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Half dozen liver mets

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Re: Half dozen liver mets

 
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Re: Half dozen liver mets

 
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Re: Half dozen liver mets

I am 55 and live in London.

i am awaiting a clearer prognosis following scans and biopsy.

holding onto your positive outlook. I find sometimes mindfulness helps. We're struggling here too as my partner is closing his business's. Strangely might just help us focus on what we want to do next. 

One day at a time. 

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Re: Half dozen liver mets

Hello Sam. Thank you for posting. I work for BA as a Cabin Crew Manager. Going to work makes me feel normal. I look good at the moment, nobody would know there is anything wrong. I am being treated at The Chrsitie in Manchester. The bone met has terrified me. Sadly children were never an option for me.

i can imagine your fear, anxiety about telling your son.

if you look back at my posts you will get an idea of what I have been going through.

lets stay in touch Sam. 

Tell me a little about you. I am 52 and live in Cheshire

Debra. xx

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Re: Half dozen liver mets

Hey Louis

Thinking of you - this looking at a grim prognosis is tough! making each moment matter

I have just heard my own diagnosis of lesions on the liver, and freaking too.

looking around for something that I cam do to get back in control is hard.

I have only comfort and holding to offer, and wanting to stay in touch with you,as I too am terrified. Telling my son was the hardest.

Here's to us finding out the best treatment, and at the same time making every moment matter. I can't believe this is me saying this now. Middle of the night ramblings etc etc

please keep posting, because I don't know what else to do. 

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Re: Half dozen liver mets

Hello. I have been informed from my Oncologist that the liver mets have grown and some new ones have appeared. There is a tumor on the lower spine too.I asked about my prognosis which is more like 2 years than 5.

i have spent the weekend in shock with my partner. I have been offered Fulvestrant and a trail drug AZD5363.

I am also recieveing Denoumab in injection form.

i have just got my life on track, I love my job working for an airline. I feel devastated.

i want to run away.

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Re: Half dozen liver mets

Louis, we all understand how you feel and yes,it's very scary. You are protected under the disability discrimination act if you have Cancer. I'd ring the bcc help line or a macmillian line to know your rights.
I would ask onc why you are on tamoxifen and not letrozole as you are menopausal.
You will get lots of support on here so try to remember you are not alone and we can try to answer your questions or give hugs.
HuGet hugs,Helen xxxxxx
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Re: Half dozen liver mets

Hi Louis
Tamoxifen works on hormone positive BC whatever your age, it's only the AIs that only work post menopausal. As to work you are covered under the disability rules therefore you have the same rights as anyone with any disability. Awful that the phrase has to be used but it will cover you therefore your employers have to make concessions. Also, if your hours have to change in any way there are benefits you can apply for such as PIP (which isn't affected if you are still working) and ESA which all help when your income may be reduced.
Nicky x

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Re: Half dozen liver mets

Thank you for your support. I first had BC in 2001, devastated that I was diagnosed again in 2013.
Now this bombshell.
I am 52 and thought the Arimadex was working. I asked could I have surgery and he said no.
Do you think the Tomoxxifen may work even though I am menopausal?
I too have a demanding job as Cabin Crew, whilst I was off sick two years ago they tried to terminate my contract. I am so frightened of everything.😰
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Re: Half dozen liver mets

Hi Louis

I am sorry to read that you are so worried, don't forget our helpliners are here for you too

I am posting a link to the BCC secondary pages where you will find Information about treatments and further support ideas , I hope this helps :

http://www.breastcancercare.org.uk/secondaries?utm_source=Homepage&%3Butm_medium=help_you&%3Butm_cam...

Take care
Lucy BCC

Helpline 0808 800 6000
Weekdays 9-5 and Sat 10-2

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Re: Half dozen liver mets

Hi Louis.
I think nicky has said it all.I was dx with secondaries to the liver at the same time as my primary dx which was very frightening. Having never had chemo before I decided to go in as agressive as possible, taking advice from my team but very much feeling comfortable it was what I needed to do. I am presently NED and have just come out of hospital having had the first stage of my reconstruction done. My onc says there is no reason why I shouldn't stay in remission for many years. I stay on treatment (Pertuzumab + Herceptin +Tamoxifen) but life carries on. The ladies on here offer great support and advice so feel free to ask questions. This time for you in scary but there are lots of success stories out there and treatments continue to improve. x
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Re: Half dozen liver mets

hi louis

 

i too was initally diagosed with liver mets and am est positive. i was put on tamoxifen and it worked very well for 3.5 years with very little side effects. i also had a liver ablation where they burn out the cancer in the liver. sounds horrible but really not. overnight stay in hospital. 

4 years on from diagnosis i am still well sand fit and working full time in a demanding job. am currently on a trial drug but if that stopped working there is a huge raft of drugs - old and new ones that will allow you to carry on with quality of life. 

 

 

 

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Community Champion

Re: Half dozen liver mets

Hi Louis
I too have liver mets which were diagnosed 4 or so years after my bone mets and I know what you are feeling right now. It's so scary but I did find a huge amount of support and knowledge from this forum so Its definitely the place to share those fears. One thing I would suggest us to have a liver biopsy if they can do one. This will be based on any of the lesions being able to be accessed. The reason is that your receptor status can change from your primary diagnosis, especially your HER2 status. I learnt from the forum that up to 30% of HER2 - BC can change to HER2+ and this then changes your treatment options. Mine changed after nearly 10 years of being HER2- to HER2+ and my onc was more surprised than I was when I got the results back. Having said that if your BC is still just hormone positive then hormone treatment would still work. The other treatment option that I went on and many ladies on here with soft tissue mets are on/ have been on is Capecitabine.this is a tablet form of chemo that has none of the nasty side effects of IV chemo. This may be worth discussing with you oncologist as well. If your blood results are all good it's a good sign that the mets are not affecting them in any way and they can be used as a guide to how things are. Normally you will have a scan about 3 months into any new treatment to see how things have changed. Btw your BCN needs a kick up the whatsit. What on earth was he doing crying? That doesn't help anyone let alone the patient. Please check out one if the liver mets threads there are many ladies with liver mets living with their diagnosis years after it's happened, me included.
Nicky x

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Re: Half dozen liver mets

Hi Louis, hope Tamoxifen works well for you. I was scared of having chemotherapy, I thought I would lose all quality of life but somehow we adapt and I have truly found some chemo, have had three types now, very doable. Take Care. X
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Re: Half dozen liver mets

Louis,so sorry about your latest diagnosis. We all understand how you feel.
If you are ER+ (hormone positive ) you have lots of options. But somewhere along the line chemo will have to come into play. You need to write down all your questions to ask onc when you see him. My hubby does the asking as I'm concentrating on not crying . It is helpful to take someone with you for support and an extra pair of ears.
If you are not menopausal Tamoxifen is a good drug and people have good results with it.
Hugs,Helen xxxx
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Half dozen liver mets

I have liver mets which are very small. I had oestrogen positive Cancer so I have been taking Arimadex.
I am so terrified I can hardly breathe. Oncologist has changed my medication to Tomoxxifen.
Has anyone had results from this? I don't want chemotherpy again. I was just getting my life on track.
I am seeing the Oncologist in July.
Even the BCN cried when he told me. Blood tests indicate everything is normal.
Please help me.😱