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Have I been unlucky with timescales for diagnosis?

7 REPLIES 7

Re: Have I been unlucky with timescales for diagnosis?

Hi there, this is my first post on the site and I am hoping someone can help.
I had been having pain in my left breast from @ May 2012 and finally went to my GP in July 2012. She examined me and diagnosed an "inflammation of the chest wall" and gave me painkillers. Well it was still sore and I went back to my practice on 6 Sept and saw a different Doc. He said he thought that the original diagnosis was correct and told me to keep taking the painkillers. He didnt even examine me! I left that appt a bit perturbed, but as I was going on holiday the next day I couldnt do anything about it.The pain continued - in fact was getting progressively worse when on 11 Oct, my nipple began leaking quite badly. I went to the doctor the next day. This time I saw my own GP. He thoroughly exmained me and agreed there was a swelling ( he said about the siza and shape of a sausage ( his words). He gave me a two week course of antibiotics and toldme to come back in two weeks, which I did. When I went back on 26th Oct, there was absolutely no improvement and her referred me to the breast clinic.
I had my consultation last Thurs 15th and they were not happy with what they found after comparing two mammograms and an ultra sound with the routine mammogram I had done last year. I had three biopsies done and FNAC. I get the results this Thurs. Apart from the agony of waiting, I have the nagging feeling that I should have been referred earlier. I am worried that the delay in getting to the clinic will have an adverse effect on the outcome of my tests. The specialist at the hosp was not impressed by they way I have been treated by my GP practice and said they should have sent me sooner.
I feel quite badly let down by my GP surgery but Im not sure what, if anything, to do about it.
I'd really wecome some advice! Thanks in advance.
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Re: Have I been unlucky with timescales for diagnosis?

Sounds like a fairly typical wait, but that doesn't make it any easier. Waiting to find out if you have cancer is agony - and the last few hours seemed the hardest for me. My appointment to hear my results ran two hours late, and those hours in the waiting room were the longest I'd ever felt. So sending hugs and strength to help you get through it but try not to worry that the waiting time will impact your prognosis.
Nx

Re: Have I been unlucky with timescales for diagnosis?

I would agree with RevCat this is not an excesive wait for results etc.. I had my biopsy on 26 Sept, got result on 1 Oct, surgery on 30 Oct and result of that on 9 Nov. I can relate to your anxiety over the wait I was really sstressed for the couple of weeks while waiting etc. However, as RevCat says the time will not make any difference. I spoke to my GP when I thought surgery was going to be delayed and he said that a week or two would not make a great difference. Hope it all goes well for you.

Re: Have I been unlucky with timescales for diagnosis?

I would agree with RevCat this is not an excesive wait for results etc.. I had my biopsy on 26 Sept, got result on 1 Oct, surgery on 30 Oct and result of that on 9 Nov. I can relate to your anxiety over the wait I was really sstressed for the couple of weeks while waiting etc. However, as RevCat says the time will not make any difference. I spoke to my GP when I thought surgery was going to be delayed and he said that a week or two would not make a great difference. Hope it all goes well for you.
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Re: Have I been unlucky with timescales for diagnosis?

Hi RevCat
Thanks for your kind words and agree with everything you say - it is exactly what I am telling myself on a 'good day'. Media coverage etc doesn't make me any more anxious and I know medics are being cautious I just want to know what I'm dealing with and then I can get on with it.

Re: Have I been unlucky with timescales for diagnosis?

Hi Kate, in the nicest possible way, we don't want you to join us either!

It sounds as if things have gone at a steady pace, and given the time between you seeing your GP and the first appointment, that this was a 'non-urgent' referral (4 weeks rather than 2)? That, if correct, suggests that no-one was too worried, and that in fact the breast clinic have been extra careful. Worst case scenario, and it turns out to be a tiny cancerous tumour, will this time have made a significant difference? No. Even aggressive breast cancers don't appear overnight, and the profressionals would not put you at risk by introducing delays. Quite often people choose to delay treatment for a week or two for personal or health reasons, and this does not seem to be problematic. I think your surgeon is just being extra careful and saying 'better out than in'. I appreciate some of the recent tv coverage about screening leading to (alleged) overdiagnosis and/or rogue surgeons doing dangerous procedures, may have worried you, but these are just extremes.

Breast cancer is nothing like pancreatic cancer (thankfully), and even if you do end up having to join us, treatments are excellent and prognoses getting better all the time.

Try not to worry too much - easier said than done - and hopefully in a few weeks this will all be a memory.

Sending a cyber hug. cos it sounds like you could do with one.

Re: Have I been unlucky with timescales for diagnosis?

Hello Kate4


Welcome to the forums, this must be a very difficult time for you. I’m sure other users will be along to support you soon.


In the meantime, maybe you would like to talk things through with a member of our helpline staff who are there to offer emotional support as well as practical information. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.


Best wishes


June, moderator

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Have I been unlucky with timescales for diagnosis?

Hi,I have never posted on any type of forum before however I have been dipping in to view this one over the last few weeks! Just thought I would share my frustation and anxieties with you!
I visited my GP 9 weeks ago with a small lump (have had several cysts aspirated in the past). I attended the one stop clinic on 10th October to be told something showed up on the ultrasound but because it was so small (6mm)and sited near my sternum needed more time to carry out a core biopsy, this was done the following week and results on 24th October showed biopsy was benign however unsure if it was a true result as biopsy was very difficult due to size and site. Consultant decided that due to my age (59) and lump size it would be better to have it removed. I had surgery last week - 8th Nov and will receive my results next Wed.
I am a fairly strong person and can deal with facts but the waiting and worrying is getting to me!! I know, if it proves to be 'nasty' then it has been caught early and treatable but on the other hand I do not want to enter in to the 'Cancer Community' again ( no offence to anyone). I lost my husband 5 years ago to Pancreatic Cancer after a short 5 months from diagnosis. I know PC is a completely different 'beast' however I am struggling a little bit and don't want go 'there' again!! Mainly for my grown up family as I don't want them worrying again - only told them a few weeks ago. I am very lucky to have a supportive family and friends I know, but just felt lke a wee rant.