I'd also like to add my thanks to the organisers, volunteers, speakers and everyone who attended and made it a very enjoyable, useful and sometimes emotional two days. A fantastic boost halfway through my chemo for me and I left with a tired but light step and encouragement. Thank you thank you all.
Boloolah, I hope you can make it to the next event. Don't worry that you might have finished your treatment by then. A lot of people there had finished hospital-based treatment but found it very useful for the networking and also talking about moving forward and side effects from Tamoxifen etc.
Welcome to the BCC discussion forums Nixster, I'm sure the support you found at the Younger Women's Forum will continue on here.
I'm glad you found the session over the weekend helpful, I will pass on your comments to the people concerned.
I'm coming from London, I think I'll be bringing some anti sickness tablets it's been one week since chemo 😞 cant go anywhere for two days without my laptop and snacks! xx
I'm 28 similar age to you, I was diagnosed november 2013 with invasive breast cancer i'm half way through chemo.
Where abouts are you coming from? xx
Emma, I'm catching the train up to Victoria, and then taking the tube. I'll see you there 🙂
Hi Pat, I'm getting the train up too. Going up to London Bridge early Friday morning. xx
Hi I am Jo, and from Tonbridge in Kent. I was diagnosed with IDC feb 2012 when I was 41, had chemo then surgery, then rads and now on tamoxifen. Had loads of post treatment commplications throughout 2013, in and out of hospital for scans and surgery, but am now finally starting to feel normal again ( what ever that is!!)
Really looking forward to meeting everyone!
Hi, I'm 44 (just) and vastly relieved to see I'm not going to be the only 40+ there. I dithered about signing up because of that, despite liking to believe I'm a young 44 🙂
I was diagnosed in December, single mastectomy in January, lots of post surgical complications so finally started chemo (FEC-T) in March. Reached the halfway point last week. Still waiting to hear if I'll have radiotherapy but expecting Tamoxifen and hoping to have a recon asap.
We've just celebrated our first wedding anniversary. The weekend away really took it out of me but I'm improved now. Not quite how we planned to spend our first year of married life!
I'm looking forward to the conference in a scared sort of way. Sometimes I cope with it all really well, other times I feel I'm not coping at all but regardless, having people out there who have been through this has helped and despite initially insisting I didn't want to make new 'cancer friends' the ones I have made on this journey have helped beyond measure, so I know the conference is going to be good and will be a positive influence.
I'll be travelling by train from Fareham in Hampshire - anyone else going from here or nearby?
Hello Chappers & ClaireM
Welcome to the forums, in addition to the support you will receive on the forums I just wanted to let you know that we have more services which you may be interested in, you can find out more via this link.
For further practical and emotional support please call our helpliners on 0808 800 6000, lines are open weekdays 9-5 and Saturdays 10-2.
I'm Sarah 37, diagnosed IDC in december, finished FEC-T 2 weeks ago and still have the joys of surgery (WLE), rads and tamoxifen to come.
Really looking forward to meeting you all, as yet i've not had the opportunity to meet any other younger ladies in a similar position, i've not been out much recently due to the dreaded chemo so looking forward to getting out and about with my bald head.
Oh, i'm coming from North London.
See you next week
I am 44 and was diagnosed last July. Had FEC-D chemo, mastectomy & node clearance and just finished radio last week. Still going on Herceptin. Looking forward to the forum and meeting everyone & finding out more about reconstruction in particular & thinking about whether to go for it later this year. Will be coming in from Oxford area. Also looking forward to getting out in London again after months away.
Have a good week all
Emma, I'm just down the road from you, in Worthing. I'll be catching the train up next week. I'm jealous that you've finished rads - I had to have 2nd surgery for clear margins and then my chemo referrral was lost 😞 That's why I'm so far behind you. Looking forward to meeting you and everyone else next week.
Hi there, I'm 35, live in Horsham, West Sussex and was diagnosed August last year. I've had a lumpectomy, chemo and radiotherapy. Finished the rads just over a week ago and have been on Tamoxifen for a month. Starting to feel some of the side effects kick in!
Feeling a little bit nervous about the forum but will be good to meet people who know what you've had to go through.
Look forward to meeting everyone!
Hi, I'm 44 and was diagnosed last July. I've had a lumpectomy, ANC and chemo. Had last TAX last week. Starting rads on 3rd June. I live in Sussex. I know of 2 other people going to the YWF from the New Year Newbies. Anyone else from down my way?
I am 43 and was diagnosed with BC in June/July 2011. I was diagnosed T1, N0, Grade 2 IDC, ER/HR positive. I had a lumpectomy & radiation... this was a walk in the park compared to the lovely tamoxifen. I have been experiencing side effects of tamoxifen ever since I started taking it just over two years ago. I am in a dilemma of whether or not to continue with this drug due to its toxicity. My oncologist has informed me its entirely up to me. I am hoping that next weeks course will help me make this decision. I think its time to take back control of my life.
I too like everyone else have no idea what to expect from the forum but I am looking forward to meeting you all and sharing experiences. It will be good to just talk and be around someone who just understands.
Will keep my fingers crossed for those of you still going through treatment that you are well enough to attend and enjoy the experience.
See you all soon.
Looking forward to meeting you next week.
I am 32. Was diagnosed in Jan 2014 with grade 3/stage 3 invasive lobular cancer. Have since had a mastectomy and DIEP reconstruction with node clearance and fertility treatment and am now on my second cycle of FEC-T chemo.
I live in London and am currently addicted to blueberries.
See you next week and hope you are ok and well enough to attend.
Hello, I'm going. I'm 37 and was diagnosed in January. I am currently having chemo (FEC-T), I am half way through, have my 4th one this Friday. I am hoping (I won't be too tired and feeling ok at the forum!) After the chemo is done, I will be having a mastectomy.
Really looking forward to it and to meeting some ladies in a similar position.
oh and I am from Maidenhead in Berkshire - wondering of anyone else is from around here?
Oooh excited now there is a few replies on here!
Ah the old N&N one of my chemo nurses did her training there when she first started straight from school!
I too am hoping I dont get too many SEs from Rads but as long as I can stay awake for Fri and Sat and make it home thats all that matters!
I am driving down on the Thursday night and staying with my sister in Highbury just to save me having a major early start on Friday.
I'm 42, diagnosed with grade 3 IDC last October, lumpectomy in Nov and have my last chemo next Wednesday so hopefully I will be feeling well enough to come along on Friday - I will be fully steroided up so should have lots of energy before I collapse in a heap on Sunday!
Look forward to seeing you all there.
I have booked my place and really looking forward to the weekend.
I am 32 diagnosed with TNBC when I was 31 last August. I had 6 x FEC a single MX and now after a delay due to a seroma I started rads yesterday. Oh and I live in Norfolk not sure if anyone else from this area is going?
Not sure what to expect at forum never been to one before, am sure it'll be much better than work conferences I have been too!!!!
Looking forward to meeting you