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Hello All

52 REPLIES 52
Guest user
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Re: Hello All

Hi everyone again my results wasnt great i had WLE on 28th jan results are they didnt get all the cancer and they took 22 nodes 19 was clear 3 wasnt so iam to start chemo in 2/3 wks not got a date yet then after chemo i will be having a MX

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Re: Hello All

hello again, many thanks to those of you who sent me messages. I have been back to hos for results of op and was told that there are some pre cancer cells left!!!! so am going back in on 15th for more nodes removal, and as i have little boobs to start with im also having a MX. was just getting my arm back to normal and now i'll be back to less than square one!, with chemo starting around easter.... trying to workk out wheather to ice cap as have a wedding in may and in june....
Thanks again for support x

elaine_r
Member

Re: Hello All

Good luck for tommorrow if you can take someone with you 2 pairs of ears are better than 1 sometimes they bombard you with so much information

ChoccieMuffin
Member

Re: Hello All

Maxine, we all have things crossed for you for tomorrow, the waiting's the pits.

If it's any consolation, I had a re-excision and it was MUCH easier to cope with than the original WLE and SNB. I didn't have to have more nodes removed as my SNB was clear, but others can come along and talk to you about that bit if you do need it. Fingers crossed it'll all be fine for you.

Know just what you mean about wanting to get on with the next step, this hanging around's enough to drive you barmy.

Guest user
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Re: Hello All

Hi everyone its me again i had WLE and nodes removed (not sure how many ) i go for my results tomorrow 24th feb getting abit nerves now but in a weird way i cant wait i just want to know they got it all ( i really dont want another op) and i just want to know what treatment i know a will def have radio cus i had WLE i just want to start the next step if you know what i mean ask for listening maxine xxx

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Re: Hello All

thank you for th welcome and for the advice chocciemuffin

ChoccieMuffin
Member

Re: Hello All

Hi Charlotte, and welcome (unfortunately).

Wow, that was quick work, and while it must feel like you can hardly catch your breath in the rush, hanging around waiting and fretting and worrying is really horrible. My littlest kids are the same age as yours though I'm a bit older (48) and I have two other older ones too.

You will probably find next Monday's appointment a bit full of information, so you might want to bring someone with you, and also have a notebook with you too, to write down your questions and then the answers you are given. The Publications section on the site is also a good source of information, as is the helpline.

Good luck for Monday and lots of good results.

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Re: Hello All

hello this is my first visit. not sure what to say, but had lump and nodes removed last wed 16th have appointment for next stage chat next mon. Only found the lump at end of jan only had BC offically for one week. so still coming to terms with it all. Im 36 married with 2 children aged 12 and 14 so am well looked after at mo.

ChoccieMuffin
Member

Re: Hello All

Hi Helly

Advantages and disadvantages to both sides, so don't worry any more than you already are.

Er and Pr negative means that your cancer wouldn't respond to hormone treatments, but that means that you won't be given Tamoxifen or aromatase inhibitors which bring with them their own side-effects to deal with.

HER2 negative is not uncommon, as around 25% of cancers are HER2+ so the majority of people don't get Herceptin because it wouldn't do anything for them anyway.

I have read that triple negative (sometimes shorthand is TN) cancers respond particularly well to chemo, I'm sure others who have the same diagnosis will be able to help you.

There are several threads about triple negative, and I think there's also a BCC leaflet about it. Have a browse through the forums, and also give the helpline a ring, they are very good at offering sensible, practical and realistic support.

Good luck,

CM
x

Guest user
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Re: Hello All

Hi All,
just found out that I'm Triple negative, is this bad??
Please help??

Thanks H xxx

ChoccieMuffin
Member

Re: Hello All

To all of you newbies, you're in a horrible place at the moment. I refer to "The Waiting Room" with capital letters, because The Waiting Room in a BC context really is a special, and horrible, place. The dreadful thing about this disease, most noticeably at diagnosis but also at every other test you have along the way, is that no-one has a full picture of what's going on so our imaginations take over and even though we can think about it logically, our emotions and fears take over. I am SO with you on the "dead in 24 hours" thing, I swear I organised my own funeral while waiting for results of a second core biopsy that turned out to be completely nothing to worry about!

You have the sympathy and understanding of every person on the forums because we've all been there, and we'll all be there again at every future mammogram, scan, test or even follow-up appointment with the specialists.

Guest user
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Re: Hello All

Hi all, especially HellyD I'm a tad behind you after being Dx with IDC Tuesday this week. I'm 45 yrs and have a 4 yrs old son and have just adopted a baby..she's only been with us for 2 months and I'm having the same op as you've had on 8th March. I share so much with you the fear you feel, especially when I think of others.. but a week on from Dx I think most of it is (for me)a fear of the unknown and once I know the treatments available to my cancer, hopefully that fear will reduce...What I've learnt or more like I was finally able to accept what my nurse has no doubt told me several times,is that its treatable.' I didn't believe her at first..I was too much in shock (I reacted like she's told me I had 24 hours to live) but as the days have passed I've come around to the fact that although a rocky road lies ahead, nowadays cancer can be managed.. (I can't believe I've just wrote that)but what I would never want to do is underestimate the extent of the fear..I've been in some frightening situations, I never knew fear like this existed. HellyD, no doubt your in good hands and they're on to it!!!..Alyson

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Re: Hello All

Totally agree Wandy,

Hellydiamond, the support on here is fantastic, anytime u have a question/thought/anything at all t post, there is always someone to help/advise/empathise....

I'd have gone bonkers if i hadn't had this site!!

I was diagnosed on 1st Feb & will be havin MX & ReCon. within the next 2 to 3 weeks, i've found loads of helpful info on here & it's got me through some very dark lonely days & nights.

Good luck to u (& to everyone else on here)
Chez. xxx

Wandy
Member

Re: Hello All

You are in good company here Hellydiamond. We have all been through, to greater or lesser degrees what you are going through now. Keep your courage, read posts relevant to your situation and post whenever you feel scared or blue or worried, or happy!!

You will get a lot of help and comfort from everyone here.

All the best

Wandyx

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Re: Hello All

Hi I was diagosed on the 1/2 and had surgery the next week, lump removed and SNB, but just got results and they want to remove the rest of the Lymph glands, I am so scared I cried for a days, I am usually such a positive person but I'm finding it so hard, just read the other comment on here and although I feel I am going through this alone I'm not!! Take care H xxx

Guest user
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Re: Hello All

Thanx J!
I have sent u a PM!
Chez. x

J01
Member

Re: Hello All

Message for chezza72 Hi I had LD flap 14 yrs ago following mx ( just recently diagnosed again in the other breast, sucks eh!) if there is anything you want to ask me feel free
Lv J

elaine_r
Member

Re: Hello All

hi madmax try not to worry 2 much i no that easier said than done im sure when you know what the line of treatment is use can focus on what needs to be done no one will say its easy but you can do it trust me take each day as it comes take care

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Re: Hello All

Hi everyone i had WLE with nodes taken not sure how many i now have a infection in my breast which iam taking antibiotocs for i go for my results on thursday 24th feb its a pain waiting also scary place to be in i just want to know my results and know which treatments i will have to have i just hope they got all the cancer thats my biggest worry at the mo thanks for listening maxine xxx

ChoccieMuffin
Member

Re: Hello All

Depending on where you are, they might also inject you with blue dye to make sure they get the required nodes, which can leave you a bit blue (literally - my nipple's still not its normal colour 6 weeks later).

If you're having mx they will probably take the nodes through the mx incision, so you're unlikely to have a separate scar under your arm.

Guest user
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Re: Hello All

Hi Chez, sorry to hear your dx. Don't worry about SNB, they inject some radioactive stuff (mine they did day before op) and take out as few nodes as possible. My surgeon said sometimes they can't take one because they're in little cluster. I had two taken out so plenty left to do their job x

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Re: Hello All

Thanx Wandy,
Think i will 'scan' some of the other threads, it's a great site, so glad it's here or i'd be going mental all weekend without somewhere to get more info or hear about other peoples experiences.
Speak soon,
Thanx again for the prompt reply & SNB info!
Chez. xx

Wandy
Member

Re: Hello All

Hi chez,

You can stay here, I check it and I'm sure others will as well or scan (good word for this forum!!) any of the other topic headings that you feel might be helpful.
Can't tell you about the flap cos haven't travelled that route but had a WLE and SNB about 3 and half weeks ago.

They will take a node or two in the SNB but that happens while you are in the op (mx in your case)and they generally do path work on them straight away and it allows the surgeon to make on the spot decisions while you are under. If the nodes show clear he won't have to take any more nodes than necessary. Its a great advancement on the days when they would go in and just strip out everything to be safe.

Try not to worry too much, the waiting for it all to happen is hard but make sure you keep talking to bc nurses and coming on here. So many wise heads and previous experience. And I don't mena me, cos I am just a novice too!!

Take care
Wandyx

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Re: Hello All

Well ladies (& any gents out there),
Spoke to one of the BCN's today & got the 2nd lot of needle biopsy results from my lymph node tests & again they were clear so good news there.
But the surgeon was talkin about SNB when i saw him on Tues....so does that mean they'll remove some nodes anyway?
Also, cos am havin mastectomy, i've got to think about LD flap reconstuction in the meantime....it looks like a major op!
BCN is comin out to show me fotos & to chat about it on Monday.
Still can't believe this is happening to me.
So where do i post now?!
Cos i haven't got a date for my surgery but the surgeon said it would be 'in about 3 weeks time'....that was on Tuesday.
Think i'll just stay where i am for a bit if it's ok with u lot?!
Chez. xx

Wandy
Member

Re: Hello All

ChoccieMuffin,

Thankyou so much for your comments. I guess I will just have to wait and see.That ol' patience thing again!!

Am off to bed to try and get some sleep, although things will be whirring around for a while!.

Night all.

Wandyx

Guest user
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Re: Hello All

Thanx CM & good nite all.
I've had enough for one day!
Chez. xx

ChoccieMuffin
Member

Re: Hello All

Wandy, it's really not uncommon for them to have to go back in just to make sure they get clear margins (I was quoted 20% of cases). I had to have a re-excision and my surgeon took another "slice" to try to get clear margins. Actually, she took three extra slices, and needed all three to get the margin we needed, but we got there in the end. So please don't fret too much about it, though I completely understand the disappointment. I have a sneaky feeling Marygrace has something booked for around then, so we can hold both your hands as you wait for the results.

As for whether to request chemo, for some of us it's a no-brainer (I'm Grade 3 and HER2+ so chemo's a must for me) but others are borderline whether the negative side-effects outweigh the benefits. If you're a borderline person your oncologist will show you what the relative risks are with, or without, chemo, and then the decision is up to you. 90210 had a similar decision to make and agonised over it for days! Ultimately it is YOUR decision, they can just give you the benefits and the side-effects and it's then a couple of sleepless nights for you as you turn the options over in your head.

Chezza, they can possibly give you an indication of grade from any biopsy you've had done, but they don't know for certain until they have the whole tumour that they can grade effectively. Stage they won't be able to say until they've checked out your nodes and any other body scans they may want to do. Can't offer any suggestions about recon as I haven't had to have a mastectomy but there are loads of threads about it from ladies who can give you their own experience.

I hope you both manage to stop your heads from reeling too much tonight and get a good night's rest.

CM
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Re: Hello All

Bless ya Wandy, sometimes it just seems never ending already!
& I am right at the very, very beginning of a very, very long journey!!

U know, am just gonna put my energy into havin a good nite out on 26th of this month - haven't been out in 2 years & won't be havin another for a while by the looks of things!!

Wandy am so sorry u'v got to have surgery again.

I am so frustrated at the moment, can imagine ur feeling the same?

As u said yourself, keep smiling, it's all we can do!

Hugs,
Chez. xx

Wandy
Member

Re: Hello All

Hi, Chezza,

Sorry not great news for you. its really tough all this waiting for one dianosis or another. I think thats the main thing I'm having to learn....Patience!!

Well. not great news for me either. Alhough my surgeon was pleased in some respects with no spread from the 3 nodes that were taken in the SNB, however although he took a good mass from what turned out to be 2 tumours!!! he has'nt got clear margins and guess what he's going in again!! Feb 28th is the next date. He says that altho the 2 tumours were 2.3 and 2.5 respectively that I might still get away with radiotherapy and hormone treatment but it will be the onc's call who will decide once we get the results from this next op. Sigh...and so it goes on.
I understood that above a 2cm tumour the guideline was for chemo and if he took 2 tumours with a total mass of 4.8cm does that mean I ought to push for chemo to make sure or just be happy that I can get it sorted with radio??

Any thoughts anyone?

Anyway chezza, keep your chin up. Its sounds like we're travelling a similar journey. I will stay in touch.

Wandyxx

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Re: Hello All

Hi all,

Well Wandy - hope u had better news than me!

I still feel in limbo!
But at least i can plan a nite out in the meantime!!

After MRI last week I thought i'd have a lot more info today.
I am REALLY disappointed, was told today that am having a MX on right boob in 'about 3 weeks time'.
They can't tell me what stage the cancer is at because the tissue is too dense to see through properly.
They can tell me it's about 4 to 5cm & that my lymph nodes are enlarged so i have had another biopsy on them today as they just wanna check them again.
So, although i know the surgery am having i now need to decide on reconstruction...may just put that to one side for the moment.

So i still feel non the wiser!!

On a lighter note, my workplace have decided that their nominated charity this year will be a breast cancer charity.
The men are gonna have their heads shaved.....
so considering there's only 4 of them & three of them are nearly bald it may not be a huge amount of money raised but hey! It's the thought that counts, lol!!
(Am jokin, there are other offices getting involved luckily!!)

So ladies (& gents) - which charity should it be?
I am so new & ignorant to all of this & there are so many different breast cancer charities.....ur thoughts/comments will be greatly appreciated!

Chez. xxx

Wandy
Member

Re: Hello All

Hi chezza and everyone else!

Will definitely meet you here this evening, You are probably about to go into your appointment as I type this. Hope all goes well.
Am keen to find out whats going on and get on with it. Kepp having a day dream that everyone will say, 'Well we got it all in the op and you are released!!!'
Got to go and do something to keep me occupied till 15.30 this pm..See you all later!
Wandyx

ChoccieMuffin
Member

Re: Hello All

Best of luck, everything is crossed for you.

CM
x

Guest user
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Re: Hello All

Good luck to you both for your results tomorrow x

Guest user
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Re: Hello All

Hey all,

Big day tmrw, will be discussing treatment plan & how much surgery 'm gonna be havin....
hopin it'll be easier to deal with when i have an idea of where i'm headed. We'll see.

Gdnite all,
Wandy - meet u here tmrw evening?!

Chez. xx

Guest user
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Re: Hello All

Hi TJR,
Welcome, i have only been on here a few days myself & there is always someone around to offer encouragement &/or inject a bit of humour into the proceedings too!
Good luck with everything. xxx

Choccie Muffin,
Am hopin the light of the morning makes me feel differently about doing normal work things! I love my job, i love all of the customers that i look after (just over 100 of them!) & i love my colleagues!
I went into work for 3 days last week & i felt like i was in a bubble the whole time.
It was really strange. Like i wasn't really there.
I know some of my customers are going to feel like i've abandoned them!
Maybe i'll feel differently after i get my results on Tues?
For the moment, i feel like i need to 'put my house in order' for when i go into hospital so that my mum (who works 30 hours a week) can look afer me & my little girl without falling over stuff/trying to find something.....(we only moved here a few weeks ago, everythin still in boxes! lol!)
So i'm just playing it by ear for now & will see how i feel in the morning.
OMG, have never been so 'up & down' in my life!!
They weren't kidding when they said it was a rollercoaster!!
Chez. xxx

Guest user
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Re: Hello All

Hi all, I am new to this site and new to BC also. I was diagnosed on 9th Feb. The consultant immediately put me on Tamoxifen and told me I will be having a lumpectomy and some radiotherapy. My surgery is planned for 22nd Feb or 1st March (just waiting for confirmation). The hardest thing I have had to do is to tell my mum, she's 83 and we lost my sister 6 years ago to bowel cancer.

This may sound odd, but at the moment I feel quite lucky that the tumour is in the position it is. Had it been on the top or underside of my breast, I may not have noticed it (as it is it is in the left outerside of my left breast, and I felt some discomfort around the side panel of my bra. I am on the larger side, so my initial fear when I was told was the thought of a general anaesthetic due to the higher risks. However, now I have had time to look at it practically, although those risks are still there, I realise that there are many "larger" people than myself that have longer and more serious operations everyday. Still I would have preferred a local anaesthetic :). I just want to get the surgery done and dusted now and move on to the next stage. Thinking positive. Best wishes to everyone else on their journey. Tracey

ChoccieMuffin
Member

Re: Hello All

Chez, I completely understand not wanting to do regular workish kind of stuff. My head's in a completely different place since diagnosis and the one thing and the front, back and middle of my mind begins with C. There's so much other stuff I'm meant to be doing but I just can't put my head in the right place to do them, so I'm pretty useless at the moment and like you just want things to get going.

With your job the last thing you need is to have stressed public in your face all day, but on the other hand do you think it might help you to take your mind OFF the cancer for a while? I had a good day the other day when I just concentrated on some voluntary stuff I'm responsible for for a couple of hours and it felt really good.

CM
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woodlandmanor
Member

Re: Hello All

Hi Don't go to work, better stay and clear up, that old 'sorry about the mess but we have been burglared only works for so long lol!!!!!!!!

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Re: Hello All

Hi all,
Am feelin ok-ish today, had a bit of a clearout/get rid of some useless items day but feelin a bit too knackered to carry on with it now - but am gonna have to cos upstairs is lookin like we've been burgled!
Am just contemplating whether or not i should go into work tomorrow?
Don't really feel like it, my job can be quite pressurised, dealing with the public face to face all day & i'm just feelin like i'm in a bit of a trance & dunno if i can face it?
Boss has been brilliant & has told me to take each day as it comes, get the results of my MRI & start discussing treatment plan on Tues....will i feel a bit more 'with it' after Tues?
Also feelin like i should be 'living life to the full' every day but am really not in the mood!!
Just wanna get on with my treatment now.
Hope you're all having a restful Sunday,
Chez. xxx

ChoccieMuffin
Member

Re: Hello All

MG, Wandy and Chez, the waiting is THE PITS, and everyone on this site knows what you're going through. I was bouncing off the ceiling during the wait and it's impossible not to imagine the worst. We're not talking logic here but emotion, and it is SO difficult to keep a lid on the dark, 3am fears. So do come on here at all hours of day or night just so you know you're not alone. Just knowing what's on the cards is so much better than waiting, so looking forward to knowing is completely understandable.

15th will be a big day for you, so we'll keep things crossed for you in the meantime.

Wandy
Member

Re: Hello All

Hi chezza,

Will definitely meet you back here after our appts. I'm not in till 15.30 in the afternoon so will catch up after I get back from that.

Am healing well after my WLEand SNB so hope they got everything and am rather hoping that I can avoid chemo as well. We'll see!

Goodluck to you and catch up soon.

Marygrace,

I'm sorry that you have to be fiddled around with again! that's my fear that although my nodes were apparently clear that they have to go back in again to the tumour site and open up my nicely healing scar!
Still what will be will be! Keep your chin up and stay in touch. Itsnice to know about others in roughly the same place!

Wandyx

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Re: Hello All

Wandy,
I get my results on the 15th too! At 10.40am to be precise so will meet u on here later on in the day/evening to discuss maybe? lol!!!
& i'm lookin forward to it too!
So obviously i'm strange too!
But yeah, i too just 'wanna get on with it' so i can get on the road to recovery & get on with my life again.
I think this site is brill, the helpline's amazing too, i have just received (thru the post today after ordering only yesterday) a book called 'mummy's lump'....am gonna read it to my little girl.
So, best of luck with everything.
Chez. xxx

Guest user
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Re: Hello All

Once you know what they are doing and feel like you are on a path to recovery, it all feels much more manageable xx

Wandy
Member

Re: Hello All

Thanx all for your comforting and encouraging posts. This site is really brilliant. Have just found out that I am in on Tuesday 15th for my results and will then find out whats next and the timetable. Am really looking forward to that.(that sounds weird doesn't it??!)But the waiting which will have been 3 weeks seems the hardest at the minute.Just want to get on with things now and know what I'm dealing with.
Anyway thankyou again and good luck to everyone else on this journey.

Wandyx

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Re: Hello All

Mary Grace & Choccie Muffin,

Thanx so much for replying to my post, this site really has kept me going the past few days!
Unfortunately i may not escape chemo, cos am 38 they've said they're 'gonna throw the book' at me treatment wise & as for the lymph node thing, they're still gonna double check this & take some of 'em out so nothin's definite yet. Am prob gonna have rads & hormone treatment too.....
Am tryin to stay hopeful & positive, had a real low day yesterday, couldn't stop crying!! I just wanna know what am facing so i can beat this sh*t!!
Thanx again ladies, u are truly fabulous & ur positive comments & reassurance for us newbies is just fantastic!
Lotsa luv,
Chez. xxx

ChoccieMuffin
Member

Re: Hello All

Chez

NO NODES - YAY!!!!!!! That has to be THE BEST news to have, and Grade 2 may mean you escape chemo as well, but obviously that's up to your treatment team.

Best of luck, the waiting really is horrible so I hope you get more information from your team quickly.

CM
x

Guest user
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Re: Hello All

Bump

Guest user
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Re: Hello All

Hi Chez,

Sorry you have had to join us. Just saying hello and bumping this up as it seems to have become lost on a busy site. You are bound to be scared and when you are thrown into this world it is really hard to take in everything people are telling you and what it all means. No node involvement is excellent news and once you have a clearer idea about your treatment plan you will be on the road to recovery.

Stages are how big the bc is.

Grades are how different the cells look from normal cells.

Ladies on here vary in the stage and grade of their bc and the type of bc which the specialists think they have, but this is a very treatable disease now and they will soon work out how best to treat you to give you the very best way forward to leading a long and happy life with your little one. I am also a single mother and it is scary and lonely to face this alone. At least you have strong family support to help you through. If there is anything we can do to help, just say or pm xx

Guest user
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Re: Hello All

Hi all,
i'm new to this site too, was diagnosed on 1st Feb, i have DCIS & IDC, had MRI yesterday & get results & start discussing treatment plan on 15th. I'm 38 & single mum to a 3 year old daughter. I'm living in South Wales away from my home town, my mum & dad live local (luckily) but we were all planning on 'going home' this Sept after the contract with my job ends in August.
I just don't know what to think!!!
One minute i see BC as just a massive inconvenience that will delay my plans! The next it hits home & despite the joking, brave face that i'm showing everyone else, when i'm alone i just cry cos i don't wanna leave my little girl.
It's hard waiting for these results, i don't know what stage it's at, just that it's grade 2 & from a fine needle biopsy there doesn't appear to be anything in the lymph nodes.
I am trying my best to be strong, i'm going to work full time,i'm naturally a jokey, open person, everyone keeps telling me i'm amazing & how great my attitude is.

But i just don't know what to think.
My head is everywhere.
I'm sorry that we're all on this site in the first place but just reading some of the posts has kept me going for the past 8 days.
I wish everybody on here the very best of luck & lots of love & hugs for now &, the future.
Chez. xx

ChoccieMuffin
Member

Re: Hello All

Wandy, you could probably do with a hug, so I'm sending you one. Not much further on in my treatment schedule but at least I do know that I have to have chemo so I had my hair cut AS SOON AS I got that bit of news, which means I get the chance to explain the big change in hairdo, and the reasons why, before it all happens and I'm feeling too crap to talk to people. Gives others the time to get used to it.

Fingers crossed for good results and that you don't need to go for the short hairdo unless that's how you generally wear yours.

As for reading about the treatments and people's side-effects, a good maxim is "prepare for the worst but hope for the best." I'm still convinced I'll breeze through chemo with hardly a problem at all!