Im not sure about the low neutrophils,but think you have to get it boosted with injections?Have you spoken to the chemo dept?You could also have a chat on other threads on here,if you search for info you need.
its not a silly question that you asked about the cold cap lovely,but think you have to do it from the beginning...but your hair will start growing back very soon,some ladies say it grows back after 3rd/4th chemo?
good luck Thursday,Ive got my 3rd fec thursday too...fingers crossed ours goes okay
sorry youve been feeling so low lovely.....this is normal and at some point all of us feel like this,I know this doesnt help,but so you know your not alone.Some ladies go to their doctors for mild anti depressents,as I think you cannot take some natural products(would have to check with your onc),or my BC nurse referred me to a phycologist that the NHS supply for people going through chemo,its worth asking?Are you getting enough sleep?As that can make a difference.I find gentle exercise and fresh air lifts my mood a bit.
Hope you perk up a bit and you know we are always here for you to chat too.
take care and big hugs Rachel xx
HI Rachel and all you lovely 'chemo' ladies!
How are you all today? Hope you are all coping well so far.
Can I just ask - any tips for low neutrophils? Dreading my next lot of chemo on Thursday incase I get ill again... really wimpy I know!!! Also (now this may sound like a really stupid question - but please bear with me!!) if like me you've shaved your head, after first course of chemo did you still wear cold cap (not sure if cold cap still works on a 'baldish' head!!!!) - thinking it may help hair grow back quicker?
You can all LOL now!!!!!!!
Lots of love to you all and good luck this week! Bev
Sorry havent been on here much lately, second chemo was Thursday and although no sickness this time (change of meds seems to have worked) I have felt really low in mood and the tiredness is just frustrating the life out of me. I have had 2 melt downs today feeling really sorry for myself. Maybe I am expecting to feel so much better than I thought isnt helping. My hair is all but gone and my scalp is fine now thank goodness, no soreness. I just need to pick myself up from this low mood as I hate feeling like this How are you doing?
Love Lynda xxx
Well week three after 1st FEC was ok, managed to drive for the first time post op (6 weeks ago) which was brilliant as I was getting cabin fever. Day 14, my hair started coming out so my daughter gave me a number 2 buzz cut and a couple of turbans for Mothers Day.
Had my boob pumped up again as well but I think it was overinflated with saline as the internal tubing from the port is coiled underneath and pressing on the ribs. Can hardly breathe with stabbing pains in my ribs and shoulder! Thought at first I was having a heart attack or pneumonia but will see if surgeon can see me tomorrow and 'let some air out of the tyre' LOL.
So it is FEC 2 next week and have written up my diary to plan the good days and bad days which I experienced last time. This is what I wrote: Day before chemo stocked up on essentials for the anticipated siege. Day of chemo 8pm stomach and head feeling fluttery, woke every 2 hrs, baseline temp 36.78C. Day 1-2 can't do neulasta jab myself for white blood cells - nurse neighbour does it, drinking loads of water, bright pink urine! (from epirubicin), temp dropping to 35.5C, shivery despite several layers, feel like I'm in a coma, waking every 2 hrs cos of steroids but no sickness with emend and ondansetrin. Day3-5 absolutely paralysed with fatigue, taste buds shot at, everything foul, feeling very sorry for myself. Taking propolis capsule, fizzy echinacea tablet, manuka honey. Dates for constip. Mouth and throat sore, salt rinses and plenty water. Mistake going to M and S day 3, nearly passed out. Feel about 92. Forcing self to eat and walk round garden. Day 6 nausea took metclopramide, used trekking pole to hobble to hospital 10 min walk taking 45 mins. Physio for cording, PICC line flush, skin broken down on back, 2" blister dressed. Told to ignore low temp reading. Day 7-9 Gums really pale, hair and teeth tingling, feel faint, anaemia? Brain completely zapped.Taking floradix iron supp. Day 10-11 Hurray! feeling better, appetite ok, did some washing and shopping.Short lived as fell into bed at 8pm as usual. Lots of gingery and spicy foods.Day12-16. brain working again, scalp fizzing, hair loosening on head, all 'down below' hair fallen out! Arghh. PICC line flush, saw onc, MUGA scan result 79%, is that good? Persephone trial for herceptin, randomly selected for 6 mths of jabs, hurray, should be done by October then can have permanent implant in. FEC/Taxotere and Herceptin regime should all be over by Christmas! Cut fingernails growing like mad, had head shaved, friend says I look like Lady Voldemort, charming...Went for a drive in countryside, saw lambs, did some gardening. Day 19 get prepared for FEC 2 - do at least a week's shopping to avoid collapsing in shops, make soup, start drinking lots of water and take iron supp and propolis starting now.
With hindsight I think I got off lightly as I was given a bucketload of anti-sickness meds. But I was really scared wondering what was happening. I took supplements despite being advised not to - found the propolis helped me cope with the chemo, manuka honey soothed throat and iron supp helped the anaemia. Loads of water helped flush me through and avoided headaches and constipation. Meditation and a relaxation cd. A daily Sudoku helped my brain to work. Getting dressed and forcing myself to walk and eat each day apart from 2 days when I literally couldn't move. As I live alone, a network of friends and neighbours texting or visiting me, taking out the bins and doing shopping, fetching meals, helped keep my spirits up, a sign on my back door saying 'come in' and one on the front door saying 'knock loudly and give me chance to get to the door'.
So it is the cr@@pest thing I've ever experienced but it is doable, just hoping the next lot isn't as bad as the onc makes out 'you will feel worse with the cumulative effects' - oh well just get my head down and get on with it, ticking them off the calendar and planning nice things for the good weeks.
glad you are still feeling okay.Are you not entitled to sick pay?I thought by law every employer has to give their employees so much sick pay?
No I dont have the injections,my blood count has been good so far,touch wood.
Im going to ask the nurses when my next blood test is due next Tuesday,as im concerned how they are going to do my next one with my veins the way they are.
hugs Rachel xx
Just a little reminder that our General Live Chat starts tonight from 8.30pm to 9.30pm. If you have any questions about your breast cancer diagnosis, then you may want to join this chat service to speak with Jane, our specialist nurse who is happy to help. You can also speak with others who face similar challenges to you.
If you are new to our Live chat service and would like to join, please click on the link below to register.
Glad shes much better,kids are amzing how they just bounce back!
Good your feeling okay and anti biotics working...im on them too for my sore arm,after my 2nd chemo the veins in my arm got very sore and swollen,but apart from the soreness,the swelling has gone thank goodness!
Enjoy the rest of your eveing Annie Xx
Is the PICC line much better then?Thats what I think I need,as my veins are so sore and running out of which ones to use!Did they decide at your last chemo?My third is due next Thursday and Im dreading them doing the blood test and putting canula in
Hugs Rachel xx
Hello Lankylass,welcome to our lovely group of ladies
You sound like youve been through it a bit already...its all so much isnt it,feels like your life is taken over by it!I had a masectomy too,but not skin sparing,so hoping to get reconstruction at the end of the year,depending how my treatment goes.You have the same chemo plan as me,except for the Herceptin,as Im triple neg.Glad the first wasnt too much of a nightmare for you,its usually days 3-7 I feel the worst,but yes fatigue is constant I think.
Hope the rest of your week is good lovely.
Glad your starting to feel a bit better...Im on day 14 and feel actually normal,apart from sore arm too and tiredness..oh and chemo brain.Feel like its going to be like this for so long,but know once weve all finished our bodies should start getting back to our old selves again(minus the crappy cancer)!
Have you got one more FEC on your 3rd next week?
Hugs Rachel xx
Im so sorry your having a rubbish time after your 2nd chemo...your poor thing and spending two days in hospital with an infecion...hope your feeling a bit better now?Hows your daughter too?
hugs lovely..Rachel xx
Just catching up with you all...havevnt been on here for a couple of days as my computer been offline,all sorted now,so back to the internet world!
Hey Lynda,how did your 2nd chemo go?Hope it went okay and you dont get many side effects...Ive got my 3rd next Thursday,then doxetaxel after that.Hows your scalp?Ive been using tea tree cream and its soothed it alot,so hoping the spots clear up so I can shave it.
Hi lanky, cheerful atittude 🙂
I had to get my nurse to do my tummy jabs, seems daft but as he said its just not normal to he doing that!
I agree, take everything and say thanks..
Chemo brain and lots of naps, thought I could work but decided that I was dellusional, so pottering around the house it is
Hello everyone. I started my first FEC on 25th February so I am now on day 13. Well I survived! Having said I wasn't having a mastectomy, no way...well I had a skin sparing one with expander implant a month before my first chemo. Home after two days then carrying my drain bottles around in a shoulder bag for ten days.
Then I was told I was Her2+ and one positive node so chemo was advised....no I wasn't having that! Of course it was a no-brainer, daft if I didn't. Then PICC line inserted. Blimey what the body can put up with, but easier for the chemo to be administered. And a MUGA scan...heck no I am NOT having a radioactive isotope injection....oh go on then.
The day of the first chemo - what a lovely team of staff who put me at my ease. Sent home with a very expensive injection to give myself the next day to increase white blood cells, plus a bucket load of steroids and antisickness meds. No way was I giving myself a jab in the stomach however many hundreds of pounds it cost, so a nurse friend kindly did the honours.
I went to bed and waited for the worst of side effects but to be quite honest only Days 3-7 were really really awful and on a couple of days I was practically comatose with fatigue. One down two to go.
After three FECs I start three taxotere via PICC line and herceptin jabs for three courses the herceptin jabs for 6 months. I have been randomly selected for 6 mths rather than 12 with the Persephone herceptin trial (to see whether 6 mths is as effective as 12).
I've had my boob inflated with saline twice now so I look a bit more balanced! Somewhere along the way, my expander implant will be exchanged for a permanent one so that's something to look forward too! I'm not fit to drive after the first surgery yet and with 2 weeks out of three on chemo seemingly giving me fluffy bunny brain, I will have to time my activities round the chemo diary. Holiday? Work? Er.....pass.
Still smiling though!
Good Morning Everyone, Beautiful sunny day here today makes you feel a bit better with the sunshining doesnt it? Hope those that have just had chemo are feeling a little better today, feeling sick drains you. I have my second chemo on Thursday, beginning to feel anxious about it again! Seeing the Oncologist tomorrow and hoping he will adjust the anti sickness tablets. Hope you all manage to enjoy some of the sunshine today xxx Lynda xxx
Hey becky....just caught up with all your messages
What Sandie says is spot on....I did my exercises and just went careful and was driving after 4 weeks and feeling fine....book that holiday because thats my plan if I can,take my daughter away in October somewhere warm and a nice break away...we all deserve it after all our treatment...you will get a prothesis from your BC nurse like I did and can get swimming costumes for them to fit in and you wouldnt even know the difference....hugs lovely and you have a great Sunday too xxx Rachel
great idea lovely with the brown sugar and olive oil...going to try that when my scalp feeling better.
Im like you..brought crusty rolls,pickles and got chunky cheese...just really fancied it!