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Has tamoxifen stopped your periods?

22 REPLIES 22
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Re: Has tamoxifen stopped your periods?

Thank you for asking this question - one of the questions I asked my consultant was whether chemo/tamoxifen would hurl me into the menopause (I'm 41), and she thought it was very likely, in her words 'if the chemo doesn't, the tamoxifen will' - but it sounds from all your experiences that it may not necessarily happen. One I can shelve to the back burner of my mind until if/when it happens, now!!

Thank you all for sharing - the honesty on this forum is something I am really appreciating.

Sophie x

Re: Has tamoxifen stopped your periods?

My periods stopped after my first Chemo in April 09. I started on Tamoxifen in Aug 09. I have had 3 periods in June, August and October this year. Have no idea what's happening with them so will just have to wait and see. I'm still getting flushes and night sweats too which makes it all very confusing. I'm thinking maybe next year the ovaries and womb maybe going anyway...once I build up enough courage!!!

Fee xxxxxx

Re: Has tamoxifen stopped your periods?

before BC no1 i had been on cerazette minipill and had no periods for the time i was taking it but when i started tamoxifen they were ok the first month or two but then became horrendous... got mirena put BC was 100% but the sytemic effects from mirena are negligible.... slight spotting for a few months then nothing woop.

got BC no2 this time was completely hormone negative so no affect from mirena so kept it in during treatment but had to stop tamox when having chemo and had one massive period after 2nd or 3rd chemo then no more periods until this august when they went a bit barmy with 10 bleeding a week off then started again :(.... id restarted tamox about april.

i already was on waiting list for oophorectomy anyway as i have the brca 2 gene mutation which also causes ovarian cancer and after my pre-op scan still showed endometrial thickening despite the mirena in situ i decided just to have a full hysterectomy, which was 6 weeks ago... so goodbye to my mirena and periods for ever.

but did tamox stop my periods? no it made them very heavy, prolonged, crampy and more frequent.

Lx

Re: Has tamoxifen stopped your periods?

My periods stopped approx 6 months after starting Tamoxifen 🙂

Incidentally I tried the Mirena Coil 8 years ago due to having very heavy periods and it didnt help at all 😞

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Re: Has tamoxifen stopped your periods?

Hi there,
I'm 36, been on tam for over a year now and my periods went back to normal after having my mirena taken out. Copper coil fitted, and heavy and as regular as clockwork with the added bonus of hellish pmt. No signs of mine stopping! Unfortunately. Interesting to read how different everyone is.

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Re: Has tamoxifen stopped your periods?

Hi,

Mine stopped after/during my first cycle of Epi at the age of 41 and have never returned and i have been on tamoxifen now for over two years.

Deb

Re: Has tamoxifen stopped your periods?

My periods stopped in april on my second A/C JUST STARTED TAKIN TAMOXIFEN bout 10days ago i am 44 my onc isnt sure weather my periods will return at all have to do blood test to see if im pre-post menapausal heres hoping they dont not sure im that lucky

Re: Has tamoxifen stopped your periods?

Interesting thread!
My periods stopped after the third FEC, back in February.
I then had one a fortnight ago, heavy , but not totally unbearable.
Not sure what to expect now, maybe they are on their way back, i really don't know!

Re: Has tamoxifen stopped your periods?

Very interested in this. When I asked my onc what the plan/timeframe would be for me to be able to try for a family, he said that after I come off Zoladex (not for another 15 months yet), I have to stay on Tamoxifen until my periods return and then come off the Tamox to starting trying. I did whether Tamox stops your periods and he said no. We shall see.... someone else will be my onc by the time it comes around (current one is leaving for a new job in Canada), so I shall ask again nearer the time.

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Re: Has tamoxifen stopped your periods?

Mine have been almost to the day since i was diagnosed last april. Chemo barely changed them and tamox hasnt stopped them either!

My ONC said she would be surprised if they continued after a year of tamox- that would be December...lets see!

S

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Re: Has tamoxifen stopped your periods?

Although tamoxifen doesn't stop oestrogen but as Lemongrass says disrupts it's ability for cells to absorb oestrogen, on the medication leaflet as side effects it says 'it may cause mensstrual disorders including unusual or no regular periods or changes to the lining of the uterus.' Both my onc and consultant said three and a half years ago when I started on it, that it was more common for periods to stop on tamoxifen than for them to carry on. Unfortunately I have not been lucky enough for them to stop which would have been one slight bonus of taking the tamoxifen!!
Take care
Shorty 2

Re: Has tamoxifen stopped your periods?

Just want to mention that Tamoxifen is not an aromatase inhibiter like Letrozole. Tamoxifen does not stop the production of Oestrogen, it simply disrupts the ability of cancer cells to absorb oestrogen - so it's difficult to see how it could influence menstruation. Chemo can stop menstruation though.

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Re: Has tamoxifen stopped your periods?

Hi there, been on tamoxifen for 8 months. Used to be very regular but went 3 months with no period, then had a mega-heavy one. Next one was 6 wks later, not so bad, then a month later had the third, a bit lighter still. Since july, not a sausage so I'm girding my loins for another explosion anytime soon!

Re: Has tamoxifen stopped your periods?

I am my 4th month of tamoxifen, no chemo or rads. 1st month period 3 weeks late, 2nd month on time but lighter, last month a lot lighter. I was told before i started they may stop altogether.
Jen

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Re: Has tamoxifen stopped your periods?

Hi Ladies!

I am 48 years old and was diagnosed nearly 4 years ago. I too had a mirena coil which I was advised to have removed (had it for 8 years). I now have an ordinary coil. I didn't have chemo - lump out, nodes tested, radio and tamoxifen. I've been on tamoxifen for 3 and a half years and have regular very heavy periods with stomach cramps. My consultant said some women stop others don't! Just my luck to have hot flushes, weight gain, bloating etc with tamoxifen and still heavy periods!!
Take care ladies!
Shorty2

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Re: Has tamoxifen stopped your periods?

Hi cheshirecheese,

I agree about the age of diagnosis being a pain when it comes to the menopause questions! I am 53 and keep being asked if I have had my menopause - I say 'no' as I am still having periods - all be it less regular, longer and heavier!
Been on Tamoxifen for nearly a month now and no period but lots of low tummy pains. Have to wait and see, I guess. I suppose that the Tamoxifen may just be the trigger to the menopause, although my consultant said they don't understand how it works with the menopause and why it is different for different women!

Re: Has tamoxifen stopped your periods?

Hi Susie
I'm finding it no trouble at all. Having it put in felt exactly the same as the Mirena, mild discomfort, but then it was fine. I believe the problem with a conventional coil when you're younger is that it can cause heavy periods - exactly the problem I was trying to solve with the Mirena - but now I'm so close to being over the hill in fertility terms, that is not a problem!
Sarah x

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Re: Has tamoxifen stopped your periods?

Sounds similar to me CheshireCheese. I'd had Mirenas for 11 years, and then got diagnosed with DCIS (ER+) in May at 49. No idea where I am in relation to menopause at all. I didn't fancy a conventional coil in case I got bad stomach pains with it, and I was fed up with having things done to me. How are you getting on with yours?
Susie.
x

Re: Has tamoxifen stopped your periods?

I had to have my Mirena coil removed too since my BC was ER+ and PR+, I was so upset, the Mirena suited me so well! I've had it replaced with a conventional coil. Not had a period since 2000 due to Mirena coils, been on Tamoxifen for 2 months and no sign of a period, but I'm 51. In fact the Mirena has proved to be a bit of a buggeration factor because one of the first things the medical people always want to know is whether I'm still on my way through the menopause or have reached the end of it, and thanks to the Mirena I've no idea. Further complicated by having started HRT last year, which of course has now been stopped. Blood tests have proved inconclusive, so I'm now on Tamoxifen and Zoladex for two years. The conclusion seems to be make sure you aren't diagnosed with BC around the age of 50, particularly if you have a Mirena coil!

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Re: Has tamoxifen stopped your periods?

i had my mirena taken out, too. My C was er+ as well.......

i did have chemo (fec) but my periods havent come back . My onc said that they can return up to 2-3 years after chemo/taking tamox. Im 43. Not had a period since Nov '09 when i started the fec.
eva

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Re: Has tamoxifen stopped your periods?

Me too - had to have my beloved Mirena coil taken out. That has had such knock-on effects in terms of the monthly menace and contraception choices. My hubby is investigating having a vasectomy - would never have thought I'd see the day!
I'm happy not having periods,believe me, but don't want to get too used to it and then they arrive back again!!
Thanks for your post Sandra,
Susie.
x

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Re: Has tamoxifen stopped your periods?

I had to have my wonderful mirena coil taken out(period free for 5 years with it) but my onc wanted it out as I was 100% ER and PR receptive. Went straight onto tamoxifen before rads and after a couple of months being irregular my periods have just settled back down to being regular as clockwork, I'm 46 now and would be more than happy for them to disappear ! You could always mention it to your gp or bcn if you are worried. Good luck.

Sandra x

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Has tamoxifen stopped your periods?

Hi
I've only been on tamoxifen for a month but had no period when I was expecting it a week or so ago. I've not had chemo, but was doing rads from 8th to 28th September.
Does this mean I won't get periods when on tamoxifen? Or is it a one off?
What are your experiences? I'd be really interested to know how we are all affected by tamoxifen.
Thanks,
Susie.
xx