Well, first treatment's now under my belt and I can honestly say that it went really smoothly. I can confirm now that the needle really is tiny, after it was taken out I could barely see the mark and it went in easily too.
I can also confirm that the red chemo does make your wee red - I've been drinking lots of water to flush it through and my chemo nurse said that this will also help prevent cystitis due to irritation from the drugs.
Thanks for the compliment Colli on the nail polish, its a favourite of mine and I wanted something cheerful with me. The room they put me and my partner in was painted a lovely friendly yellow and I had a comfy chair with a pillow to rest my arm on. She also put a heated pad over my right arm to keep it warm, another chemo effect. I had eight syringes of stuff put in one by one and I didn't feel anything other a tickly nose and a prickling sensation in my bum which she said was a common reaction - very strange! 😄
If there's anything else I can help with do ask. I feel so lucky to have so much support, both in the 'real' world and in the 'virtual' world here. I can say things here that I can't say to my friends and family, and I can be understood without having to elaborate.
Love you all
I am just popping in from the January 2015 starters to wish you all luck as your treatments start over the next few days... my first FEC was on the 15th January and I had a portacath fitted on the 14th. I know the waiting is horrible but you will feel better once you are getting on with it.
I cold capped and intend to carry on, I have had my long hair cut to collar length and am shedding a little bit (but strands rather than clumps) but no-one else would notice as yet so for me it is worth the discomfort as I know many of the ladies on our thread have already lost most of their hair. I won't lie though - it is blinking cold but the first half an hour or so is the worst. It also makes treatment take longer as depending on your regime you have to leave it on for 1-2 hours after the chemo!
Good luck ladies and stay positive
Ooo strawb, thats lovely about the teeny needle, I was envisioning one for horse drugs.! Phew!
I painted my nails blue with silver crackle. Actually the only reason I did it was because I normally have terrible nails. Not working since december has let them grow!
My friend came over and chopped up a pineapple to free flow out of the freezer, not sure how it stays frozen at the hospital but sounds like a good plan.
Thats a great idea about taking your temp now. Good habit. Mike is planning on getting something fancy, he reckons its a point and shoot, he wants to test it on everything that walks past...the cat, the dog, the cockatiels....
First day of school after summer holidays for my girls do best I go wake them... popularity will be at an all time low. 😉
Sending love ladies. off to chat to the radiation oncologist today, cos thats what we do. !
Isnt it crazy to hear sentences like that come out of our mouths.
Ill be thinking of you starting today, hugs lovelies
Well, tomorrow is looming closer for me and my first dose of TAC. I'm going in armed with all the lovely tips and advice I've got from my fellow warriors and hopefully I can let you all know (tactfully, I promise) how it went if you'd like?
I haven't had any kind of port fitted so my treatment will go in a vein in the back of my hand (they told me this is to do with it being easier to control leaks if there are any) but they were so reassuring when I had my chemo talk that I feel fine about it, especially since they use the same size needle that they use with premature babies. I hope this helps reassure anyone who, like me, has a needle phobia.
I also wanted to pass on that my chemo nurse supports the practice of painting your nails (both fingers and toes she said) with any colour that blocks the light, so it doesn't necessarily have to be dark. She said that she could only go on what she'd seen herself and that it does seem to make a difference. So I'm painting mine today a bright turquoise! 😄
Sending love and luck to all my fellow February friends xxx
Hmmm day 2 after portacath, have decided I never want to be a cowboy! Felt like Id been shot and they left the bullet in on saturday morning! at least they get whiskey!
Reinstated the voltaren and feeling much more human.
The portacath is about bottle cap size, and as thick as my little finger. Its under my skin above my right (as a pose to No longer there) breast lol
It has a membrane and a tube that fits a large vein in my chest. The membrane is self healing. They can put the IV needle in there without hunting for veins in my arm every time. Considering it took them 3 goes the other day for my muga scan to find a decent vein, despite the pain of this weekend, im grateful. my veins are rubbish!
On a happy note bought a bra today! A soft lovely front fastening wonder. I never got one before hand, the lady was very sweet and I wore it home. Actually bought 2..feeling a billion times more normal. finally shaken off the blues a little. discovered it was a proper post surgery bra too, that girl knew without fussing.
Im a mess this week, couldnt get the bus card to swipe, cried... everytime I sit down with no distractions my eyes water.
Was practically sobbing after the portacath today. Actually do feel like a mugging victim. Had to laugh though, got myself dressed, tottered out to the car and realised I had pink antiseptic stripes right up to my jaw line ...no wonder people were eyeing me funny!
I tried a couple of wigs at a not very professional place found it devastating. I have now booked in with a proper lady who said she can show me head gear too. I think those soft caps and wraps seem comfortable and comforting too. Figure I can get a brightly coloured hair extension to pin under a hat as a pony tail. 😉
Many hugs, its a tough week for all of us. Xxx I take heart from your humour and strength too, sending love xx
Ooo anniegran, thanks for that! Off to check it out. Meeting my district chemo nurse today, hopefully he'll have tips for food too.... its a learning curve of epic proportions ladies.
Hi pjw (did I get that right.? Its a hazard of who you reply to as you cant see the others ) you've sure fadt tracked your treatment, not sure if that makes it easier or harder to get your head around. I suspect it makes no differance really. its still overwhelming. Hugs. 🙂
Seems crazy to go from panadol and neurofen in the cupboard to half a chemist shop. in fact my chemist only had half the things in the two pages of scripts I took in.
I had the urge to tell them Id have them shaken not stirred thanks... or shout holy pink maracas , all for me?
But possibly they may have sedated me instead .
Much love ladies, thinking of you
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Oooo got my start date this morning, portacath on the 30th , chemo on the 5th..
Deep breaths, kettle on, eyeing the Whiskey bottle....lol
And now I have the theme from mission impossible in my head... !
Hugs ladies, let the circus begin... next year I think chainsaw juggling and fire eating might be a more fun option.
Thinking of you
Thank you Jo, thank you Alice.
Logically I know its ok, but the last couple of days my circuts are a little shorted out.
😉 I already have shark bite/pirate sword/snake wrestling scar....maybe this will be my kracken wrangling one.
Helps to hear from you Alice, the work thing is bugging me . Im a free lance gardener, been slowly building a wee business which is limping now... but might be lucky if I manage the times and tasks.
One day at a time. ♡
*more compulsive baking required, vanilla and Chocolate for everyone.