some ways I need to lose a bit of hair or I'll have the worst of both worlds: my real hair looking like manky rats' tails without the benefit of a hairdryer and hair colour and my wig just perching precariously on my head if I keep most of my hair. May not have thought this through properly... Ha!!
I know what you both mean about us having to comfort other people - I've only really had to do that with friends and family so far as obviously I don't currently look like I've got cancer. Not relishing the prospect of mooching round in my dodgy wig having to explain to clients and business contacts. But then every aspect of this disease seems to have been designed to be a challenge 🙄 Xxx
Oh CK, you made me laugh about robber and nun! I do admire your attitude, I'm dreading losing my hair when I have chemo. I keep telling myself it's only hair and lots of people are far more poorly xxx
CK you are an inspiration. 😀 And I am now humming tunes from Sister Act.
You know what? I seem to be spending more and more time managing other people's reactions to my breast cancer. I know it is often due to their simply not knowing what to say, but it does get a bit tiring sometimes. Is that horribly selfish? (I don't think so ......).