I feel like BC has been a problem without any attention to it for a very long time. We have to change that, we have to take care of health!
Susan - write my research papers
So sorry winterwolfsoul that you are not feeling supported, its just that I get so frustrated with all the false claims out there and I worry for those who are just starting out on this jurney and are scared and could be duped by claims of cures from diet and other woo. It is your choice and I do wish you well x
Awww bless you , its a very emotionaly time, i just wish i could copy the link to you, but i doesnt work for me, but im sure you will find it, her first post is called, to have the op or try alternative.
Hope this helps you find it.
Big hugs to you
Hi winter i would just like to, add, i would hate to think you may feel you are being ganged up on, as i really dont want you to thin that, lot of strong opinions and respect and concerns of the path you wish yo take. That being said it is your choice and you will choose what suits you, and so you should.
I dont know if any other ladys can help me on this one, but on the mcmillian site there is a blog done by a lady called chloe, i came across it oneday when some body posted a link for it, the lady has been blogging for about 5 years, and still doing so now, she refused any treatment and is takung about 25 supplements and diet, maybe something you may like to read, i just wish i could remember her full name.
All the best to you
It really saddens me that such rubbish is allowed to be published, dear God I wish it was all true but if it were that simple cancer would be wiped out!! We've all been down the conventional treatment route so know it actually works , I lived a healthy life with a good diet but still got cancer! I will never be convinced we can fight this evil by food alone , if only! Xx
My sister was 78 when she was diagnosed. She refused treatment not because she had alternative treatments in mind. She was not married, no children, no family nearby so to speak ( she lived and worked in Canada). She lived a full life, and felt it was time to let nature take its course....she survived for 5 years, without any form of treatment, continued to live as she always did, ate and drank whatever she wanted.
She was was one of those who did not let family or friends get too close.....a very independent woman.
love and best wishes to all you lovely ladies xxx
Re the link, a quote from Wikipedia regarding the author:
McDougall Plan reception
His eponymous 1983 diet book, The McDougall Plan, has been categorized as a fad diet with possible disadvantages including a boring food choice, flatulence and the risk of feeling hungry. Reviewing McDougall's book, The McDougall Program for Maximum Weight Loss, nutritionist Frederick J. Stare and epidemiologist Elizabeth Whelan criticized its restrictive regime and "poor advice", concluding that the diet's concepts were "extreme and out of keeping with nutritional reality".
I wasnt going to comment further as I really didnt want to make you feel you are being ganged up on (as others have mentioned). But a few points for you to consider: (1) There are a lot of women on this site, some young with young families who are fighting this disease - please consider what you are posting for their sake. (2) You have already said you are going to take Letrozole which is a drug, which therefore any change in your molecurlar cells cannot be attributed to diet. (3) No one can make themselves have cancer or cure themselves of cancer by having positive or negative thinking (4) Honestly believe me, if this worked health services in the world would be making sure anyone with cancer adopted these diets. (5) There has been one very good piece of research that definitely shows that exercise helps with regard to reducing the chances of re-currance.
Im not going to say any more - but again want to stress, please look after yourself, please dont make assumptions about modern techniques as things have moved on a lot. Do come back and let us know how you get on, you will be supported. Good luck.
I did take a look, it seems american, seems to me someone is trying to make money , like alot of diets out there, and the free diet is basically just eating veg, i like my meat, they dont recommend taking vitimin d suppliments, and from many ladys posts ive read, i think i lot of us i prescribed them, i know i am along with calcium, definatley if your on letrozole as it can cause austiporosis, sorry cant spell lol, but thanks for sharing.
Good luck x
Sorry dont want to bombard as this is such a personal thing, but just for the avoidance of doubt, I shold have said Letrozole is proven to work very well in preventing re-currance - again after surgery.
And also just want to say - yes I was terrified of surgery but the care and aneasthetics have moved on so much I would never have believed how I got through it.
Anyhow we all have to live with what is best for us, I just worry that there are some terrible reports out there on the net.....
When i walked out to meet my hubby when discharged, he knows what a state i get in, he was like, omg you look so good, i didnt expect you to look so well, i laughed and felt very proud then, think i was on a high, Yayyyy this bits over lol.
Well, you faced your fears & dealt with it, that's brave, not a 'whoosh' at all.
What a very interesting thread, i totally respect you and i think you are a very brave lady, i can totally understand your feelings of not wanting surgery, i am the biggest woosh in the world, i have to be sedated yo go to the dentist, and doctors see me if its really nescessary, i put cancer smears of for 7 years because they hurt me when they are done so i just avoided them, when i finally had one i had cervical cancer, this is the kind of woosh i am, all was treated and all good. Now i have breast cancer, the surgery frightened me to death, but i went through with it, for me i have to have that lump out and get a full diagnose of it, i was told after surgery it could actually be bigger than scan suggests, more advanced, they could find more, and they wouldnt no if it was in lymph nodes untill snb, i need all these answer for me or i just would never sleep, so in my eyes your a very brave lady.
I have been on letrozole for 3 months, to maintain my tumour while i had holiday, the surgeon did say it had made it very soft, but she said it would never be a cure, purely was to maintain it, so i do think its pretty amazing stuff. I have had my op get my further treatment plan next wednesday, and i would just like to say i have saled through recovery so far, and pain has been next to minimum.
I wish you all the very best with your treatment thst you decide, please let us know how you get on .
i don't often comment on here now as my life has moved on since my diagnosis but having read this thread I felt I had to say something. To cut a long story short I had grade 2 bilateral bc with 1 affected lymph node and a small tumour in my chest wall. I ended up having two separate mastectomies, node clearance, chemo, rads and tamoxifen and last week I had breast reconstruction from my stomach. Every step of the way I was completely and absolutely petrified about what lay ahead and I thought I could not do any of it. I wanted to run away from it all and bury my head in the sand. Of course I couldn't and I just had to keep plodding through the swamp of treatment and surgery. HOWEVER I can categorically say that none of it was ever as bad as the thought of it beforehand including chemo. The fear can cloud your judgement and stepping through those hospital doors is so hard. You won't have to go through what I did and I totally respect you opinion but please think very carefully about what you are doing. I'm in a great place right now nearly two years post diagnosis, and I'm a better stronger person as a result of bc and treatment. Of course if I could turn back the clock I wish it had never happened.
Trust your medical team. There's no doubt diet can help but please think very cafe fully before you refuse treatment and let it be a rational decision and not the fear that stops you.
I wish you all the best
I must agree with the others. I respect your decision but do not think dismissing surgery is a good idea.
Having surgery is traumatic, I know, but it is very doable. After a few days, the discomfort has eased, and within 2 weeks, you're back to normal. Yes, the hormone therapy could help, but equally the lump may grow and then surgery would be more invasive.
Be guided by your consultant. After all, they are the experts.
Best of luck with it all.
Good for you for reading responses. some of the research/reports out there are extremely dubious, not evidence based and not proven.
You have chosen to use Letrozole which is a drug, and this is proven to be very effective - so that sounds a good a way forward as any.
I do want to put out there though very strongly, just for any other person casually viewing this open forum. The body absolutely cannot cure cancer of itself, as I said, if it could the NHS would have adopted that treatment plan a long time ago.
Good luck - Letrozole is proven to work well.
Hope you don't mind me adding my thoughts to the mix. I am very much of the same view as Ann, Jo and Helena. My treatement was slightly more complicated and I did have chemo but 18 months later I'm here, happy and enjoying life. I would actually say I enjoy life more because I know how precious it is. I certainly don't sweat the small stuff anymore.
As some of the others have said, the chance of chemo is pretty remote with a diagnosis like yours. As for surgery, I too was terrified as had not had any before but it turned out to be so much less traumatic than I imagined. As for pain, well the drugs they give you are marvellous and I've seen lots of people here say that after a lumpectomy they just got by with over the counter pain killers.
It sounds to me like you are someone who obviously lives a healthy lifestyle and this will put you in a good place to cope with any treatment you decide to have. Starting from a healthy base puts you at a real advantage.
To sum up, please don't disregard evidence based conventional treatment. It has helped so many of us here and around the world.
Whatever you do, I wish you much luck. Let us know how you get on.
interesting post. Like the others I don't know of anyone who has made your choice. I am sure most of us have done masses of research, I know I have. My understanding is that breast cancers of our type grow very slowly, so it would be interesting if there was any change at 6 months. I also did bags of research re, diet etc and my conclusion is the most evidence based effective weapon is regular exercise, although that study has only been proven after removal of the tumour and deals with re-currence. As others have said you would be unlikely to need chemo, and letrozole does have side effects, although manageable.
i did want to comment on your fears about how people will view you. What I have found is when you first have a diagnosis I had all kinds of pre-conceived mis-conceptions, all of which Were wrong. The type of BC we have is highly treatable, my hospital uses the term 'using curative treatment". No one treated me any different at work or any where else, I outlined what the issue was and got on with it, Like you I was terrified of an operation - and I had not had any operations, but I found the team to be kind, caring and exemplary in my treatment - again I had pre-conceived conceptions. Most people who know me don't even know I have had BC, two operations and radiotherapy. my life is completely back to normal, and I live without fear of this disease now, as I know I have had the best treatment possible and have made some life style changes for my general health. Of course it is entirely up to you, but as already mentioned BC comes in all shapes and sizes, and for some ladies your approach really isn't an option as the body does not self heal cancer, if it did the NHS would save a lot of money - sorry if that sounds harsh - but of course entirely respect your opinion.
Hope it all goes ok for you, there is lots of info about letrozole on this site.
First of all I would like to say that everyone is entitled to their own decision with regard to their treatment of bc as we are all individuals. No one should ever judge you for what your decision is as they do not know how they will react were they unfortunate enough to be diagnosed with it.
However I would like to tell you my story as a contrast. I was diagnosed with grade 1, tubular bc, 17mm, ER+., I went through two lots of biopsies because the the first set came back inconclusive and they did not want to send me away for three years without being sure so I had a second set done.
They also told me that it was early stage, they did not think it had gone into the lymph nodes but would not be able to confirm it until I had my op and the checked the biopsies they took from that, chemo was a "possible" on my treatment plan but only if the diagnosis changed when the results came back from my op, they did not.. I had the op in Oct last year, I called it Mr Blobby (as sign of my age and the era of Noel Edmunds) and I wanted him out of my body.
I was fortunate in that they achieved clear margins around the tumour and it had not spread into my lymph nodes so I went on to have radiotherapy and am on hormone tablets for the next 5 years to prevent a recurrence. For my the worst side effect of the rads was that my life was controlled by that one appointment every day for four weeks, but that is a distant memory now.
When I went back to see my oncologist in March he confirmed the same as my consultant that it was a slow growing cancer,which i had had for around 7-12 months, fortunately picked up by the routine mammogram, which I had almost cancelled because I was too busy!!. He also told me I was cancer free and the rads I had had was the belts and braces of the whole treatment along with the hormone treatment
I am back to my normal like, but yes I agree it is a different "normal" and there has been a lot of adjustment mentally that I have been going through, especially as I have a partner with MS and our live has totally changed in the last two years. I was angry, on many occasions thought why me, but then thought well why not me, I have fought so much over my 59 years with the condition I was born with that I was determined to not let this beat me.
Yes we all make some lifestyle changes, but my diet etc was not bad before I was diagnosed so I just carry on with eating the same foods, I am not going to give up the food that I enjoy, because life is too short to worry about all the things they say in the press that you should do or not do.
I do not regret the decision I have made because to me the only way I would have been happy was to have the lump removed, but would just say, be totally clear on the reasons why you do not want to have the lump removed and that you are making it for the right reasons for you, not as a result of any fear that you may have, which we all know what that is like
I am sending you best wishes for whatever decision you make.
Have you investigated the side effects of the hormone treatment?
You seem to have your plan well in hand. Someone on one of these boards mentioned a Valter Longo, who has ideas regarding diet - I haven't investigated it fully yet. But at the moment it's kind of like locking the stable door after the horse has bolted. I hope it works for you, and if you find anyone else who has refused any of the treatments, let me know!!!
Hi winter, I also had a grade 1 slow growing tumour and my treatment was minimal compared to others, lump removed, radiotherapy which is painless and only takes a few minutes , and now on Tamoxifen for 10 years and in all honesty it's the medication that has caused the most side effects and gives me the least % protection of all of it!
No way could I have left cancer inside of me and refused the treatment offered as it gave me the best chance of long term survival and that's what we all want after all! You wouldn't have Chemo for a grade 1 cancer unless it had spread to your nodes which isn't likely so your path would be straight forward with a minimal % chance of reacurrance
I respect your right to do as you please but I neither understand or agree with it, so many ladies here would love to be in our position of being able to have such a good prognosis with minimal treatment but their cancer has other ideas sadly , I wish you well with whatever you choose to do and hope it all works out well for you xx Jo