Joyce - yes it is annoying to have hair dropping out all over the place, especially in the kitchen!! I wore a buff or wide head band while cooking until about session 3 but don't need it now as that has stopped - reckon it is now the same as pre- Chemo. So hang on in there. The site cancerhaircare.co.uk (not .com as I said before, sorry) has lots of info and especially the Lister Hospital booklet about scalp cooling gives advice on when treatment finishes and how to look after your hair, including when you can colour it. This info is useful for non-cold cappers too.
keepmumsane - my thoughts are with you because this is something that can happen to any of us. Waiting for results is the pits, and can drive us to distraction. So rant away. Nice that you had someone to talk to outside the family. Chin up - we are here for you. xxx
Thank you all Nice to have so many hugs. im so grateful for this forum, its carried me over the worst days.
Just keeping on swimming. 🙂 as best we can. Ive managed today to tuck it somewhere that doesnt make me cry every 5 minutes, talked to a senior who comes in and brings me meals and I used to work for 5 months ago as her gardener. She has seen it all, at her age everyone has something, helped to talk to someone not family, and so practical. Actually this is when counselling becomes useful I guess.
You ladies sure help though. So very very much.
The hair thing is bonkers really, sometimes I still get startled in the morning. Ooo and that chilly noggin at 2am. Having to train my frosty fingered girls not to hug my head last thing at night..brrr
Love to you all xxxx
Just read your post and wanted to say that you have no need to apologise for posting anything on here, we are all here to listen and support in everyway we can. Its a place where you can open up and express your worries and concerns. I am so sorry you are going through this terrible worry at the moment. Sending you lots of positive vibes and hugs xxx
Well - Im in March on chemo and strangely just popped onto this thread to see how people a bit futher on & some old friends might manage some of the SEs - bad nausea etc here. & I saw your post ; much much love to you xxxx You hang in there honey xxx Im so sad that you are back in a bit of a waiting game and hope that the MRI comes through nice and quickly so you can get it out of the way. You are already on a great regimen to fight it and I'll be thinking of you lots over the next few days.
Just read your post (not really supposed to be on this board at all but I like to see how old friends are getting on) and just wanted to say how sorry I am that you're having to deal with this latest news. It must be so frightening for you, wish I could offer some help but I'm sending you shedloads of positive vibes and big soft hugs.
Day 4 after chemo 3.
Feeling very deflated this time round. Had an unexpected conversation with my onc, said there are lumps on my liver that showed up on the CT scan when I started chemo. The results got delayed and then last time I had the hospital drama so they've only just got to it. So now I have to wait for an MRI. That should take a couple of weeks, then results on my next chemo day. If its secondary bc its a total kick in the guts, which I didnt really want to dump here but its too frightening to talk about really. Could be something else, but she wasnt super positive given my diagnosis originally.
In fact it feels wrong to put it here. Sorry my lovelies.
On a chemo se note.... 1st chemo lost taste for tea, number 2 got it back, 3 its gone again, but milk is delicious! Oooo and baths!
Funny thing how your tastes change.
I jumped into the shower, my favourite jeans zipper lost its teeth...so figured I best shave for skirt wearing...
Surprisingly, no hair on legs. .and um other bits. Lol..
Hugs my fellow Fabulous ladies, sending love xxxx
Thanks everyone for your advice on the cold cap - you are saying what I want to hear - I need to stick with it and not get hung up on the cobwebs down my back. Didn't actually find the cold cap too uncomfortable so that's not an issue - just grateful to everyone for their honesty and encouragement - bless you all Joyce
Thank you Marli - that is really helpful. I'm on day 19 and thought I was doing so well with my hair that I was quite alarmed when i was how much was on my back - in the grand scheme of things its probably not a huge amount but it was more than I had imagined. My scalp was sore but I have taken paracetamol and its fine now. I am concerned that its going to be the same every day now till the end of treatment but from what you are saying this might not be the case. I'm really looking after it - simple shampoo once a week, no heat, silk pillowcase etc and more than anything want to keep my hair - I know with everything else I'm reading on here it sounds pathetic but my hair is affecting me far more than I ever imagined. Thank you for your encouragement, fingers crossed for next cycle - all the best Joyce
Doglover - please, please please give the cold cap a chance. I have used it for 5 (out of 6) Taxotere and have nearly a full head of hair. The condition is not as good as normal but it looks fine.
I know it works only for certain chemotherapy treatments but presume that as your care team have started it yours is one that it does work with.
I only wash it once a week and am very gentle with it.Use additive free shampoo and Simple conditioner.
After my first one I did lose a small clump which worried me , as well as the side boards and some of back hairline where cap does not fit.But these patches were thin as opposed to bald. But after the 2nd treatment I lost less and this continued until yesterday I had lost just the same as I would before treatment.
Where the small clump and side boards came out they have now started to grow back.
I bought some "fill-in" powder from Amazon for about £6 to help cover the thinning patch and sideboards and it works well.
I would recommend reading the Scalp Cooling section of cancerhaircare.com which is full of useful information. You can also obtain a PDF document from the Lister Hospital specifically about cool caps which is the most useful thing I have read.
You do need to be really be motivated to continue as it is not the best experience in the world. I had lost my hair 5 years ago and was desperate to keep my hair this time so have kept going and am thrilled with the result.It has really helped keep me going through this horrid experience. Feel free to message me if you have any queries and I will try to help.
Good luck - it really is worth it. Marli xx
Hope your all feeling okay and not too down in the dumps! or suffering too many horrid side effects How are you Rachel after your 3rd Chemo? I am now day 9 after second Fec and found side effects very different this time around. I have experienced awful heartburn/indigestion which makes me not want to drink anything which obviously isnt great! GP has prescribed something for me (not sure what yet) but will pick prescription up on Monday. Got a small ulcer on the tip of my tongue which is annoying too. Mood very up and down and it doesnt take much for me to be in tears. I know things will become more "normal" once chemo has finished but it feels such a long long way off. I am finding myself envious of everyone that seems to be happy and carrying on with their life. I feel really vulnerable when out on my own and actually dont feel like I am in the same world as anyone else. Does anyone else feel like this? Oh and to add to this I keep having little heart pulpatations which is weird. I had echocardiogram Friday so I guess if any concerns it will be picked up.
How I wish life was normal again without all this cancer crap!
Hope you all have a good weekend and sorry for my moaning and not offering anything in the way of support xxx
Morning ladies was just browsing your thread (I am a November starter) was interested in your plan to do some colouring and thought I would tell you about Mandalas which are intricate patterns to colour and they are very theraputic ands soothing. I used them when I was working mentoring troubles children and found them invaluable in relaxing the child allowing them to talk to me. I am sure you could google it but there is a new art book on sale now with very similar patterns 1st one is 99p including some crayons. Good luck I hope you enjoy Sue xx
pjw - Oh yes colouring in!! Remember at college when stressed loved the art lesson as it took away all the stress. Going to dig out my nieces books and pencils. Fab idea.
Thankyou showing us your diary..its very helpful and I do one too,so I know what to expect after each session....sometimes they are slightly different,but its good to know and especially the good days,so you can plan ahead and do nice things
Did you expect it to feel like this,or worse?I think in my head it wouldnt be so bad some days,but think its the fatigue and chemo brain i didnt expect.
Take care lovely and hope the rest of your week goes well
Hugs rachel xx
Hope it all goes well for your this week with your appointments....I still have my period after 2nd chemo,but didnt have the injection you had.Im sure your oncologist will be able to put your mind at rest and explain that.
Im switching to T after this next one,gawd knows what thats going to be like!
You carrying right through with the 6?
Hugs Rachel xx