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Hello, is anyone starting chemo in February 2015?

BevyC
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi Herewego! How are you feeling?

I just want to get started... having bloods tomorrow and the chemo on Thursday!

Good wig shop just the other side of Sutton (Joseph's)....so got wig and hat but I am going to try cold cap.

Keep well....lovely to hear from you and let me know how you get on

Love Bev xx

Herewego
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi Bevy, welcome to the 'club'.
I had my first chemo at the same hospital last Tuesday and you are even more prepared at I'm at the moment 🙂
You'll be in safe hands on Thursday xx
BevyC
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi All!

I am starting chemo on Thursday (19th) at the Royal Marsden in Sutton.I'm so pleased there's a forum like this for us all. I have found it all very positive and so helpful from ladies who have/are going through chemo.Had my hair cut v short, got my wig, false eyelashes etc.Ready to rock!!!

Good luck to us all!!

Lots of love, hope and cheers xxxxxx

PS Even tho cancer 'sucks' it's lovely to be part of your group xxxx

Re: Hello, is anyone starting chemo in February 2015?

Hey SimoneSmiley Happy

Hope the bloodtest goes ok.

working from home is good if you can,wish I had a job like that ,would be ideal.Im keeping as busy as i can,but can drive you crazy being at home so much!

Hope you have a good week.

Rachelxxx

Simone67
Member

Re: Hello, is anyone starting chemo in February 2015?

Hospital called to go for blood test in the morning! Weight off my mind.
I was refereed occupational health, so I've got a meeting with them next month, may Opp for home working for a few days a week.
Yes, I hope Fralan is doing ok!!

Re: Hello, is anyone starting chemo in February 2015?

Just wondering if Fralan is okay?Havent heard from here since a week ago...hopefully she is fine😊X

Re: Hello, is anyone starting chemo in February 2015?

That's okay Gazzlyn..don't know if it will be of any use but thought it was worth a mention 😊Xx

Re: Hello, is anyone starting chemo in February 2015?

Hey Simone😊
I know it's crazy isn't it!Im on day 11 and just starting to feel 'human ' again,so I guess I'll get about 10/11 days feeling okay,then next lot!
Don't know what everyone else is going about work?I haven't gone back yet as work on a busy shop floor,I'm getting paid sick pay,but don't know what to do about going back.
Hugs,X

Re: Hello, is anyone starting chemo in February 2015?

😊glad your getting better!Id be bored too...at least at home you can do things.
Fingers crossed here for you to go home soon Xxxx
Simone67
Member

Re: Hello, is anyone starting chemo in February 2015?

So glad to hear your on the mend!
Simone x
dennymac
Member

Re: Hello, is anyone starting chemo in February 2015?

Hey guys I am feeling much better thanks 🙂 the doctor over the weekend is quite junior and told me my neutrophils are now 9!!! I'm hedging my bets until they are repeated tomorrow! So hopefully moving to oral antibiotics and maybe home tuesday? Hope so am soooooo bored!!!! Xx
gazzlyn
Member

Re: Hello, is anyone starting chemo in February 2015?

Thanks very much Rachel I will have a look xxx
Simone67
Member

Re: Hello, is anyone starting chemo in February 2015?

Thanks Rachel
Spoke to the Ono said it all stops at day 14 and should start to feel better, but she also stated by that time we will be getting better were ready for the next one! ... Lovely
Ive been in my house since the first one not been out, just no energy!!
Big hugs
Simone xx
gazzlyn
Member

Re: Hello, is anyone starting chemo in February 2015?

Hope your feeling better dennymac xx
gazzlyn
Member

Re: Hello, is anyone starting chemo in February 2015?

Thanks Alison xx
gazzlyn
Member

Re: Hello, is anyone starting chemo in February 2015?

Thank you Anniegran, lots of good advice your right xx

Re: Hello, is anyone starting chemo in February 2015?

Hi AnnigranSmiley Happy

Glad things are going well for you and your 2nd session.Keep it up with the cold cap if its working for you

Hugs rachel X

Re: Hello, is anyone starting chemo in February 2015?

Hey DennymacSmiley Happy

You still in hospital?

Hope you get home soon lovely,not fun at all poor you....fingers crossed you have a better time on your next chemo..hugs Rachel X

Re: Hello, is anyone starting chemo in February 2015?

Hey SimoneSmiley Happy

I should have had a chat to you this morning,couldnt sleep tooSmiley Sad...not since I started Chemo,my sleeping has been rubbish.Its normal to worry about your temperature,im always conscious of it too,but Ive only taken Paracetomal if ive got a headache,but not if I feel warm...if your worried though,ring the number they gave you just for peace of mind.

Hope you are feeling better soon,take care lovely

Hugs RachelX

 

Simone67
Member

Re: Hello, is anyone starting chemo in February 2015?

Thank you all for your advice.
Dennymac that was useful, I did kind of feel like that but temp kept saying 36.6 the highest I got was 37.2 but it went down and nothing past that.
I'll give the hospital a call today
Thanks again
Simone
Xx
Anniegran
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi Penfold, hope all goes well with your pic line and best wishes for the 24th. Ann
dennymac
Member

Re: Hello, is anyone starting chemo in February 2015?

Anniegran thanks 🙂 the bad thing was I didn't feel "sick" just a bit warm so everyone listen to your bodies and if u feel warm or very cold (also a big sign of fever) check your temp and if it's over 37.5 for an hour call the helpline or the chemo ward cause that's what I did and I was severely neutropenic!

Still on IV antibiotics but bored more than anything! Hope everyone else doing ok xx
Anniegran
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi dennymac, sorry you have had to stay in hosptal. Hope you are feeling better. X
Anniegran
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi Lynda, good advice has already been given here. Just wanted to wish you well for Thursday.
Anniegran
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi Simone, hope you are feeling better. The hospital told me I did the right thing not taking paracetamol as it can mask a fever. I should ring or visit the hospital if you still have headache or toothache and get their advice.
Anniegran
Member

Re: Hello, is anyone starting chemo in February 2015?

Hello everyone, I am on day 2 after 2nd dose of Taxol. Still taking antibiotics but feel good, just a little tired and achy. Power Port is working fine, so much easier, wish they had inserted it before treatment. I have not had mastectomy yet and my lump seems to be softer and slightly spongy. Hope it's shrinking. Could be wishful thinking.
I think my eyelashes are thinning out and also have a supply of tissues for nose. Hair OK at moment. Wore the dreaded cap for 2nd time, same as first time first 20 mins are the worst.
dennymac
Member

Re: Hello, is anyone starting chemo in February 2015?

Hey 🙂

Painkillers are a tricky one. Standard is paracetamol but it can mask a temperature so of stay off that while you're at day 10 so if I were you I'd take ibuprofen and see if that helps xx
Simone67
Member

Re: Hello, is anyone starting chemo in February 2015?

Can't sleep!
I'm now into day 9 of the first FEC, had my ups and downs, but now I can't seem to stop taking my temperature and thinking something different should happen after day 10. I keep getting up to this nearly every hour, that now I can't sleep with worry !! Think I'm going mad!!
Can I ask what painkillers are people using as I've also got this crashing headache & feel toothache coming on!
Sorry to rant!!
Big hugs
Simone xx
Alison_46
Member

Re: Hello, is anyone starting chemo in February 2015?

Welcome Lynda
I have to say my first chemo was fine, it was the cold cap that I found tricky, I think you probsly really have to want to do it & I have realised im not that bothered by my hair loss.
Just listen to your body and rest when you need to(I fell asleep while visitors chatted!!).
I used sick bands (sea bands I think) which helped with nausea, as others have said drink plenty and try & eat plenty of fruit/veg. I found this hard as all I fancied was carbs - quavers/tomato juice/pizza??
Good luck, we're all rooting for you xx

Re: Hello, is anyone starting chemo in February 2015?

Evening AlisonHeart..a very happy Valentines to you too!

May try a glass of wine myself,but havent had one since before chemo,so hoping it wont make me feel sicky!

Sounds like you had a good day shopping todaySmiley Happy.......The bio oil sounds a bargain!

Enjoy the rest of your evening

love Rachelxx

Alison_46
Member

Re: Hello, is anyone starting chemo in February 2015?

Evening ladies
Here's 🍷💐🍫 to wish you all a Happy Valentines!!
Trying 1st glass of red tonight since chemo, wanted to give you all a couple of tips I found Bio oil at Primark £7.40 for a large bottle, I think that's very cheap?
Been out & bought some lovely wool & a bag to keep my crafty bits in!!
Rachel - I'm hoping Barbie and Ken are Arsenal or Liverpool supporters as I only had red & white! Lol
Love & hugs xx

Re: Hello, is anyone starting chemo in February 2015?

Okay Judi...well let us know...hopefully it will be,so you can just get on with it xxxx
ollisj6
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi Rachel supposed to be on Thursday but i think they will have to adjust depends on blood results xxxx

Re: Hello, is anyone starting chemo in February 2015?

Hey Judi😊
So sorry you had a rubbish start to your chemo...do you know when your next one is and are they adjusting things to make it better for you?
Hugs lovely
Rachel xxx

Re: Hello, is anyone starting chemo in February 2015?

Re: Hello, is anyone starting chemo in February 2015?

Glad we could help a little Lynda😊...think it helps so much to tell each other our experiences,and how we feel about things.
I'm triple negative,so chemo is what I can only have and apparently it' works really well with this type😊...I've found a brilliant podcast by an American social worker that was discussing TNBC,I sat listening to it for ages and it answered so many things for me...I'll add the link if your interested or anyone else?
Take care, Rachel xxx
http://www.lbbc.org/content/download/2922/26583/tf/powerpoint/file/Triple%20Negative%20Breast%20Canc...
ollisj6
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi ladies just a quick update feeling slightly more human god that first dose of Taxotere nearly finished me off had blood taken on Friday but unless there is an improvement with wbc i wont be having chemo see what onc says on Monday i just want to crack on with it and get on with my life im usually a very positive person but it seems to have knocked the stuffing out of me im scared it happens again and i end up in hospital again developed an awful eye infection as well bring it on i say!!!!!! anyway enough of me moaning hope you have all  been spoilt today happy Valentines Love Judi xxxxxxxxxxxxx

gazzlyn
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi Sandie, Dennymac, Rachel & Natalie - Thankyou all for your replies which are reassuring.  I am having just FEC according to paperwork no T on the end lol.  It feels so strange to be going through this as there was nothing in my sentinal node and they said they got good clearance.  The reason I am going through the chemo route is because i was ER - 3/8 no nearer a negative then positive and because I am Her2 - and PR - they said I was almost like a triple negative.  My cancer was grade 3, and because they do not think hormone therapy will work for me I have no other back up.  So chemo recommended just in case!  I think once I get started I will feel much better, the waiting is always worse isnt it.  I will follow all your hints and tips and start downing that water Smiley Wink

 

Hope you all have a lovely day and evening

Lynda xxx

Nattyoo
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi Lynda,
I had my first FEC last week. The worst part was the anxious anticipation and I came home on what felt like a high that it wasn't as bad as I feared. Some people have asked for something to help sleep the night before.
Ask for lots of anti sickness meds. I was fortunate and wasn't nauseous and it made dealing with the tiredness much easier. My main reflection on the week post chemo is that it was like having had bad flu and then feeling very post- viral. But it's do-able and the relief when one gets back to 'normal' is very uplifting.
Good luck and don't worry too much in advance. We're all seeing from this forum, that when things do take an unexpected turn, there are systems in place to look after us.
Natalie x

Re: Hello, is anyone starting chemo in February 2015?

Hello LyndaSmiley Happy

Welcome to our lovely little group....think I chatted to you on another thread when we first started our journey?

I think we all had slightly different feelings about the chemo and our first one,but probably all in all,felt the same...it is a journey into the unknown in some ways, but I dont think it was anything like i thought it would be.Are you having FECT? thats what im on, 6 x 3 weekly sessions.I took a friend for my first one,water and little snacks in case I felt hungry,as I didnt eat much for breakfast.There is a thread on here with a great list of hints and tips,which is worth reading.If your having a cannula in your hand,I had probs getting the needle in as my veins are very thin,so they put my hand in a bucket of very warrm water to make the veins stand out a bit,so one lady said on here to use one of those hand warmers in you can before hand,just before you go in?Are you using the cold cap?I didnt,but some ladies have.

I hope you have a good weekendSmiley Happy

Hugs rachelxxx

 

dennymac
Member

Re: Hello, is anyone starting chemo in February 2015?

Hey Lynda

I think generally it works about the same for most people but ill tell you how mine went. I have what they call a 2 stop treatment so I get bloods and see my oncologist one day (fri for me) then I come in for my chemo on a Tuesday.

Depends what type of chemo you are getting but the actual drug took between 1-2hours to go through with 30 mins of saline before and after.. I am using the cold cap so that adds a bit of time on to mine too before and after (only 30 mins). I am having herceptin and since I had that the first dose they have to observe you for 6 hours (was a long day!!). You get regular coffee/tea and biscuits and a nice lunch (usually soup and a sandwich). It's really informal and everyone has a recliner chair which is lovely, I brought in my own blanket from home too just so it felt more like home and I got chatting to the other people there. You kind of bond with all the other patients cause you're all there for the same thing and it breaks the ice a bit. My main tips are to take someone the first time of U can, it just made me feel a bit less like a deer caught in head lights... Take your anti sickness like CLOCKWORK even if u don't feel sick take those babies on the dot cause stopping the sickness is so much easier than controlling it once it hits! Take a blanket of u can (you can sometimes feel a bit cold and it's nice if u fancy a snooze in your recliner), drink lots of water. Some people take frozen pineapple juice cubes to suck on (in a thermos) apparently it helps the taste/sickness.

You are gonna be just fine and once u start u will be happy that you are blitzing those Cancer cells!!! Any other questions just ask! We are all really great and it's nice to have people going through the same thing xx
keepmumsane
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi lynda

I dont know how it goes in the uk..but I rocked up, waited for my weigh in, .. once they get close to plugging you in they have a row of seats at our ward they call the bus stop,  has a cute sign and everything 😉

I sat in a very comfy lazy boy chair. As I have a portacath they checked it was working by running saline through which hydrates you too. Drink lots of water ... they gave me anti nausea tablets before I started.

Anyway then they connected the chemo drip, chatted to me and watched how I was, they're careful first time. 

The actual chemo took 2 hours. The people next to me were friendly and chatty. Everyone ate their sandwiches and drank their drinks. 

Afterwards they run a little saline to clear the port, and you get up and go home. 

You should have a chart with your drug regime and anti nausea drugs to take.  If you follow the times it will be ok. I missed my first set and was a wreck,  but after that it was ok.

Thats my experience,  it was actually really pleasant considering how freaked out I was at the thought of it.

Hugs

Sandie xxx

gazzlyn
Member

Re: Hello, is anyone starting chemo in February 2015?

Hi Ladies,  I have been reading through the posts tonight and think its time I joined you February ladies as just got my date to start chemo on Feb 19th.  Having Fec x 6, bloods on Tuesday....can anyone tell me what to expect on my first time?

 

Hope you all have a good restful night Heart

 

Lynda xxx

Re: Hello, is anyone starting chemo in February 2015?

Penfold you will be fine...have you got someone to go with?X
pjw
Member

Re: Hello, is anyone starting chemo in February 2015?

Pen fold if you read through the threads you'll see that's a normal reaction. This is a rollercoaster of a ride and we have all reacted differently to our first cycle. You will find support here. Lots of us going through treatment in all its forms and those reassuringly who have come out the other side.

There are going to be scary times, but they will pass. Try to think of treatment as time that you have to give to gain time down the line. I'm sure the ladies here will send positive vibes and words your way. Big hug x

Re: Hello, is anyone starting chemo in February 2015?

😕poor you,this Chemo is blooming rubbish isn't it....but know it's doing it's job and making us all better in the end...just having to go through all this in the meantime.
Hope you get back home soon lovely,let us know ok?X
dennymac
Member

Re: Hello, is anyone starting chemo in February 2015?

My infection markers ain't massively high but standard treatment is IV antibiotics and fluids. Been given an injection to boost my White cells and won't get out until my neutrophils are above 1.0.... They were 0.3 on admission lol so couple of days in I think xx

Re: Hello, is anyone starting chemo in February 2015?

Oh no Dennymac 😕so sorry to hear that.Did you get an infection?Are you home yet?X

Re: Hello, is anyone starting chemo in February 2015?

I've ordered a headscalf off AnnaBandana too😊...got a wig ordered through the Focus center in the hospital,but not sure if I'll wear it yet.I don't think many ladies liked the cold cap much?X
dennymac
Member

Re: Hello, is anyone starting chemo in February 2015?

Hey! Well my temp spiked to 38 during the night so ended up in A&E and now am an inpatient being treated for neutropenia Grrr xx